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Marcos, I love that expression " some go away suggestions. " That is priceless!

From: montereyunderwater@...

Date: Wed, 1 Jul 2009 12:07:08 -0700

Subject: [ ] glossy Novartis

I had recently a rather frustrating experience that does not improve

my opinion of the pharmaceutical companies. After someone post on

about mycmlcircle program a few months ago I registered thinking it

may be some source of information. A few weeks later I got in the mail

a copay assistance card, that I wasn't expecting but got it anyway.

With it some nice looking brochures about the merits of gleevec and

tasigna and a letter explaining that Novartis, through some other

company opushealth, would refund for a year 15$ for each copay (25$).

Since dx I have used not far from 180,000$ of gleevec, giving back

180$ sounds very generous. At my next gleevec refill I present the

copay assistance card to the pharmacist at Kaiser who tells me he

can't do anything with it, I ask her to call the number on the card

but she refuses to do it. So back at the office I call them myself and

get quickly somebody quite cheery who tells me they will send a refund

form in the mail. A month later still nothing so I call them back.

This time the tone is a little different. The person from opushealth

starts with some go away suggestions and then asks some funny

questions, like do I know why Kaiser Permanente doesn't want to deal

with their card. I ask him why somebody told me a month earlier they

were sending a refund form and didn't without any explanation. He then

ask me to hold, I wait 15mn, he come back to tell me they are

investigating about Kaiser and I will be contacted soon. That was a

month ago. I also talked with people at Kaiser without getting

anywhere. I hope other people who got the card had better luck with

it. I am giving up, not quite worth a fight. I wonder how much for the

glossy brochures.

Marcos.

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 468 9926 (cell)

marcospg@...

montereyunderwater@...

www.stanford.edu/~marcospg/

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Hi Marcos: I will let you know what happens when I get my next order of my

Gleevec which is another 2 weeks. When I got my CML Circle card I called my

pharmacy which is Accredo Phcy with Medco. He asked me for my number on the

card to put into the computer, and nothing more was said. I am presently paying

$80.00 for a 90 day supply. If I get a bill for just $65.00 then thats a plus

for me, but if not I think my $80.00 is okay when I listen to what others are

paying.

I will post as soon as I know. I know how frustrating things get.

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I had the same experience with the Kaiser Pharmacy  and mycmlcircle crad number

and tried calling customer service but I really didn't have the energy for the

run around.  They said the only time Kaiser can use a card is if it is like a

credit card- whatever that means.

--- On Wed, 7/1/09, Marcos Perreau Guimaraes <montereyunderwater@...>

wrote:

From: Marcos Perreau Guimaraes <montereyunderwater@...>

Subject: [ ] glossy Novartis

" " < >

Date: Wednesday, July 1, 2009, 12:07 PM

I had recently a rather frustrating experience that does not improve

my opinion of the pharmaceutical companies. After someone post on

about mycmlcircle program a few months ago I registered thinking it

may be some source of information. A few weeks later I got in the mail

a copay assistance card, that I wasn't expecting but got it anyway.

With it some nice looking brochures about the merits of gleevec and

tasigna and a letter explaining that Novartis, through some other

company opushealth, would refund for a year 15$ for each copay (25$).

Since dx I have used not far from 180,000$ of gleevec, giving back

180$ sounds very generous. At my next gleevec refill I present the

copay assistance card to the pharmacist at Kaiser who tells me he

can't do anything with it, I ask her to call the number on the card

but she refuses to do it. So back at the office I call them myself and

get quickly somebody quite cheery who tells me they will send a refund

form in the mail. A month later still nothing so I call them back.

This time the tone is a little different. The person from opushealth

starts with some go away suggestions and then asks some funny

questions, like do I know why Kaiser Permanente doesn't want to deal

with their card. I ask him why somebody told me a month earlier they

were sending a refund form and didn't without any explanation. He then

ask me to hold, I wait 15mn, he come back to tell me they are

investigating about Kaiser and I will be contacted soon. That was a

month ago. I also talked with people at Kaiser without getting

anywhere. I hope other people who got the card had better luck with

it. I am giving up, not quite worth a fight. I wonder how much for the

glossy brochures.

Marcos.

