Tasigna

[Guest guest]

Hi All. It's great to see all the discussion on Tasigna. After

being on Gleevec for many years - with many side effects - I do think that

no matter what we all switch to - we still will have to deal with various

side effects. : -( Doesn't seem fair. It is a chemo after all.

My biggest concern with the Tasigna now is extreme fatigue - and constant

" shakes " . I recall the extreme fatigue when I started on Gleevec and am

again experiencing it as I start Tasigna. (After work, I pull my car into

the garage and shut the door - and recline my car seat to just nap and get

some strength to carry my purse and backpack into the house!) (Is that not

pathetic?) I recall doing the SAME thing when I was initially on Gleevec

too.

The shakiness is something totally foreign to me. My whole body feels

" quivery " all over inside and out - and my hands are physically trembling.

I did not have this on Gleevec. I've also found that I am having more

intense nausea on this new drug. Hopefully this will all abate. It's

certainly comforting knowing we all have options for our CML - which is a

real blessing.

I remember a dear friend who was on the ACOR BMT list - some of you may

remember her - Debi Hoegler . . . She was a one of a kind breath of fresh

air and unfortunately had her lymphoma return and passed away. Her

favorite saying was 'When the train leaves the station - hop onboard and go

for the ride' Glad we are all here to share the ride together.

Thanks friends!

Most sincerely,

Barbara Heathcote