Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Sandy, I'm traveling, so I'm running late on messages . .. .I think I already answered some of your questions about garlic . . . but . . . how you eat it is up to you! . . . The active chemical that makes it work is released when the garlic is crushed . . . It disappears with heat or processing . .. so fresh is important. Some women like the flavor of fresh garlic . . . some not. . I mix some with mayo and eat it with a bit of bread and meat, sprinkle it on a salad, or over (already prepared) spagetti. You can buy empy gel caps that you can open an use to scrape the garlic off the press . .. close and swallow. Eating some fresh apple or parsley afterwards will help clear the taste . . . Keep some garlic flavored foods around for those who are near you so they won't notice so much! I had a similar problem with my mouth when eating sweets. The dentist said that was very unusual, but after having my teeth deeply scaled and gums cut back, that has stopped. . . . I hope you don't have to go to that extent! I'd recommend reading up on Candida issues . . . "The Yeast Connection" is a very good book. . . . The necessity for eating a diet that eliminates fungal problems and recolonizes your body with beneficial organisms is spelled out in "The Maker's Diet". Basically, (IMHO), until you have your implants properly removed, you'll be fighting an uphill battle. . . That's not to say you shouldn't do everything possible though. . . Every bit you can do to rid your body of fungal/yeast organisms is going to help! I'd suggest starting with one bottle of Fungal Defense, followed by Primal Defense indefinitely . . . plus naturally fermented foods. . . . Of course, drinking copious amounts of non-chlorinated water is essential! . . . When you start killing off the negative organisms, you can expect an initial backlash which you want to flush ASAP! We have a lot more in the archives . . . Budget wise, fasting can't be beaten for depriving fungal organisms of the nutrients they need . . . But then you must put the good organisms back so (eventually) they can do the job without much assistance from you. Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Sandy, I'm so sorry you're going through this! . . . That's why we're here . . . Doctors simply don't take implant problems seriously, or know how to help! There's too much money invested in keeping these toxic bags on the market! You can feel better by eating really healthy and using supplements - but in the long run, the only way you can be sure of feeling better is to have the capsules removed. I know how bad you hate to hear this - but I have to be straight with you. I think everyone else here will agree. You're going to have your work cut out for you if you're going to try to manage by diet and supplement alone . . . "The Maker's Diet" and "The Yeast Connection" are good starting points. . . Check www.curezone.com for detoxing info . . . in particular liver flushes. I recently started using detox foot pads. . . You'd be amazed at what comes out! . . . The best prices on are ebay. . . Some of the ladies have experienced detox foot baths . . . this uses a machine that alternates between positive and negative ions in salt water where you soak your feet. . . Long term, the foot baths should be more economical. Doing web searches for both of these will tell you much more. Garlic is a natural medicine that the body doesn't build a resistance to like it does antibiotics. . . . There are others . . . Oil of Oregano, Olive Leaf extract and Grapefruit seed extract. . . You'll get the best result from garlic right off the grocery shelf . . . Start with one clove, and gradually work up to 12 cloves a day. . . and Yes, you will smell of garlic! . . . Oil of Oregano and Olive Leaf extract come in liquid or capsules . . grapefruit seed extract is a drop . you use liquids by the drop . . . you'll want to put them in a liquid. When you start detoxing, the die-off of fungal organisms creates a by-product that's toxic. . . The liver will have to work overtime trying to get rid of these toxins . . . so go easy! . . . If you go at it too fast, you'll feel really bad! . .. . and drink a lot of water . . . Minimum, 1/2 ounce of water per pound of body weight daily - or more. There are some other products that I'd recommend . . . they can get costly though . . . I take Natural Cellular Defense (NCD), N.A.C., Alpha Lipoic Acid, L-Glutamine, as well as Folic acid. Garden of Life's high quality cod liver oil (no mercury), Perfect Food, Living Multi, LIving Calcium, and Primal Defense. Also, avoid sugar like the plague . . .Sugar feeds fungal organisms . . . so do refined grains (but not so much) . . . It's possible that insurance (if you have it) will cover explant . . . It's cheaper for insurance to pay for the explant than it is to keep implants in . . . They pay for health issues resulting from drinking, drugs, overeating and carelessness . . . Implants should be no different! I hope your children were born before you had your implants. . . We've found that children born afterwards (especially to symptomatic women) have a wide range of health issues too. . . . I have a group for the parents 's SiliconeKids group. Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Sandy, I'm so glad you have your implants out... you are definitely on the road to healing. Mine have been in for 20 yrs. and are coming out on July 26 - I am so excited and nervous at the same time. This site has been a life saver for me...these women are so caring, it's a real blessing. Rogene, thank you for your wisdom and experience. Sugar is not even a food - it's another chemical. Poison to our systems. A friend of mine told me about Stevia, a herbal sugar replacement. You can get it at health food stores in powder or liquid. My prayers are with you through this time of healing, Sandy. If there's anything I can do to help, let me know. Love & lots of joy and comfort, Sunny > > Sandy, > > I'm so sorry you're going through this! . . . That's why we're here . . . Doctors simply don't take implant problems seriously, or know how to help! There's too much money invested in keeping these toxic bags on the market! > > You can feel better by eating really healthy and using supplements - but in the long run, the only way you can be sure of feeling better is to have the capsules removed. I know how bad you hate to hear this - but I have to be straight with you. I think everyone else here will agree. > > You're going to have your work cut out for you if you're going to try to manage by diet and supplement alone . . . " The Maker's Diet " and " The Yeast Connection " are good starting points. . . Check www.curezone.com for detoxing info . . . in particular liver flushes. > > I recently started using detox foot pads. . . You'd be amazed at what comes out! . . . The best prices on are ebay. . . Some of the ladies have experienced detox foot baths . . . this uses a machine that alternates between positive and negative ions in salt water where you soak your feet. . . Long term, the foot baths should be more economical. Doing web searches for both of these will tell you much more. > > Garlic is a natural medicine that the body doesn't build a resistance to like it does antibiotics. . . . There are others . . . Oil of Oregano, Olive Leaf extract and Grapefruit seed extract. . . You'll get the best result from garlic right off the grocery shelf . . . Start with one clove, and gradually work up to 12 cloves a day. . . and Yes, you will smell of garlic! . . . Oil of Oregano and Olive Leaf extract come in liquid or capsules . . grapefruit seed extract is a drop . you use liquids by the drop . . . you'll want to put them in a liquid. > > When you start detoxing, the die-off of fungal organisms creates a by-product that's toxic. . . The liver will have to work overtime trying to get rid of these toxins . . . so go easy! . . . If you go at it too fast, you'll feel really bad! . .. . and drink a lot of water . . . Minimum, 1/2 ounce of water per pound of body weight daily - or more. > > There are some other products that I'd recommend . . . they can get costly though . . . I take Natural Cellular Defense (NCD), N.A.C., Alpha Lipoic Acid, L-Glutamine, as well as Folic acid. Garden of Life's high quality cod liver oil (no mercury), Perfect Food, Living Multi, LIving Calcium, and Primal Defense. > > Also, avoid sugar like the plague . . .Sugar feeds fungal organisms . . . so do refined grains (but not so much) . . . > > It's possible that insurance (if you have it) will cover explant . . . It's cheaper for insurance to pay for the explant than it is to keep implants in . . . They pay for health issues resulting from drinking, drugs, overeating and carelessness . . . Implants should be no different! > > I hope your children were born before you had your implants. . . We've found that children born afterwards (especially to symptomatic women) have a wide range of health issues too. . . . I have a group for the parents 's SiliconeKids group. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Hi Rogene, Are you taking B-vitamins along with your folate? You really ought to be taking at least B12, if nothing else. Kenda > I'm so sorry you're going through this! . . . That's why we're here . . . > Doctors simply don't take implant problems seriously, or know how to help! > There's too much money invested in keeping these toxic bags on the market! > > You can feel better by eating really healthy and using supplements - but in > the long run, the only way you can be sure of feeling better is to have the > capsules removed. I know how bad you hate to hear this - but I have to be > straight with you. I think everyone else here will agree. > > You're going to have your work cut out for you if you're going to try to > manage by diet and supplement alone . . . " The Maker's Diet " and " The Yeast > Connection " are good starting points. . . Check www.curezone.com for detoxing > info . . . in particular liver flushes. > > I recently started using detox foot pads. . . You'd be amazed at what comes > out! . . . The best prices on are ebay. . . Some of the ladies have > experienced detox foot baths . . . this uses a machine that alternates between > positive and negative ions in salt water where you soak your feet. . . Long > term, the foot baths should be more economical. Doing web searches for both of > these will tell you much more. > > Garlic is a natural medicine that the body doesn't build a resistance to > like it does antibiotics. . . . There are others . . . Oil of Oregano, Olive > Leaf extract and Grapefruit seed extract. . . You'll get the best result from > garlic right off the grocery shelf . . . Start with one clove, and gradually > work up to 12 cloves a day. . . and Yes, you will smell of garlic! . . . Oil > of Oregano and Olive Leaf extract come in liquid or capsules . . grapefruit > seed extract is a drop . you use liquids by the drop . . . you'll want to put > them in a liquid. > > When you start detoxing, the die-off of fungal organisms creates a > by-product that's toxic. . . The liver will have to work overtime trying to > get rid of these toxins . . . so go easy! . . . If you go at it too fast, > you'll feel really bad! . .. . and drink a lot of water . . . Minimum, 1/2 > ounce of water per pound of body weight daily - or more. > > There are some other products that I'd recommend . . . they can get costly > though . . . I take Natural Cellular Defense (NCD), N.A.C., Alpha Lipoic Acid, > L-Glutamine, as well as Folic acid. Garden of Life's high quality cod liver > oil (no mercury), Perfect Food, Living Multi, LIving Calcium, and Primal > Defense. > > Also, avoid sugar like the plague . . .Sugar feeds fungal organisms . . . so > do refined grains (but not so much) . . . > > It's possible that insurance (if you have it) will cover explant . . . It's > cheaper for insurance to pay for the explant than it is to keep implants in . > . . They pay for health issues resulting from drinking, drugs, overeating and > carelessness . . . Implants should be no different! > > I hope your children were born before you had your implants. . . We've found > that children born afterwards (especially to symptomatic women) have a wide > range of health issues too. . . . I have a group for the parents 's > SiliconeKids group. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Thanks Kenda, I haven't been taking additional B vitamins - other than what's in Living Multi . . . but, on your recommendation I will . . . Thanks! Please tell me more about them! Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 > > I would like to be part of the hepatitis C support group. > > D > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Rab, Through Google, check up on " Offshore Women's Support Link " . It's a P O Box Number in Falkirk, plus a telephone number, but would otherwise generally fit the bill I believe. Regards, Phil Aitken-Davies Rab Aitken <Suerab1@...> wrote: This is mainly for those who work out of Aberdeen. Is there a support group for wifes,girlfriends,family ect ect,. I seem to remember when working out of Abn there was, if so, anybody got contact No's. Thanks Rab Aitken Member Information: List owner: Ian Sharpe Owner@... Editor: Ross Boardman Editor@... ALL list admin messages (subscriptions & unsubscriptions) should be sent to the list owner. Post message: egroups Please visit our website http://www.remotemedics.co.uk Regards The Remote Medics Team Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 I was wondering if there was a support > group in the Puyallup or Tacoma area? I also believe I'm ready for a > fill and would like to know if anyone knows of a good place to go? Keep watching this group and they will post the times and locations of there meetings. I have heard that Dr. Neal in Tacoma is most excellent. Chris Dr. Kuri 9/29/06 300/270/150 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hi , Wow, 38# in 6 weeks! Fantastic! Are you sure you need a fill? =) I use Dr. Neal in Olympia - 866-722-6363. You can email them at info@.... They charge $350 per fill, $150 per unfill and they use fluoro. I'm not sure about the support group in Tacoma, hopefully you'll hear from some of the other bandsters. Good luck! Kelli 5/26/06 Dr. 262/211/200-mini ----entire quoted post removed by moderator ----- ----please trim your posts!