Re: dealing with side effects

June 17, 2009

The doc prescribed me an anti-nausea medication, and I took that along with

Gleevec at bedtime. For the most part, I slept right through any side effects

for a good four years. Then I started to get a problem with fatigue and it only

got worse. I would sleep 12 hours at night and another 3 or 4 during the

daytime. So I recently switched from Gleevec to Sprycel. So far, so good.

From: jclmal1998@...

Date: Wed, 17 Jun 2009 17:06:38 +0000

Subject: [ ] dealing with side effects

I have not posted in a while. Dr took me to 600 mg gleevec in jan. I

felt like in a fog. Took it back to 400 mg. I still get tired , stomach issues

and nausea. I have to work. I work outside. Just hoping someone has ideas , real

frustrated.

chris

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June 17, 2009

I've been lucky, not had much of this. Be sure to always take your Gleevec with

a full meal, never on an empty stomach! On the rare occasion that I do feel ill,

I lie down, or recline in the recliner, for about a half hour. It usually goes

away quickly.

>

> I have not posted in a while. Dr took me to 600 mg gleevec in jan. I

felt like in a fog. Took it back to 400 mg. I still get tired , stomach issues

and nausea. I have to work. I work outside. Just hoping someone has ideas , real

frustrated.

> chris

>

June 17, 2009

Chris-

The side effects are very physically and emotionally wearing. I thought they

would get better in time and some have but the sickness that comes if I don't

eat enough -never changes-feels like the flu. I feel that I have been very

fortunate- I do get some days when I feel normal. I was able to change my job

within my agency- reduced stress and reduced client contact. I sit at a desk

now. Would you be able to be retrained for a different job through state

disability? If your quality of life is severly impacted please talk to your doc

about a change of drugs. It is not enough to just be alive --now that there are

second and third generation drugs with less side effects.

If my quality of life becomes severly impaired I would ask to try something else

but right now- the side effects are tolerable. Good luck to you.

I recently wrote an article for a weekly that I write for about living with CML

and side effects. If anyone would like to read it the link addy is :

webbweekly.com. They edited my piece- I noticed some changes so any mistakes

are theirs-lol.

The article is on the local news page ( I think) entitled- Climbing My Everest

and my byline- China Neal. Currently I am awaiting results from a biopsy on my

hand regarding the little nodules under my skin. I did some research and I'm

hoping they can rule out cutis- either the calcification or leukemia one.

Chi

From: richard_troxel <richard.troxel@...>

Subject: [ ] Re: dealing with side effects

Date: Wednesday, June 17, 2009, 10:28 AM

I've been lucky, not had much of this. Be sure to always take your Gleevec with

a full meal, never on an empty stomach! On the rare occasion that I do feel ill,

I lie down, or recline in the recliner, for about a half hour. It usually goes

away quickly.

>

> I have not posted in a while. Dr took me to 600 mg gleevec in jan. I felt like

in a fog. Took it back to 400 mg. I still get tired , stomach issues and nausea.

I have to work. I work outside. Just hoping someone has ideas , real frustrated.

> chris

>

June 17, 2009

Do you mind me asking what you were taking for nausea?

Thanks , Eva

--------------------------------------------------

From: " Rosen Lum " <rrosenlum@...>

Sent: Wednesday, June 17, 2009 1:11 PM

< >

Subject: RE: [ ] dealing with side effects

>

> The doc prescribed me an anti-nausea medication, and I took that along

> with Gleevec at bedtime. For the most part, I slept right through any side

> effects for a good four years. Then I started to get a problem with

> fatigue and it only got worse. I would sleep 12 hours at night and another

> 3 or 4 during the daytime. So I recently switched from Gleevec to Sprycel.

> So far, so good.

>

> From: jclmal1998@...

> Date: Wed, 17 Jun 2009 17:06:38 +0000

> Subject: [ ] dealing with side effects

>

> I have not posted in a while. Dr took me to 600 mg gleevec in

> jan. I felt like in a fog. Took it back to 400 mg. I still get tired ,

> stomach issues and nausea. I have to work. I work outside. Just hoping

> someone has ideas , real frustrated.

>

> chris

>

> _________________________________________________________________

> Hotmail® has ever-growing storage! Don't worry about storage limits.

>

http://windowslive.com/Tutorial/Hotmail/Storage?ocid=TXT_TAGLM_WL_HM_Tutorial_St\

orage_062009

>

June 18, 2009

I hate medicine- so nothing...I just ride it out. I take the gleevec because I

want to live. I don't recommend not taking anything- it is a private choice.

But I'm sure there are things to take.

From: Eva <evaob365@...>

Subject: Re: [ ] dealing with side effects

Date: Wednesday, June 17, 2009, 12:43 PM

Do you mind me asking what you were taking for nausea?

Thanks , Eva

------------ --------- --------- --------- --------- --

From: " Rosen Lum " <rrosenlumhotmail (DOT) com>

Sent: Wednesday, June 17, 2009 1:11 PM

Subject: RE: [ ] dealing with side effects

>

> The doc prescribed me an anti-nausea medication, and I took that along

> with Gleevec at bedtime. For the most part, I slept right through any side

> effects for a good four years. Then I started to get a problem with

> fatigue and it only got worse. I would sleep 12 hours at night and another

> 3 or 4 during the daytime. So I recently switched from Gleevec to Sprycel.

> So far, so good.

