Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 Hi & lil' Sophie, Welcome to our group. We're so glad to have you. My, you and Sophie are having a rough time of it. It sure sounds as if your candida could have started with birth control and diet pepsi in college. It is possible your milk supply didn't fully come in because of yeast overgrowth, which interferes with absorbing nutrients and causes numerous functional problems. For your breasts you can apply coconut oil directly on them several times a day. It is a natural antifungal and will help your raw and red nipples, and it will also help Sophie's thrush when she nurses. I hope you had liver function tests before starting on Diflucan, and that you are tested once a month while you are taking them. Diflucan is very hard on the liver; nystatin is safer because it does not get absorbed beyond the intestines. You must have been given nystatin oral suspension for Sophie's thrush - it kills candida on contact. Please do check into your lactose-free formula and make sure it is not based on soy. Soy is very damaging and is not good for anyone, esp. babies. Were you given the lactose-free formula because Sophie is allergic to milk and lactose intolerant? If not, it is best to make your own formula from whole milk. Commercial formulas will not provide the nutrients Sophie needs. You are correct to believe you and Sophie will not be able to cure the thrush if you do not do the entire candida program, including the diet recommended in my article, an antifungal and acidophilus. Please read my article " How to Successfully Overcome Candida " to understand all aspects of the candida program, esp. the diet. Mainly the candida overgrowth is in yours and Sophie's intestines, and you have to cure it there. > So my questions are this: What is safe to take/eat while breastfeeding? ==>, all of the foods recommended in my diet are safe for you to eat while you are breastfeeding. They are nutrient-dense foods and some basic supplements that will build up your immune system, and help your body do its job of healing. > What do I need to do to my shirts and bras and Sophie's bottles to kill the yeast? ==>Regular laundering of clothes is fine, and you can dip Sophie's bottle in boiling water. Candida does not survive well outside of the body because it requires warmth and moisture to grow. >Is the regular protocal for getting rid of candida safe for me to > do? ==>Yes, it is very safe and totally natural. It is important to start on the diet first, and do each step at a time. Do get back to us with any more questions. We are here to help you. We have other moms with babies who are members as well. The best to you & Sophie, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 Hi Bee, Thanks for answering all my questions! I will pick up some coconut oil this week, as well as the other antifungals to take. As long as the die off won't hurt the baby, I'm all on board! In going through all this trouble with Sophie, my mom confessed that I too had a lot of stomach problems as an infant, and also had a lot of ear infections. I was on tons of antibiotics as a child, so I guess my problem goes way back. In fact, my grandmother told me that my mom also had thrush a lot so we may be looking at three generations of this. As far as the formula goes, my husband has a sensitivity to milk, so originally we were placed on a soy formula. She took that for about six weeks and had a lot of colic. We switched to Alimentum which is a protein hydrosolate formula and she was instantly better. We tried the lactose free for two days but switched back to Alimentum yesterday because her colicky episodes returned. The Alimentum is very expensive, so that's why we were running a little experiment with the lactose free. I wonder if there was soy in it though because she had the same problems with that that she did with the soy formula. After three months, I've read that the stomach is better developed. At that time I'd like to look into trying a milk based formula, or perhaps making my own, as you suggested. It would certainly be a lot cheaper than $25 a week! I will definitely talk to my doctor about getting my liver checked! The pediatrician prescribed it to me, as he does for many women I hear, and I didn't know about the liver damage. Thank goodness I only have a few days left. I will reread the article, as I skimmed it the first time. I'm going to start the program next week...and let you all know how its going! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 , What did the doctor give you for Candida...Difflucan?? Thanks and welcome, Barb > I will definitely talk to my doctor about getting my liver checked! > The pediatrician prescribed it to me, as he does for many women I > hear, and I didn't know about the liver damage. Thank goodness I > only have a few days left. