Re: RE: Question on Eyebleeds

[Guest guest]

I've written this before, so pardon me if I'm repeating, but I had

multiple eye bleeds until someone on this list group told me to start

taking bilberry or blueberry extract. I've been on Gleevec since 1999

and started the extract about 4 years ago. Since I started it, I have

had only one eye bleed and that was while I was on a cruise to Alaska

early this summer and it wasn't a bad one. I have no scientific proof

that the extract is the reason, but I am continuing the extract. My

ophthamologist assures me they're nothing serious to worry about, but

they do look bad. I hope this helps.

Gay Bratton

On Aug 9, 2009, at 4:32 PM, suzzienovember wrote:

> I am sure we have discussed this subject before, but I still get

> upset when I get one. I wanted to know if anyone on here has had

> eyebleeds, and how often. All the years I have been on Gleevec, and

> only the past year I have had them. I have had 3 in my right eye,

> and woke-up this morning with a bad one in my left eye. They clear

> up, and I know it can be a side effect of the Gleevec. I would just

> feel better if I knew somebody else has dealt with this too.

>

>

>

[Guest guest]

Hi Gay:  My memory is another subject, seems like I don't have one half the

time.

Now I remember you mentioning the extract.  Does it come in capsules also?

My Oncologist did not seem concerned with the eyebleeds, but I actually felt

this one coming on.  I sat up in bed, and felt a twinge in the eye.  I thought

right away about a eyebleed, and when I went into the bathroom there it was.

I did flush my eye with warm water a few times, and it did feel better.

Thanks

> I am sure we have discussed this subject before, but I still get

> upset when I get one. I wanted to know if anyone on here has had

> eyebleeds, and how often. All the years I have been on Gleevec, and

> only the past year I have had them. I have had 3 in my right eye,

> and woke-up this morning with a bad one in my left eye. They clear

> up, and I know it can be a side effect of the Gleevec. I would just

> feel better if I knew somebody else has dealt with this too.

>

>

>

[Guest guest]

While taking Gleevec I had the eyebleeds also.  I could feel exactly when they

would occur. Now that I have switched to Sprycel I have not had the first one.

 

CML  Dx Nov. 2002

> I am sure we have discussed this subject before, but I still get

> upset when I get one. I wanted to know if anyone on here has had

> eyebleeds, and how often. All the years I have been on Gleevec, and

> only the past year I have had them. I have had 3 in my right eye,

> and woke-up this morning with a bad one in my left eye. They clear

> up, and I know it can be a side effect of the Gleevec. I would just

> feel better if I knew somebody else has dealt with this too.

>

>

>

[Guest guest]

Thanks :  This is why having each other in the group is so good, because

when things happen to you it makes you wonder who else is going through it.  I

was glad you could feel it happen, because all my other ones I got well I was

sleeping.  This one I actually felt happening.  What a horrible feeling.  Now I

know it happened to you too.

> I am sure we have discussed this subject before, but I still get

> upset when I get one. I wanted to know if anyone on here has had

> eyebleeds, and how often. All the years I have been on Gleevec, and

> only the past year I have had them. I have had 3 in my right eye,

> and woke-up this morning with a bad one in my left eye. They clear

> up, and I know it can be a side effect of the Gleevec. I would just

> feel better if I knew somebody else has dealt with this too.

>

>

>

[Guest guest]

Yes, you can buy it in the grocery store in capsules. It's with the

other vitamins, etc. I take one pill each day. My eyes used to sting

a little when I had an eye bleed, but it didn't hurt. They just look

bad. Good luck.

Gay

On Aug 9, 2009, at 5:22 PM, Armour wrote:

> Hi Gay: My memory is another subject, seems like I don't have one

> half the time.

> Now I remember you mentioning the extract. Does it come in capsules

> also?

> My Oncologist did not seem concerned with the eyebleeds, but I

> actually felt this one coming on. I sat up in bed, and felt a

> twinge in the eye. I thought right away about a eyebleed, and when

> I went into the bathroom there it was.

> I did flush my eye with warm water a few times, and it did feel

> better.

> Thanks

>

>

>

> > I am sure we have discussed this subject before, but I still get

> > upset when I get one. I wanted to know if anyone on here has had

> > eyebleeds, and how often. All the years I have been on Gleevec, and

> > only the past year I have had them. I have had 3 in my right eye,

> > and woke-up this morning with a bad one in my left eye. They clear

> > up, and I know it can be a side effect of the Gleevec. I would just

> > feel better if I knew somebody else has dealt with this too.

> >

> >

> >

>

>