I'm new here.

[Guest guest]

Hi Carolyn:

There are some adults on the list who had jra as children, several... not sure how many. I'm sure they'll respond. What is it you want to know?

Lynn

mom to Mickey, 8, systemic jra since 3

From: " Carolyn Parks " <CarolynParks825@...>

Reply-

Date: Sat, 3 Aug 2002 23:44:55 -0400

< >

Subject: I'm new here.

Thanks for letting me join your list. Does anyone here have a child who had

arthritis as a child, and now has it as an adult?

Thanks,

Parks

[Guest guest]

Hello Carlyn Parks,

My name is aka Uncle Rusty Limbs to the little ones here.

I had jra since the age of 13, now I am a very 'YOUNG' 47 years formented!

Welcome to the gang/ group!

Uncle Rusty Limbs

On Sat, 3 Aug 2002 23:44:55 -0400 "Carolyn Parks" <CarolynParks825@...> writes:

Thanks for letting me join your list. Does anyone here have a child who had

arthritis as a child, and now has it as an adult?

Thanks,

Parks

[Guest guest]

Hi Ellen,

Welcome to the forum.

I was born deaf in 1965 too. I finally got approved by insurance to

have CI surgery so I will have my surgery on March 20th after waiting

since April 28, 2006 to get approved.

>

> Hi,

>

> My name is Ellen and I'm a CI candidate and I'll have the

> implant done on my left ear on April 24. I'll have the Freedom

> implanted on me.

>

> As for my hearing history, I was born deaf in 1966 due to Rubella.

>

> Nice to meet y'all.

>

>

> Ellen

>

[Guest guest]

Nice to meet you too Ellen and welcome to the group. Congratulations of your

surgery. If there are any questions that you would like to ask please feel free

to fire away.

[Guest guest]

Hello Ellen, welcome to the group.

I got my Freedom 10 months ago and I am very happy with it.

Good luck with the upcoming surgery. Please keep in touch and tell us

how you are going. There is lots of support here, if you have any

questions about anything.

Ted F.

>

> Hi,

>

> My name is Ellen and I'm a CI candidate and I'll have the

> implant done on my left ear on April 24. I'll have the Freedom

> implanted on me.

>

> As for my hearing history, I was born deaf in 1966 due to Rubella.

>

> Nice to meet y'all.

>

>

> Ellen

>

[Guest guest]

Sorry, about that. My finger had a mind of its own.

Ellen, welcome. I spoke with you last night on the Hearing Loss

Association of America's chat room last night. You have na

exciting journey ahead of ahead of you. Keep us informed

along the way. We are here for your questions, your worries,

and any other thoughts.

Judy in Jax FL

Implanted 1/6/06

Activated 2/9/06

[Guest guest]

<b>sarah wrote:</b>

<i>

Welcome to the forum.

I was born deaf in 1965 too. I finally got approved by insurance to

have CI surgery so I will have my surgery on March 20th after waiting

since April 28, 2006 to get approved.

M</i>

Awesome! I bet you can't wait. Let us know how it goes.

My surgery was on Feb 10 but was postponed to april 24 due to diabetes.

<b>Ted F wrote:</b>

<i>

Hello Ellen, welcome to the group.

I got my Freedom 10 months ago and I am very happy with it.

Good luck with the upcoming surgery. Please keep in touch and tell us

how you are going. There is lots of support here, if you have any

questions about anything.

Ted F.

</i>

I'll stay in touch and keep y'all updated. This looks like an awesomep

place!

Thanks everyone for the welcome.

I just realized my hearing history is a bit sketchy so I'll fill in

the details.

My parents found out I was deaf at 9 months old and I got enrolled in

an oral program. I didn't get fitted with my first hearing aid till I

was 2 1/2 years old and I didn't begin to to speak till I was 3. My

mother says mama was my first word only it came out " umma " .

I've been enrolled in oral program from the time I was 1 1/2 to 3rd

grade and mainstreamed from 4th to 6th grade and I've been enrolled in

two schools for the Deaf. I didn't learn sign till I was 13. I speak

well enough that most strangers can understand me. However, I can't

understand speech at all without lipreading so I expect I'll need AVT

after my hook up.

[Guest guest]

>

> Sorry, about that. My finger had a mind of its own.

>

> Ellen, welcome. I spoke with you last night on the Hearing Loss

> Association of America's chat room last night. You have na

> exciting journey ahead of ahead of you. Keep us informed

> along the way. We are here for your questions, your worries,

> and any other thoughts.

>

> Judy in Jax FL

> Implanted 1/6/06

> Activated 2/9/06

Hey that's ok. Thanks for the welcome.

