Dr. Jabbour and Bone Marrow

July 28, 2009

Hello CML Family. Feel like I know you all as I read your posts all day long

via my blackberry. I have not written in a while. Sometimes it is all I can do

to keep up with my family of six and be involved with my parents. My dad is the

one that has CML. Well, long story short, as well as being diagnosed with CML

in Nov. 2008, he also suffered a major heart attack in March after a heart cath.

So it has been an up and down, mostly down battle. He has had lots of side

effects from the Gleevec and my sister and I have really pushed our parents to

go to MD . We live in middle georgia. So.... mom looked into it and

they called her today and said he has an appointment Monday. I am going to go

back in the archives that I have saved about MD , but I had few

questions just to throw out.

1. Do they go this fast?? I thought it would be weeks out.

2. He has been assigned to Dr. Jabbour. Does anyone know anything about him?

3. He will have the Bone Marrow test. The last one he had they really could

not complete because it was so painful. What can we do differently this time?

I think I remember reading where some of you wrote in on that.

4. What should we expect? They told mom to plan on being there 5-6 days. My

dad really does not want to go, but we decided that it would be a family

decision. Between three girls he lost:). But seriously, I don't want it to be

any worse than it has to be and I would like to help them prepare.

I thnk that is all I can think of. We are really so naive that we don't know

what to ask. I feel like I am walking in a totally dark room. Plus this was

really my pushing for them to go out there. I just hope he has a good doctor

and this won't be a disaster. You can probably feel my anxiety. I guess now

it is time to take a step, but it is so scary when you are pushing your parent,

when it was always them pushing you. I'll stop now and listen for your advise.

God Bless,

Lori

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