Re: Dr. Jabbour and Bone Marrow

[Guest guest]

BMA's are painful most of the time. I have posted before. I took two adavin

and 2 vicoden when I had them done. I was sort of in la la land. Still felt

it but not much. Tell your doctors how bad his last one was and maybe they

will give him something to put him in la la land. I am sure they will.

I wish you all the luck,

We will be thinking about you.

Sharon T

_____

From: [mailto: ] On Behalf Of

perryandlori

Sent: Tuesday, July 28, 2009 11:35 AM

Subject: [ ] Dr. Jabbour and Bone Marrow

Hello CML Family. Feel like I know you all as I read your posts all day long

via my blackberry. I have not written in a while. Sometimes it is all I can

do to keep up with my family of six and be involved with my parents. My dad

is the one that has CML. Well, long story short, as well as being diagnosed

with CML in Nov. 2008, he also suffered a major heart attack in March after

a heart cath. So it has been an up and down, mostly down battle. He has had

lots of side effects from the Gleevec and my sister and I have really pushed

our parents to go to MD . We live in middle georgia. So.... mom

looked into it and they called her today and said he has an appointment

Monday. I am going to go back in the archives that I have saved about MD

, but I had few questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this

time? I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to

be any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your

parent, when it was always them pushing you. I'll stop now and listen for

your advise.

God Bless,

Lori

[Guest guest]

Lori...

I go to MD and will be glad to help in any way i can.

1). Yes they can move fast to get you in.

2) I dont know anything abour Dr. Jabbour

3) You can ask that your dad get sedation (versed) for the bone marrow. It

makes it better and the techs at MDA are usually good.

4). It takes several days to do everything and then get all, or some of the

results. It may be less days, but plan for what they asked.

If you have any questions just ask away!

Rhonda

Dx Nov 2007

Sprycel only 80mg

Sent from my Verizon Wireless BlackBerry

[ ] Dr. Jabbour and Bone Marrow

Hello CML Family. Feel like I know you all as I read your posts all day long

via my blackberry. I have not written in a while. Sometimes it is all I can do

to keep up with my family of six and be involved with my parents. My dad is the

one that has CML. Well, long story short, as well as being diagnosed with CML

in Nov. 2008, he also suffered a major heart attack in March after a heart cath.

So it has been an up and down, mostly down battle. He has had lots of side

effects from the Gleevec and my sister and I have really pushed our parents to

go to MD . We live in middle georgia. So.... mom looked into it and

they called her today and said he has an appointment Monday. I am going to go

back in the archives that I have saved about MD , but I had few

questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this time?

I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to be

any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your parent,

when it was always them pushing you. I'll stop now and listen for your advise.

God Bless,

Lori

[Guest guest]

Hi Lori, I no longer go to MDACC, my dr. Talpaz left there and is now with the

U. of Mich, so I go there.  BUT, I did go to MDACC,, for almost 2 years.  And I

never had a bad experience there with a BMA/BMB.  The technicians there are well

trained,  and do a supberb job.  I don't believe they will sedate you there, but

perhaps his dr can prescribe an Ativan before the procedure, just to relax him

enough to put him at ease.

Good luck, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: perryandlori <perryandlori@...>

Subject: [ ] Dr. Jabbour and Bone Marrow

Date: Tuesday, July 28, 2009, 2:34 PM

 

Hello CML Family. Feel like I know you all as I read your

posts all day long via my blackberry. I have not written in a while. Sometimes

it is all I can do to keep up with my family of six and be involved with my

parents. My dad is the one that has CML. Well, long story short, as well as

being diagnosed with CML in Nov. 2008, he also suffered a major heart attack in

March after a heart cath. So it has been an up and down, mostly down battle.

He has had lots of side effects from the Gleevec and my sister and I have really

pushed our parents to go to MD . We live in middle georgia. So.... mom

looked into it and they called her today and said he has an appointment Monday.

I am going to go back in the archives that I have saved about MD , but I

had few questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this time?

