Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. From: serenitywon@... Date: Mon, 6 Jul 2009 18:47:15 +0000 Subject: [ ] Tasigna Sprycel question Hello, I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band,Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without?) How long before or after food?Side effects? Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. SharonS _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 I also had serious QOL issues with Gleevec and switched to Tasigna. As stated, you cannot eat or drink two hours before a dose or one hour after. It has many less side effects than Gleevec, at least for me, especially in the GI area. Within 30 days, I was able to reach PCRU which I was Sent from my iPhone On Jul 6, 2009, at 2:47 PM, " serenitywon " <serenitywon@...> wrote: > > > Hello, > I am looking into info regarding the other options besides > Gleevec.Tasigna said it contains lactose.I am lactose intolerant > would this drug not be an option for me then? It also said to take > it every 12 hours on an empty stomach.I have to eat something every > 2 hours due to diabetis and prior surgeries(band,Wls)In order to get > enough nutrients in me.Seems this would be an issue for me as well > then. > > I couldn't find any info in the File section regarding Sprycel.I > searched the database for info and basically all I found was people > having problems with it and stopping use.Can those on this drug ofer > any info about it.How is it taken(with food/without?) How long > before or after food?Side effects? > > Any info for either med would be great if anyone cares to share > their experience.I want to switch off Gleevec due to QOL issues.Side > effects are really getting to me and I am tired of being tired and > bedridden at 41. > > Thanks in advance for any info offered.Hope everyone had a wonderful > 4th of July. > SharonS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 , Which med are you taking? Thanks SharonS - In , Rosen Lum <rrosenlum@...> wrote: > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > From: serenitywon@... > Date: Mon, 6 Jul 2009 18:47:15 +0000 > Subject: [ ] Tasigna Sprycel question > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello, > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band,Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without?) How long before or after food?Side effects? > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > SharonS > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live™: Keep your life in sync. > http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Sprycel, 100 mg. a day. So far, so sleepy! From: serenitywon@... Date: Tue, 7 Jul 2009 00:48:44 +0000 Subject: Re: [ ] Tasigna Sprycel question , Which med are you taking? Thanks SharonS - In , Rosen Lum <rrosenlum@...> wrote: > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > From: serenitywon@... > Date: Mon, 6 Jul 2009 18:47:15 +0000 > Subject: [ ] Tasigna Sprycel question > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello, > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band,Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without?) How long before or after food?Side effects? > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > SharonS > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > Windows Live™: Keep your life in sync. > http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Dear Sharon S I have been on Sprycel for two years. The side effects in the beginning there were awful headaches but they subsided nausea the big D but they too subsided. Fatigue (yes and no) i am able to be awake all day But If I were to sit still for more than 5 minutes sure I could go right to sleep. More like I am able to get relaxed easier. I have no problem falling asleep at night. Muscle pain I had to rebuild my stamina level yes it was painful in the beginning. Joint pain in knees hips and elbows. And do have to take pain med sometimes. And of course have water retention. My face looks like a stuffed toad frog. Honestly believe would go away with diuretics but Dr won't discuss the subject with me. I have weight gain approx 20 pounds . After 8 months of taking I was on a 11 week vacation ( Pleural effusion) and restarted with no problems since. started out on 140 mg and after vacation from it came back to 70 mg. Daily. It does not matter if I take it on an empty stomach or with food. But I do drink at least a gallon of water a day. Hope this helps. Anita ________________________________ From: serenitywon <serenitywon@...> Sent: Monday, July 6, 2009 1:47:15 PM Subject: [ ] Tasigna Sprycel question Hello, I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009   Dory Doggie ________________________________ From: serenitywon <serenitywon@...> Sent: Monday, July 6, 2009 7:48:44 PM Subject: Re: [ ] Tasigna Sprycel question , Which med are you taking? Thanks SharonS - In groups (DOT) com, Rosen Lum <rrosenlum@. ..