RE: Interesting Drs appt!!!

[Guest guest]

,

I don't have any advice on the weight gain, but I'm delighted to hear you are in

good hands now. I firmly believe that a doctor who knows their stuff, is willing

to follow through, and cares about their patient is a huge factor in the battle

we are in. Good luck!

Beth

[ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in the

hospital this last time and I think I have a very good Dr now. I THOUGHT the

last one was good but Dr brought to my attention today that the BMB

report that I have and have had since I was diagnosed with CML is not complete.

He was looking for some " important " information on it and it wasn't on there.

Now I was seeing a Dr in SC since I was diagnosed with CML and he looked at the

same report that Dr looked at today and it's funny but he NEVER

mentioned to me that it was not a complete report. I had NO idea it wasn't

complete since all this is new to me. Dr had his secretary call the

hospital where the BMB was done and request the rest of the report. It's amazing

how some Drs seem to really care about their patients and others just look at us

like a piece of money or an assembly line. Dr trained at Mayo clinic and

he sounds like he really knows his stuff when it comes to CML. He is the ONLY Dr

that has mentioned anything to me about a mutation cell test. He said after I am

on Gleevec 400mg for 3 months, if it is not continuing to bring my wbc down then

he will do a mutation cell test to see if my body is absorbing the

Gleevec....does that sound right? My memory is not real good and hasn't been for

a while now but I'm not sure if it has anything to do with CML or if it's

depression. Anyway, I just wanted to mention the fact that I have been treated

all this time without having a COMPLETE report of my BMB. Maybe I will continue

to get better now. Oh, another interesting thing happened...I am shrinking in

height, lol. I was 5'8 " a few years ago and they measured me today and I am only

5'6 1/2 " ...does CML cause that too? lol...When they measured me in SC on my

first visit there I was 5'7 " . Makes no sense to me!!! I have been losing weight

since I was diagnosed too but today I have gained almost 3 pounds back of the 36

that I lost. I am not too happy about that...I like losing it, I don't want to

gain weight! Any ideas on how I can keep from gaining anymore back? Take care

everyone...

[Guest guest]

Hello ,

So happy to hear you have a DR. that is concerned with your health and your CML.

Weight Gain is an issue with most all of us whether you are on Gleevic or

Sprycel.

There is a CML weight chat site that one of the ladies here has started if you

are interested the site is LosingWeightWithCML

Anita

________________________________

From: wendyphillips54 <wendyphillips54@...>

Sent: Thursday, June 25, 2009 11:18:38 PM

Subject: [ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in the

hospital this last time and I think I have a very good Dr now. I THOUGHT the

last one was good but Dr brought to my attention today that the BMB

report that I have and have had since I was diagnosed with CML is not complete.

He was looking for some " important " information on it and it wasn't on there.

Now I was seeing a Dr in SC since I was diagnosed with CML and he looked at the

same report that Dr looked at today and it's funny but he NEVER

mentioned to me that it was not a complete report. I had NO idea it wasn't

complete since all this is new to me. Dr had his secretary call the

hospital where the BMB was done and request the rest of the report. It's amazing

how some Drs seem to really care about their patients and others just look at us

like a piece of money or an assembly line. Dr trained at Mayo clinic and

he sounds like he really knows

his stuff when it comes to CML. He is the ONLY Dr that has mentioned anything

to me about a mutation cell test. He said after I am on Gleevec 400mg for 3

months, if it is not continuing to bring my wbc down then he will do a mutation

cell test to see if my body is absorbing the Gleevec....does that sound right?

My memory is not real good and hasn't been for a while now but I'm not sure if

it has anything to do with CML or if it's depression. Anyway, I just wanted to

mention the fact that I have been treated all this time without having a

COMPLETE report of my BMB. Maybe I will continue to get better now. Oh, another

interesting thing happened...I am shrinking in height, lol. I was 5'8 " a few

years ago and they measured me today and I am only 5'6 1/2 " ...does CML cause

that too? lol...When they measured me in SC on my first visit there I was 5'7 " .

Makes no sense to me!!! I have been losing weight since I was diagnosed too but

today I have gained almost 3

pounds back of the 36 that I lost. I am not too happy about that...I like

losing it, I don't want to gain weight! Any ideas on how I can keep from gaining

anymore back? Take care everyone...

[Guest guest]

Here is the correct CML weight chat site

LosingWeightWithCML/

Anita

________________________________

From: anita <awristen1@...>

Sent: Friday, June 26, 2009 7:47:55 AM

Subject: Re: [ ] Interesting Drs appt!!!

Hello ,

So happy to hear you have a DR. that is concerned with your health and your CML.

Weight Gain is an issue with most all of us whether you are on Gleevic or

Sprycel.

There is a CML weight chat site that one of the ladies here has started if you

are interested the site is LosingWeightWithCML @groups. com

Anita

____________ _________ _________ __

From: wendyphillips54 <wendyphillips54>

groups (DOT) com

Sent: Thursday, June 25, 2009 11:18:38 PM

Subject: [ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in the

hospital this last time and I think I have a very good Dr now. I THOUGHT the

last one was good but Dr brought to my attention today that the BMB

report that I have and have had since I was diagnosed with CML is not complete.

He was looking for some " important " information on it and it wasn't on there.

Now I was seeing a Dr in SC since I was diagnosed with CML and he looked at the

same report that Dr looked at today and it's funny but he NEVER

mentioned to me that it was not a complete report. I had NO idea it wasn't

complete since all this is new to me. Dr had his secretary call the

hospital where the BMB was done and request the rest of the report. It's amazing

how some Drs seem to really care about their patients and others just look at us

like a piece of money or an assembly line. Dr trained at Mayo clinic and

he sounds like he really knows

his stuff when it comes to CML. He is the ONLY Dr that has mentioned anything to

me about a mutation cell test. He said after I am on Gleevec 400mg for 3 months,

if it is not continuing to bring my wbc down then he will do a mutation cell

test to see if my body is absorbing the Gleevec....does that sound right? My

memory is not real good and hasn't been for a while now but I'm not sure if it

has anything to do with CML or if it's depression. Anyway, I just wanted to

mention the fact that I have been treated all this time without having a

COMPLETE report of my BMB. Maybe I will continue to get better now. Oh, another

interesting thing happened...I am shrinking in height, lol. I was 5'8 " a few

years ago and they measured me today and I am only 5'6 1/2 " ...does CML cause

that too? lol...When they measured me in SC on my first visit there I was 5'7 " .

Makes no sense to me!!! I have been losing weight since I was diagnosed too but

today I have gained almost 3

pounds back of the 36 that I lost. I am not too happy about that...I like losing

it, I don't want to gain weight! Any ideas on how I can keep from gaining

anymore back? Take care everyone...

[Guest guest]

I think it is a blessing that this Dr. came your way. Someone was watching

out for you. It is so so important to have someone that understands the

disease and I am thankful for that..

Sharon T

_____

From: [mailto: ] On Behalf Of

bethgalliart@...

Sent: Friday, June 26, 2009 4:26 AM

Subject: Re: [ ] Interesting Drs appt!!!

,

I don't have any advice on the weight gain, but I'm delighted to hear you

are in good hands now. I firmly believe that a doctor who knows their stuff,

is willing to follow through, and cares about their patient is a huge factor

in the battle we are in. Good luck!

Beth

[ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in

the hospital this last time and I think I have a very good Dr now. I THOUGHT

the last one was good but Dr brought to my attention today that the

BMB report that I have and have had since I was diagnosed with CML is not

complete. He was looking for some " important " information on it and it

wasn't on there. Now I was seeing a Dr in SC since I was diagnosed with CML

and he looked at the same report that Dr looked at today and it's

funny but he NEVER mentioned to me that it was not a complete report. I had

NO idea it wasn't complete since all this is new to me. Dr had his

secretary call the hospital where the BMB was done and request the rest of

the report. It's amazing how some Drs seem to really care about their

patients and others just look at us like a piece of money or an assembly

line. Dr trained at Mayo clinic and he sounds like he really knows

his stuff when it comes to CML. He is the ONLY Dr that has mentioned

anything to me about a mutation cell test. He said after I am on Gleevec

400mg for 3 months, if it is not continuing to bring my wbc down then he

will do a mutation cell test to see if my body is absorbing the

Gleevec....does that sound right? My memory is not real good and hasn't been

for a while now but I'm not sure if it has anything to do with CML or if

it's depression. Anyway, I just wanted to mention the fact that I have been

treated all this time without having a COMPLETE report of my BMB. Maybe I

will continue to get better now. Oh, another interesting thing happened...I

am shrinking in height, lol. I was 5'8 " a few years ago and they measured me

today and I am only 5'6 1/2 " ...does CML cause that too? lol...When they

measured me in SC on my first visit there I was 5'7 " . Makes no sense to

me!!! I have been losing weight since I was diagnosed too but today I have

gained almost 3 pounds back of the 36 that I lost. I am not too happy about

that...I like losing it, I don't want to gain weight! Any ideas on how I can

keep from gaining anymore back? Take care everyone...

[Guest guest]

Hi , my grandson told me the other day, Nana, you have been on a diet

as long as I can remember, and he is 26 and he is correct. Over 26 years,

in fact, about 40. I am not to successful at it, but I like to think if I

did not at least try, I would weigh about 350 lbs. by now. Being not quite

80 I am prone to tell myself, don't worry, be happy, and eat what I want.

Bobby

On Fri, Jun 26, 2009 at 8:47 AM, anita <awristen1@...> wrote:

>

>

> Hello ,

> So happy to hear you have a DR. that is concerned with your health and your

> CML.

> Weight Gain is an issue with most all of us whether you are on Gleevic or

> Sprycel.

> There is a CML weight chat site that one of the ladies here has started if

> you are interested the site is

LosingWeightWithCML <LosingWeightWithCML%40>

>

> Anita

>

> ________________________________

>

> From: wendyphillips54 <wendyphillips54@...<wendyphillips54%40>

> >

> <%40>

> Sent: Thursday, June 25, 2009 11:18:38 PM

> Subject: [ ] Interesting Drs appt!!!

>

> Well, I went to the Dr today...the one that came to see me while I was in

> the hospital this last time and I think I have a very good Dr now. I THOUGHT

> the last one was good but Dr brought to my attention today that the

> BMB report that I have and have had since I was diagnosed with CML is not

> complete. He was looking for some " important " information on it and it

> wasn't on there. Now I was seeing a Dr in SC since I was diagnosed with CML

> and he looked at the same report that Dr looked at today and it's

> funny but he NEVER mentioned to me that it was not a complete report. I had

> NO idea it wasn't complete since all this is new to me. Dr had his

> secretary call the hospital where the BMB was done and request the rest of

> the report. It's amazing how some Drs seem to really care about their

> patients and others just look at us like a piece of money or an assembly

> line. Dr trained at Mayo clinic and he sounds like he really knows

> his stuff when it comes to CML. He is the ONLY Dr that has mentioned

> anything to me about a mutation cell test. He said after I am on Gleevec

> 400mg for 3 months, if it is not continuing to bring my wbc down then he

> will do a mutation cell test to see if my body is absorbing the

> Gleevec....does that sound right? My memory is not real good and hasn't been

> for a while now but I'm not sure if it has anything to do with CML or if

> it's depression. Anyway, I just wanted to mention the fact that I have been

> treated all this time without having a COMPLETE report of my BMB. Maybe I

> will continue to get better now. Oh, another interesting thing happened...I

> am shrinking in height, lol. I was 5'8 " a few years ago and they measured me

> today and I am only 5'6 1/2 " ...does CML cause that too? lol...When they

> measured me in SC on my first visit there I was 5'7 " . Makes no sense to

> me!!! I have been losing weight since I was diagnosed too but today I have

> gained almost 3

> pounds back of the 36 that I lost. I am not too happy about that...I like

> losing it, I don't want to gain weight! Any ideas on how I can keep from

> gaining anymore back? Take care everyone...

>

>

[Guest guest]

Lol Bobby...my philosophy was always...God didn't intend on everyone being

skinny so I may as well be one of the fat ones! Of course, in my heart it was

killing me to say that because I have had a weight problem since I was 16 years

old and have been on every diet out there but as most people with weight

problems, I would lose and then end up gaining back more in the end. So now I

just try to listen to my husband and he thinks I am perfect  just the way I am

so as long as he is not disgusted by the extra weight then that is all that

matters. I am not huge but I do have several extra pounds that I would love to

lose!

>

>

> Hello ,

> So happy to hear you have a DR. that is concerned with your health and your

> CML.

> Weight Gain is an issue with most all of us whether you are on Gleevic or

> Sprycel.

> There is a CML weight chat site that one of the ladies here has started if

> you are interested the site is LosingWeightWithCML @groups.

com<LosingWeightWithCM L%40groups. com>

>

> Anita

>

> ____________ _________ _________ __

>

> From: wendyphillips54 <wendyphillips54<wendyphillips54%

40>

> >

> groups (DOT) com <%40groups .com>

> Sent: Thursday, June 25, 2009 11:18:38 PM

> Subject: [ ] Interesting Drs appt!!!

>

> Well, I went to the Dr today...the one that came to see me while I was in

> the hospital this last time and I think I have a very good Dr now. I THOUGHT

> the last one was good but Dr brought to my attention today that the

> BMB report that I have and have had since I was diagnosed with CML is not

> complete. He was looking for some " important " information on it and it

> wasn't on there. Now I was seeing a Dr in SC since I was diagnosed with CML

> and he looked at the same report that Dr looked at today and it's

> funny but he NEVER mentioned to me that it was not a complete report. I had

> NO idea it wasn't complete since all this is new to me. Dr had his

> secretary call the hospital where the BMB was done and request the rest of

> the report. It's amazing how some Drs seem to really care about their

> patients and others just look at us like a piece of money or an assembly

> line. Dr trained at Mayo clinic and he sounds like he really knows

> his stuff when it comes to CML. He is the ONLY Dr that has mentioned

> anything to me about a mutation cell test. He said after I am on Gleevec

> 400mg for 3 months, if it is not continuing to bring my wbc down then he

> will do a mutation cell test to see if my body is absorbing the

> Gleevec....does that sound right? My memory is not real good and hasn't been

> for a while now but I'm not sure if it has anything to do with CML or if

> it's depression. Anyway, I just wanted to mention the fact that I have been

> treated all this time without having a COMPLETE report of my BMB. Maybe I

> will continue to get better now. Oh, another interesting thing happened....I

> am shrinking in height, lol. I was 5'8 " a few years ago and they measured me

> today and I am only 5'6 1/2 " ...does CML cause that too? lol...When they

> measured me in SC on my first visit there I was 5'7 " . Makes no sense to

> me!!! I have been losing weight since I was diagnosed too but today I have

> gained almost 3

> pounds back of the 36 that I lost. I am not too happy about that...I like

> losing it, I don't want to gain weight! Any ideas on how I can keep from

> gaining anymore back? Take care everyone...

>

>

[Guest guest]

Me too Sharon, me too! This is definitely ANSWERED PRAYER!!!! I have had 2

people call me today from the Drs office to see if there is anything they can do

to help me in filling out all the proper paperwork. I missed the calls but will

surely be calling them back on Monday cos I need all the help I can get. I am

not the brightest crayon in the box when it comes to paperwork. Thanks for you

encouragement Sharon!

 

From: Sharon Teichera <onthewtr@...>

Subject: RE: [ ] Interesting Drs appt!!!

Date: Friday, June 26, 2009, 2:31 PM

I think it is a blessing that this Dr. came your way. Someone was watching

out for you. It is so so important to have someone that understands the

disease and I am thankful for that..

Sharon T

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

bethgalliart@ comcast.net

Sent: Friday, June 26, 2009 4:26 AM

groups (DOT) com

Subject: Re: [ ] Interesting Drs appt!!!

,

I don't have any advice on the weight gain, but I'm delighted to hear you

are in good hands now. I firmly believe that a doctor who knows their stuff,

is willing to follow through, and cares about their patient is a huge factor

in the battle we are in. Good luck!

