Re: My Husband Recently Diagnosed w/CML

[Guest guest]

Welcome Tonya,

Yu came to the right place. We will all help you.

Where is your permanent residence? Where do you live. I would think he would

want to get a CML Doctor in his home.

That is the first step. I know someone else will fill you in on much more. I

just wanted to welcome y ou.

I have had CML for 5 years and I am doing great. There is a very long future

for us and you will soon learn all about it.

Aloha Sharon

_____

From: [mailto: ] On Behalf Of

tythoward

Sent: Monday, June 29, 2009 3:24 PM

Subject: [ ] My Husband Recently Diagnosed w/CML

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18,

2009. We went to the emergency room thinking he was suffering from fluid in

his lungs due to chronic asthma and was told he had leukemia. The emergency

room doctor explained his white cell count was 700,000 and he would be

admitted to the hospital immediately.

We were taken to the floor and the head oncologist explained to us my

husband would be taken to MD Cancer Center in Houston, TX. So, we

both were looking a little confused, as we had only been living in Lake

, LA for one year to the date.

The good news is will be discharged on tomorrow. I'm a little

confused, as we are still trying to work out the plan for treatment (whether

it's here in Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through

the threads and feel a lot better.

[Guest guest]

So sorry to hear about your husband Tonya. One of the best decisions I ever made

was to join this group. I had NO idea what I was dealing with when I was

diagnosed in February of this year. The people in this group has helped me to

understand this disease a little better. I too went to the ER with no idea that

I would get a diagnosis of CML. I thought I was having a gall bladder attack. My

wbc was nowhere close to 700,000 though. Mine was only 66,000 and I felt awful.

I can only imagine how your husband must feel. It's a very scarey thing to hear

that you have leukemia. But as I have been told, this is the best one to have if

we have to have one. Good luck and trust me, you are in good hands with some of

the people in this group. They are very CML smart! I'm just a newbie myself so

unfortunately, I can't really help now since I am learning about this myself.

Good luck and keep a positive attitude!

Blessings,

From: tythoward <tythoward@...>

Subject: [ ] My Husband Recently Diagnosed w/CML

Date: Monday, June 29, 2009, 10:24 PM

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18, 2009.

We went to the emergency room thinking he was suffering from fluid in his lungs

due to chronic asthma and was told he had leukemia. The emergency room doctor

explained his white cell count was 700,000 and he would be admitted to the

hospital immediately.

We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

The good news is will be discharged on tomorrow. I'm a little confused,

as we are still trying to work out the plan for treatment (whether it's here in

Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

[Guest guest]

-

Hi Tonya,sorry you have to be here but welcome to the group. I was diagnosed

in Sept of 06,i was real scared about what was going to happen to me,but when i

joined this group my mind was put to ease ,there are so many people on this list

that know so much and they can answer all your questions i would say better than

most Drs.,so i think you came to the right place you won't be steered wrong.This

is like a family and i personally cannot live with out reading everyones

posts,even if i don't post alot.I hope your husband feels better real soon.

Esther

-- In , " tythoward " <tythoward@...> wrote:

>

> Hello,

> My name is Tonya and my husband was diagnosed with CML on June 18,

2009. We went to the emergency room thinking he was suffering from fluid in his

lungs due to chronic asthma and was told he had leukemia. The emergency room

doctor explained his white cell count was 700,000 and he would be admitted to

the hospital immediately.

>

> We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

>

> The good news is will be discharged on tomorrow. I'm a little

confused, as we are still trying to work out the plan for treatment (whether

it's here in Texas or Lake , LA).

>

> I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

>

[Guest guest]

Tonya, I am sorry that your husband has been diagnosed with CML, but you

have come to the right place, and quickly I might add. MD is a

wonderful place to be. You have some of the top CML doctors there along

with many trials if your husband may be in need in the future. Gleevec is

the first line of defense for CML. I did go to MD for a consult

over 9 years ago. and have never regretted that decision. I got the best

advice that I could have ever gotten from them.

