Guest guest Posted January 11, 1999 Report Share Posted January 11, 1999 Dear Liz, I Can't believe your dr. mentioned painless migraines. I told my first (idiot) dr. who treated me for Lyme that I thought I was having those types of migraines. He looked at me in utter disbelief while shaking his head. My vision (blindness) gray areas, floaters, and sparks come about every month or two. Usually lasts a few days. I mad because I finally have $ to get new glasses, but my eyes are doing their Lyme thing. (I can't spell today either). Love to all, Debbie P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 , > > , > Sounds like " dry-eye " , a common problem in auto-immune diseases. Your > tear film became too thin and when you stare at something like the TV or > computer screen, things will get watery and blurry. Get a tear > replacement NOT a contact lens rewetting drop or anything with a > decongestant in it. If this doesn't solve the problem almost > immediately, see your Optometrist, don't wait for the Rheumy. It's > probably nothing but it's out of the Rheumy's realm. > > barry > > In answering someone's questions about MTX, I thought of a question > myself. For any of you using MTX, have you noticed any significant > changes > in your vision? I've become quite aware of something and don't know if > it's related to the MTX or not. I don't go back to the Rheumy until next > > month so thought I'd pose the question here. Sometimes when I'm watching > > television, or reading the computer monitor, everything goes very blurry > for a few seconds. If I blink alot and then close one eye then the > other, > the vision will generally come back and correct itself. This is very > unusual for me. I was watching a movie last night and when the credits > began to roll, they were double lines and blurry; I just about freaked > out > trying to get my vision to come back into focus. Anyone else have any > similar problems? > Thanks, > P > > " Freedom of speech is wonderful - right up there with the freedom not to > listen " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 , It sounds a lot similar to what I have been experiencing lately, but not sure about the connection with MTX or not... could be some... who knows for sure? I am 44, have never really worn glasses until just these past few weeks... since university I have had several pairs, but all were very slight corrections and I never wore them... since it is now my 5th attempt with MTX AND the longest time I have been on it ... now being 2 1/2 months... my eyes have been much more blurry, I am also blinking much more, and even was concerned enough to go to the opthamologist several weeks ago... he said all was okay, just to use some artifical tears when the eyes feel dry and then to check my prescriptions... well, I did go to the optomologist and my right eye has indeed become more blurry... all so suddenly, now I guess I have to wear the glasses (after almost 25 years of just keeping them in a drawer... because they didn't seem to be anything much stonger than plain glass), I can really tell a difference with them on. But the blurriness definitely occurred AFTER I began MTX... so, I am also wondering if there could be a connection.... or if it is merely coincidence.... #2- -- In @y..., beesnees@j... wrote: > > , > Sounds like " dry-eye " , a common problem in auto-immune diseases. Your > tear film became too thin and when you stare at something like the TV or > computer screen, things will get watery and blurry. Get a tear > replacement NOT a contact lens rewetting drop or anything with a > decongestant in it. If this doesn't solve the problem almost > immediately, see your Optometrist, don't wait for the Rheumy. It's > probably nothing but it's out of the Rheumy's realm. > > barry > > In answering someone's questions about MTX, I thought of a question > myself. For any of you using MTX, have you noticed any significant > changes > in your vision? I've become quite aware of something and don't know if > it's related to the MTX or not. I don't go back to the Rheumy until next > > month so thought I'd pose the question here. Sometimes when I'm watching > > television, or reading the computer monitor, everything goes very blurry > for a few seconds. If I blink alot and then close one eye then the > other, > the vision will generally come back and correct itself. This is very > unusual for me. I was watching a movie last night and when the credits > began to roll, they were double lines and blurry; I just about freaked > out > trying to get my vision to come back into focus. Anyone else have any > similar problems? > Thanks, > P > > " Freedom of speech is wonderful - right up there with the freedom not to > listen " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 I just went to the eye doctor for this. He suggested OTC artificial tears. Now I just put them in first thing in the morning before I step in the shower and rarely have to use them again. My eyes are great. KS Di [ ] Vision problems , Sounds like " dry-eye " , a common problem in auto-immune diseases. Your tear film became too thin and when you stare at something like the TV or computer screen, things will get watery and blurry. Get a tear replacement NOT a contact lens rewetting drop or anything with a decongestant in it. If this doesn't solve the problem almost immediately, see your Optometrist, don't wait for the Rheumy. It's probably nothing but it's out of the Rheumy's realm. barry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 In a message dated 08/15/2002 11:51:14 AM Eastern Daylight Time, leslieiansa@... writes: > Anyway she told me to see an opthlamatrist (sp?). - I would assume she meant opthamologist? An opthamologist is an M.D. while an optomatrist is not. I didn't experience black dots like you said, but MTX can cause vision changes. Speaking of changes...maybe you are ready for one with your rheumy?? Doesn't sound like she's real helpful. Good luck, --------------------- PatB moderator note: It is vittaly important that all of us see a eye doctor routinely. The meds we take can cause dryness of the mouth/eyes and can develop into sjogren's syndrome. Another thing that the medical eye doctor will keep track of is the pressures of the eyes. With the pain and the arthritis the eye pressures can swing up and down which is worse than a steady rise. Luckily there are new eye drops out on the market so simply using a drop in each eye at bedtime will help lower the eye pressures. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 I would hurry to get your eyes checked out. Two friends experienced something like you are describing and had detached retinas requiring surgery. Don't want to scare you, but your sight is nothing to fool around with. I am blind in one eye and there are a lot of problems associated with that. Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi , Those little black dots you're experiencing could be what's called " floaters " . They could be a symptom of something very serious. You do need to see an opthamologist without delay. Cheryl [ ] Vision Problems I am so behind in my messages so if someone has written and I haven't responded please be patient - i will get to it. For the past couple of weeks I have been having many tiny translucent black dots in my vision. Mostly up at top but they can move across too. It kinda comes and goes and seems to be worst when it is bright out (mainly sunshine). I need to go to the optomotrist to get more contacts but it's a scheduling/money issue. It isn't my contacts b/c it is the same with my glasses. Has anyone experienced anything similar? When I saw my rheumy yesterday and mentioned it to her she said, " what else . " She can be so abrasive at times. If she doesn't believe me then why does she continue to treat me. She was quite perturbed by my work situation before and repeated that I need to find part time work. Easier said than done. I just hope she gets my FMLA paperwork filled out by my Friday dea! dline otherwise I will be out of a job. Anyway she told me to see an opthlamatrist (sp?). Just wondering if anyone experienced anything similar. Oh, and I will be taking my dog to obedience class next Sat. Hubby was just tired. Glad that is one less thing I have to worry about. I really hope this trainer is good because she will give them plenty of work! hugs, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 , I have some info on the spots you are seeing. I have experienced them and also I worked for an optometrist for a while. They are probably just " floaters " . The fluid in the eye sometimes develops hardened or thickened drops. If you think about it, that is exactly what they look like--a drop of something floating around. They usually come more with age, but they are harmless. However, I am a real believer in seeing your eye doc regularly. I saw some scarey stuff in that office, especially in contact lense wearers who didn't follow the drs. advice on cleaning, over-wearing, etc. A good optometrist will check the health of your eyes as well as you vision. An ophthamologist is a medical dr. who has specialized in the eye. They have more training than an optometrist in diseases and injuries but usually an optometrist is enough. Don't take chances on your eyesight. Some of our meds can affect your eyes also. Your rhuemy should have told you that. What a heifer! Eva wrote:I am so behind in my messages so if someone has written and I haven't responded please be patient - i will get to it. For the past couple of weeks I have been having many tiny translucent black dots in my vision. Mostly up at top but they can move across too. It kinda comes and goes and seems to be worst when it is bright out (mainly sunshine). I need to go to the optomotrist to get more contacts but it's a scheduling/money issue. It isn't my contacts b/c it is the same with my glasses. Has anyone experienced