Re: questions about Gleevec

August 7, 2009

Hi, .

I get numbness in my hands and sometimes have to shake them out while I am

driving just to increase the blood flow. I'm not sure if this is caused by

Gleevec but I did not have it before I started taking it. As far as the WBC

going up...my whites always hover and fluctuate between 10 and 14 even when my

PCR is low. In June, my whites went up quite a bit because I had swine flu.

They also went up to 23,000 when I was taking oral steroids for my asthma. My

understanding is that they can go up due to a virus or an infection. I don't

know about the platelets or the grans...Maybe someone else has information on

that. I hope everything works out in your favor.

NYC

>

> Hi, congrats to those who are in remission. i pray it stays that way. To

others i continue to pray for your remission. I was wondering if Gleevec has

caused other people to have numbness in their hands and feet. I also wondered if

it is normal for the white count to go up and down and cause lab results to have

delta flags. This week i got delta flags on my wbc, platelets, and gran. Any

input is much appriecated. God bless.

>

August 7, 2009

I never got numbness in my hands and feet but I did get another kind of nerve

issue: A weird stiffness and spasmodic, involuntary jerking in my right hand and

foot that got very tiring and also rather embarrassing. I was afraid I had

Parkinson's, which took my mom. I saw a neurologist and it showed nothing of

that sort. They all came to the conclusion the culprit was Gleevec. They put me

on Neurontin, which I took for several months. When I went off it, the stiffness

and jerking never returned. Amen! Now I'm on Sprycel, and have had no such

problems.

Poor Gleevec! We do whip it about the head and neck for causing all manner of

side effects, don't we, lol?

From: mylifemyhappiness@...

Date: Fri, 7 Aug 2009 17:10:25 +0000

Subject: [ ] questions about Gleevec

Hi, congrats to those who are in remission. i pray it stays

that way. To others i continue to pray for your remission. I was wondering if

Gleevec has caused other people to have numbness in their hands and feet. I also

wondered if it is normal for the white count to go up and down and cause lab

results to have delta flags. This week i got delta flags on my wbc, platelets,

and gran. Any input is much appriecated. God bless.

_________________________________________________________________

Get free photo software from Windows Live

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_PH_software:082009

August 7, 2009

Well, Granny has been off of Gleevec for about 2 months beause of low blood

counts and now that her numbers are slowly coming back up to normal, she has

been having numbness in her left hand. But, she has also been sleeping in a

recliner for a while and the doctor thinks that could be the problem. I have to

say that I wake up with numb hands sometimes myself though. We do tend to beat

up old Gleevec.

[ ] Re: questions about Gleevec

Â

Hi, .

I get numbness in my hands and sometimes have to shake them out while I am

driving just to increase the blood flow. I'm not sure if this is caused by

Gleevec but I did not have it before I started taking it. As far as the WBC

going up...my whites always hover and fluctuate between 10 and 14 even when my

PCR is low. In June, my whites went up quite a bit because I had swine flu. They

also went up to 23,000 when I was taking oral steroids for my asthma. My

understanding is that they can go up due to a virus or an infection. I don't

know about the platelets or the grans...Maybe someone else has information on

that. I hope everything works out in your favor.

NYC

>

> Hi, congrats to those who are in remission. i pray it stays that way. To

others i continue to pray for your remission. I was wondering if Gleevec has

caused other people to have numbness in their hands and feet. I also wondered if

it is normal for the white count to go up and down and cause lab results to have

delta flags. This week i got delta flags on my wbc, platelets, and gran. Any

input is much appriecated. God bless.

>

August 12, 2009

,

I have had this in the past when I first got increased to 400 mgs. perhaps it is

just a temporary symptom, because I don't have them currently, and I am still on

Gleevec 400 mgs.

Dory Doggie

________________________________

From: mylifemyhappiness <mylifemyhappiness@...>

Sent: Friday, August 7, 2009 12:10:25 PM

Subject: [ ] questions about Gleevec

Hi, congrats to those who are in remission. i pray it stays that way. To others

i continue to pray for your remission. I was wondering if Gleevec has caused

other people to have numbness in their hands and feet. I also wondered if it is

normal for the white count to go up and down and cause lab results to have delta

flags. This week i got delta flags on my wbc, platelets, and gran. Any input is

much appriecated. God bless.