Ellen

[Guest guest]

Congrats, Ellen. Was your vision affected by Rubella too?

[Guest guest]

>

> Congrats, Ellen. Was your vision affected by Rubella too?

>

>

No, thank goodness. However, if i don't keep my diabetes under

control I could have my vision affected. Only my hearing was affected

by rubella.

[Guest guest]

Lipreading is a skill that you have learned over the years. It will

stand you in good stead AFTER you get the C.I. too. There will be times

when you can hear without using it and there will be other times that

you will be glad you have the skill.

In my almost 30 years of wearing two hearing aids, I never learned

lipreading as such, no formal tuition or anything, I just picked it up

as I went along. I can now use the telephone, a medium where you CAN'T

use lipreading, so it just goes to show what is possible.

We are each different and its a good thing to measure ones progress by

ones-self, not against someone else who might be starting off from a

different base.

For instance, when I was activated, I could already hear better than I

could with my hearing aids, so as far as I was concerned, I was already

ahead of the game and better off. Things will improve even further as

you get remapped and your brain gets used to sounds it has never heard

before, or hasnt heard for a long time. You are in for a very exciting

journey.

Ted F.

>

> My parents found out I was deaf at 9 months old and I got enrolled in

> an oral program. I didn't get fitted with my first hearing aid till I

> was 2 1/2 years old and I didn't begin to to speak till I was 3. My

> mother says mama was my first word only it came out " umma " .

>

> I've been enrolled in oral program from the time I was 1 1/2 to 3rd

> grade and mainstreamed from 4th to 6th grade and I've been enrolled in

> two schools for the Deaf. I didn't learn sign till I was 13. I speak

> well enough that most strangers can understand me. However, I can't

> understand speech at all without lipreading so I expect I'll need AVT

> after my hook up.

>

[Guest guest]

Welcome aboard to the forum Ellen.

My name is Gayle Tiana Northcott but everyone knows me as Dolly Dolphin on this

forum.

I hailed from Winnipeg, Manitoba, Canada.

Tomorrow, March 1st after waiting over one year, I will be going in to Central

Speech & Hearing Clinic to have my hearing evaluation to see if I am a candidate

or not.

I do hope you get your CI for sure on April 24th.

Dolly Dolphin waving my fins/tail to you

[Guest guest]

>

> Welcome aboard to the forum Ellen.

>

> My name is Gayle Tiana Northcott but everyone knows me as Dolly

Dolphin on this forum.

>

> I hailed from Winnipeg, Manitoba, Canada.

>

> Tomorrow, March 1st after waiting over one year, I will be going in

to Central Speech & Hearing Clinic to have my hearing evaluation to

see if I am a candidate or not.

>

> I do hope you get your CI for sure on April 24th.

>

> Dolly Dolphin waving my fins/tail to you

>

>

>

[Guest guest]

> My name is and have been ill for 20 years. I am now 35 years

> old. Mainly neck, shoulder, muscle, joint and over body pain. Also

> muscle twitching, extreme fatigue, tired muscles, sleeping problems

> and trouble concentrating sometimes.

Welcome, . Have you looked into heavy metal poisoning? Do you

have a lot of metal dental work in your mouth? It seems that a lot

of the trouble that people have with EMF is being they have too much

conductive metals in/on their body.

Also, have you done any dietary modifications to improve your

nutritional status? (or were you already eating healthy?)

Marc

[Guest guest]

Hi ,

EMF sensitivity or any sensitivity usually occurs a part of the

total toxic load on the body.

I am now convinced from testimonials that a relatively new

detoxification product, natural cellular defense, ncd, or liquid

zeolite is the most most effective single thing for detox and with

the fewest side effects.

What helped a lot for me is a raw food diet: dairy, meat, eggs,

vegetable juice, a little fruit, honey. Especially raw butter. If

you are really thin you will benefit greatly from weight gain. When

i started i was 133, and felt better as i gained weight and had huge

leap at 170 lbs, then settled at 186 for two and a half years, with

a period of weight loss to experiment, crashing when i dropped below

170. The conern for parasites from raw food is basically false and

you can read about it if your research the Primal Diet.

Magnesium is perhaps the key missing nutrient: use " magnesium oil "

on the skin or interally, Concentrace internally, and dead sea salts

in a bath. This is magnesium chloride, not sulphate. Mag addresses

all the issues you mentioned.

Clay is very helpful: eating, packs or baths. Clay absorbs toxcity

and balances the body. www.eytonsearth.org

The Graham-Stetzer Filters for emf noise on the lines in your house

are product with high credibility.