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 468 9926 (cell)

marcospgstanford (DOT) edu

montereyunderwater@ gmail.com

www.stanford. edu/~marcospg/

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I am a Kaiser patient too. Never heard of the card. But I am so so thankful

for what they do pay. Everytime I pick up my prescription for Tasigna 3

boxes of 28 pills, which .lasts me a little over three weeks the receipt

says that Kaiser saved me $5000. It only costs me $30.00. Can you imagine

--- I could not do it at all!!!

Sharon T

_____

From: [mailto: ] On Behalf Of china

neal

Sent: Wednesday, July 01, 2009 6:31 PM

Subject: Re: [ ] glossy Novartis

I had the same experience with the Kaiser Pharmacy and mycmlcircle crad

number and tried calling customer service but I really didn't have the

energy for the run around. They said the only time Kaiser can use a card is

if it is like a credit card- whatever that means.

From: Marcos Perreau Guimaraes <montereyunderwater@

<mailto:montereyunderwater%40gmail.com> gmail.com>

Subject: [ ] glossy Novartis

" " <groups (DOT) <mailto:%40> com>

Date: Wednesday, July 1, 2009, 12:07 PM

I had recently a rather frustrating experience that does not improve

my opinion of the pharmaceutical companies. After someone post on

about mycmlcircle program a few months ago I registered thinking it

may be some source of information. A few weeks later I got in the mail

a copay assistance card, that I wasn't expecting but got it anyway.

With it some nice looking brochures about the merits of gleevec and

tasigna and a letter explaining that Novartis, through some other

company opushealth, would refund for a year 15$ for each copay (25$).

Since dx I have used not far from 180,000$ of gleevec, giving back

180$ sounds very generous. At my next gleevec refill I present the

copay assistance card to the pharmacist at Kaiser who tells me he

can't do anything with it, I ask her to call the number on the card

but she refuses to do it. So back at the office I call them myself and

get quickly somebody quite cheery who tells me they will send a refund

form in the mail. A month later still nothing so I call them back.

This time the tone is a little different. The person from opushealth

starts with some go away suggestions and then asks some funny

questions, like do I know why Kaiser Permanente doesn't want to deal

with their card. I ask him why somebody told me a month earlier they

were sending a refund form and didn't without any explanation. He then

ask me to hold, I wait 15mn, he come back to tell me they are

investigating about Kaiser and I will be contacted soon. That was a

month ago. I also talked with people at Kaiser without getting

anywhere. I hope other people who got the card had better luck with

it. I am giving up, not quite worth a fight. I wonder how much for the

glossy brochures.

Marcos.

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 468 9926 (cell)

marcospgstanford (DOT) edu

montereyunderwater@ gmail.com

www.stanford. edu/~marcospg/

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The problem is not with Kaiser, I am also happy and lucky to have

decent benefits from my work. My beef is with Novartis who can't even

keep its word, even for so little. I don't need that bad the 180$ they

promised to refund and I didn't ask for it in the first place, but

they said they would. With the 40B$ they made in revenues with gleevec

alone, one would think they wouldn't be fighting so hard to keep the

change. I am pretty sure their lobbyists in Washington are using

mycmlcircle right now to show how they give all back to the patients,

everything is nice and rosy, you have nothing to change Mr President.

Here's a glossy brochure.

Marcos.

On Wed, Jul 1, 2009 at 11:05 PM, Sharon Teichera<onthewtr@...> wrote:

>

>

> I am a Kaiser patient too. Never heard of the card. But I am so so thankful

> for what they do pay. Everytime I pick up my prescription for Tasigna 3

> boxes of 28 pills, which .lasts me a little over three weeks the receipt

> says that Kaiser saved me $5000. It only costs me $30.00. Can you imagine

> --- I could not do it at all!!!

>

> Sharon T

>

> _____

>

> From: [mailto: ] On Behalf Of china

> neal

> Sent: Wednesday, July 01, 2009 6:31 PM

>

> Subject: Re: [ ] glossy Novartis

>

> I had the same experience with the Kaiser Pharmacy and mycmlcircle crad

> number and tried calling customer service but I really didn't have the

> energy for the run around. They said the only time Kaiser can use a card is

> if it is like a credit card- whatever that means.

>

>

>

> From: Marcos Perreau Guimaraes <montereyunderwater@

> <mailto:montereyunderwater%40gmail.com> gmail.com>

> Subject: [ ] glossy Novartis

> " " <groups (DOT) <mailto:%40> com>

> Date: Wednesday, July 1, 2009, 12:07 PM

>

> I had recently a rather frustrating experience that does not improve

> my opinion of the pharmaceutical companies. After someone post on

> about mycmlcircle program a few months ago I registered thinking it

> may be some source of information. A few weeks later I got in the mail

> a copay assistance card, that I wasn't expecting but got it anyway.