anything similar? When I saw my rheumy yesterday and mentioned it to her she said, " what else . " She can be so abrasive at times. If she doesn't believe me then why does she continue to treat me. She was quite perturbed by my work situation before and repeated that I need to find part time work. Easier said than done. I just hope she gets my FMLA paperwork filled out by my Friday deadline otherwise I will be out of a job. Anyway she told me to see an opthlamatrist (sp?). Just wondering if anyone experienced anything similar. Oh, and I will be taking my dog to obedience class next Sat. Hubby was just tired. Glad that is one less thing I have to worry about. I really hope this trainer is good because she will give them plenty of work! hugs, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi , Toadessa7 and the others are right. You should get checked out by an opthamologist. If the only symptoms you are having now are new floaters, it is probably not a retinal detachment. A retinal detachment is a medical emergency and if you suddenly experience any significant change in vision such as loss of some peripheral vision in one eye, call the doctor immediately or go to the emergency room at night and they will call the opthamologist on duty. The sooner they fix it the better and if it is minor it can be fixed fairly easily with a laser. The doctor's office told me that some tests you can perform on yourself are to look at something and cover each eye in succession. If it looks significantly different with either eye, come in immediately. Also, you can check peripheral vision by sticking up the thumbs of both hands and extend your arms together directly in front of you, then move each of them to the side as far as your peripheral vision allows. If there is much difference between the sides, come in immediately. I just had a scare regarding this and have been diagnosed with a vitreous detachment. It began suddenly the other day as I was walking to a meeting at work about 1:00 pm. I suddenly started seeing flashes at the periphery of my right eye when I'd look to the right. Then came some mild blurring to the right and some new, fairly significant floaters. My eyes are still not normal, but no retinal detachment. Apparently what happens in this situation is that the vitreous humor inside of the eye turns more liquid with age and sometimes pulls away from the back of the eye. According to the doc, about 95% of the time it does not cause retinal detachment. I saw the doctor at 4:00 pm and he said that if I did have a retinal detachment then they would fix it that night or the next morning. I go back to get checked again again in 3 weeks. A friend who also had a similar occurrance about 6 months ago said that his problems have gradually lessened. I sure hope mine will too, as the large floaters and mild, transient blurring are annoying. It seems like I have less flashing now, as well. Good luck. You are most likely fine, but should definitely see a doctor to make sure. Also, be sure and tell the doc about all medications you might be currently taking. Best Wishes... At 12:21 AM 8/16/02 -0400, you wrote: >I would hurry to get your eyes checked out. Two friends experienced >something like you are describing and had detached retinas requiring surgery. > Don't want to scare you, but your sight is nothing to fool around with. I >am blind in one eye and there are a lot of problems associated with that. >Take care. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 , My vision problems are what finally got the ball rolling to my being diagnosed with PA. I had a bazillion (seemed like) little black things floating around--looked like a swarm of gnats in front of me-- and flashes of light occassionally off to the side of my eye. I quickly lost vision in the one eye and the eye got like mushy (best way to describe it). Was sent to a specialist who put me on steriod- type eye drops that I had to put in every hour for several days, then slowly decreased the dosage but it would flare up again. This went on for a year!! He finally sent me to the arthritis clinic and after blood tests for lupus (negative thank God) he diagnosed me with PA. AFter taking Methotrexate and another anti-inflammatory for a month, the vision problems went away and I DON'T WANT THEM TO COME BACK. I've had my eyes dialated and tested enough for one lifetime. The floaters went away and only occassionally can I see faded traces of them and only outdoors against a light background. That was almost 5 years ago and I'm still taking the MTX and an anti-inflammatory. In my case, I believe it was the PA that triggered the eyes to flare up and the MTX in combo with anti-inflammatories is what has helped keep the problem from returning as well as greatly helping the symptoms that the PA causes. Like alot of others I've been reading about in these messages, we're all finding the best way for ourselves to live productive lives and treat