Re: Latest update-Beth & Bobby

[Guest guest]

Hi Beth & Bobby,

 

This is awesome news that we are all doing so well.  Praying it stays that way.

As far as the appetite - Yup, it's good and it seems every day I get weighed I

have gained a pound!  When we get back to the cooler Iowa weather I will have to

start a walking program.

 

God Bless,

Jackie S.

From: bethgalliart@ comcast.net <bethgalliart@ comcast.net>

Subject: Re: [ ] Latest update.

groups (DOT) com

Date: Sunday, July 5, 2009, 8:37 AM

Hi Jackie and Bobby,

Glad to hear the two of you are doing well (except for poor Jackie's rash!).

I'm doing fantastic too! I was super tired last night and slept 10 hours, but

think I've been overdoing it because I feel so great.

One bit of great news for me--the night soaks, err sweats, have completely

stopped!

My counts from last week:

wbc - 4.9

rbc - 3.81

hgb - 13

plt - 229

neuts - 2.92

I love it so far!

Hugs,

Beth

Re: [ ] Latest update.

Hi Jackie, good to hear you have a good qol. Sorry about the rash. It is

interesting how one drug will effect one person one way, and someone else be

totally different. my labs this week were:

wbc - 6.0

hgb - 10.5

plt - 171

neuts - 4.3

I feel great, no side effects at all, have a huge appetite and sleep like a

log., I wish everyone could do this well on a drug, no matter which one.

But it will be the long term that will decide if it works or not, so far, so

good. Good luck to you, love, Bobby

On Fri, Jul 3, 2009 at 11:03 AM, jackie schneider

< jschneider008 >wrote:

>

>

> Hi to all,

>

> I had labs done today. They are holding strong.

>

> wbc 3.3

> hgb 10.4

> plt 65,000

> anc 1.85

>

> I still have a rash on my face, back, stomach, and arms but it is being

> managed with OTC cortisone 1% cream, and medicated powder which also helps

> keep me dry in all this Houston heat. The joint pain is gone. I really feel

> quite good as long as I stay out of the sun and heat. I start cycle two July

> 13th, meet with Dr. Cortes, then hopefully be on our way home the 15th at

> the latest. I may have to have labs here on Day 2 and 3 also, but that's

> okay. This drug has given me good QOL.

>

> God Bless,

> Jackie S.

>

>

[Guest guest]

Hi Jackie,

I've been slacking on e-mails the past couple of days. I was very sleepy over

the weekend--went to bed at 4:30pm on Sunday night! I was a little afraid the

drug wasn't working anymore, but my counts on Monday were rock solid. I just

feel so darned good these days, I think I have to remind myself that my body is

still at war...

Take care,

Beth

Re: [ ] Latest update.

Hi Jackie, good to hear you have a good qol. Sorry about the rash. It is

interesting how one drug will effect one person one way, and someone else be

totally different. my labs this week were:

wbc - 6.0

hgb - 10.5

plt - 171

neuts - 4.3

I feel great, no side effects at all, have a huge appetite and sleep like a

log., I wish everyone could do this well on a drug, no matter which one.

But it will be the long term that will decide if it works or not, so far, so

good. Good luck to you, love, Bobby

On Fri, Jul 3, 2009 at 11:03 AM, jackie schneider

< jschneider008 >wrote:

>

>

> Hi to all,

>

> I had labs done today. They are holding strong.

>

> wbc 3.3

> hgb 10.4

> plt 65,000

> anc 1.85

>

> I still have a rash on my face, back, stomach, and arms but it is being

> managed with OTC cortisone 1% cream, and medicated powder which also helps

> keep me dry in all this Houston heat. The joint pain is gone. I really feel

> quite good as long as I stay out of the sun and heat. I start cycle two July

> 13th, meet with Dr. Cortes, then hopefully be on our way home the 15th at

> the latest. I may have to have labs here on Day 2 and 3 also, but that's

> okay. This drug has given me good QOL.

>

> God Bless,

> Jackie S.