I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to be

any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your parent,

when it was always them pushing you. I'll stop now and listen for your advise.

God Bless,

Lori

[Guest guest]

Hi Lori,

I go to MD for treatment of cml from Iowa. So I understand completely

the anxiety involved in traveling so far and being away for days at a time.  BUT

I have no regrets. You will find MDACC to be overwhelming at first. It's a very

large facility but the people there will be able to help you to get to your

appts.

When I was referred to MDACC it ony took 2 weeks! I was really surprised too. I

guess it doesn't give you time to rethink your decision. lol. You will not have

regrets - your dad will be in very good, experienced hands.

Re the bone marrow aspiration - the technicians do them all day long. Very good

at what they do. Your dad can also request pre-meds if he seems anxious. There

are others in this group that also go to MDACC so I know you will get all your

questions and concerns answered.

I am here now but will be flying back home tomorrow.  I will be returning Aug

10th so if you are still at MDACC, you may let me know and we can visit.  Bring

a GOOD book - there is alot of time sitting and waiting. Visit with people

around you while in the waiting area. I find that I learn so much by getting to

know the other patients.

My dr is Dr Cortes. I'm not familiar with Dr. Jabbour, but others might be. 

You are not making a mistake. Getting a second opinion is always good in many

different situations. Penny, from the group, came for a consult and I think her

doctor will be able to treat her as the doctors here would.  My dad was

diagnosed with Prostrate cancer in April. Since I was coming to Houston for

treatment he thought he would come too, just for another opinion. He was so

impressed with the doctors here that he will have his surgery and follow up

treatment here. 

There  are other drugs than Gleevec. Hopefully they will find one that works

better for your Dad.

 

Stay in touch. There are many here that can help you.

God Bless,

Jackie S.

From: perryandlori <perryandlori@...>

Subject: [ ] Dr. Jabbour and Bone Marrow

Date: Tuesday, July 28, 2009, 1:34 PM

 

Hello CML Family. Feel like I know you all as I read your posts all day long via

my blackberry. I have not written in a while. Sometimes it is all I can do to

keep up with my family of six and be involved with my parents. My dad is the one

that has CML. Well, long story short, as well as being diagnosed with CML in

Nov. 2008, he also suffered a major heart attack in March after a heart cath. So

it has been an up and down, mostly down battle. He has had lots of side effects

from the Gleevec and my sister and I have really pushed our parents to go to MD

. We live in middle georgia. So.... mom looked into it and they called

her today and said he has an appointment Monday. I am going to go back in the

archives that I have saved about MD , but I had few questions just to

throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could not

complete because it was so painful. What can we do differently this time? I

think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My dad

really does not want to go, but we decided that it would be a family decision.

Between three girls he lost:). But seriously, I don't want it to be any worse

than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor and

this won't be a disaster. You can probably feel my anxiety. I guess now it is

time to take a step, but it is so scary when you are pushing your parent, when

it was always them pushing you. I'll stop now and listen for your advise.

God Bless,

Lori

[Guest guest]

I'm so pleased to hear your dad will be going to MD !

I would ask for pain medication for the biopsy -- and not just lidocaine.

Best of luck -- I'll have my fingers crossed for you.

From: perryandlori@...

Date: Tue, 28 Jul 2009 18:34:44 +0000

Subject: [ ] Dr. Jabbour and Bone Marrow

Hello CML Family. Feel like I know you all as I read your

posts all day long via my blackberry. I have not written in a while. Sometimes

it is all I can do to keep up with my family of six and be involved with my

parents. My dad is the one that has CML. Well, long story short, as well as

being diagnosed with CML in Nov. 2008, he also suffered a major heart attack in

March after a heart cath. So it has been an up and down, mostly down battle.

He has had lots of side effects from the Gleevec and my sister and I have really

pushed our parents to go to MD . We live in middle georgia. So.... mom

looked into it and they called her today and said he has an appointment Monday.

