Guest guest Posted June 23, 2009 Report Share Posted June 23, 2009 Hi Everyone, especially Jackie and Beth....I have some pretty good QPCR results. They don't always get a good draw, so when my trial nurse called me she explained to me, the last good bone marrow draw they had prior to the last one, was Jan. it was 5.02 The one they did on June 6, is .109. I have been on Ariad since April 13. I am thinking this is pretty fantastic, Please keep in mind, I am on 15 mg, and have NO side effects. I asked if I was doing so well on 15, will they still put me on 30mg and she said, yes, because it is a trial, 28 days after they start someone, Jackie and Beth, on 30, they will put me on 30. On another note, I put on some sun tan lotion and sat in the sun and went in the pool this morning for 1 1/2 hours. I exercised my chubby little legs most of the time, but basically wanted to see if I would tan and how I would tan on this drug. This is of course without telling or asking permission from Dr. Talpaz, as he always says NO. The most difficult time I have with Ariad is eating. I am always hungry and have to eat a light breakfast, wait two hours, take the pills and wait two more hours. It's the last two that are killing me. Then I get too hungry and cram anything I can get my hands on into my face! They just changed that, it was wait one hour after taking the pills, now it is 2. But really, I'm not complaining, I am happy as a pig in a pile of mud with this trial and wish the very same good results for Jackie and Beth. Blessings, Bobby -- a Doyle/dob 1929 DX /CML/1995/Interferon/hydrea 2/00 - Gleevec Trial, OHSU, Dr. Druker 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " 7/04 - Sprycel Trial, MDACC, Dr. Talpaz 3/05 - CCR 12/07 - Ended trial due to Pleural Effusion 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz #840 Zavie's Zero Club #840 Quote Link to comment Share on other sites More sharing options...
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