[Guest guest]

marc/paul

marc how does zeolite and ndf work differently to homeopathic remedies.

if i was to take either would it be better, as i have still the

fillings in my mouth...

as i mentioned before i became very unwell when i took the homeopathy

due to probably the mercury going into my blood.

thanks

pete

On 2 Apr 2007, at 01:55, sctdh wrote:

> Hi ,

>

> EMF sensitivity or any sensitivity usually occurs a part of the

> total toxic load on the body.

>

> I am now convinced from testimonials that a relatively new

> detoxification product, natural cellular defense, ncd, or liquid

> zeolite is the most most effective single thing for detox and with

> the fewest side effects.

>

> What helped a lot for me is a raw food diet: dairy, meat, eggs,

> vegetable juice, a little fruit, honey. Especially raw butter. If

> you are really thin you will benefit greatly from weight gain. When

> i started i was 133, and felt better as i gained weight and had huge

> leap at 170 lbs, then settled at 186 for two and a half years, with

> a period of weight loss to experiment, crashing when i dropped below

> 170. The conern for parasites from raw food is basically false and

> you can read about it if your research the Primal Diet.

>

> Magnesium is perhaps the key missing nutrient: use " magnesium oil "

> on the skin or interally, Concentrace internally, and dead sea salts

> in a bath. This is magnesium chloride, not sulphate. Mag addresses

> all the issues you mentioned.

>

> Clay is very helpful: eating, packs or baths. Clay absorbs toxcity

> and balances the body. www.eytonsearth.org

>

> The Graham-Stetzer Filters for emf noise on the lines in your house

> are product with high credibility.

>

>

>

>

>

>

[Guest guest]

>

> Hi ,

>

> EMF sensitivity or any sensitivity usually occurs a part of the

> total toxic load on the body.

>

> I am now convinced from testimonials that a relatively new

> detoxification product, natural cellular defense, ncd, or liquid

> zeolite is the most most effective single thing for detox and with

> the fewest side effects.

Is that the one with the flashy advertising? NDF has been effective -

www.bioray2000.com

>

> What helped a lot for me is a raw food diet: dairy, meat, eggs,

> vegetable juice, a little fruit, honey. Especially raw butter.

Many of us had bad results with dairy, seeds & sweet.

>

> Magnesium is perhaps the key missing nutrient: use " magnesium oil "

> on the skin or interally, Concentrace internally, and dead sea salts

> in a bath. This is magnesium chloride, not sulphate. Mag addresses

> all the issues you mentioned.

Raw cocoa powder is supposed to be very high in magnesium. Add some unsalted

butter

and enough honey to cut the bitterness, you have something tasty.

>

> Clay is very helpful: eating, packs or baths. Clay absorbs toxcity

> and balances the body. www.eytonsearth.org

>

> The Graham-Stetzer Filters for emf noise on the lines in your house

> are product with high credibility.

>

>

>

[Guest guest]

Hi ,

it would help you alot to get a job away from computers. Computer

monitors and TVs are one of the worst or maybe even the worst thing

for people suffering with this. I also have problems with radios and

fridges, but have little or no problem with ovens. If you are sitting

at or near computers all day, even being several metres away will

still affect you, so what I find helps is if I use the computer for

maybe 1 1/2 hours then switch it off for a couple of hours, this

lessens the symptoms.

It seems to me that the electrical field, rather than the magnetic is

what is causing me problems and I have a computer screen filter which

blocks alot of the electric field which has helped.

Having heavy metals in your body is a major cause of ES and there are

several ways to try to remove them and alot of threads on here are

about this. And some symptoms are specifically related to mercury

which several products help remove, but they also mobilize the

mercury in your body which may actually make you alot worse.

From

>

> Good to join the group.

> My name is and have been ill for 20 years. I am now 35 years

> old. Mainly neck, shoulder, muscle, joint and over body pain.

Also

> muscle twitching, extreme fatigue, tired muscles, sleeping problems

> and trouble concentrating sometimes. Headaches, straining muscles

> are pretty much constant. Felling like the inside of my body is

> burning, screaming in pain. Trouble breathing sometimes. I used

to

> be very active now I move my body as least as possible, though I

can

> do normal everyday activities, shopping, light work, etc.

> If anyone would like to see my quest of possible solutions, please

> Email me personally. The list is extremely long. I have

researched

> my problem actively and have wasted several hundred thousand

dollars

> on trying to heal myself. I have not found a solution yet.

