Re: Dr. Talpaz /Ariad trial

[Guest guest]

Boy Bobby, you're really starting to get me excited about this drug!!! It

almost sounds too good to be true.

Tracey

>

> Hi , to day was a real fast day at that hospital, usually things tend to drag.

I had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours.  I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun! 

> Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

> I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he

said definitely NOT, if I was doing well on 15, I could stay there.  I was

pleased to hear that. I truly do not want to increase the dose .

> My labs are all good, even the hgb is over 11.  I do not go back until Aug 3,

but will get labs done here from time to time.  That's it for now, Jackie and

Beth, I hope all is well with you.  Bobby

>

>

> a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

> 02/13/09 - XL trial ended due to side effects

> 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

>  

>

>

[Guest guest]

Ain't that the truth!

From: traceyincanada@...

Date: Tue, 7 Jul 2009 02:14:34 +0000

Subject: [ ] Re: Dr. Talpaz /Ariad trial

Boy Bobby, you're really starting to get me excited about this drug!!! It

almost sounds too good to be true.

Tracey

>

> Hi , to day was a real fast day at that hospital, usually things tend to drag.

I had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours. I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun!

> Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

> I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he

said definitely NOT, if I was doing well on 15, I could stay there. I was

pleased to hear that. I truly do not want to increase the dose .

> My labs are all good, even the hgb is over 11. I do not go back until Aug 3,

but will get labs done here from time to time. That's it for now, Jackie and

Beth, I hope all is well with you. Bobby

>

>

> a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's

Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

> 02/13/09 - XL trial ended due to side effects

> 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

>

>

>

[Guest guest]

Tracey, you sure got that right, it's like waiting for the other shoe to drop! 

If it sounds too good to be true, it usually is. I loved Sprycel, until pleural

effusion hit me like a ton of bricks out of the blue, so I am praying this is

going to be different. Imagine how nice it would be not to have any side

effects?  I know everyone is so different, but I am praying this will REALLY be

the magic pill.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: Tracey <traceyincanada@...>

Subject: [ ] Re: Dr. Talpaz /Ariad trial

Date: Monday, July 6, 2009, 10:14 PM

Boy Bobby, you're really starting to get me excited about this drug!!! It

almost sounds too good to be true.

Tracey

>

> Hi , to day was a real fast day at that hospital, usually things tend to drag.

I had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours.  I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun! 

> Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

> I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he

said definitely NOT, if I was doing well on 15, I could stay there.  I was

pleased to hear that. I truly do not want to increase the dose .

> My labs are all good, even the hgb is over 11.  I do not go back until Aug 3,

but will get labs done here from time to time.  That's it for now, Jackie and

Beth, I hope all is well with you.  Bobby

>

>

> a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

> 02/13/09 - XL trial ended due to side effects

> 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

>  

>

>

[Guest guest]

Bobby,

Great news! Glad to hear things continue to go to fabulously for you! I also

love days when all the appointments flow together and you get in and out!

Beth

[ ] Dr. Talpaz /Ariad trial

Hi , to day was a real fast day at that hospital, usually things tend to drag. I

had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours.  I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun! 

Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he said

definitely NOT, if I was doing well on 15, I could stay there.  I was pleased

to hear that. I truly do not want to increase the dose .

My labs are all good, even the hgb is over 11.  I do not go back until Aug 3,

but will get labs done here from time to time.  That's it for now, Jackie and

Beth, I hope all is well with you.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08

- CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

[Guest guest]

Hi Bobby,

Yes!!! What great news. I can't wait til Beth and I have a PCR to see how well

Ariad is working for us.  I feel good - enjoying a beach front apartment in Port

Aransas TX. It's extremely hot so i don't stay outside very long, but to see it

and hear the waves is relaxing. 

JackieS

From: bethgalliart@... <bethgalliart@...>

Subject: Re: [ ] Dr. Talpaz /Ariad trial

Date: Wednesday, July 8, 2009, 8:09 AM

Bobby,

Great news! Glad to hear things continue to go to fabulously for you! I also

love days when all the appointments flow together and you get in and out!

Beth

[ ] Dr. Talpaz /Ariad trial

Hi , to day was a real fast day at that hospital, usually things tend to drag. I

had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours.  I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun! 

Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he said

definitely NOT, if I was doing well on 15, I could stay there.  I was pleased to

hear that. I truly do not want to increase the dose .

My labs are all good, even the hgb is over 11.  I do not go back until Aug 3,

but will get labs done here from time to time.  That's it for now, Jackie and

Beth, I hope all is well with you.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 -

CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

[Guest guest]

Jackie,

A beachfront apartment sounds awesome! (Hot or not)...glad you are getting some

fun times.

How is your rash doing?

Beth

[ ] Dr. Talpaz /Ariad trial

Hi , to day was a real fast day at that hospital, usually things tend to drag. I

had an echocardiogram apt. at 10:30, which gave me just enough time to grab a

cup of coffee, and eat a sandwich, as I was to take the pills in 2 hours.  I

didn't even get to sit down with the coffee and get the sandwich open, when they

came and got me, wow! I was out of there when my apt. should have begun! 

Dr Talpaz is very elated with the pcr results, Jan.5.09 and June .102.

I asked him if I was doing well on 15 mg, did I have to go to 30mg, and he said

definitely NOT, if I was doing well on 15, I could stay there.  I was pleased

to hear that. I truly do not want to increase the dose .

My labs are all good, even the hgb is over 11.  I do not go back until Aug 3,

but will get labs done here from time to time.  That's it for now, Jackie and

Beth, I hope all is well with you.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08

- CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz