RE: RE: ANOTHER PCRU TODAY

[Guest guest]

Sizzie,

OMG!!! I am so happy to hear that!!! I do wish we could go away to a quiet

place and celebrate together.

Tell me-do you have any side effects????

How old are you? I am 66 years young.

Sharon T

_____

From: [mailto: ] On Behalf Of

suzzienovember

Sent: Monday, August 03, 2009 5:42 PM

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!

[Guest guest]

My PTH was very high so they put me on a real high dose of Vit.D. Since my

other kidney and liver tests were normal they kind of think it is a reaction

to Tasigna. I have no other symptoms. I will have my PTH done again next

month. In the mean time I take 2500u of vit day a day and a calcium tablet.

Sharon

_____

From: [mailto: ] On Behalf Of

suzzienovember

Sent: Monday, August 03, 2009 6:02 PM

Subject: [ ] Re: Another PCRU Today

Hi Sharon:

I do suffer with side effects constantly, and I get depressed and everything

else that goes with it.

Then when I see how far I have gotten since 1998, I know I am so blessed. I

will be 62 in November. I still get the fatigue, foot and hand cramps etc. I

just saw my Oncologist, and he said a lot of my discomfort is Arthritis. I

am also due to have that Parathyroid checked in Sept. How is yours?

[Guest guest]

Hi - I have just celebrated my 2nd CML anniversary with 12 months on Tasigna

and have been ongoing PCRU since December 08. I love Tasi, but unfortunately

I have got a stomach ulcer on it, but hopefully is healing with meds and am

feeling much better!

Regards,

From: [mailto: ] On Behalf Of

suzzienovember

Sent: Tuesday, 4 August 2009 10:42 AM

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!

[Guest guest]

I am thrilled to be hearing from all of you that are PCRU!!! I love Tasi

too. It has been very very good to me.

What is your dose???

Sorry about your stomach ulcer. Hope it is getting better. Did they cut you

back on Tasigna to make it better or just gave you meds???

Sharon

_____

From: [mailto: ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 6:35 PM

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi - I have just celebrated my 2nd CML anniversary with 12 months on Tasigna

and have been ongoing PCRU since December 08. I love Tasi, but unfortunately

I have got a stomach ulcer on it, but hopefully is healing with meds and am

feeling much better!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

suzzienovember

Sent: Tuesday, 4 August 2009 10:42 AM

groups (DOT) <mailto:%40> com

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!

[Guest guest]

Hi Sharon - yes it is great! Sorry I forgot to add my congratulations too.

I'm still on the same dose of Tasi - 400mg twice a day. I see my haem/t next

week and will discuss with him then about dosage. At least my symptoms have

subsided a lot since starting Somac and I have a follow up gastroscopy in 2

months to make sure the ulcer has healed/healing. I also got a super imposed

champhylobacter infection and that was certainly no fun!

Regards,

From: [mailto: ] On Behalf Of Sharon

Teichera

Sent: Tuesday, 4 August 2009 11:38 AM

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

I am thrilled to be hearing from all of you that are PCRU!!! I love Tasi

too. It has been very very good to me.

What is your dose???

Sorry about your stomach ulcer. Hope it is getting better. Did they cut you

back on Tasigna to make it better or just gave you meds???

Sharon

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 6:35 PM

<mailto:%40>

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi - I have just celebrated my 2nd CML anniversary with 12 months on Tasigna

and have been ongoing PCRU since December 08. I love Tasi, but unfortunately

I have got a stomach ulcer on it, but hopefully is healing with meds and am

feeling much better!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

suzzienovember

Sent: Tuesday, 4 August 2009 10:42 AM

groups (DOT) <mailto:%40> com

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!

[Guest guest]

Oh I will be very interested in the dosage information. I wonder if he will

let you go down a little. I would love to only because I do not know what

this is doing to my body long tern.

I am only on 600 tho.

Let me know

Sharon T

_____

From: [mailto: ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 7:19 PM

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi Sharon - yes it is great! Sorry I forgot to add my congratulations too.