----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Lets keep the kinder, gentler support group-we have all suffered too much allready. The mold brain may spell badly,and obsess,or not keep to headings, all is forgiven. I have never been irritated by any posts, only gratefull I am healthy enough to post. Some are not.Sometimes I'm not. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Hi guys, I called a lady who was advertising in our local paper about wanting to start a support group in December and now we are great friends :-) Her son is 7 and dx AS. We have together started a local HFA/AS support group and so far have had a good response. Our local paper will be interviewing us tomorrow about our group...any ideas on what to share or stress to them about ASD? There is such a need for support and I feel lucky to have this group :-) Does anyone else have/run a support group and is there anything I should know or try?? Thanks - C. Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID Re: ( ) Newbie Introduction Thanks Pam, I tried to call them last week and their phone is shut off. After talking to some other organizations, looking for a more advanced parenting group, I was told they lost their funding and " there isn't much going on there lately " I have been looking into starting a parenting group to support parents that need more eduation, support and resources above and beyond " the basics " . - Richelle 29yo,Anchorage,Alaska Personal Assistant, Chauffeur and Automatic Treat Dispenser Recent Activity a.. 28New Members b.. 5New Photos Visit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 The thing I always stress is to look at the child, not the label. For example, not everyone with the same hair color or from the same city is alike so why should our kids be looked at as anything less than an individual? Tonya Re: ( ) support group Hi guys, I called a lady who was advertising in our local paper about wanting to start a support group in December and now we are great friends :-) Her son is 7 and dx AS. We have together started a local HFA/AS support group and so far have had a good response. Our local paper will be interviewing us tomorrow about our group...any ideas on what to share or stress to them about ASD? There is such a need for support and I feel lucky to have this group :-) Does anyone else have/run a support group and is there anything I should know or try?? Thanks - C. Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID Re: ( ) Newbie Introduction Thanks Pam, I tried to call them last week and their phone is shut off. After talking to some other organizations, looking for a more advanced parenting group, I was told they lost their funding and " there isn't much going on there lately " I have been looking into starting a parenting group to support parents that need more eduation, support and resources above and beyond " the basics " . - Richelle 29yo,Anchorage,Alaska Personal Assistant, Chauffeur and Automatic Treat Dispenser Recent Activity a.. 28New Members b.. 5New Photos Visit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Yes, we have encountered your problem. Now, we offer a planned topic each week, which is the focus of that week's educational component of group. Topics may be nutrition related or psych related, and they are listed on the schedule, which is distributed q 3 mos. Groups are only led by myself (the RD) or the therapist (CSW) who did their psychosocial evals pre op. Scheduling topics in advance allows us to plan and structure the night, and allows pts to make efforts to attend on dates that the topic is relevant for them, and not feel they have wasted their time if they go out of their way to get there one night and leave feeling nothing was accomplished (though WE know you can ALWAYS get something out of group). The core group of regulars always come. The topic-centered aspect is approx 1 hr, followed by open discussion. The topic centered educational piece is very valuable for many patients, and education and reinforcement of principles is something they need. Sometimes it's even just basic nutrition, but they eat it up (pardon the pun!) It helps to meet the needs of the newer pts, and reinforces principles for the longer post ops too. This format also prevents too much personal discussion and (perhaps complaining) which drives some patients away. We used to do it loosely......without a specific topic......... and this way works better for our population. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 What are some of your topics? Can you give us some idea of the flow of your meeting? Very much appreciated b/c our sessions right now are quite fluid and I am looking for more structure. Thanks! -------------- Original message -------------- From: dja109@... Yes, we have encountered your problem. Now, we offer a planned topic each week, which is the focus of that week's educational component of group. Topics may be nutrition related or psych related, and they are listed on the schedule, which is distributed q 3 mos. Groups are only led by myself (the RD) or the therapist (CSW) who did their psychosocial evals pre op. Scheduling topics in advance allows us to plan and structure the night, and allows pts to make efforts to attend on dates that the topic is relevant for them, and not feel they have wasted their time if they go out of their way to get there one night and leave feeling nothing was accomplished (though WE know you can ALWAYS get something out of group). The core group of regulars always come. The topic-centered aspect is approx 1 hr, followed by open discussion. The topic centered educational piece is very valuable for many patients, and education and reinforcement of principles is somethin g they need. Sometimes it's even just basic nutrition, but they eat it up (pardon the pun!) It helps to meet the needs of the newer pts, and reinforces principles for the longer post ops too. This format also prevents too much personal discussion and (perhaps complaining) which drives some patients away. We used to do it loosely......without a specific topic......... and this way works better for our population. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Where are you located? They have different groups for different areas camcamajn <camcamajn@...> wrote: Hello, My son is 2 1/2 and he was just labeled with apraxia. Just wondering if there is a support group where we and talk to other parents that are going through the same things we are. Please let me know. Thanks Amy " Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him and He will make your paths straight. " Proverbs 3: 5-6 Only two defining forces have ever offered to die for you - Jesus Christ and the American soldier. One died for your soul, and the other for your freedom. We all have special needs,Just some are more obvious than others --------------------------------- Need Mail bonding? Go to the Q & A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 What state/country do you live in? You can check Speechville here to find local support groups http://www.speechville.com/communication-station/regional-support-groups.html You can also put what state/country you are in right in the subject line because chances are there are other parents and professionals near you that are part of this group. Many of us met through this grouplist and then over time got to know each other and then met in person and became friends in the " real world " ...even when our children aren't the exact same age! (Like Mustafa and me -her son Khalid is around 10 years older than Tanner and his journey has been an inspiration to me being there are few out there with children older than Tanner who have success stories) What's good is that you can share and learn the importance of a multifaceted approach. The Kaufman technique, a touch cue/PROMPT technique and oral motor therapy together may all provide help to your child. It's wonderful to find therapists who combine various techniques because not all children respond the same way to therapy. The only type of therapy that you need to proceed with caution with if your child is not autistic is ABA therapy. (of course here we have a number of members who have children that are both autistic and apraxic...then a modified ABA approach may be appropriate) Also -I co authored The Late Talker book just for your situation...and wish it was there for me when my son was 2 and 1/2...as well as all the information we now know in how to help even more. There's still so much to learn -but the most important thing to know is there is SO MUCH HOPE for all the children in this group. And BTW -did you go to Bilker's " Talking Page " ? That was a favorite site of mine when my son Tanner was first diagnosed....of course back then 8 years ago -'s son was the only one there to listen to just about! http://www.debtsmart.com/talk (my son Tanner is there too...but by the first time he was recorded he was already on the EFAs for around 8 months and that was an amazing surge from where he was before. One of the only professionals that worked with Tanner pre -EFA was grouplist member Zimet CCC SLP who now works with Georgia EI -back then she worked with NJ EI. you rock! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Thanks for your response. I live in Manhattan. Your book that you wrote was very helpful to be. My son just started the proped therapy. I was think of giving him the fish oil what is the best way to start him on that. Annie kiddietalk <kiddietalk@...