> wrote: > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > groups (DOT) com > From: serenitywon@ ... > Date: Mon, 6 Jul 2009 18:47:15 +0000 > Subject: [ ] Tasigna Sprycel question > > > > > > > > > > > > > > > > > > > > > > > > SharonS, I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as am in the public library researchingfor some craft art for our group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. Blessings> Dory  Doggie > > Hello, > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > SharonS > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > Windows Live™: Keep your life in sync. > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > SharonS, > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as am in the public library researchingfor some craft art for our group of kids. I will let you know when I find it. > I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2009 Report Share Posted July 19, 2009 Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ________________________________ From: sopranograndma <sopranograndma@...> Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2009 Report Share Posted July 19, 2009 Oh wow Dory that is strange ________________________________ From: Dory Doggie <hellodoggie0009@...> Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2009 Report Share Posted July 19, 2009 Who and why would someone do that??? _____ From: [mailto: ] On Behalf Of anita Sent: Sunday, July 19, 2009 2:08 PM Subject: Re: [ ] Tasigna Sprycel question Oh wow Dory that is strange ________________________________ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie0009%40> > groups (DOT) <mailto:%40> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Gosh, that's a scarey thought...how could someone else post using your ID? I hope you can find out who's doing that! Blessings, From: Sharon Teichera <onthewtr@...> Subject: RE: [ ] Tasigna Sprycel question Date: Sunday, July 19, 2009, 9:29 PM  Who and why would someone do that??? _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of anita Sent: Sunday, July 19, 2009 2:08 PM groups (DOT) com Subject: Re: [ ] Tasigna Sprycel question Oh wow Dory that is strange ____________ _________ _________ __ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie 0009%40. com> > groups (DOT) <mailto:% 40groups. com> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Liveâ„¢: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Dory Doggie.....see below the messages. > >I take sprycel twice a day and have for 2 years 8 months. It doesn,t > matter if you take it with food or not no side effects now just had > small headaches for couple of weeks in the beginning and vomited for a > few times the first week , very easy drug to take at least for me, good > luck, marion > > Â > > Â Dory Doggie ___________________ Some people do not cut and paste well....if you read this message, you can see that it is from 'marion'............sometimes people start replying at any point and it drags along other messages. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Yeah I thought that is what happened but I was not sure. I did not think anyone would do otherwise. Why???? Take care and how are you doing? I don’t post too much about how I am doing. But I am doing well Sharon T _____ From: [mailto: ] On Behalf Of Cogan Sent: Monday, July 20, 2009 9:32 AM Subject: [ ] Re: Tasigna Sprycel question Dory Doggie.....see below the messages. > >I take sprycel twice a day and have for 2 years 8 months. It doesn,t > matter if you take it with food or not no side effects now just had > small headaches for couple of weeks in the beginning and vomited for a > few times the first week , very easy drug to take at least for me, good > luck, marion > > Â > > Â Dory Doggie ___________________ Some people do not cut and paste well....if you read this message, you can see that it is from 'marion'............sometimes people start replying at any point and it drags along other messages. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 I think a hacker was reading our emails, when I was at the library, and somehow this person decided to write a letter using my name. So, if that person found our site to be amusing, perhaps he/or she learned something about US?!  Dory Doggie ________________________________ From: Sharon Teichera <onthewtr@...> Sent: Sunday, July 19, 2009 4:29:40 PM Subject: RE: [ ] Tasigna Sprycel question  Who and why would someone do that??? _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of anita Sent: Sunday, July 19, 2009 2:08 PM groups (DOT) com Subject: Re: [ ] Tasigna Sprycel question Oh wow Dory that is strange ____________ _________ _________ __ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie 0009%40. com> > groups (DOT) <mailto:% 40groups. com> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Liveâ„¢: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Dory, I think marion was replying to a message and copy pasted but did not delete your name. All was a simple misunderstanding not a hacker. ________________________________ From: Dory Doggie <hellodoggie0009@...