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And there you have it!!!

Venizia

-- In hypothyroidism , " Gracia " <circe@...> wrote:

>

> $1 Billion to Block Reform?

>

> Sen. Barack Obama of Illinois used a figure that also sounded dubious to us,

but it

turned out to be correct:

>

> Obama: [W]e've also got to overcome the drug company lobbies, the insurance

company

lobbies, that spent - (cheers, applause) - $1 billion over the last 10 years to

block reform.

>

> According to the Center for Responsive Politics, the pharmaceutical and

insurance

industries spent $1.2 billion and $949 million, respectively, on all lobbying

efforts since

1998. Moreover, the two industries combined shelled out about $193 million in

political

donations and expenditures backing Republicans, about twice as much as they

spent

supporting Democrats. So it is reasonable to conclude that the pharmaceutical

and

insurance industries have indeed spent at least $1 billion combating legislation

that

Obama favors.

>

>

>

>

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  • 1 year later...

Thanks for this, I just emailed my idea and story on healthcare

reform. It's posted on another post title Letter to president-elect

obama on healthcare reform....

Dana

>

> New administration sets up new interactive site, where they want

> citizens to tell them what change they want, specific ideas on what

> kind of change, and how to implement change if you have ideas.

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  • 8 months later...

Hi gang,

Since there has been discussion on these lists of health care reform

and it is an issue that is really important to those of us who have a

costly disease like CML I thought you might want to get some answers

on just what is and is not involved in the plans under discussion. I

came across this link while reading an article on npr.org (which also

has some great coverage of this topic) http://www.whitehouse.gov/realitycheck/

Hope this helps.

Dorothy

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Thanks Dorothy,

I am glad to see that there are some good websites out there that promote truth,

not wild fabrications! I appreciate the information and will read it carefully.

Vicki

>

> Hi gang,

>

> Since there has been discussion on these lists of health care reform

> and it is an issue that is really important to those of us who have a

> costly disease like CML I thought you might want to get some answers

> on just what is and is not involved in the plans under discussion. I

> came across this link while reading an article on npr.org (which also

> has some great coverage of this topic)

http://www.whitehouse.gov/realitycheck/

>

> Hope this helps.

>

> Dorothy

>

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I used to work as a reporter for a few suburban newspapers, so I am used to

reading legislation and trying to figure it out.

But this health care proposal is so big, and so much of it references existing

laws (such as Medicaid), that it is very hard to read and evaluate.  What was

comprehensible was that there are limited enrollment times for those with

disabilities.  If your disability is lifelong, then you cannot just enroll when

you please, but only each January.  Where would that leave kids finishing

transition?

I have concerns that this plan might be like Medicaid, with the same

frustrations I read about regularly here at IPADD, only on a grand scale. I do

not see how this can be done for so many people without a raise in taxes.

-Gail

From: ellenbronfeld <egskbsbcglobal (DOT) net>

Subject: Health Care Reform

IPADDUnite@gro ups.com

Date: Monday, August 10, 2009, 5:10 PM

The Arc of Illinois

August 10, 2009

Leaders in The Arc:

Arc Action Alert on health care reform and what you can do!

See below.

Tony auski

The Arc of Illinois

815-464-1832

Health Care Reform: Now it's Personal

More Info

Help Bring Desperately Needed Improvements in Health Care and Long Term Services

for People with Intellectual and Developmental Disabilities

Do you know anyone who has been denied health insurance because of a

pre-existing condition?

Do you know anyone who has been unable to access quality affordable health care?

Do you know anyone who has been waiting a long time for Medicaid home and

community based services?

Then you need to get involved right NOW.

Why Now?

The stakes have never been higher. National health care reform is hanging in the

balance.

From early August through Labor Day, Members of Congress are back in their home

districts hearing from their constituents about health care reform. Many will be

making their decisions on whether or not to support an overhaul of our health

care system.

The chance to make meaningful improvements in health care only comes along every

few decades. There are strong opponents to reform, such as the insurance

industry. If we don't speak now .....

What Do People with Intellectual and Developmental Disabilities Most Need in

Health Care Reform?

1) No Pre-existing Conditions Exclusions

Insurance companies will be prohibited from refusing coverage because of medical

history.

2) No Annual or Lifetime Caps on Coverage

Insurance companies will be prevented from placing annual or lifetime caps on

coverage.

3) Coverage for Durable Medical Equipment, Prosthetics, and Orthotics

These products will be included in any new health plans.

