Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hi I am glad you found us. How do you do in the cold weather? I just can't seem to enjoy the cold at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Welcome to our support group. I call it a system sometimes because when someone writes in, we systematically answer your questions that is within our purview or refer you to a website or someone who may know. I hope you will become a regular by sharing your blood history and/or side effects. You will no longer feel alone, as we all share commin traits and side effects. We have the better leukemia to have as so much more is known and understood about it; therefore, we have more treatments and even more getting ready to go into trial. Quite a few of us are in a trial, so you may have questions about those, as well which we will be happy to talk about. I have had CML for 14 years and celebrated my 81st birthday last month. I am in 5th trial and my present treatment still has not yet been approved by the FDA. It's called SKI 606 and is formulated by Wyeth, so if you want to look up any of these trials, you can google them very easily. Since we have a variety of drugs, some of our other members may want to share their experience with you. Wishing you luck and an invitation to write if you have any qualms or questions about your current situation. We always advise our new patients the importance of trying to find a CML specialist if at all possible. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Well Lottie, Thank you so much for the welcome. I,m under a specialist in Leeds England and i find him very good. It is good to know that all the knoledge is out there, and much appriciated. I,m away on a 5 night break , but i will catch up as soon as i return. Take care Chris. > > Welcome to our support group. I call it a system sometimes because when someone writes in, we systematically answer your questions that is within our purview or refer you to a website or someone who may know. I hope you will become a regular by sharing your blood history and/or side effects. You will no longer feel alone, as we all share commin traits and side effects. We have the better leukemia to have as so much more is known and understood about it; therefore, we have more treatments and even more getting ready to go into trial. Quite a few of us are in a trial, so you may have questions about those, as well which we will be happy to talk about. > > I have had CML for 14 years and celebrated my 81st birthday last month. I am in 5th trial and my present treatment still has not yet been approved by the FDA. It's called SKI 606 and is formulated by Wyeth, so if you want to look up any of these trials, you can google them very easily. Since we have a variety of drugs, some of our other members may want to share their experience with you. Wishing you luck and an invitation to write if you have any qualms or questions about your current situation. We always advise our new patients the importance of trying to find a CML specialist if at all possible. > > Hands & hearts, > Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
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