August 12, 2009

I actually got a numb finger while on Tasigna. It lasted for about 4 months

and now it is gone. It was very strange. Don't really know if Tasigna was

the cause. That is what is so crazy-we do not really know what causes what.

There are so many side effects..

Sharon T

_____

From: [mailto: ] On Behalf Of Dory

Doggie

Sent: Wednesday, August 12, 2009 1:05 AM

Subject: Re: [ ] questions about Gleevec

,

I have had this in the past when I first got increased to 400 mgs. perhaps

it is just a temporary symptom, because I don't have them currently, and I

am still on Gleevec 400 mgs.

Dory Doggie

________________________________

From: mylifemyhappiness <mylifemyhappiness@

<mailto:mylifemyhappiness%40> >

groups (DOT) <mailto:%40> com

Sent: Friday, August 7, 2009 12:10:25 PM

Subject: [ ] questions about Gleevec

Hi, congrats to those who are in remission. i pray it stays that way. To

others i continue to pray for your remission. I was wondering if Gleevec has

caused other people to have numbness in their hands and feet. I also

wondered if it is normal for the white count to go up and down and cause lab

results to have delta flags. This week i got delta flags on my wbc,

platelets, and gran. Any input is much appriecated. God bless.

August 12, 2009

Hi Sharon: I totally agree with you, and I was just thinking about all these

things the past few days. They give you the list of side effects, and for

instance I just had a real bad eyebleed, and the list for Gleevec does say it

can cause eyebleeds. Then my mother got one, and my husband got one. We all

seemed to get them within the past few months, so how do I blame it on Gleevec.

I know I have Arthritis, and have no way of telling the difference between my

Arthritis and the terrible joint pain that I have had since I got CML.

I get numbness and tingling and cramping etc. etc. Will we ever really know?

From: Sharon Teichera <onthewtr@...>

Subject: RE: [ ] questions about Gleevec

Date: Wednesday, August 12, 2009, 10:42 AM

I actually got a numb finger while on Tasigna. It lasted for about 4 months

and now it is gone. It was very strange. Don't really know if Tasigna was

the cause. That is what is so crazy-we do not really know what causes what.

There are so many side effects..

Sharon T

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Dory

Doggie

Sent: Wednesday, August 12, 2009 1:05 AM

groups (DOT) com

Subject: Re: [ ] questions about Gleevec

,

I have had this in the past when I first got increased to 400 mgs. perhaps

it is just a temporary symptom, because I don't have them currently, and I

am still on Gleevec 400 mgs.

Dory Doggie

____________ _________ _________ __

From: mylifemyhappiness <mylifemyhappiness@

<mailto:mylifemyhap piness%40. com> >

groups (DOT) <mailto:% 40groups. com> com

Sent: Friday, August 7, 2009 12:10:25 PM

Subject: [ ] questions about Gleevec

Hi, congrats to those who are in remission. i pray it stays that way. To

others i continue to pray for your remission. I was wondering if Gleevec has

caused other people to have numbness in their hands and feet. I also

wondered if it is normal for the white count to go up and down and cause lab

results to have delta flags. This week i got delta flags on my wbc,

platelets, and gran. Any input is much appriecated. God bless.

August 12, 2009

,

I have the tingling/numbness in my hands, joint pain, fatigue, bone pain

(periodically), and daily fevers in the afternoon. I don't have arthritis and

am not on other medications (just a tiny dose birth control). So... Yes i think

it is the CML meds.

Sent from my Verizon Wireless BlackBerry

[ ] questions about Gleevec

Hi, congrats to those who are in remission. i pray it stays that way. To

others i continue to pray for your remission. I was wondering if Gleevec has

caused other people to have numbness in their hands and feet. I also

wondered if it is normal for the white count to go up and down and cause lab

results to have delta flags. This week i got delta flags on my wbc,

platelets, and gran. Any input is much appriecated. God bless.

August 15, 2009

For all of you who suffer from arthritis, try consuming fresh cherries when they

are in season! And or buy

dried cherries with no sugar, or oils added, or sulfur dioxide ( a chemical

preserver). One can find health food

stores with dehydrated cherries, with no additives!

Dory Doggie

________________________________

From: Armour <suzzienovember@...>

Sent: Wednesday, August 12, 2009 11:23:48 AM