Beth

[ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in

the hospital this last time and I think I have a very good Dr now. I THOUGHT

the last one was good but Dr brought to my attention today that the

BMB report that I have and have had since I was diagnosed with CML is not

complete. He was looking for some " important " information on it and it

wasn't on there. Now I was seeing a Dr in SC since I was diagnosed with CML

and he looked at the same report that Dr looked at today and it's

funny but he NEVER mentioned to me that it was not a complete report. I had

NO idea it wasn't complete since all this is new to me. Dr had his

secretary call the hospital where the BMB was done and request the rest of

the report. It's amazing how some Drs seem to really care about their

patients and others just look at us like a piece of money or an assembly

line. Dr trained at Mayo clinic and he sounds like he really knows

his stuff when it comes to CML. He is the ONLY Dr that has mentioned

anything to me about a mutation cell test. He said after I am on Gleevec

400mg for 3 months, if it is not continuing to bring my wbc down then he

will do a mutation cell test to see if my body is absorbing the

Gleevec....does that sound right? My memory is not real good and hasn't been

for a while now but I'm not sure if it has anything to do with CML or if

it's depression. Anyway, I just wanted to mention the fact that I have been

treated all this time without having a COMPLETE report of my BMB. Maybe I

will continue to get better now. Oh, another interesting thing happened...I

am shrinking in height, lol. I was 5'8 " a few years ago and they measured me

today and I am only 5'6 1/2 " ...does CML cause that too? lol...When they

measured me in SC on my first visit there I was 5'7 " . Makes no sense to

me!!! I have been losing weight since I was diagnosed too but today I have

gained almost 3 pounds back of the 36 that I lost. I am not too happy about

that...I like losing it, I don't want to gain weight! Any ideas on how I can

keep from gaining anymore back? Take care everyone...

[Guest guest]

Thanks Anita, I may check that out tomorrow since I will have a lot of time on

my hands since my husband has to work overtime all weekend....take care

girl...love ya

From: anita <awristen1@...>

Subject: Re: [ ] Interesting Drs appt!!!

Date: Friday, June 26, 2009, 12:47 PM

Hello ,

So happy to hear you have a DR. that is concerned with your health and your CML.

Weight Gain is an issue with most all of us whether you are on Gleevic or

Sprycel.

There is a CML weight chat site that one of the ladies here has started if you

are interested the site is LosingWeightWithCML @groups. com

Anita

____________ _________ _________ __

From: wendyphillips54 <wendyphillips54>

groups (DOT) com

Sent: Thursday, June 25, 2009 11:18:38 PM

Subject: [ ] Interesting Drs appt!!!

Well, I went to the Dr today...the one that came to see me while I was in the

hospital this last time and I think I have a very good Dr now. I THOUGHT the

last one was good but Dr brought to my attention today that the BMB

report that I have and have had since I was diagnosed with CML is not complete.

He was looking for some " important " information on it and it wasn't on there.

Now I was seeing a Dr in SC since I was diagnosed with CML and he looked at the

same report that Dr looked at today and it's funny but he NEVER

mentioned to me that it was not a complete report. I had NO idea it wasn't

complete since all this is new to me. Dr had his secretary call the

hospital where the BMB was done and request the rest of the report. It's amazing

how some Drs seem to really care about their patients and others just look at us

like a piece of money or an assembly line. Dr trained at Mayo clinic and

he sounds like he really knows

his stuff when it comes to CML. He is the ONLY Dr that has mentioned anything to

me about a mutation cell test. He said after I am on Gleevec 400mg for 3 months,

if it is not continuing to bring my wbc down then he will do a mutation cell

test to see if my body is absorbing the Gleevec....does that sound right? My

memory is not real good and hasn't been for a while now but I'm not sure if it

has anything to do with CML or if it's depression. Anyway, I just wanted to

mention the fact that I have been treated all this time without having a

COMPLETE report of my BMB. Maybe I will continue to get better now. Oh, another

interesting thing happened...I am shrinking in height, lol. I was 5'8 " a few

years ago and they measured me today and I am only 5'6 1/2 " ...does CML cause

that too? lol...When they measured me in SC on my first visit there I was 5'7 " .

Makes no sense to me!!! I have been losing weight since I was diagnosed too but

today I have gained almost 3

pounds back of the 36 that I lost. I am not too happy about that...I like losing

it, I don't want to gain weight! Any ideas on how I can keep from gaining

anymore back? Take care everyone...