RE: Re: Fililng/Paperwork Question-Beth

[Guest guest]

Hi Beth,

I have a filing cabinet that I use for all my cml related papers. And I also

have a small file that I carry with me to dr appts. It has tabs labeled for test

results, appt notes, etc. I got it from the American Cancer Society. You could

probably go to their website and order one. They are FREE and wonderful for

organization. Then whe it gets to full, I transfer the papers to my file

cabinet.

Hope this helps,

Jackie S.

From: Cogan <ncogan@...>

Subject: [ ] Re: Fililng/Paperwork Question

Date: Saturday, June 27, 2009, 12:17 PM

>

>

>

> I have decided to finally sort out all of my paperwork/records and wondered

what filing system the rest of you are using? (If you are using one at all!). I

can think of several different ways to sort out my info, and would like to aim

to " do it right " the first time! lol

>

>

>

> Beth

____________ _________ __

Hi Beth,

First, much good luck with this trial for you.

When I have been in a trial (early Gleevec and then early Sprycel) I have often

gotten some empty pages of calendar months (from office supply type store) and

then kept some basic info that way. I like being able to easily see some results

over time, and this lets you see a full month at a time. Example..... I can note

basic blood results (mainly hgb) and then chart when I take a Procrit

shot....then it is easy to see how long until the hgb fell, how long between

shots, etc. You could track your white count this way or whatever needs watching

more. Then I keep all the blood results (cbcs and chemistries in a looseleaf

notebook). On the calendar I also put any significant Rx....like a BMB, lung

x-ray, etc.....this is my favorite way to store information.

In the looseleaf, you can have dividers for blood tests, other procedures.. ...I

also have one for 'important results'.... .....

When I have been in a trial, I have had to keep the daily diary of symptoms for

the drug company, but I never like their form....not enough space......so I

usually do the calendar thing even for that.

Now, almost 11 years post dx....I am ready to start dumping some of the old

stuff that really has no use. With CML, you kind of are where you are at this

point in time?

Again, good luck.....see if you can find a dragon for wherever you are staying

(maybe you are at home and just commuting to the trial?)..... a dragon in the

house brings you good luck and wards off evil things. I found a wonderful

macrame dragon at an art fair.

C.

[Guest guest]

Hi all,

Thank you for your ideas! I have incorporated a lot of ideas and kicked out the

paper chaos I was experiencing!

Beth

[ ] Re: Fililng/Paperwork Question

Date: Saturday, June 27, 2009, 12:17 PM

>

>

>

> I have decided to finally sort out all of my paperwork/records and wondered

what filing system the rest of you are using? (If you are using one at all!). I

can think of several different ways to sort out my info, and would like to aim

to " do it right " the first time! lol

>

>

>

> Beth

____________ _________ __

Hi Beth,

First, much good luck with this trial for you.

When I have been in a trial (early Gleevec and then early Sprycel) I have often

gotten some empty pages of calendar months (from office supply type store) and

then kept some basic info that way. I like being able to easily see some results

over time, and this lets you see a full month at a time. Example..... I can note

basic blood results (mainly hgb) and then chart when I take a Procrit

shot....then it is easy to see how long until the hgb fell, how long between

shots, etc. You could track your white count this way or whatever needs watching

more. Then I keep all the blood results (cbcs and chemistries in a looseleaf

notebook). On the calendar I also put any significant Rx....like a BMB, lung

x-ray, etc.....this is my favorite way to store information.

In the looseleaf, you can have dividers for blood tests, other procedures.. ...I

also have one for 'important results'.... .....

When I have been in a trial, I have had to keep the daily diary of symptoms for

the drug company, but I never like their form....not enough space......so I

usually do the calendar thing even for that.

Now, almost 11 years post dx....I am ready to start dumping some of the old

stuff that really has no use. With CML, you kind of are where you are at this

point in time?

Again, good luck.....see if you can find a dragon for wherever you are staying

(maybe you are at home and just commuting to the trial?)..... a dragon in the

house brings you good luck and wards off evil things. I found a wonderful

macrame dragon at an art fair.