I am going to go back in the archives that I have saved about MD , but I

had few questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this time?

I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to be

any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your parent,

when it was always them pushing you. I'll stop now and listen for your advise.

God Bless,

Lori

_________________________________________________________________

Bing™ brings you maps, menus, and reviews organized in one place. Try it now.

http://www.bing.com/search?q=restaurants & form=MLOGEN & publ=WLHMTAG & crea=TXT_MLOGE\

N_Local_Local_Restaurants_1x1

[Guest guest]

I think if the Dr is experienced it is not as painful.

Good luck your dad is in my prayers

Anita

________________________________

From: Sharon Teichera <onthewtr@...>

Sent: Tuesday, July 28, 2009 2:28:56 PM

Subject: RE: [ ] Dr. Jabbour and Bone Marrow

BMA's are painful most of the time. I have posted before. I took two adavin

and 2 vicoden when I had them done. I was sort of in la la land. Still felt

it but not much. Tell your doctors how bad his last one was and maybe they

will give him something to put him in la la land. I am sure they will.

I wish you all the luck,

We will be thinking about you.

Sharon T

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

perryandlori

Sent: Tuesday, July 28, 2009 11:35 AM

groups (DOT) com

Subject: [ ] Dr. Jabbour and Bone Marrow

Hello CML Family. Feel like I know you all as I read your posts all day long

via my blackberry. I have not written in a while. Sometimes it is all I can

do to keep up with my family of six and be involved with my parents. My dad

is the one that has CML. Well, long story short, as well as being diagnosed

with CML in Nov. 2008, he also suffered a major heart attack in March after

a heart cath. So it has been an up and down, mostly down battle. He has had

lots of side effects from the Gleevec and my sister and I have really pushed

our parents to go to MD . We live in middle georgia. So.... mom

looked into it and they called her today and said he has an appointment

Monday. I am going to go back in the archives that I have saved about MD

, but I had few questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this

time? I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to

be any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your

parent, when it was always them pushing you. I'll stop now and listen for

your advise.

God Bless,

Lori

[Guest guest]

My first one was a doozy because the white blood cells had become so dense the

doctor had to use the needle like a fork and scrape out what had become hard

matter. Yow! Did that hurt!

From: awristen1@...

Date: Tue, 28 Jul 2009 17:55:25 -0700

Subject: Re: [ ] Dr. Jabbour and Bone Marrow

I think if the Dr is experienced it is not as painful.

Good luck your dad is in my prayers

Anita

________________________________

From: Sharon Teichera <onthewtr@...>

Sent: Tuesday, July 28, 2009 2:28:56 PM

Subject: RE: [ ] Dr. Jabbour and Bone Marrow

BMA's are painful most of the time. I have posted before. I took two adavin

and 2 vicoden when I had them done. I was sort of in la la land. Still felt

it but not much. Tell your doctors how bad his last one was and maybe they

will give him something to put him in la la land. I am sure they will.

I wish you all the luck,

We will be thinking about you.

Sharon T

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

perryandlori

Sent: Tuesday, July 28, 2009 11:35 AM

groups (DOT) com

Subject: [ ] Dr. Jabbour and Bone Marrow

Hello CML Family. Feel like I know you all as I read your posts all day long

via my blackberry. I have not written in a while. Sometimes it is all I can

do to keep up with my family of six and be involved with my parents. My dad

is the one that has CML. Well, long story short, as well as being diagnosed

with CML in Nov. 2008, he also suffered a major heart attack in March after

a heart cath. So it has been an up and down, mostly down battle. He has had

lots of side effects from the Gleevec and my sister and I have really pushed

our parents to go to MD . We live in middle georgia. So.... mom

looked into it and they called her today and said he has an appointment

Monday. I am going to go back in the archives that I have saved about MD

, but I had few questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this

time? I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to

be any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your

parent, when it was always them pushing you. I'll stop now and listen for

your advise.

God Bless,

Lori