> I finally feel that I know the cause of this horrible condition,

EM

> Sensitivity. Before I saw no causation whatsoever to my flare-ups

or

> pain. I finally see some patterns in my pain, now that I know what

> to look for. My pain is now a 7 or 8 rather than a constant 10. I

> am on light pain medication to manage it, and to sleep at night.

> I am hopeful to communicate to as many people as possible about

this

> affliction and to learn what has helped you guys. Now I am using

an

> Energem. www.energems.com It seems to calm the area a bit. I'm

> told that it works better and better the longer that I use it, it's

> only been 30 days, but I need to tackle this thing by other methods

> also. I'm also going to order a diagnosis kit from

www.lessems.com.

> Any luck with this anyone? Any feedback?

> Mainly, I would like to know what has helped you guys. I don't

want

> to do this blindly. What are the solutions.

> With muscle testing, I am so sensitive that the credit card strips

> (the magnetic strip) makes me very very weak. I can't be near cell

> phones, cars, lights, computers, tvs, digital clocks, anything even

> slightly magnetic. The energem seems to make me strong but not

> really better, at least yet. I'm still working at my job, around

> electricity and computers, although I feel like I'm under attack

all

> of the time......by invisible EMF's.

> Please respond with solutions to the entire group as I'm sure that

> others are looking for solutions also.

> I've built my entire life around finding a solution to my pain and

I

> hope that this is the true cause and that I will finally find the

> true solution.

> With persistence,

>

>

[Guest guest]

Hi ,

My understanding is that you should not do any mercury detox if you still

have mercury fillings in your mouth. I had my amalgams removed in 2002 and

did 2 years of chelation per the Andy Cutler protocol with DMPS and ALA. I

still got MCS and EMF sensitivitiy. But I could very well still have a lot

of metals in me...there are so many sources in the world today

unfortunately.

What helped me immensely with my MCS reactivity level (ie total body burden)

was drinking wheatgrass every day and /or nettle infusions (put boiling

water in a big glass jar with ~a cup of organic dried nettle herb and let

sit overnight; strain out nettles and drink liquid when it cools). Both

contain a lot of magnesium and other nutrients. Chlorophyll has the same

molecular structure as the red blood cell, except instead of iron at its

core, it has magnesium. So any chlorophyll rich drink/food will help with

magnesium deficiencies.

I developed intolerances to both liquids after a while so I stopped at the

beginning of winter. I am hoping as spring/summer approaches I can start up

again. If anyone decides to try wheatgrass juice, make sure it's organic,

fresh squeezed and that you build up VERY slowly at first. It is HIGHLY

detoxifying. I had 1 drop of it on my tongue when I started it and it made

me feel hyper/wired and then 20 mins later EXTREMELY fatigued, due to it's

detoxifying effect. I built up over the next few weeks to taking 3-4 oz per

day.

This was before I became aware of my EMF sensitivity so I can't say if it

will help with that. But since it was suggested in other posts to get more

magnesium, I thought I would mention this. It's not cheap to buy wheatgrass

juice every day from a health food store but you could also buy a machine

and buy bags of fresh wheatgrass each week from a health food store or

online and do it yourself for less money.

Another way to get magnesium without ingesting anything: take Epsom salt

baths.

Hope this is helpful to someone,

www.PlanetThrive.com

_________________________________________________________________

Interest Rates near 39yr lows! $430,000 Mortgage for $1,399/mo - Calculate

new payment

http://www.lowermybills.com/lre/index.jsp?sourceid=lmb-9632-18466 & moid=7581

[Guest guest]

>> I am now convinced from testimonials that a relatively new

>> detoxification product, natural cellular defense, ncd, or liquid

>> zeolite is the most most effective single thing for detox and with

>> the fewest side effects.

>

> Is that the one with the flashy advertising? NDF has been effective -

www.bioray2000.com

Yes, NCD does indeed seem to have a big advertising budget. :-)

And some people *do* have really bad side effects from NCD... me, for

example. And I've seen others who have reported the same thing

on heavy metal poisoning lists. So one should be careful with

the initial dose -- instead of jumping in with the recommended

10 drops at a time, try ONE DROP and see how you do!

Marc

[Guest guest]

Hello, welcome. I have found this group to be a great source of

comfort/advice and knowledge. We discovered we were sleeping and living

in magnetic and high electric fields for the past 6 years. That was four

months ago. Since then I have been practicing " prudent avoidance " of

EMF's. I have tested many things and drive the car with least fields (0

at head, 4 mg at my feet) I have most of the electricity off. I

recognize that I have a history of exposure to EMF's and also that I

have much toxins exposure over the years and recently (new wood floors)

and my immune system was shot. The toxins were coming in faster than my

body could process them. I have been working with detoxifying and

better nutrition. I recently eliminated dairy which helped at first but

sometimes the nausea returns. I have a persistent chest rash and my

daughter has rashes as well. the weirdest healing that happened for us

was hair growth which was apparently stunted from the EMF's.