whatever symptoms come up. I'm glad I got to read your messages about the vision problems, I hadn't heard anyone else talk about the vision problems being associated with the PA. I thought in my case it was a fluke--just one more thing on the list of " hey doc I've got this happening to me now... " kind of things. After reading more of these messages, I don't feel like I'm alone with this PA struggle anymore. Sorry to hear others having to go through it, but glad there's somewhere to go where others understand my situation!! Best of luck to you > Pat and , > > Yes, I meant an opthamologist. I wouldn't think much of it but it has been > going on for such a long time now. It is happening indoors too. I have > been having problems focusing my eyes when working on the computer for some > time but i just figured my eyes were getting tired. I wear disposable > contact lenses. Lately they have been popping out alot. Annoying but not > painful. I can't stand to wear glasses so that isn't an option. I use > rewetting drops when my lenses do get dry. I have changed lenses since the > spots incidents so I know the lenses aren't dirty. I will be making an > apointment soon. I am so jealous of people who have good vision (my husband > has 20-20). The old expression blind as a bat holds true for me. I can't > see 2 " from my face. > > Oh, and i ALWAYS get the glaucoma tests (oh I hate that air shot in the eye) > and my eyes dialated (don't like that one either). I heard long term > prednisone use can cause glaucoma so better safe than sorry. > > Yes, my rheumy isn't helpful, well maybe. She is just callous at times. I > do have to admit that everything I requested for my FMLA paper she listed. > So, while she has been a pain to deal w/ from day one at least she always > gives me what I want (probably just to shut me up). > > thanks, > > Les > > > Message: 21 > Date: Thu, 15 Aug 2002 12:18:46 EDT > From: TADEL630@a... > Subject: Re: Vision Problems > > In a message dated 08/15/2002 11:51:14 AM Eastern Daylight Time, > leslieiansa@h... writes: > > > > Anyway she told me to see an opthlamatrist (sp?). > > - I would assume she meant opthamologist? An opthamologist is an > M.D. > while an optomatrist is not. I didn't experience black dots like you said, > but MTX can cause vision changes. Speaking of changes...maybe you are ready > for one with your rheumy?? Doesn't sound like she's real helpful. > Good luck, > > > > --------------------- > PatB moderator note: It is vittaly important that all of us see a eye doctor > routinely. The meds we take can cause dryness of the mouth/eyes and can > develop into sjogren's syndrome. Another thing that the medical eye doctor > will keep track of is the pressures of the eyes. With the pain and the > arthritis the eye pressures can swing up and down which is worse than a > steady rise. Luckily there are new eye drops out on the market so simply > using a drop in each eye at bedtime will help lower the eye pressures. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Good question :The plagio & assymetries could definitely play a role in his vision concerns. Definitely get a referral for an opthamologist. Many group members have taken their baby in to be safe. Maybe you could ask CT about it too tomorrow? Debbie Abby's mom DOCGrad MIMommysLilDiva@... wrote: Okay, it is me again. I know I go into lurkdom for weeks and then all of a sudden I pop back in. You guys are just so busy and I can hardly keep up! LOL Anyways, the point of this email is 's eyes tend to cross in toward the nose. It is mainly his right eye that does this. Is this from the plagio since it is the right side of his face that is pushed forward??? I am supposed to take him to see an opthamologist, but I need to get all the referrals and approvals done for that first. I swear it is a never ending battle with the ins. co. LOL I am just wondering if this is something that might get better once his plagio is better. Although I know his facial assymetries might not fully correct. Boy I could just kick myself for listening to the ped for so long. Thanks for any and all advice you might have to offer! PROUD Mommy to...Mykenna - 2 yearsMyranda, & Mason - 5 months~and ALWAYS in my heart~Madelyn & Morgyn - s/b 6/2/98Mya - (b)6/2/98 (d)7/24/98"Baby D" - m/c 2/98For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 The only thing I do know is that they are now using a new test, called a Visual contrast sensitivity test to test for Lymes. I was diagnosed based on this test, and it is supposed to be very accurate. I couldnt see certain things with contrast. Cant even describe it. Here is a web site my doctor sent me to: http://chronicneurotoxins.com/ Penny [ ] Vision Problems Hi, I am asking for some help identifying a visual irregularity that I am experiencing. When I look at a high contrast background, such as a bright blue sky, I am seeing small `sperm like' objects in my vision. They vary in number from under a