Re: Start date for Ariad - June, Bobby

[Guest guest]

Hi Bobby,

I thought Jody the research nurse said that I would be starting on 30mg. Does

that sound right? That's alot more than you are taking so maybe I

misunderstood. 

 

Did you feel more pain with a dry tap? That sounds very painful to me. I had

hopefully a good draw yesterday. Sometimes if the pulling of the marrow doesn't

hurt much, it's not a good specimen. I guess I'll find out in a few weeks.

Take Care - God Bless,

Jackie S.

From: Bobby Doyle <rmcd1929@...>

Subject: Re: [ ] Start date for Ariad - June

Date: Saturday, May 9, 2009, 12:45 PM

HI JACKIE, THE BEST OF LUCK WITH ARIAD. DO YOU START ON 15 MG? OR 8?

TO ME THIS DRUG IS LIKE SPRYCEL, I DIDN'T HAVE THE HEADACHE THOUGH LIKE I

DID WITH SPRYCEL. I HAVE NO SIDE EFFECTS. WELL, MAYBE I DO, BUT AT MY AGE

IT'S HARD TO SAY ARE THEY BECAUSE 80 IS AROUND THE CORNER, AND I AM SUPPOSED

TO HAVE ACHES AND PAINS, OR IS IT THE DRUG? WHO KNOWS. I HAD A BMA/BMB

YESTERDAY, THAT WILL MAKE THE SECOND SO THEY WILL HAVE A COMPARISON. IT WAS

A DRY TAP, BUT THEY DID GET A PIECE OF BONE, SO THAT SHOULD HELP. I WILL

KNOW THE RESULTS SOON, AND PASS THEM ON.

GOOD LUCK, I PRAY THAT THIS DRUG LOVES YOU!!! BOBBY

On Sat, May 9, 2009 at 12:46 PM, jackie schneider

<jschneider008>wrote:

>

>

> Hi to all,

>

> I have a tentative starting date for the Ariad trial - June 1st or June

> 8th. It will be good to get it going as I will be off work and have the

> whole summer to get on a new schedule. I remain in HR but my PCR is greater

> than 100%, Dr Cortes sees no reason to remain on HHT as it hasn't given me

> any cytogenetic response in 2 years - I agree. Time to move on!!

>

> I will keep you posted. In the meantime I am enjoying the vacation from

> drugs and ending the school year.

>

> Does anyone have some recomendations on apartments to stay at here in

> Houston? Cheaper would be greatly appreciated! : )

>

> God Bless all of you. I'll keep you posted.

> Jackie S.

>

>

[Guest guest]

Jackie, a dry tap in itself does not hurt more, it's just that she tried

over and over to draw something, and it just didn't happen. Today is when

it hurt, very sore, but not during the procedure.

I guess 30 mg would be right, Len started at 8, I am on 15, and Len's next

dose I think will be 15. Mine should double, so by then it might be 60?

who knows? I hope I have news of the bio on Mon., most likely its too

soon. Good luck, so far, I love this drug!! Bobby

On Sat, May 9, 2009 at 11:00 PM, jackie schneider

<jschneider008@...>wrote:

>

>

> Hi Bobby,

> I thought Jody the research nurse said that I would be starting on 30mg.

> Does that sound right? That's alot more than you are taking so maybe I

> misunderstood.

>

> Did you feel more pain with a dry tap? That sounds very painful to me. I

> had hopefully a good draw yesterday. Sometimes if the pulling of the marrow

> doesn't hurt much, it's not a good specimen. I guess I'll find out in a few

> weeks.

> Take Care - God Bless,

> Jackie S.

>

>

>

> From: Bobby Doyle <rmcd1929@... <rmcd1929%40gmail.com>>

> Subject: Re: [ ] Start date for Ariad - June

> <%40>

> Date: Saturday, May 9, 2009, 12:45 PM

>

> HI JACKIE, THE BEST OF LUCK WITH ARIAD. DO YOU START ON 15 MG? OR 8?

> TO ME THIS DRUG IS LIKE SPRYCEL, I DIDN'T HAVE THE HEADACHE THOUGH LIKE I

> DID WITH SPRYCEL. I HAVE NO SIDE EFFECTS. WELL, MAYBE I DO, BUT AT MY AGE

> IT'S HARD TO SAY ARE THEY BECAUSE 80 IS AROUND THE CORNER, AND I AM

> SUPPOSED

> TO HAVE ACHES AND PAINS, OR IS IT THE DRUG? WHO KNOWS. I HAD A BMA/BMB

> YESTERDAY, THAT WILL MAKE THE SECOND SO THEY WILL HAVE A COMPARISON. IT WAS

> A DRY TAP, BUT THEY DID GET A PIECE OF BONE, SO THAT SHOULD HELP. I WILL

> KNOW THE RESULTS SOON, AND PASS THEM ON.

> GOOD LUCK, I PRAY THAT THIS DRUG LOVES YOU!!! BOBBY

>

> On Sat, May 9, 2009 at 12:46 PM, jackie schneider

> <jschneider008>wrote:

>

> >

> >

> > Hi to all,

> >

> > I have a tentative starting date for the Ariad trial - June 1st or June

> > 8th. It will be good to get it going as I will be off work and have the

> > whole summer to get on a new schedule. I remain in HR but my PCR is

> greater

> > than 100%, Dr Cortes sees no reason to remain on HHT as it hasn't given

> me

> > any cytogenetic response in 2 years - I agree. Time to move on!!

> >

> > I will keep you posted. In the meantime I am enjoying the vacation from

> > drugs and ending the school year.

> >

> > Does anyone have some recomendations on apartments to stay at here in

> > Houston? Cheaper would be greatly appreciated! : )

> >

> > God Bless all of you. I'll keep you posted.

> > Jackie S.

> >

> >