thank you tammy and lottie

[Guest guest]

I WILL KEEP A FOOD DIARY FOR PATRICK AND ALSO TALK TO HIS ONCOLOGY NURSE ABOUT

HID LAB VALUES AS SOMETIMES YOU CAN GET MORE OUT OF THE NURSES THAN THE

DOCTORS.IF THERE ARE ANY OTHER SUGGESTIONS WE WOULD LOVE THEM. I AM FLYING BLIND

HERE. WE ARE ON OUR OWN. OH YES! HOW DO YOU USE LAUGHTER TO GET THROUGH THESE

TIMES?

LOVE AND GOOD THOUGHTS TO ALL

PEGGY AND PATRICK

[Guest guest]

HI PEGGY AND PATRICK,  MY THEORY IS, IF YOU HAVE SOMETHING YOU CANNOT GET RID OF

AND HAVE TO LIVE WITH IT, GRIN AND BEAR IT!

GET ALL THE INFO  YOU CAN, GO TO THE BEST POSSIBLE CML EXPERT YOU CAN, AND LAUGH

AT SOMETHING, ESPECIALLY YOURSELVES AS MUCH AS YOU CAN.  DON'T LIVE WITH THE

STRESS OF IT, WE LIVE IN A VERY GOOD TIME FOR CML, AS THERE ARE SO MANY DRUGS

NOW IN USE AND SO MANY MORE WAITING JUST AROUND THE CORNER. EAT , DRINK AND BE

MERRY, AND ASK US ANYTHING, IF WE DON'T KNOW, WE'LL FIND OUT FOR YOU. GOOD LUCK,

BOBBY

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: peggybieber <peggybieber@...>

Subject: [ ] thank you tammy and lottie

Date: Sunday, August 23, 2009, 10:56 AM

 

I WILL KEEP A FOOD DIARY FOR PATRICK AND ALSO TALK TO HIS

ONCOLOGY NURSE ABOUT HID LAB VALUES AS SOMETIMES YOU CAN GET MORE OUT OF THE

NURSES THAN THE DOCTORS.IF THERE ARE ANY OTHER SUGGESTIONS WE WOULD LOVE THEM. I

AM FLYING BLIND HERE. WE ARE ON OUR OWN. OH YES! HOW DO YOU USE LAUGHTER TO GET

THROUGH THESE TIMES?

LOVE AND GOOD THOUGHTS TO ALL

PEGGY AND PATRICK