Guest guest Posted October 4, 2002 Report Share Posted October 4, 2002 ann, You sound exactly how I felt when Sam graduated. I really wanted someone to say that he needed a second band, but no one did. Also, our insurance still has not paid for his first band, and we really couldn't afford to pay for another band at the time. I'm happy to say that things are turning out fine for Sam. He has had continued rounding and I have even been brave enough to buzz his hair a few times this summer. He has the same cowlick issue, but he really does look fine. I have days when I don't think so, but for the most part I'm happy with how he looks. My wish for you is that keeps rounding. Regardless, I'm sure he has come a long way. Now let's see some pictures. Gail, Sam and Sara's mom, DOC grads Re: Digest Number 2247 Funny, I haven't been on this board in quite some time and the first post isexactly my issue. is going to be one year old on Sat and has beenin his band a little over 3 months. Charlotte at CT said that this will bethe final 2 weeks. Unfortunately, I'm not jumping for joy because I reallyfeel that his flat area is still too flat. It definitely has come a longway - the bottom of his skull rounding nicely but the right middle, rightbehind his right ear is still flat and bothers me. Charolette does notrecommend another band and feels he has had some nice growth. I'm sure thatis the case but I'm still not thrilled. She said that we can certainly cando another band but she wouldn't recommend it. We see are craniofacialspecialist next week so I'm curious to hear his opinion. I sure hope has some good growth in the next 2 weeks. My other concern is that's cowlick is right on his flat spot and I'm afraid that it will nothide the residual flatness.Also, would ins cover a second band?ann/NJDOC Band 3 months and counting down... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Ann: No problem - I hope that you can just stick with only Humira and be benefitted by that - wouldn't just one med be nice? Sorry the Lyrica did not help you - it has helped me especially with nerve pain in my legs at night - but we all respond differently to these meds. Take care - Kathe in CA --- eaprescott <aphillips@...> wrote: > Good Grief, I've been away for a month. I'm sorry > Kathe, I'm just > now getting back to this group. I've now been off > the Plaquenil for > 2 weeks and feel no difference so that tells me it > had stopped > working. As for another RA drug, I'm only on the > Humira twice a > month. I guess my rheumy thought the Lyrica would > help. I tried it > for a week and a half but didn't notice any > difference, no > migraines, just nothing. I go back to my doc the > first week of May > so I guess we'll talk then about what's next. > > Thanks again for your speedy reply, I appreciate it! > > Ann > > > > > > > > > > > > Hi! I haven't posted in a v-e-r-y long > time. > > > But > > > > > here goes: My rheumy > > > > > has given me Lyrica to take for the fibro > > > symptoms. > > > > > Has anyone here > > > > > taken it? I tried searching for a thread > here > > > but > > > > > came up with one post > > > > > and no reply. I've read every bit of > literature > > > on > > > > > it, but I need some > > > > > personal experiences, side effects? > > > improvements? > > > > > I'm finally on > > > > > Humira and the RA is under control but > something > > > has > > > > > made the fibro > > > > > flare up. > > > > > > > > > > Thanks in advance! > > > > > > > > > > Ann > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Kathe > > > > > > > > " To ride a horse is to borrow freedom. " > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Medicare Plan B does not pay for Gleevec. You will need Plan D to pick up some of the cost. Margot Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.