hundred to many hundreds, their number correlating with the severity of my Chronic Fatigue Symptoms. They dart around, change direction, and their velocity is synchronized with my heart beat (i.e. they surge forward in pulses). I have thus far been unable to tell if they follow repeating paths, which might indicate flow through fixed structures. I have been able to find out very little about this phenomenon, with only a few references on the web, and these are only anecdotal with no analysis or discussion of causes. I am thinking that they might be viral, bacterial or fungal particles in my blood, but I'm not sure how to confirm or refute this supposition. I am, however, quite certain that they are not traditional `floaters'. For the record, I have tested positive for `Stealth Virus', CMV, EBV, Rickettsia, and staphylococci in nasal swabs. I am very interested in finding out what this visual anomaly is. If anyone has any thoughts or information, I would greatly appreciate a response. Please send replies to adelaideboi@... . Thanks for your help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 , We had an appointment with an opthamologist right at the beginning of 's treatment upon the advice of our neuro. He told us that vision problems are common with plagio and it was always a good idea to have that checked out. So we did and everything turned out fine. Marci (Mom to ) Oklahoma > Okay, it is me again. I know I go into lurkdom for weeks and then all of a > sudden I pop back in. You guys are just so busy and I can hardly keep up! > LOL Anyways, the point of this email is 's eyes tend to cross in > toward the nose. It is mainly his right eye that does this. Is this from > the plagio since it is the right side of his face that is pushed forward??? > I am supposed to take him to see an opthamologist, but I need to get all the > referrals and approvals done for that first. I swear it is a never ending > battle with the ins. co. LOL I am just wondering if this is something that > might get better once his plagio is better. Although I know his facial > assymetries might not fully correct. Boy I could just kick myself for > listening to the ped for so long. Thanks for any and all advice you might > have to offer! > > > PROUD Mommy to... > Mykenna - 2 years > Myranda, & Mason - 5 months > ~and ALWAYS in my heart~ > Madelyn & Morgyn - s/b 6/2/98 > Mya - (b)6/2/98 (d)7/24/98 > " Baby D " - m/c 2/98 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 > From: " @}>-;--;-- " <ppease@...> > > The only thing I do know is that they are now using a new test, called a > Visual contrast sensitivity test to test for Lymes. Penny---- With all respect, I'm not sure that the VCS test is a test for Lyme in the strictest sense. (:>) Dr. Shoemaker uses that test partly to help in determining the neurotoxins in a persons body, which may be there because of Lyme or for other reasons. But, you're right----- treatment with Questran (cholestyramine) or Welchol is often done by people with Lyme. Some feel it helped them a lot and others feel it did nothing---- just like everything else in the Lyme world. <g> cave76 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Gee Dan, I would get myself to a Lyme Literate Ophthalmologist......sooner than later. At first your description sounded like floaters..........(I have tons, most left behind by pervious inflammations (uveitis). They don't go away. But when you started to talk about them shooting around and in sync with your heart beating.........that sounded a little strange. I would get to someone who understands Lyme and the EYE! Conniek nwnj When our bodies & minds are out of balance...........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 The VCS test does not test for Lyme as such, it tests for a particular toxin in the body, which may be produced by any number of pathogenic organisms. I have had this test done, and despite all the pathogens that I tested positive for, I passed the VCS vith flying colours! > The only thing I do know is that they are now using a new test, called a Visual contrast sensitivity test to test for Lymes. I was diagnosed based on this test, and it is supposed to be very accurate. I couldnt see certain things with contrast. Cant even describe it. Here is a web site my doctor sent me to: > http://chronicneurotoxins.