> wrote: What state/country do you live in? You can check Speechville here to find local support groups http://www.speechville.com/communication-station/regional-support-groups.html You can also put what state/country you are in right in the subject line because chances are there are other parents and professionals near you that are part of this group. Many of us met through this grouplist and then over time got to know each other and then met in person and became friends in the " real world " ...even when our children aren't the exact same age! (Like Mustafa and me -her son Khalid is around 10 years older than Tanner and his journey has been an inspiration to me being there are few out there with children older than Tanner who have success stories) What's good is that you can share and learn the importance of a multifaceted approach. The Kaufman technique, a touch cue/PROMPT technique and oral motor therapy together may all provide help to your child. It's wonderful to find therapists who combine various techniques because not all children respond the same way to therapy. The only type of therapy that you need to proceed with caution with if your child is not autistic is ABA therapy. (of course here we have a number of members who have children that are both autistic and apraxic...then a modified ABA approach may be appropriate) Also -I co authored The Late Talker book just for your situation...and wish it was there for me when my son was 2 and 1/2...as well as all the information we now know in how to help even more. There's still so much to learn -but the most important thing to know is there is SO MUCH HOPE for all the children in this group. And BTW -did you go to Bilker's " Talking Page " ? That was a favorite site of mine when my son Tanner was first diagnosed....of course back then 8 years ago -'s son was the only one there to listen to just about! http://www.debtsmart.com/talk (my son Tanner is there too...but by the first time he was recorded he was already on the EFAs for around 8 months and that was an amazing surge from where he was before. One of the only professionals that worked with Tanner pre -EFA was grouplist member Zimet CCC SLP who now works with Georgia EI -back then she worked with NJ EI. you rock! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 Hi , I was reading your post about being careful if a child is doing ABA but is not autistic. Can you explain? My daughter, is 3, not walking or talking yet with no diagnosis. She started ABA to help with finemotor, sensory, oral motor and we did see some improvement, although my OT and PT, felt we needed to be careful too. OUr Behavioral analysis said that since she is a " slow learner " (which I think is because of sever sensory processing disorder- vestibular/dyspraxia, that she should be in an ABA program all day long. Any further thoughts will be appreciated! Kathy ________________________________________________________________________________\ ____ Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut. http://tools.search./shortcuts/#loc_weather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 There is a good string of posts re: ABA in the archives. If you do a search for " How is ABA harmful? " you'll get them. > > Hi , > > I was reading your post about being careful if a child > is doing ABA but is not autistic. Can you explain? My > daughter, is 3, not walking or talking yet with no > diagnosis. She started ABA to help with finemotor, > sensory, oral motor and we did see some improvement, > although my OT and PT, felt we needed to be careful > too. OUr Behavioral analysis said that since she is a > " slow learner " (which I think is because of sever > sensory processing disorder- vestibular/dyspraxia, > that she should be in an ABA program all day long. > > Any further thoughts will be appreciated! > > Kathy > > > > ______________________________________________________________________ ______________ > Don't get soaked. Take a quick peak at the forecast > with the Search weather shortcut. > http://tools.search./shortcuts/#loc_weather > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 What is aba? Kolackovsky wrote: >Hi , > >I was reading your post about being careful if a child >is doing ABA but is not autistic. Can you explain? My >daughter, is 3, not walking or talking yet with no >diagnosis. She started ABA to help with finemotor, >sensory, oral motor and we did see some improvement, >although my OT and PT, felt we needed to be careful >too. OUr Behavioral analysis said that since she is a > " slow learner " (which I think is because of sever >sensory processing disorder- vestibular/dyspraxia, >that she should be in an ABA program all day long. > >Any further thoughts will be appreciated! > >Kathy > > > >_______________________________________________________________________________\ _____ >Don't get soaked. Take a quick peak at the forecast >with the Search weather shortcut. >http://tools.search./shortcuts/#loc_weather > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Hey Liz, ABA is Applied Behavioral Analysis. I have only heard of it used in the context of Autism, but it may be used with other diagnosis? Here is a link to a layman's description of ABA: http://autism.about.com/od/alllaboutaba/a/abaoverview.htm Kind Regards, Aman From: [mailto: ] On Behalf Of Liz Sent: Thursday, June 21, 2007 8:49 AM Subject: Re: [ ] Re: support group What is aba? Kolackovsky wrote: >Hi , > >I was reading your post about being careful if a child >is doing ABA but is not autistic. Can you explain? My >daughter, is 3, not walking or talking yet with no >diagnosis. She started ABA to help with finemotor, >sensory, oral motor and we did see some improvement, >although my OT and PT, felt we needed to be careful >too. OUr Behavioral analysis said that since she is a > " slow learner " (which I think is because of sever >sensory processing disorder- vestibular/dyspraxia, >that she should be in an ABA program all day long. > >Any further thoughts will be appreciated! > >Kathy > > > >__________________________________________________________ >Don't get soaked. Take a quick peak at the forecast >with the Search weather shortcut. >http://tools.search./shortcuts/#loc_weather > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Applied Behavioral Analysis. It is a method of therapy that can be used to change any behavior, really. It is widely used in therapy for people on the autism spectrum but can be used for other issues as well. A program is set up to change the behavior that you want changed through repetitious exercises. Data is recorded by the therapist (who can be non-liscensed. Sometimes speech students are hired by agencies to administer the therapy as they cannot yet practice speech therapy, but can do ABA). In the best of circumstances, only positive reinforcement is given for acceptable behaviors. But the reason there is concern is two-fold - there have been extreme cases where negative reinforcement (physical punishment resulting in serious injury and death) is used. See message #51572 for the extreme case of Ketchem who was misdiagnosed all her life and was finally correctly diagnosed with apraxia as an older teenager. The other reason there is concern is because unless there is speech production attempted, then it isn't going to be much use for an apraxic child. In my son's case, he was being treated from June-Dec 06 at an agency who was convinced he was autistic and that I was the worst case of denial they had ever seen. He had not yet been diagnosed with apraxia and these non-diagnosticians had decided he was autistic (without discussing that with me at the time) told me that ABA was going to change our lives, even citing another child within their agency with a dx of apraxia who began speaking during the first week of ABA. Well, clueless as I was at the time, I eagerly jumped at that, paying $30 per session 2x per week out of pocket because INSURANCE COMPANIES USUALLY CONSIDER ABA (USING CODE 782.0 PROCEDURE REFERENCE 97532) TO BE A SELF-HELP THERAPY FOR A DEVELOPMENTal ISSUE, THEREFORE NOT COVERED! It took a few more weeks, but I figured out that this agency (who is actually quite reputable in my area) cannot recognize a severe case of apraxia when it is right in front of them. Dr. Agin diagnosed my child in Jan 07. My first post to this group was the one titled, " How is ABA Harmful? " when I saw someone mention it briefly in another post in Sept of 2006. I'm thankful to say there was no harm done (except to our bank account), but no progress was made, either. My son is exceptionally smart, and when they just kept having him match the same cards, or do the same puzzles or whatever piddly little activity (with absolutely no speech production attempted), he was bored. Our apraxic kids know when they are being treated beneath their abilities. I'm sure there is someone out there who has had a good experience with it, but you must be careful if an ABA program is recommended to you. Be sure to know exactly what behavior the program is designed to change in your child and what kind of reinforcements (positive or negative) will be used. If it is suggested to you as a speech therapy technique, be sure they are actually attempting speech production. > > >Hi , > > > >I was reading your post about being careful if a child > >is doing ABA but is not autistic. Can you explain? My > >daughter, is 3, not walking or talking yet with no > >diagnosis. She started ABA to help with finemotor, > >sensory, oral motor and we did see some