Fililng/Paperwork Question

[Guest guest]

Hi all,

Hope my fellow CMLers are doing well today...

I have decided to finally sort out all of my paperwork/records and wondered what

filing system the rest of you are using? (If you are using one at all!). I can

think of several different ways to sort out my info, and would like to aim to

" do it right " the first time! lol

Beth

[Guest guest]

Beth,

when I first started out I kept everything in a LLS binder that I got. I

just kept everything in date order. That was 10 years ago. Now, that I

have been PCRU for the past 4 years or so, and I have 2 doctors with most of

my records, I have finally thrown out the 5 loose leaf books that I had!

CML is no longer forfront in my mind any more. I just hope that happens for

you, also. Best to you.

On Fri, Jun 26, 2009 at 10:35 AM, <bethgalliart@...> wrote:

>

>

>

>

> Hi all,

>

> Hope my fellow CMLers are doing well today...

>

> I have decided to finally sort out all of my paperwork/records and wondered

> what filing system the rest of you are using? (If you are using one at

> all!). I can think of several different ways to sort out my info, and would

> like to aim to " do it right " the first time! lol

>

> Beth

>

> .

>

>

>

[Guest guest]

Hi Beth, I have a very systematic approach to filing. I have saved all my

lab work for 14 years, it's in a box in the attic. That way I know where to

find it. LOL . Bobby

On Fri, Jun 26, 2009 at 10:35 AM, <bethgalliart@...> wrote:

>

>

>

>

> Hi all,

>

> Hope my fellow CMLers are doing well today...

>

> I have decided to finally sort out all of my paperwork/records and wondered

> what filing system the rest of you are using? (If you are using one at

> all!). I can think of several different ways to sort out my info, and would

> like to aim to " do it right " the first time! lol

>

> Beth

>

>

[Guest guest]

Thanks ! I hope so too!

I think for now, I'm trying to gain some control of my life, and this is one

tangible way to do it!

Beth

Re: [ ] Fililng/Paperwork Question

Beth,

when I first started out I kept everything in a LLS binder that I got. I

just kept everything in date order. That was 10 years ago. Now, that I

have been PCRU for the past 4 years or so, and I have 2 doctors with most of

my records, I have finally thrown out the 5 loose leaf books that I had!

CML is no longer forfront in my mind any more. I just hope that happens for

you, also. Best to you.

On Fri, Jun 26, 2009 at 10:35 AM, < bethgalliart@... > wrote:

>

>

>

>

> Hi all,

>

> Hope my fellow CMLers are doing well today...

>

> I have decided to finally sort out all of my paperwork/records and wondered

> what filing system the rest of you are using? (If you are using one at

> all!). I can think of several different ways to sort out my info, and would

> like to aim to " do it right " the first time! lol

>

> Beth

>

> .

>

>

>

[Guest guest]

That is an excellent filing program--currently, I have piles on my bed in my

guest bedroom..lol

Re: [ ] Fililng/Paperwork Question

Hi Beth, I have a very systematic approach to filing. I have saved all my

lab work for 14 years, it's in a box in the attic. That way I know where to

find it. LOL . Bobby

On Fri, Jun 26, 2009 at 10:35 AM, < bethgalliart@... > wrote:

>

>

>

>

> Hi all,

>

> Hope my fellow CMLers are doing well today...

>

> I have decided to finally sort out all of my paperwork/records and wondered

> what filing system the rest of you are using? (If you are using one at

> all!). I can think of several different ways to sort out my info, and would

> like to aim to " do it right " the first time! lol

>

> Beth

>

>

[Guest guest]

And mine is in a HUGE file (gets wider every month) in my desk drawer. I am

lucky that my health coverage provides all our test results on line so when

ever I want to see anything or compare I just do it online. That's is

Kaiser. Hopefully in the future everyone will have this system. That is

what Obama wants to have-it will save paper-and I am all for saving a Tree.

Sharon T

_____

From: [mailto: ] On Behalf Of Bobby

Doyle

Sent: Friday, June 26, 2009 7:59 AM

Subject: Re: [ ] Fililng/Paperwork Question

Hi Beth, I have a very systematic approach to filing. I have saved all my

lab work for 14 years, it's in a box in the attic. That way I know where to

find it. LOL . Bobby

On Fri, Jun 26, 2009 at 10:35 AM, <bethgalliart@

<mailto:bethgalliart%40comcast.net> comcast.net> wrote:

>

>

>

>

> Hi all,

>

> Hope my fellow CMLers are doing well today...