>

> groups (DOT) com

> From: jclmal1998 (DOT) com

> Date: Wed, 17 Jun 2009 17:06:38 +0000

> Subject: [ ] dealing with side effects

>

> I have not posted in a while. Dr took me to 600 mg gleevec in

> jan. I felt like in a fog. Took it back to 400 mg. I still get tired ,

> stomach issues and nausea. I have to work. I work outside. Just hoping

> someone has ideas , real frustrated.

>

> chris

>

> ____________ _________ _________ _________ _________ _________ _

> Hotmail® has ever-growing storage! Don't worry about storage limits.

> http://windowslive. com/Tutorial/ Hotmail/Storage? ocid=TXT_ TAGLM_WL_

HM_Tutorial_ Storage_062009

>

June 20, 2009

I'm 19 now, and I absoloutly have to take a nausea pill everytime i take my

gleevec 400 mg, and make sure im not taking it ona n empty stomache. I was told

that being tired just comes with the leukemia. Its something you just have to

bare through. Avoid caffine because it give you a rush then you crash. I sleep

9-10 hours a night. then try to get 20-40 minute naps during the day, sometimes

this works great for me. One of my most severe side effects is pain in my knee

and hip joint. I will limp for days sometimes. but all in all, its better then

having a transplant and dealing with THOSE side effects. Hope I helped a little.

>

> I have not posted in a while. Dr took me to 600 mg gleevec in jan. I

felt like in a fog. Took it back to 400 mg. I still get tired , stomach issues

and nausea. I have to work. I work outside. Just hoping someone has ideas , real

frustrated.

> chris

>

June 20, 2009

I take Zofran. If the nausea is real bad, i recomend taking it in the morning,

and 20 minutes before taking the meds, at one point in time i had to take it

three times a day. no side effects with zofran, it doesnt mess with any other

drugs so far either

>

> Do you mind me asking what you were taking for nausea?

> Thanks , Eva

>

> --------------------------------------------------

> From: " Rosen Lum " <rrosenlum@...>

> Sent: Wednesday, June 17, 2009 1:11 PM

> < >

> Subject: RE: [ ] dealing with side effects

>

> >

> > The doc prescribed me an anti-nausea medication, and I took that along

> > with Gleevec at bedtime. For the most part, I slept right through any side

> > effects for a good four years. Then I started to get a problem with

> > fatigue and it only got worse. I would sleep 12 hours at night and another

> > 3 or 4 during the daytime. So I recently switched from Gleevec to Sprycel.

> > So far, so good.

> >

> > From: jclmal1998@...

> > Date: Wed, 17 Jun 2009 17:06:38 +0000

> > Subject: [ ] dealing with side effects

> >

> > I have not posted in a while. Dr took me to 600 mg gleevec in

> > jan. I felt like in a fog. Took it back to 400 mg. I still get tired ,

> > stomach issues and nausea. I have to work. I work outside. Just hoping

> > someone has ideas , real frustrated.

> >

> > chris

> >

> > _________________________________________________________________

> > Hotmail® has ever-growing storage! Don't worry about storage limits.

> >

http://windowslive.com/Tutorial/Hotmail/Storage?ocid=TXT_TAGLM_WL_HM_Tutorial_St\

orage_062009

> >

June 23, 2009

Sorry for taking so long to respond. I've been " quarantined " to my bed due to

burns on my leg. I just can't for the life of me remember what it was called,

although I'm sure I'd recognize it if I heard it. Mezicline, maybe?

From: evaob365@...

Date: Wed, 17 Jun 2009 15:43:44 -0400

Subject: Re: [ ] dealing with side effects

Do you mind me asking what you were taking for nausea?

Thanks , Eva

--------------------------------------------------

From: " Rosen Lum " <rrosenlum@...>

Sent: Wednesday, June 17, 2009 1:11 PM

< >

Subject: RE: [ ] dealing with side effects

>

> The doc prescribed me an anti-nausea medication, and I took that along

> with Gleevec at bedtime. For the most part, I slept right through any side

> effects for a good four years. Then I started to get a problem with

> fatigue and it only got worse. I would sleep 12 hours at night and another

> 3 or 4 during the daytime. So I recently switched from Gleevec to Sprycel.

> So far, so good.

>

> From: jclmal1998@...

> Date: Wed, 17 Jun 2009 17:06:38 +0000

> Subject: [ ] dealing with side effects

>

> I have not posted in a while. Dr took me to 600 mg gleevec in

> jan. I felt like in a fog. Took it back to 400 mg. I still get tired ,

> stomach issues and nausea. I have to work. I work outside. Just hoping

> someone has ideas , real frustrated.

>

> chris

>

> __________________________________________________________

> Hotmail® has ever-growing storage! Don't worry about storage limits.

>

http://windowslive.com/Tutorial/Hotmail/Storage?ocid=TXT_TAGLM_WL_HM_Tutorial_St\

orage_062009

>

June 24, 2009

My goodness - what did you do to yourself to get burns on your leg?

Regards,

[ ] dealing with side effects

>

> I have not posted in a while. Dr took me to 600 mg gleevec in

> jan. I felt like in a fog. Took it back to 400 mg. I still get tired ,

> stomach issues and nausea. I have to work. I work outside. Just hoping

> someone has ideas , real frustrated.

>

> chris

>

> __________________________________________________________

> HotmailR has ever-growing storage! Don't worry about storage limits.

>

http://windowslive.com/Tutorial/Hotmail/Storage?ocid=TXT_TAGLM_WL_HM_Tutoria

l_Storage_062009

>

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