improvement, > >although my OT and PT, felt we needed to be careful > >too. OUr Behavioral analysis said that since she is a > > " slow learner " (which I think is because of sever > >sensory processing disorder- vestibular/dyspraxia, > >that she should be in an ABA program all day long. > > > >Any further thoughts will be appreciated! > > > >Kathy > > > > > > > >_____________________________________________________________________ _______________ > >Don't get soaked. Take a quick peak at the forecast > >with the Search weather shortcut. > >http://tools.search./shortcuts/#loc_weather > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 My son does not have autism and he does ABA/VB (verbal) therapy due to his developmental delays. It is the best therapy we ever did. I know there are bad stories in the archives, but I have only seen great improvements from my son's therapy. I don't know if others have had problems from the discreet trial method or just bad therapists. I only wish our ST was as effective as the ABA/VB therapists. The ST didn't think the Kaufman cards would be good to use with my son, yet the ABA therapists were seeing a lot of success with them. If you are trying to encourage language and interaction, ABA/VB is great. If your child already is trying to talk and interact but cannot due to apraxia, it's probably not goa useful therapy. I'm thinking of sending one of our ABA therapists to PROMPT training so they can use it during his sessions. M. > > >Hi , > > > >I was reading your post about being careful if a child > >is doing ABA but is not autistic. Can you explain? My > >daughter, is 3, not walking or talking yet with no > >diagnosis. She started ABA to help with finemotor, > >sensory, oral motor and we did see some improvement, > >although my OT and PT, felt we needed to be careful > >too. OUr Behavioral analysis said that since she is a > > " slow learner " (which I think is because of sever > >sensory processing disorder- vestibular/dyspraxia, > >that she should be in an ABA program all day long. > > > >Any further thoughts will be appreciated! > > > >Kathy > > > > > > > >__________________________________________________________ > >Don't get soaked. Take a quick peak at the forecast > >with the Search weather shortcut. > >http://tools.search./shortcuts/#loc_weather > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 - My daughter who is 3 and Apraxia also does ABA. We have seen great improvements also. How many hours a week does your son get ABA? Thanks, > > > > >Hi , > > > > > >I was reading your post about being careful if a child > > >is doing ABA but is not autistic. Can you explain? My > > >daughter, is 3, not walking or talking yet with no > > >diagnosis. She started ABA to help with finemotor, > > >sensory, oral motor and we did see some improvement, > > >although my OT and PT, felt we needed to be careful > > >too. OUr Behavioral analysis said that since she is a > > > " slow learner " (which I think is because of sever > > >sensory processing disorder- vestibular/dyspraxia, > > >that she should be in an ABA program all day long. > > > > > >Any further thoughts will be appreciated! > > > > > >Kathy > > > > > > > > > > > >__________________________________________________________ > > >Don't get soaked. Take a quick peak at the forecast > > >with the Search weather shortcut. > > >http://tools.search./shortcuts/#loc_weather > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 His IEP is for 15-18 hours a week. He gets the higher number when he is out of school. How many hours does your daughter get? Glad to hear you are happy with it too. I wish we started it a year ago, but I'm glad to have it now. We started a couple of months ago. How long have you been doing it? M. > > > > > > >Hi , > > > > > > > >I was reading your post about being careful if a child > > > >is doing ABA but is not autistic. Can you explain? My > > > >daughter, is 3, not walking or talking yet with no > > > >diagnosis. She started ABA to help with finemotor, > > > >sensory, oral motor and we did see some improvement, > > > >although my OT and PT, felt we needed to be careful > > > >too. OUr Behavioral analysis said that since she is a > > > > " slow learner " (which I think is because of sever > > > >sensory processing disorder- vestibular/dyspraxia, > > > >that she should be in an ABA program all day long. > > > > > > > >Any further thoughts will be appreciated! > > > > > > > >Kathy > > > > > > > > > > > > > > > >__________________________________________________________ > > > >Don't get soaked. Take a quick peak at the forecast > > > >with the Search weather shortcut. > > > >http://tools.search./shortcuts/#loc_weather > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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