4) Increased Medicaid Reimbursement Rates for Primary Care Physicians

More doctors will serve Medicaid patients when their reimbursement rates are

increased to match to those of Medicare.

5) Improved Home and Community Based Se! rvices

When the institutional bias is removed from Medicaid, more states will serve

more people and allow them to choose where they receive long term services and

supports.

6) Reduced Demand for Medicaid Long Term Services and Supports

Medicaid will be strengthened when a national voluntary long term care insurance

program (from the CLASS Act) is implemented and people can receive support

without having to use Medicaid.

Take Action

Many Members of Congress will spend the August recess in their home districts.

Please participate in one or more of the following types of events over the

recess from now through September 8:

Town Halls meeting sponsored by your Members of Congress. You may be able to

find a list of town halls on your Senators' and Representatives' web sites.

Locate your Senators websites by selecting your state at the top of

http://www.senate. gov/ and your Representative' s website by entering your zip

code at the top of http://www.house. gov. If you cannot locate this information

on the web sites, please call their main offices and ask to speak to the

scheduler.

In-district meetings with your Members of Congress. Please contact your local

Members offices NOW to schedule a meeting. Guidance on requesting in-district

meetings is usually provided under a " Constituent Services " section of your

Senators' and Representatives' websites. Again, you can also call their district

offices and ask to speak to their schedulers.

Other Community calendar events. Most local newspapers, chambers of commerce,

and other civic organizations have extensive listings of fairs, parades,

concerts, and other community events in which Members of Congress may be

participating. Find your local newspaper's web site by entering your zip code

at: http://capwiz. com/thearc/ dbq/media/

Calls to district offices and local radio programs. Phones are already ringing

off the hook. Constituents are calling to voice strong opinions for and against

health care reform. Only you can make sure your ideas and opinions are heard.

Find the district office phone numbers at http://www.senate. gov/ and

http://www.house. gov. Find your local radio stations' call in shows by entering

your zip code at: http://capwiz. com/thearc/ dbq/media/

Please use the following materials to guide your discussions:

(note...I still have no clue how to convert these links, so you will find the

links in our links section in a file entitled Health Care Reform links)

Fact Sheet

Talking Points

Placards

Personal stories from your community, such as:

* being on a waiting list for home and community based services

* having to quit a job to care for a loved one at home

* having to take a second job to pay a care provider

* not being able to move to another state due to loss of Medicaid services

* having to move a loved one into an institution due to lack of home and

community based services

* being unable to find appropriate medical care

Thank you in advance for your great advocacy during this historic opportunity to

improve the quality and accessibility of health care and long term services.

If you have any questions, please feel free to contact me at 202-783-2229 or

acostathedpc (DOT) org

If you no longer wish to receive e-mail from us, please click here.

Please click here to be removed from our list. If you still receive emails from

us in the future, please ensure it was not forwarded from another party or sent

to an email address that is different than the one asked to be removed. DO NOT

REPLY TO THIS EMAIL. Or write us at:

The Arc of Illinois

20901 S. LaGrange Rd. #209

fort, IL 60423

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Share on other sites

I used to work as a reporter for a few suburban newspapers, so I am used to

reading legislation and trying to figure it out.

But this health care proposal is so big, and so much of it references existing

laws (such as Medicaid), that it is very hard to read and evaluate.  What was

comprehensible was that there are limited enrollment times for those with

disabilities.  If your disability is lifelong, then you cannot just enroll when

you please, but only each January.  Where would that leave kids finishing

transition?

I have concerns that this plan might be like Medicaid, with the same

frustrations I read about regularly here at IPADD, only on a grand scale. I do

not see how this can be done for so many people without a raise in taxes.

-Gail

From: ellenbronfeld <egskbsbcglobal (DOT) net>

Subject: Health Care Reform

IPADDUnite@gro ups.com

Date: Monday, August 10, 2009, 5:10 PM

The Arc of Illinois

August 10, 2009

Leaders in The Arc:

Arc Action Alert on health care reform and what you can do!

See below.

Tony auski

The Arc of Illinois

815-464-1832

Health Care Reform: Now it's Personal

More Info

Help Bring Desperately Needed Improvements in Health Care and Long Term Services

for People with Intellectual and Developmental Disabilities

Do you know anyone who has been denied health insurance because of a

pre-existing condition?

Do you know anyone who has been unable to access quality affordable health care?

Do you know anyone who has been waiting a long time for Medicaid home and

community based services?

Then you need to get involved right NOW.

Why Now?