Good luck to you and .

dx 8/1999

PCRU for over 4 years

[Guest guest]

You did the right thing in tuning in to this email group, Tonya! I was stunned

to tears when I heard my diagnosis in '05, but after joining this group,

realized there is much to look forward to. This is a warm, knowledgeable

community of folks. When they're not dispensing expert advice they're sending

you into gales of laughter with their knockout wit.

Best to you and from in San Francisco

From: tythoward@...

Date: Mon, 29 Jun 2009 22:24:29 +0000

Subject: [ ] My Husband Recently Diagnosed w/CML

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18, 2009.

We went to the emergency room thinking he was suffering from fluid in his lungs

due to chronic asthma and was told he had leukemia. The emergency room doctor

explained his white cell count was 700,000 and he would be admitted to the

hospital immediately.

We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

The good news is will be discharged on tomorrow. I'm a little confused,

as we are still trying to work out the plan for treatment (whether it's here in

Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

_________________________________________________________________

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orage_062009

[Guest guest]

Hi welcome,you are at one of the best. Get a 3 ring book and get and keep all

test and procedures,700,000 is a very high count. I was 180,ooo 5 years ago now

,on 600 Gleevec now ,ask all questions please good luck TN>

    

            

            

      

      

    

    

    

    

    

    

    

    

   

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[Guest guest]

Hi Tonya, I guess if one has to belong to a support group, you picked a good

one for you and your husband.

Lots of great folk here, some of them old timers like Lottie and me. We've

been knocking around the cml world for 13 - 14 years, We've both been in

most of the trials, so have a lot of us, and there's scads of information

here. MDACC is great, I was there for a while a few years ago and Lottie

still goes there., Of course, the closer to home the better. I live

outside Cleveland Ohio and go to the U. of Michigan in Ann Arbor, but

that's only a 3 hr. drive for me. Good luck, and welcome, Bobby

On Mon, Jun 29, 2009 at 6:24 PM, tythoward <tythoward@...> wrote:

>

>

> Hello,

> My name is Tonya and my husband was diagnosed with CML on June 18,

> 2009. We went to the emergency room thinking he was suffering from fluid in

> his lungs due to chronic asthma and was told he had leukemia. The emergency

> room doctor explained his white cell count was 700,000 and he would be

> admitted to the hospital immediately.

>

> We were taken to the floor and the head oncologist explained to us my

> husband would be taken to MD Cancer Center in Houston, TX. So, we

> both were looking a little confused, as we had only been living in Lake

> , LA for one year to the date.

>

> The good news is will be discharged on tomorrow. I'm a little

> confused, as we are still trying to work out the plan for treatment (whether

> it's here in Texas or Lake , LA).

>

> I look forward to my membership of the group, as I've been reading through

> the threads and feel a lot better.

>

>

>

--

a Doyle/dob 1929

DX /CML/1995/Interferon/hydrea

2/00 - Gleevec Trial, OHSU, Dr. Druker

6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

7/04 - Sprycel Trial, MDACC, Dr. Talpaz

3/05 - CCR

12/07 - Ended trial due to Pleural Effusion

4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

#840 Zavie's Zero Club #840

[Guest guest]

Hi Tonya,

Welcome to our little club that no one wants to join!. I'm so sorry to hear

about your husband!

This is an amazing group with lots and lots of wisdom and support and I'm glad

you found it.

Hugs,

Beth

[ ] My Husband Recently Diagnosed w/CML

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18, 2009.

We went to the emergency room thinking he was suffering from fluid in his lungs

due to chronic asthma and was told he had leukemia. The emergency room doctor

explained his white cell count was 700,000 and he would be admitted to the

hospital immediately.

