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Start date for Ariad - June

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Hi to all,

 

I have a tentative starting date for the Ariad trial - June 1st or June 8th. It

will be good to get it going as I will be off work and have the whole summer to

get on a new schedule.  I remain in HR but my PCR is greater than 100%, Dr

Cortes sees no reason to remain on HHT as it hasn't given me any cytogenetic

response in 2 years - I agree.  Time to move on!!

 

I will keep you posted. In the meantime I am enjoying the vacation from drugs

and ending the school year. 

 

Does anyone have some recomendations on apartments to stay at here in Houston?

Cheaper would be greatly appreciated! : )

 

God Bless all of you.  I'll keep you posted.

Jackie S.

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HI JACKIE, THE BEST OF LUCK WITH ARIAD. DO YOU START ON 15 MG? OR 8?

TO ME THIS DRUG IS LIKE SPRYCEL, I DIDN'T HAVE THE HEADACHE THOUGH LIKE I

DID WITH SPRYCEL. I HAVE NO SIDE EFFECTS. WELL, MAYBE I DO, BUT AT MY AGE

IT'S HARD TO SAY ARE THEY BECAUSE 80 IS AROUND THE CORNER, AND I AM SUPPOSED

TO HAVE ACHES AND PAINS, OR IS IT THE DRUG? WHO KNOWS. I HAD A BMA/BMB

YESTERDAY, THAT WILL MAKE THE SECOND SO THEY WILL HAVE A COMPARISON. IT WAS

A DRY TAP, BUT THEY DID GET A PIECE OF BONE, SO THAT SHOULD HELP. I WILL

KNOW THE RESULTS SOON, AND PASS THEM ON.

GOOD LUCK, I PRAY THAT THIS DRUG LOVES YOU!!! BOBBY

On Sat, May 9, 2009 at 12:46 PM, jackie schneider

<jschneider008@...>wrote:

>

>

> Hi to all,

>

> I have a tentative starting date for the Ariad trial - June 1st or June

> 8th. It will be good to get it going as I will be off work and have the

> whole summer to get on a new schedule. I remain in HR but my PCR is greater

> than 100%, Dr Cortes sees no reason to remain on HHT as it hasn't given me

> any cytogenetic response in 2 years - I agree. Time to move on!!

>

> I will keep you posted. In the meantime I am enjoying the vacation from

> drugs and ending the school year.

>

> Does anyone have some recomendations on apartments to stay at here in

> Houston? Cheaper would be greatly appreciated! : )

>

> God Bless all of you. I'll keep you posted.

> Jackie S.

>

>

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Jackie

Will you have to stay in Houston while you are on the trial?

Barb

>

> Hi to all,

>

> I have a tentative starting date for the Ariad trial - June 1st or

June 8th. It will be good to get it going as I will be off work and have

the whole summer to get on a new schedule. I remain in HR but my PCR is

greater than 100%, Dr Cortes sees no reason to remain on HHT as it

hasn't given me any cytogenetic response in 2 years - I agree. Time to

move on!!

>

> I will keep you posted. In the meantime I am enjoying the vacation

from drugs and ending the school year.

>

> Does anyone have some recomendations on apartments to stay at here in

Houston? Cheaper would be greatly appreciated! : )

>

> God Bless all of you. I'll keep you posted.

> Jackie S.

>

>

>

>

>

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