> With it some nice looking brochures about the merits of gleevec and

> tasigna and a letter explaining that Novartis, through some other

> company opushealth, would refund for a year 15$ for each copay (25$).

> Since dx I have used not far from 180,000$ of gleevec, giving back

> 180$ sounds very generous. At my next gleevec refill I present the

> copay assistance card to the pharmacist at Kaiser who tells me he

> can't do anything with it, I ask her to call the number on the card

> but she refuses to do it. So back at the office I call them myself and

> get quickly somebody quite cheery who tells me they will send a refund

> form in the mail. A month later still nothing so I call them back.

> This time the tone is a little different. The person from opushealth

> starts with some go away suggestions and then asks some funny

> questions, like do I know why Kaiser Permanente doesn't want to deal

> with their card. I ask him why somebody told me a month earlier they

> were sending a refund form and didn't without any explanation. He then

> ask me to hold, I wait 15mn, he come back to tell me they are

> investigating about Kaiser and I will be contacted soon. That was a

> month ago. I also talked with people at Kaiser without getting

> anywhere. I hope other people who got the card had better luck with

> it. I am giving up, not quite worth a fight. I wonder how much for the

> glossy brochures.

> Marcos.

>

> --

> Marcos Perreau Guimaraes

> Suppes Brain Lab

> Ventura Hall - CSLI

> Stanford University

> 220 Panama street

> Stanford CA 94305-4101

> 650 614 2305

> 650 468 9926 (cell)

> marcospgstanford (DOT) edu

> montereyunderwater@ gmail.com

> www.stanford. edu/~marcospg/

>

>

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Ive heard great things about Kaiser and some not so great things.

My insurance is with HealthNet, I use greater sacramento pharmacy to fill my

gleevec rx per my dr's recommendation (they deliver to my door the day after i

call for a refill). Last month they let me know about the $15 rebate and they

advised me they would be able to apply it for the next year!! I am happy to save

$$ where i can!

Karyn

>

> From: Marcos Perreau Guimaraes <montereyunderwater@

> <mailto:montereyunderwater%40gmail.com> gmail.com>

> Subject: [ ] glossy Novartis

> " " <groups (DOT) <mailto:%40> com>

> Date: Wednesday, July 1, 2009, 12:07 PM

>

> I had recently a rather frustrating experience that does not improve

> my opinion of the pharmaceutical companies. After someone post on

> about mycmlcircle program a few months ago I registered thinking it

> may be some source of information. A few weeks later I got in the mail

> a copay assistance card, that I wasn't expecting but got it anyway.

> With it some nice looking brochures about the merits of gleevec and

> tasigna and a letter explaining that Novartis, through some other

> company opushealth, would refund for a year 15$ for each copay (25$).

> Since dx I have used not far from 180,000$ of gleevec, giving back

> 180$ sounds very generous. At my next gleevec refill I present the

> copay assistance card to the pharmacist at Kaiser who tells me he

> can't do anything with it, I ask her to call the number on the card

> but she refuses to do it. So back at the office I call them myself and

> get quickly somebody quite cheery who tells me they will send a refund

> form in the mail. A month later still nothing so I call them back.

> This time the tone is a little different. The person from opushealth

> starts with some go away suggestions and then asks some funny

> questions, like do I know why Kaiser Permanente doesn't want to deal

> with their card. I ask him why somebody told me a month earlier they

> were sending a refund form and didn't without any explanation. He then

> ask me to hold, I wait 15mn, he come back to tell me they are

> investigating about Kaiser and I will be contacted soon. That was a

> month ago. I also talked with people at Kaiser without getting

> anywhere. I hope other people who got the card had better luck with

> it. I am giving up, not quite worth a fight. I wonder how much for the

> glossy brochures.

> Marcos.

>

> --

> Marcos Perreau Guimaraes

> Suppes Brain Lab

> Ventura Hall - CSLI

> Stanford University

> 220 Panama street

> Stanford CA 94305-4101

> 650 614 2305

> 650 468 9926 (cell)

> marcospgstanford (DOT) edu

> montereyunderwater@ gmail.com

> www.stanford. edu/~marcospg/

>

>

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