The stakes have never been higher. National health care reform is hanging in the

balance.

From early August through Labor Day, Members of Congress are back in their home

districts hearing from their constituents about health care reform. Many will be

making their decisions on whether or not to support an overhaul of our health

care system.

The chance to make meaningful improvements in health care only comes along every

few decades. There are strong opponents to reform, such as the insurance

industry. If we don't speak now .....

What Do People with Intellectual and Developmental Disabilities Most Need in

Health Care Reform?

1) No Pre-existing Conditions Exclusions

Insurance companies will be prohibited from refusing coverage because of medical

history.

2) No Annual or Lifetime Caps on Coverage

Insurance companies will be prevented from placing annual or lifetime caps on

coverage.

3) Coverage for Durable Medical Equipment, Prosthetics, and Orthotics

These products will be included in any new health plans.

4) Increased Medicaid Reimbursement Rates for Primary Care Physicians

More doctors will serve Medicaid patients when their reimbursement rates are

increased to match to those of Medicare.

5) Improved Home and Community Based Se! rvices

When the institutional bias is removed from Medicaid, more states will serve

more people and allow them to choose where they receive long term services and

supports.

6) Reduced Demand for Medicaid Long Term Services and Supports

Medicaid will be strengthened when a national voluntary long term care insurance

program (from the CLASS Act) is implemented and people can receive support

without having to use Medicaid.

Take Action

Many Members of Congress will spend the August recess in their home districts.

Please participate in one or more of the following types of events over the

recess from now through September 8:

Town Halls meeting sponsored by your Members of Congress. You may be able to

find a list of town halls on your Senators' and Representatives' web sites.

Locate your Senators websites by selecting your state at the top of

http://www.senate. gov/ and your Representative' s website by entering your zip

code at the top of http://www.house. gov. If you cannot locate this information

on the web sites, please call their main offices and ask to speak to the

scheduler.

In-district meetings with your Members of Congress. Please contact your local

Members offices NOW to schedule a meeting. Guidance on requesting in-district

meetings is usually provided under a " Constituent Services " section of your

Senators' and Representatives' websites. Again, you can also call their district

offices and ask to speak to their schedulers.

Other Community calendar events. Most local newspapers, chambers of commerce,

and other civic organizations have extensive listings of fairs, parades,

concerts, and other community events in which Members of Congress may be

participating. Find your local newspaper's web site by entering your zip code

at: http://capwiz. com/thearc/ dbq/media/

Calls to district offices and local radio programs. Phones are already ringing

off the hook. Constituents are calling to voice strong opinions for and against

health care reform. Only you can make sure your ideas and opinions are heard.

Find the district office phone numbers at http://www.senate. gov/ and

http://www.house. gov. Find your local radio stations' call in shows by entering

your zip code at: http://capwiz. com/thearc/ dbq/media/

Please use the following materials to guide your discussions:

(note...I still have no clue how to convert these links, so you will find the

links in our links section in a file entitled Health Care Reform links)

Fact Sheet

Talking Points

Placards

Personal stories from your community, such as:

* being on a waiting list for home and community based services

* having to quit a job to care for a loved one at home

* having to take a second job to pay a care provider

* not being able to move to another state due to loss of Medicaid services

* having to move a loved one into an institution due to lack of home and

community based services

* being unable to find appropriate medical care

Thank you in advance for your great advocacy during this historic opportunity to

improve the quality and accessibility of health care and long term services.

If you have any questions, please feel free to contact me at 202-783-2229 or

acostathedpc (DOT) org

If you no longer wish to receive e-mail from us, please click here.

Please click here to be removed from our list. If you still receive emails from

us in the future, please ensure it was not forwarded from another party or sent

to an email address that is different than the one asked to be removed. DO NOT

REPLY TO THIS EMAIL. Or write us at:

The Arc of Illinois

20901 S. LaGrange Rd. #209

fort, IL 60423

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Share on other sites

As is always the case...the devil is in the details...

I always hate using that trite little saying, but it is so true.

I have been so concerned with our state funding issues that I haven't spent the

time to learn much about what is going on with the health care proposal, or, for

that matter, anything else on the federal scene. I would really love if one or

several of our members would keep all of us up to date on federal legislation

and help us all understand it, to the best of your (and our) abilities...Gail or

others...anyone up to the task?

Ellen

Ellen Garber Bronfeld

egskb@...

Health Care Reform

IPADDUnite@gro ups.com

Date: Monday, August 10, 2009, 5:10 PM

The Arc of Illinois

August 10, 2009

Leaders in The Arc:

Arc Action Alert on health care reform and what you can do!