> Sent: Monday, July 20, 2009 5:34:43 PM Subject: Re: [ ] Tasigna Sprycel question I think a hacker was reading our emails, when I was at the library, and somehow this person decided to write a letter using my name. So, if that person found our site to be amusing, perhaps he/or she learned something about US?! Dory Doggie ____________ _________ _________ __ From: Sharon Teichera <onthewtrdiscobay (DOT) net> groups (DOT) com Sent: Sunday, July 19, 2009 4:29:40 PM Subject: RE: [ ] Tasigna Sprycel question Who and why would someone do that??? _____ From: groups (DOT) com [mailto:] On Behalf Of anita Sent: Sunday, July 19, 2009 2:08 PM groups (DOT) com Subject: Re: [ ] Tasigna Sprycel question Oh wow Dory that is strange ____________ _________ _________ __ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie 0009%40. com> > groups (DOT) <mailto:% 40groups. com> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I'm embarrassed to admit I've been guilty of that in the past! From: awristen1@... Date: Mon, 20 Jul 2009 16:43:51 -0700 Subject: Re: [ ] Tasigna Sprycel question Dory, I think marion was replying to a message and copy pasted but did not delete your name. All was a simple misunderstanding not a hacker. ________________________________ From: Dory Doggie <hellodoggie0009@...> Sent: Monday, July 20, 2009 5:34:43 PM Subject: Re: [ ] Tasigna Sprycel question I think a hacker was reading our emails, when I was at the library, and somehow this person decided to write a letter using my name. So, if that person found our site to be amusing, perhaps he/or she learned something about US?! Dory Doggie ____________ _________ _________ __ From: Sharon Teichera <onthewtrdiscobay (DOT) net> groups (DOT) com Sent: Sunday, July 19, 2009 4:29:40 PM Subject: RE: [ ] Tasigna Sprycel question Who and why would someone do that??? _____ From: groups (DOT) com [mailto:] On Behalf Of anita Sent: Sunday, July 19, 2009 2:08 PM groups (DOT) com Subject: Re: [ ] Tasigna Sprycel question Oh wow Dory that is strange ____________ _________ _________ __ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie 0009%40. com> > groups (DOT) <mailto:% 40groups. com> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Me too ________________________________ From: Rosen Lum <rrosenlum@...> Sent: Monday, July 20, 2009 7:15:27 PM Subject: RE: [ ] Tasigna Sprycel question I'm embarrassed to admit I've been guilty of that in the past! From: awristen1@... Date: Mon, 20 Jul 2009 16:43:51 -0700 Subject: Re: [ ] Tasigna Sprycel question Dory, I think marion was replying to a message and copy pasted but did not delete your name. All was a simple misunderstanding not a hacker. ________________________________ From: Dory Doggie <hellodoggie0009@...> Sent: Monday, July 20, 2009 5:34:43 PM Subject: Re: [ ] Tasigna Sprycel question I think a hacker was reading our emails, when I was at the library, and somehow this person decided to write a letter using my name.. So, if that person found our site to be amusing, perhaps he/or she learned something about US?! Dory Doggie ____________ _________ _________ __ From: Sharon Teichera <onthewtrdiscobay (DOT) net> groups (DOT) com Sent: Sunday, July 19, 2009 4:29:40 PM Subject: RE: [ ] Tasigna Sprycel question Who and why would someone do that??? __ From: Dory Doggie <hellodoggie0009@ <mailto:hellodoggie 0009%40. com> > groups (DOT) <mailto:% 40groups. com> com Sent: Sunday, July 19, 2009 2:59:44 PM Subject: Re: [ ] Tasigna Sprycel question Hey Cmler2, I didn't write that memo, because I'm not on Sprycel, nor Tasigna... wonder who wrote this memo??? Who ever wrote this memo, I never use the letter A....so you blew it! Dory Doggie ____________ _________ _________ __ From: sopranograndma <sopranograndma> groups (DOT) com Sent: Saturday, July 11, 2009 1:22:05 PM Subject: Re: [ ] Tasigna Sprycel question > > > > > > My doc said to take it with or without food, once or twice a day -- in other words, just to get that 100 mg. down me however. I am finding the same " induced coma " feeling as I had with Gleevec, but I'll ride it out for the time being and see if it passes. > > > > groups (DOT) com > > From: serenitywon@ ... > > Date: Mon, 6 Jul 2009 18:47:15 +0000 > > Subject: [ ] Tasigna Sprycel question > I saw the article posted on one of the site where Zavie, was inquiring if there was any black box warning on Spycel or Tasigna. I may have the article at my home, as I am in the public library researching for some craft art for our a group of kids. I will let you know when I find it. I think Suzzienovember had posted her Sprycel F .Y.I on Internet. > > Blessings> Dory  Doggie > > > > Hello, > > > > I am looking into info regarding the other options besides Gleevec.Tasigna said it contains lactose.I am lactose intolerant would this drug not be an option for me then? It also said to take it every 12 hours on an empty stomach.I have to eat something every 2 hours due to diabetis and prior surgeries(band, Wls)In order to get enough nutrients in me.Seems this would be an issue for me as well then. > > > > > > > > I couldn't find any info in the File section regarding Sprycel.I searched the database for info and basically all I found was people having problems with it and stopping use.Can those on this drug ofer any info about it.How is it taken(with food/without? ) How long before or after food?Side effects? > > > > > > > > Any info for either med would be great if anyone cares to share their experience.I want to switch off Gleevec due to QOL issues.Side effects are really getting to me and I am tired of being tired and bedridden at 41. > > > > > > > > Thanks in advance for any info offered.Hope everyone had a wonderful 4th of July. > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™: Keep your life in sync. > > http://windowslive. com/explore? ocid=TXT_ TAGLM_WL_ BR_life_in_ synch_062009 > > > > Quote Link to comment Share on other sites More sharing options...
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