I'm still on the same dose of Tasi - 400mg twice a day. I see my haem/t next

week and will discuss with him then about dosage. At least my symptoms have

subsided a lot since starting Somac and I have a follow up gastroscopy in 2

months to make sure the ulcer has healed/healing. I also got a super imposed

champhylobacter infection and that was certainly no fun!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

Sharon

Teichera

Sent: Tuesday, 4 August 2009 11:38 AM

groups (DOT) <mailto:%40> com

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

I am thrilled to be hearing from all of you that are PCRU!!! I love Tasi

too. It has been very very good to me.

What is your dose???

Sorry about your stomach ulcer. Hope it is getting better. Did they cut you

back on Tasigna to make it better or just gave you meds???

Sharon

_____

From: groups (DOT) <mailto:%40> com

<mailto:%40>

[mailto:groups (DOT) <mailto:%40> com

<mailto:%40> ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 6:35 PM

groups (DOT) <mailto:%40> com

<mailto:%40>

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi - I have just celebrated my 2nd CML anniversary with 12 months on Tasigna

and have been ongoing PCRU since December 08. I love Tasi, but unfortunately

I have got a stomach ulcer on it, but hopefully is healing with meds and am

feeling much better!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

suzzienovember

Sent: Tuesday, 4 August 2009 10:42 AM

groups (DOT) <mailto:%40> com

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!

[Guest guest]

Yep I thoroughly agree Sharon. I would love to drop back to just 400mg in

the morning, it would make life a lot easier! That is the thing with Glivec

- all the stats are on the board, while the equivalent info is still very

much in the early days with Tasigna.

Regards,

From: [mailto: ] On Behalf Of Sharon

Teichera

Sent: Tuesday, 4 August 2009 2:35 PM

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Oh I will be very interested in the dosage information. I wonder if he will

let you go down a little. I would love to only because I do not know what

this is doing to my body long tern.

I am only on 600 tho.

Let me know

Sharon T

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 7:19 PM

<mailto:%40>

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi Sharon - yes it is great! Sorry I forgot to add my congratulations too.

I'm still on the same dose of Tasi - 400mg twice a day. I see my haem/t next

week and will discuss with him then about dosage. At least my symptoms have

subsided a lot since starting Somac and I have a follow up gastroscopy in 2

months to make sure the ulcer has healed/healing. I also got a super imposed

champhylobacter infection and that was certainly no fun!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

Sharon

Teichera

Sent: Tuesday, 4 August 2009 11:38 AM

groups (DOT) <mailto:%40> com

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

I am thrilled to be hearing from all of you that are PCRU!!! I love Tasi

too. It has been very very good to me.

What is your dose???

Sorry about your stomach ulcer. Hope it is getting better. Did they cut you

back on Tasigna to make it better or just gave you meds???

Sharon

_____

From: groups (DOT) <mailto:%40> com

<mailto:%40>

[mailto:groups (DOT) <mailto:%40> com

<mailto:%40> ] On Behalf Of

Malseed

Sent: Monday, August 03, 2009 6:35 PM

groups (DOT) <mailto:%40> com

<mailto:%40>

Subject: RE: [ ] RE: ANOTHER PCRU TODAY

Hi - I have just celebrated my 2nd CML anniversary with 12 months on Tasigna

and have been ongoing PCRU since December 08. I love Tasi, but unfortunately

I have got a stomach ulcer on it, but hopefully is healing with meds and am

feeling much better!

Regards,

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

suzzienovember

Sent: Tuesday, 4 August 2009 10:42 AM

groups (DOT) <mailto:%40> com

Subject: [ ] RE: ANOTHER PCRU TODAY

Congratulations Sharon on your PCR test. I also got mine back today, and I

am PCRU 5 log reduction. Too bad we could not celebrate together.

My husband was off from work tonight, but I cooked the dinner.

What I have been doing is, everytime I get my PCR test result back, I go buy

myself a present to celebrate. My family laughs at me.

You were right about feeling bad to announce good news when others are

struggling to get there, but I hope it helps those to see that we can all

get there. Keep a Positive Attitude. I have been on 400mg. Gleevec since

Oct. of 2000. Lots Of Faith Too!!