See below.

Tony auski

The Arc of Illinois

815-464-1832

Health Care Reform: Now it's Personal

More Info

Help Bring Desperately Needed Improvements in Health Care and Long Term

Services for People with Intellectual and Developmental Disabilities

Do you know anyone who has been denied health insurance because of a

pre-existing condition?

Do you know anyone who has been unable to access quality affordable health

care?

Do you know anyone who has been waiting a long time for Medicaid home and

community based services?

Then you need to get involved right NOW.

Why Now?

The stakes have never been higher. National health care reform is hanging in

the balance.

From early August through Labor Day, Members of Congress are back in their

home districts hearing from their constituents about health care reform. Many

will be making their decisions on whether or not to support an overhaul of our

health care system.

The chance to make meaningful improvements in health care only comes along

every few decades. There are strong opponents to reform, such as the insurance

industry. If we don't speak now .....

What Do People with Intellectual and Developmental Disabilities Most Need in

Health Care Reform?

1) No Pre-existing Conditions Exclusions

Insurance companies will be prohibited from refusing coverage because of

medical history.

2) No Annual or Lifetime Caps on Coverage

Insurance companies will be prevented from placing annual or lifetime caps on

coverage.

3) Coverage for Durable Medical Equipment, Prosthetics, and Orthotics

These products will be included in any new health plans.

4) Increased Medicaid Reimbursement Rates for Primary Care Physicians

More doctors will serve Medicaid patients when their reimbursement rates are

increased to match to those of Medicare.

5) Improved Home and Community Based Se! rvices

When the institutional bias is removed from Medicaid, more states will serve

more people and allow them to choose where they receive long term services and

supports.

6) Reduced Demand for Medicaid Long Term Services and Supports

Medicaid will be strengthened when a national voluntary long term care

insurance program (from the CLASS Act) is implemented and people can receive

support without having to use Medicaid.

Take Action

Many Members of Congress will spend the August recess in their home districts.

Please participate in one or more of the following types of events over the

recess from now through September 8:

Town Halls meeting sponsored by your Members of Congress. You may be able to

find a list of town halls on your Senators' and Representatives' web sites.

Locate your Senators websites by selecting your state at the top of

http://www.senate. gov/ and your Representative' s website by entering your zip

code at the top of http://www.house. gov. If you cannot locate this information

on the web sites, please call their main offices and ask to speak to the

scheduler.

In-district meetings with your Members of Congress. Please contact your local

Members offices NOW to schedule a meeting. Guidance on requesting in-district

meetings is usually provided under a " Constituent Services " section of your

Senators' and Representatives' websites. Again, you can also call their district

offices and ask to speak to their schedulers.

Other Community calendar events. Most local newspapers, chambers of commerce,

and other civic organizations have extensive listings of fairs, parades,

concerts, and other community events in which Members of Congress may be

participating. Find your local newspaper's web site by entering your zip code

at: http://capwiz. com/thearc/ dbq/media/

Calls to district offices and local radio programs. Phones are already ringing

off the hook. Constituents are calling to voice strong opinions for and against

health care reform. Only you can make sure your ideas and opinions are heard.

Find the district office phone numbers at http://www.senate. gov/ and

http://www.house. gov. Find your local radio stations' call in shows by entering

your zip code at: http://capwiz. com/thearc/ dbq/media/

Please use the following materials to guide your discussions:

(note...I still have no clue how to convert these links, so you will find the

links in our links section in a file entitled Health Care Reform links)

Fact Sheet

Talking Points

Placards

Personal stories from your community, such as:

* being on a waiting list for home and community based services

* having to quit a job to care for a loved one at home

* having to take a second job to pay a care provider

* not being able to move to another state due to loss of Medicaid services

* having to move a loved one into an institution due to lack of home and

community based services

* being unable to find appropriate medical care

Thank you in advance for your great advocacy during this historic opportunity

to improve the quality and accessibility of health care and long term services.

If you have any questions, please feel free to contact me at 202-783-2229 or

acostathedpc (DOT) org

If you no longer wish to receive e-mail from us, please click here.

Please click here to be removed from our list. If you still receive emails

from us in the future, please ensure it was not forwarded from another party or

sent to an email address that is different than the one asked to be removed. DO

NOT REPLY TO THIS EMAIL. Or write us at:

The Arc of Illinois

20901 S. LaGrange Rd. #209

fort, IL 60423

Link to comment
Share on other sites

As is always the case...the devil is in the details...