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 Barb, I got the diflucan from my daughter's pediatrician because we suspected that the thrush had traveled up into my milk ducts. > > I will definitely talk to my doctor about getting my liver checked! > > The pediatrician prescribed it to me, as he does for many women I > > hear, and I didn't know about the liver damage. Thank goodness I > > only have a few days left. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 It's my new rule of thumb to take the 'oldest' effective drug out there if I take any at all because the FDA isn't overseeing testing of drugs anymore. They are leaving it up to the pharmaceuticals themselves. Not that there is anything wrong with Difflucan but I think it is smarter to take Nystatin first. I read somewhere that doctors themselves tend to take and give to their own families older medicines that have been out on the market long time. > > Barb, > > I got the diflucan from my daughter's pediatrician because we > suspected that the thrush had traveled up into my milk ducts. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Hello all - My husband was diagnosed with CML on May 9th 2009. He had symptoms for about 8-10 weeks, night sweats, joint pain and fatigue but we just passed that off as a bad flare up of his Ulcerative Colitis (with similar symptoms) that he has battled with for about 28 years. Finally he saw the doctor about his colon problems and as a result of a routine blood test, getting ready for a colonoscopy, this frightening " white blood count cell thing " reared it's ugly head. I tried to stay calm, figuring it had to be an infection, but indeed we received the diagnosis just three days later. A bottle of Gleevec (400 mg) was FedEx'd to our doorstep the next day. The first blood test showed his WBC at 210,000 and after 2 weeks it came down to 180,000. It appears that Gleevec is doing it's thing. My husband has a ton more energy and even laughs like he used to. For now his side effects seems to be limited to bad cramps and a puffy face, but he's not complaining. The next blood test is on 6/23 so we'll see what that reveals. Aside from good old-fashioned support, I need help understanding all the terminology...all the blood stuff. I mean is a WBC of 1.8 the same as 180,000? Platelets, hemoglobin, RBC, I'm so confused! I will go to my husband's next doctor's appointment with him so I can question as much as possible (he's not so good at that). In the meantime I feel a little paralyzed and hope I can ask some stupid questions here to prep for the appointment. Thanks for hearing me out. Thanks for forming this group. I look forward to being a part of it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Hi , Welcome to the club that nobody really wants to be a member of. Keep asking questions. After a while you will get to understand everything. Like said, make sure that you get a copy of all the tests. Once you put two of them side by side it is pretty obvious as to how well you are doing. Side affects are at their worst in the first month or two and then they diminish. When you go to the next appointment make sure that you write down all your questions. Also, if you have a tape recorder (digital) bring it along. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of Zema Sent: June 9, 2009 8:49 PM Subject: [ ] I'm new here... Hello all - My husband was diagnosed with CML on May 9th 2009. He had symptoms for about 8-10 weeks, night sweats, joint pain and fatigue but we just passed that off as a bad flare up of his Ulcerative Colitis (with similar symptoms) that he has battled with for about 28 years. Finally he saw the doctor about his colon problems and as a result of a routine blood test, getting ready for a colonoscopy, this frightening " white blood count cell thing " reared it's ugly head. I tried to stay calm, figuring it had to be an infection, but indeed we received the diagnosis just three days later. A bottle of Gleevec (400 mg) was FedEx'd to our doorstep the next day. The first blood test showed his WBC at 210,000 and after 2 weeks it came down to 180,000. It appears that Gleevec is doing it's thing. My husband has a ton more energy and even laughs like he used to. For now his side effects seems to be limited to bad cramps and a puffy face, but he's not complaining. The next blood test is on 6/23 so we'll see what that reveals. Aside from good old-fashioned support, I need help understanding all the terminology...all the blood stuff. I mean is a WBC of 1.8 the same as 180,000? Platelets, hemoglobin, RBC, I'm so confused! I will go to my husband's next doctor's appointment with him so I can question as much as possible (he's not so good at that). In the meantime I feel a little paralyzed and hope I can ask some stupid questions here to prep for the appointment. Thanks for hearing me out. Thanks for forming this group. I look forward to being a part of it. Quote Link to comment Share on other sites More sharing options...
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