>

>

[Guest guest]

Hi Beth,

Be sure to get plenty of rest.  I too have to remind myself to take it easy. Our

bodies have a large fight on their hands. Rest is what it needs to stay strong.

My parents like to go, go, go. I have learned to say " no " from time to time and

assure them that I am ok and it's ok to leave me behind once in awhile. They

mean so well. I thank God daily for what they are giving up for me.

Take care,

Jackie S.

From: bethgalliart@ comcast.net <bethgalliart@ comcast.net>

Subject: Re: [ ] Latest update.

groups (DOT) com

Date: Sunday, July 5, 2009, 8:37 AM

Hi Jackie and Bobby,

Glad to hear the two of you are doing well (except for poor Jackie's rash!).

I'm doing fantastic too! I was super tired last night and slept 10 hours, but

think I've been overdoing it because I feel so great.

One bit of great news for me--the night soaks, err sweats, have completely

stopped!

My counts from last week:

wbc - 4.9

rbc - 3.81

hgb - 13

plt - 229

neuts - 2.92

I love it so far!

Hugs,

Beth

Re: [ ] Latest update.

Hi Jackie, good to hear you have a good qol. Sorry about the rash. It is

interesting how one drug will effect one person one way, and someone else be

totally different. my labs this week were:

wbc - 6.0

hgb - 10.5

plt - 171

neuts - 4.3

I feel great, no side effects at all, have a huge appetite and sleep like a

log., I wish everyone could do this well on a drug, no matter which one.

But it will be the long term that will decide if it works or not, so far, so

good. Good luck to you, love, Bobby

On Fri, Jul 3, 2009 at 11:03 AM, jackie schneider

< jschneider008 >wrote:

>

>

> Hi to all,

>

> I had labs done today. They are holding strong.

>

> wbc 3.3

> hgb 10.4

> plt 65,000

> anc 1.85

>

> I still have a rash on my face, back, stomach, and arms but it is being

> managed with OTC cortisone 1% cream, and medicated powder which also helps

> keep me dry in all this Houston heat. The joint pain is gone. I really feel

> quite good as long as I stay out of the sun and heat. I start cycle two July

> 13th, meet with Dr. Cortes, then hopefully be on our way home the 15th at

> the latest. I may have to have labs here on Day 2 and 3 also, but that's

> okay. This drug has given me good QOL.

>

> God Bless,

> Jackie S.

>

>

[Guest guest]

Jackie,

I hear ya. But, I find saying no really hard! I so badly want to just be normal

again, it is hard to give in. Does that make sense? But, I am learning to listen

to my body. Before my diagnosis, I would just push through when I was tired, now

I'm learning to slowwww down when I need to.

Hugs,

Beth

Re: [ ] Latest update.

Hi Jackie, good to hear you have a good qol. Sorry about the rash. It is

interesting how one drug will effect one person one way, and someone else be

totally different. my labs this week were:

wbc - 6.0

hgb - 10.5

plt - 171

neuts - 4.3

I feel great, no side effects at all, have a huge appetite and sleep like a

log., I wish everyone could do this well on a drug, no matter which one.

But it will be the long term that will decide if it works or not, so far, so

good. Good luck to you, love, Bobby

On Fri, Jul 3, 2009 at 11:03 AM, jackie schneider

< jschneider008 >wrote:

>

>

> Hi to all,

>

> I had labs done today. They are holding strong.

>

> wbc 3.3

> hgb 10.4

> plt 65,000

> anc 1.85

>

> I still have a rash on my face, back, stomach, and arms but it is being

> managed with OTC cortisone 1% cream, and medicated powder which also helps

> keep me dry in all this Houston heat. The joint pain is gone. I really feel

> quite good as long as I stay out of the sun and heat. I start cycle two July

> 13th, meet with Dr. Cortes, then hopefully be on our way home the 15th at

> the latest. I may have to have labs here on Day 2 and 3 also, but that's

> okay. This drug has given me good QOL.

>

> God Bless,

> Jackie S.

>

>