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 Jessie, both my reading and distance glasses have prisms. So in my case, the distance presciption itself helps minimize the effort the eye muscles make in focusing, and therefore to focus for longer without getting blurred vision, even though the prescription is one that leaves me not seeing as well to begin with. I'm not sure if that helps anyone with my description. I don't know how the prescription (or in my case, the two presciptions for reading and distance) allows the eye muscles to work less hard even while I see less well (at least with the distance glasses), but that's the idea and it works for me as the doctor expected. Not that the problem disappeared. But I can focus longer now both at distance and reading, if not as well. I had separate prescriptions before, too -- without prisms and designed, like most people's I believe, to maximize visual acuity. Mark From: Jessie A. Sent: Wednesday, May 07, 2003 8:18 AM Subject: [ ] Re: vision problems/Lyme/ Jessie & Carol My prescription is for reading glasses that I will wear over my contacts. They have a prism that will help improve my focus. and yes, taking away the distance vision helps relax your eyes muscles when doing near work, I guess that's the idea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Hi Fatima, Dr. Brown prescribed only 100-200mg on Monday Wednesday and Friday for his patients. After checking with his doctor about the vision problems, I would reduce your husband's dose and see if he feels better. Chris. On 08/10/2005, at 12:56 AM, angel895s wrote: > Good morning all, > > I've been emailing about my husband lately. Thanks to all that have > replied. He started AP about 4 weeks ago and started what I've been > thinking has been a herx reaction. He's been dizzy and nauseous. A > couple of days ago he started having what he describes as tunnel > vision. He says he sees straight ahead and black on the sides. We're > waiting for a call back from his doc, but wanted to know if anyone > else experienced anything like this. He was taking minocyclin > (generic) 2x per day everyday. He didn't take it yesterday or today to > see what happens. Thank you all in advance. Any information is > helpful. > > Fatima > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Amy, What you describe as the zig-zag lines sounds like what I used to get before a migraine. Although it would only be one eye and also no pain...until the actual headache. Since I changed my nutrition, I have been migraine free for 5 years plus. There are some types of CMT that present optic neuropathy. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I get something like your jagged line when I get hypoglycemic. Usually a PBJ (peanut butter and jelly) and a nap make it go away. Usually I can tell when it is about to hit as the world seems to feel distant or hollow and I become aware of my vision. Something sugary will usually reverse it quickly, but it comes back unless get rest and better food. Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Amy, I have CMT and Diabetes. I also just recently started getting the zig zag lines in my eyes. I mostly see it when my eyes are shut. I've had my eyes checked before the zig zag lines started and they blame my poor eyesight on diabetes. I'm looking for some kind of advice on vitamins, eye drops, etc. for this. Debbie from Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Wow Gretchen, that pretty much explains my zig zags. I've been having more headaches lately and waking up with headaches every morning till I get up and moving around. Now if I can just find the right nutrition, maybe I can get to feeling better. Debbie from Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I also have the " Zig- Zag " come and go in my eyes. Usually it happens when I sit in front of the computer to long. I hope everyone is enjoying the Holiday! Kay~Seaside Oregon Omega Realty Kay Broker/Owner 1700 North Holladay Drive Seaside Oregon 97138 503-738-8223 www.omegarealty.org Vision Problems Do any of you have problems with vision? If so, is it associated with CMT? I have just started having a zig-zag line that runs up my vision over and over again. It will go away, but it returns. It is not painful, but it interferes with my vision. It is happening in both eyes. My husband mentioned MS. Are there people with both MS and CMT? Thanks, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Hi Amy, I was diagnosed with MS for about eight years, only to later find out that I had CMT all along. The neurologist told me the odds would be astronomical to have both. I never thought I had MS and it all makes sense now that I have CMT. So many of my earliest symptoms mimicked MS but I have no doubt that I have CMT now. I do have weird eye symptoms, though, so it was nice to know from Gretchen that CMT can cause eye problems occasionally. I see weird colors every once in a while and rarely, I have double vision.  Karon:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 My neighbour had something similar - like floating cells - and he says this was from years of sun damage from sailing. I have it too - and I had years of being in the water no shades when I was young. Apparently they can fix that condition with surgery. I am not there yet. Donna from London Please consider supporting my 2007 fundraising activities - click through to learn more - http://home.earthlink.net/~sponsordonna Quote Link to comment Share on other sites More sharing options...
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