side effect/taste

[Guest guest]

Has anyone experienced losing their sense of taste sense of taste since starting

gleevec. My dad cannot taste anything and eats only to survive. He also has no

appetite. I have not seen this from anyone as a side effect. It started right

after he started the gleevec and got a lot worse after the heart problems which

came after the gleevec. By the way, you guys are awsome and I am going to plug

my dad in so he can write himself.

[Guest guest]

and Lori

Yes - I put up my hand -

Foods at times had a metallic taste - such as when you go to the dentist

Tea the drink - tasted odd and even herbal teas started to taste yuk

Can no longer drink both

In fact quite a number of foods I could not eat and became a funny taste

It is like being pregnant in a way - foods start changing - you think that a

lemon meringue pie will

taste like a lemon meringue pie but no it tastes like something disgusting so

you never have it again

or cannot bring yourself to eat that food again ever.

It maybe that there are many blood vessels in the tongue - a theory ? Who Knows

but food started to taste shocking for about 6 months when first on glivec

Then I could not get over the nausea and vomiting and the Big " D " at times

Then penny dropped - I was becoming lactose intolerant (a type not a true

lactose intolerant person)

When I gave up milk products, yoghurts, butter, margarines, being 5 hours each

side of glivec being

taken - what a difference plus I am drinking huge amounts of water to keep

hydrated so that also I think

assists

So if I am having anything diary I eat late in the afternoon - as I take my

glivec early in the morning with breakfast.

Glivec pamphlet does state not to have glivec with anything other than water or

apple juice but it doesn't state

at other times near to the time you take the medication. Plus you must have

good stodgy food not light food in

your stomach. It becomes a vicious cycle of not enough food to absorb the

glivec with heaps of water and

feeling like you do not even want to have any food because you are feeling

lousy.

See if going off dairy may help - just to see if he too is having these side

effects caused by dairy like myself.

Your Dad probably does not feel like eating if he is not feeling well - what

about soups or make up foods from a

slow cooker that are easy to digest.

Love to your Dad - nothing worse then feeling not that well in yourself - Great

if he would touch base -

At least he has you to support him and I can tell you that is what your Dad

needs - support at this time.

Keep well yourself

Sue (Aussie)

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