>

> I have decided to finally sort out all of my paperwork/records and

wondered

> what filing system the rest of you are using? (If you are using one at

> all!). I can think of several different ways to sort out my info, and

would

> like to aim to " do it right " the first time! lol

>

> Beth

>

>

[Guest guest]

Dear Bobby,

I hope that at your advanced years you can remember where your attic is. Just

kidding (I hope you knew that)!

Bob , Granger, Indiana

>

[Guest guest]

BOB, I DON'T EVEN OWN AN ATTIC !!!!

On Sat, Jun 27, 2009 at 11:38 AM, <bob-stewart@...> wrote:

>

>

> Dear Bobby,

>

> I hope that at your advanced years you can remember where your attic is.

> Just kidding (I hope you knew that)!

>

> Bob , Granger, Indiana

>

>

>

> >

>

>

>

--

a Doyle/dob 1929

DX /CML/1995/Interferon/hydrea

2/00 - Gleevec Trial, OHSU, Dr. Druker

6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

7/04 - Sprycel Trial, MDACC, Dr. Talpaz

3/05 - CCR

12/07 - Ended trial due to Pleural Effusion

4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

#840 Zavie's Zero Club #840

[Guest guest]

>

>

>

> I have decided to finally sort out all of my paperwork/records and wondered

what filing system the rest of you are using? (If you are using one at all!). I

can think of several different ways to sort out my info, and would like to aim

to " do it right " the first time! lol

>

>

>

> Beth

_______________________

Hi Beth,

First, much good luck with this trial for you.

When I have been in a trial (early Gleevec and then early Sprycel) I have often

gotten some empty pages of calendar months (from office supply type store) and

then kept some basic info that way. I like being able to easily see some results

over time, and this lets you see a full month at a time. Example.....I can note

basic blood results (mainly hgb) and then chart when I take a Procrit

shot....then it is easy to see how long until the hgb fell, how long between

shots, etc. You could track your white count this way or whatever needs watching

more. Then I keep all the blood results (cbcs and chemistries in a looseleaf

notebook). On the calendar I also put any significant Rx....like a BMB, lung

x-ray, etc.....this is my favorite way to store information.

In the looseleaf, you can have dividers for blood tests, other procedures.....I

also have one for 'important results'.........

When I have been in a trial, I have had to keep the daily diary of symptoms for

the drug company, but I never like their form....not enough space......so I

usually do the calendar thing even for that.

Now, almost 11 years post dx....I am ready to start dumping some of the old

stuff that really has no use. With CML, you kind of are where you are at this

point in time?

Again, good luck.....see if you can find a dragon for wherever you are staying

(maybe you are at home and just commuting to the trial?).....a dragon in the

house brings you good luck and wards off evil things. I found a wonderful

macrame dragon at an art fair.

C.

[Guest guest]

Yeah Bobby, but I hear you have bats in your belfry!

Bob , Granger, IN

> > >

> >

> >

> >

>

>

>

> --

> a Doyle/dob 1929

> DX /CML/1995/Interferon/hydrea

> 2/00 - Gleevec Trial, OHSU, Dr. Druker

> 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> 3/05 - CCR

> 12/07 - Ended trial due to Pleural Effusion

> 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> #840 Zavie's Zero Club #840

>

>

>

[Guest guest]

You found out my secret, that's also where I store my papers!

On Tue, Jun 30, 2009 at 4:04 PM, <bob-stewart@...> wrote:

>

>

> Yeah Bobby, but I hear you have bats in your belfry!

>

> Bob , Granger, IN

>

>

>

> > > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > a Doyle/dob 1929

> > DX /CML/1995/Interferon/hydrea

> > 2/00 - Gleevec Trial, OHSU, Dr. Druker

> > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> > 3/05 - CCR

> > 12/07 - Ended trial due to Pleural Effusion

> > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> > #840 Zavie's Zero Club #840

> >

> >

> >