Interesting Drs appt!!!

[Guest guest]

Well, I went to the Dr today...the one that came to see me while I was in the

hospital this last time and I think I have a very good Dr now. I THOUGHT the

last one was good but Dr brought to my attention today that the BMB

report that I have and have had since I was diagnosed with CML is not complete.

He was looking for some " important " information on it and it wasn't on there.

Now I was seeing a Dr in SC since I was diagnosed with CML and he looked at the

same report that Dr looked at today and it's funny but he NEVER

mentioned to me that it was not a complete report. I had NO idea it wasn't

complete since all this is new to me. Dr had his secretary call the

hospital where the BMB was done and request the rest of the report. It's amazing

how some Drs seem to really care about their patients and others just look at us

like a piece of money or an assembly line. Dr trained at Mayo clinic and

he sounds like he really knows his stuff when it comes to CML. He is the ONLY Dr

that has mentioned anything to me about a mutation cell test. He said after I am

on Gleevec 400mg for 3 months, if it is not continuing to bring my wbc down then

he will do a mutation cell test to see if my body is absorbing the

Gleevec....does that sound right? My memory is not real good and hasn't been for

a while now but I'm not sure if it has anything to do with CML or if it's

depression. Anyway, I just wanted to mention the fact that I have been treated

all this time without having a COMPLETE report of my BMB. Maybe I will continue

to get better now. Oh, another interesting thing happened...I am shrinking in

height, lol. I was 5'8 " a few years ago and they measured me today and I am only

5'6 1/2 " ...does CML cause that too? lol...When they measured me in SC on my

first visit there I was 5'7 " . Makes no sense to me!!! I have been losing weight

since I was diagnosed too but today I have gained almost 3 pounds back of the 36

that I lost. I am not too happy about that...I like losing it, I don't want to

gain weight! Any ideas on how I can keep from gaining anymore back? Take care

everyone...