We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

The good news is will be discharged on tomorrow. I'm a little confused,

as we are still trying to work out the plan for treatment (whether it's here in

Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

[Guest guest]

Hello Tonya,

My 19 yo daughter was diagnosed with CML in March. She went to the Dr's office

because of soreness and a lump in her left side. Turns out it was an enlarged

spleen which is one of the early indicators of CML. Her white cell count was

290,000. She spent two weeks in the hospital and was on constant IV and was

taking hydroxyeurea and gleevic for about the first month. Once her white count

was close to normal they took her off of the hydroxy. Now she is on 400 mg of

gleevic daily and her white count fluctuates from the low end of normal to the

high end of normal. She is 100 percent normal and leading a normal life except

for the daily medication she takes. Last Thursday she went in for her 1st bone

marrow biopsy, BMB, after the initial one used for diagnoses, we are still

waiting for the results of that. I remarried on Saturday, two days after her

BMB, and was out on the dance floor cutting the rug like everyone else.

As I said, very normal. Good luck with your husband's treatment. The people in

this group are very helpful and supportive.

>

> Hello,

> My name is Tonya and my husband was diagnosed with CML on June 18,

2009. We went to the emergency room thinking he was suffering from fluid in his

lungs due to chronic asthma and was told he had leukemia. The emergency room

doctor explained his white cell count was 700,000 and he would be admitted to

the hospital immediately.

>

> We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

>

> The good news is will be discharged on tomorrow. I'm a little

confused, as we are still trying to work out the plan for treatment (whether

it's here in Texas or Lake , LA).

>

> I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

>

[Guest guest]

Tonya-

 

Hello and welcome .  I was diagnosed in 2007 and I don't know know where I would

be without this group. We live in a great time for  CML with new drugs and

research. Please let know he is not alone- and neither are you. You'll

meet our miracles who survived in the days when people died.  They have been

through so much but they still bring laughter and good cheer to the group.

 

Take good care,

In the warrior spirit,

Chi from Cali

From: tythoward <tythoward@...>

Subject: [ ] My Husband Recently Diagnosed w/CML

Date: Monday, June 29, 2009, 3:24 PM

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18, 2009.

We went to the emergency room thinking he was suffering from fluid in his lungs

due to chronic asthma and was told he had leukemia. The emergency room doctor

explained his white cell count was 700,000 and he would be admitted to the

hospital immediately.

We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

The good news is will be discharged on tomorrow. I'm a little confused,

as we are still trying to work out the plan for treatment (whether it's here in

Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.

[Guest guest]

Hi Tonya,

I am sorry your husband was diagnosed with cml, but I am happy you came to this

group for support. Because you will receive alot of it. 

I receive treatment at MDACC in Houston. My home is in Iowa. It seems crazy to

travel so far for treatment, but my oncologist at home also sent me to MDACC

because what he had to offer me, Gleevec then, quit working for me.  I went for

a second opinion to Mayo clinic in MN, and they too suggested I visit MDACC. I

have no regrets! They have kept me in Chronic Phase for 4 years now. Even though

I have not received a response in those 4 years, I have been living a normal

life (on the road - or in the sky - alot of the time), but it is my new normal.

I have 6 children with two still at home, 14 & 17 yrs. THey are home right now

pretty much on their own while I am here in Houston for 2 more weeks.  It's

tough, but they know it is what I have to do to stay in their lives. 

If you have any questions, please ask this group. If one person can't answer it

for you, someone else will.

God Bless and Be Well,

Jackie S.

dx 4/14/04

From: tythoward <tythoward@...>

Subject: [ ] My Husband Recently Diagnosed w/CML

Date: Monday, June 29, 2009, 5:24 PM

Hello,

My name is Tonya and my husband was diagnosed with CML on June 18, 2009.

We went to the emergency room thinking he was suffering from fluid in his lungs

due to chronic asthma and was told he had leukemia. The emergency room doctor

explained his white cell count was 700,000 and he would be admitted to the

hospital immediately.

We were taken to the floor and the head oncologist explained to us my husband

would be taken to MD Cancer Center in Houston, TX. So, we both were

looking a little confused, as we had only been living in Lake , LA for

one year to the date.

The good news is will be discharged on tomorrow. I'm a little confused,

as we are still trying to work out the plan for treatment (whether it's here in

Texas or Lake , LA).

I look forward to my membership of the group, as I've been reading through the

threads and feel a lot better.