C.

[Guest guest]

My paperwork used to boss me around something awful. It would multiply, then

throw its weight around. I finally had to step in.

From: bethgalliart@...

Date: Tue, 30 Jun 2009 13:36:48 +0000

Subject: Re: [ ] Re: Fililng/Paperwork Question-Beth

Hi all,

Thank you for your ideas! I have incorporated a lot of ideas and kicked out the

paper chaos I was experiencing!

Beth

[ ] Re: Fililng/Paperwork Question

Date: Saturday, June 27, 2009, 12:17 PM

>

>

>

> I have decided to finally sort out all of my paperwork/records and wondered

what filing system the rest of you are using? (If you are using one at all!). I

can think of several different ways to sort out my info, and would like to aim

to " do it right " the first time! lol

>

>

>

> Beth

____________ _________ __

Hi Beth,

First, much good luck with this trial for you.

When I have been in a trial (early Gleevec and then early Sprycel) I have often

gotten some empty pages of calendar months (from office supply type store) and

then kept some basic info that way. I like being able to easily see some results

over time, and this lets you see a full month at a time. Example..... I can note

basic blood results (mainly hgb) and then chart when I take a Procrit

shot....then it is easy to see how long until the hgb fell, how long between

shots, etc. You could track your white count this way or whatever needs watching

more. Then I keep all the blood results (cbcs and chemistries in a looseleaf

notebook). On the calendar I also put any significant Rx....like a BMB, lung

x-ray, etc.....this is my favorite way to store information.

In the looseleaf, you can have dividers for blood tests, other procedures.. ...I

also have one for 'important results'.... .....

When I have been in a trial, I have had to keep the daily diary of symptoms for

the drug company, but I never like their form....not enough space......so I

usually do the calendar thing even for that.

Now, almost 11 years post dx....I am ready to start dumping some of the old

stuff that really has no use. With CML, you kind of are where you are at this

point in time?

Again, good luck.....see if you can find a dragon for wherever you are staying

(maybe you are at home and just commuting to the trial?)..... a dragon in the

house brings you good luck and wards off evil things. I found a wonderful

macrame dragon at an art fair.

C.

[Guest guest]

--you made me laugh out loud with that comment! It is all too true...

[ ] Re: Fililng/Paperwork Question

Date: Saturday, June 27, 2009, 12:17 PM

>

>

>

> I have decided to finally sort out all of my paperwork/records and wondered

what filing system the rest of you are using? (If you are using one at all!). I

can think of several different ways to sort out my info, and would like to aim

to " do it right " the first time! lol

>

>

>

> Beth

____________ _________ __

Hi Beth,

First, much good luck with this trial for you.

When I have been in a trial (early Gleevec and then early Sprycel) I have often

gotten some empty pages of calendar months (from office supply type store) and

then kept some basic info that way. I like being able to easily see some results

over time, and this lets you see a full month at a time. Example..... I can note

basic blood results (mainly hgb) and then chart when I take a Procrit

shot....then it is easy to see how long until the hgb fell, how long between

shots, etc. You could track your white count this way or whatever needs watching

more. Then I keep all the blood results (cbcs and chemistries in a looseleaf

notebook). On the calendar I also put any significant Rx....like a BMB, lung

x-ray, etc.....this is my favorite way to store information.

In the looseleaf, you can have dividers for blood tests, other procedures.. ...I

also have one for 'important results'.... .....

When I have been in a trial, I have had to keep the daily diary of symptoms for

the drug company, but I never like their form....not enough space......so I

usually do the calendar thing even for that.

Now, almost 11 years post dx....I am ready to start dumping some of the old

stuff that really has no use. With CML, you kind of are where you are at this

point in time?

Again, good luck.....see if you can find a dragon for wherever you are staying

(maybe you are at home and just commuting to the trial?)..... a dragon in the

house brings you good luck and wards off evil things. I found a wonderful

macrame dragon at an art fair.

C.