Here's a list of what has definitely helped so far: Turning most of the

power off. (there is so much I could say in praise of living with less

electricity) . repairing the magnetic field problem. Immune system tea.

Nettles combo tea. green tea. improving my diet. seeing ES as a

spiritual journey. deepening my ability to self care. acupuncture ,

chiropractic. Tibetan herbs. cranial sacral work , aura cleanse/healing.

spending time in nature.

I've removed the dimmers, and fluorescent kitchen lights.I removed most

electronics where possible. And continue to troubleshoot the RF and am

currently working with the stetzer filters, and recently am doing a

dance with how to get the best use of the Stetzer filters and keep most

of the power off. I really like the filters, they do seem to help.

What I have not done yet: I have not changed to a non metal bed, and

have not switched to a lap top on battery.

I am seeing this journey as a process now which feels better than the

fear and grasping not knowing etc. state I have been in. Sometimes I

want to feel better NOW and not have this discomfort or sleeplessness or

anxiety or panic...but better when I can focus on what is needed now and

having patience to heal.

Cheers,

Sandi

[Guest guest]

In a message dated 4/2/2007 10:54:36 PM GMT Standard Time, jspirit@...

writes:

The toxins were coming in faster than my

body could process them.

PAUL UK REPLIES - Yes you have hit the nail on the head, we are bombarded by

so much artificial pollution thesedays none more so than EMF/RF/MICROWAVES,

if we were to construct a hierarchal model I am sure that the latter would

be at the base/root of body degredation value. The energy just wops passed

most of our evolved defence systems.

By the way has anyone downloaded the Swiss environment agency doc called

Guidelines to electrosmog ? I ordered 12 copies for free and these are a good

document to hand to the non believers. They state in this documenet that

there is no sensory organ to detect emf, but I disagree, for one the largets

organ in the body is this not the skin ! jam packed with sensory equipment. Not

to mention the fact that med science is not as smart as it might like to

portray.....

[Guest guest]

In a message dated 4/2/2007 10:54:36 PM GMT Standard Time, jspirit@...

writes:

I have a persistent chest rash and my

daughter has rashes as well. the weirdest healing that happened for us

was hair growth which was apparently stunted from the EMF's.

UK

Its funny you should say that but I was convinced that flourescent lights

were cuasing my hiar to thin (hair is di-electric whatever that means). I

suppose prolonged stress does not help.

[Guest guest]

In a message dated 4/2/2007 10:54:36 PM GMT Standard Time, jspirit@...

writes:

I've removed the dimmers, and fluorescent kitchen lights.I removed most

electronics where possible. And continue to troubleshoot the RF and am

currently working with the stetzer filters, and recently am doing a

dance with how to get the best use of the Stetzer filters and keep most

of the power off. I really like the filters, they do seem to help.

What I have not done yet: I have not changed to a non metal bed, and

have not switched to a lap top on battery.

I am seeing this journey as a process now which feels better than the

fear and grasping not knowing etc. state I have been in. Sometimes I

want to feel better NOW and not have this discomfort or sleeplessness or

anxiety or panic...but better when I can focus on what is needed now and

having patience to heal.

Cheers,

Sandi

UK - And from your positive and enlightened outlook so the world

will heal in time !

[Guest guest]

Hi ,

I know this is a very scary time for you and your husband. You really want to

have a onocologist/hemotologist that has knowledge of CML as alot of doctors do

not. CML isn't a very common form of leukemia. In the beginning I was having

my blood tested a couple times a week. Gleevec can affect the liver as it did

my and then I had to be switched to a new medicine. It doesn't happen to to

many people but some are affected. It caused me to go into Gleevec induced

hepatitis, that is why your husband needs to watched closely. I was dx in 11-05

and there were some ups and downs until things settled down. Now my last PCR

test the cells were undetectable. We are so lucky to have the new target drugs,

and someone with CML can be expected to live a long, productive life if we take

our meds. I take my faithfully everyday exactlty as prescribed. Besure to

write down you questions to ask the dr because you will be given so much

information your head will spin. The Leukemia Society is also a wealth of

information. This web site is also a wonderful source of information,

compasssion, friendships, you name it this site has it. God Bless you and your

loved ones.

Carolyn_Kuptz2000@...

dx 11-05

On Sprycel 20 mg. bid