I always hate using that trite little saying, but it is so true.

I have been so concerned with our state funding issues that I haven't spent the

time to learn much about what is going on with the health care proposal, or, for

that matter, anything else on the federal scene. I would really love if one or

several of our members would keep all of us up to date on federal legislation

and help us all understand it, to the best of your (and our) abilities...Gail or

others...anyone up to the task?

Ellen

Ellen Garber Bronfeld

egskb@...

Health Care Reform

IPADDUnite@gro ups.com

Date: Monday, August 10, 2009, 5:10 PM

The Arc of Illinois

August 10, 2009

Leaders in The Arc:

Arc Action Alert on health care reform and what you can do!

See below.

Tony auski

The Arc of Illinois

815-464-1832

Health Care Reform: Now it's Personal

More Info

Help Bring Desperately Needed Improvements in Health Care and Long Term

Services for People with Intellectual and Developmental Disabilities

Do you know anyone who has been denied health insurance because of a

pre-existing condition?

Do you know anyone who has been unable to access quality affordable health

care?

Do you know anyone who has been waiting a long time for Medicaid home and

community based services?

Then you need to get involved right NOW.

Why Now?

The stakes have never been higher. National health care reform is hanging in

the balance.

From early August through Labor Day, Members of Congress are back in their

home districts hearing from their constituents about health care reform. Many

will be making their decisions on whether or not to support an overhaul of our

health care system.

The chance to make meaningful improvements in health care only comes along

every few decades. There are strong opponents to reform, such as the insurance

industry. If we don't speak now .....

What Do People with Intellectual and Developmental Disabilities Most Need in

Health Care Reform?

1) No Pre-existing Conditions Exclusions

Insurance companies will be prohibited from refusing coverage because of

medical history.

2) No Annual or Lifetime Caps on Coverage

Insurance companies will be prevented from placing annual or lifetime caps on

coverage.

3) Coverage for Durable Medical Equipment, Prosthetics, and Orthotics

These products will be included in any new health plans.

4) Increased Medicaid Reimbursement Rates for Primary Care Physicians

More doctors will serve Medicaid patients when their reimbursement rates are

increased to match to those of Medicare.

5) Improved Home and Community Based Se! rvices

When the institutional bias is removed from Medicaid, more states will serve

more people and allow them to choose where they receive long term services and

supports.

6) Reduced Demand for Medicaid Long Term Services and Supports

Medicaid will be strengthened when a national voluntary long term care

insurance program (from the CLASS Act) is implemented and people can receive

support without having to use Medicaid.

Take Action

Many Members of Congress will spend the August recess in their home districts.

Please participate in one or more of the following types of events over the

recess from now through September 8:

Town Halls meeting sponsored by your Members of Congress. You may be able to

find a list of town halls on your Senators' and Representatives' web sites.

Locate your Senators websites by selecting your state at the top of

http://www.senate. gov/ and your Representative' s website by entering your zip

code at the top of http://www.house. gov. If you cannot locate this information

on the web sites, please call their main offices and ask to speak to the

scheduler.

In-district meetings with your Members of Congress. Please contact your local

Members offices NOW to schedule a meeting. Guidance on requesting in-district

meetings is usually provided under a " Constituent Services " section of your

Senators' and Representatives' websites. Again, you can also call their district

offices and ask to speak to their schedulers.

Other Community calendar events. Most local newspapers, chambers of commerce,

and other civic organizations have extensive listings of fairs, parades,

concerts, and other community events in which Members of Congress may be

participating. Find your local newspaper's web site by entering your zip code

at: http://capwiz. com/thearc/ dbq/media/

Calls to district offices and local radio programs. Phones are already ringing

off the hook. Constituents are calling to voice strong opinions for and against

health care reform. Only you can make sure your ideas and opinions are heard.

Find the district office phone numbers at http://www.senate. gov/ and

http://www.house. gov. Find your local radio stations' call in shows by entering

your zip code at: http://capwiz. com/thearc/ dbq/media/

Please use the following materials to guide your discussions:

(note...I still have no clue how to convert these links, so you will find the

links in our links section in a file entitled Health Care Reform links)

Fact Sheet

Talking Points

Placards

Personal stories from your community, such as:

* being on a waiting list for home and community based services

* having to quit a job to care for a loved one at home

* having to take a second job to pay a care provider

* not being able to move to another state due to loss of Medicaid services

* having to move a loved one into an institution due to lack of home and

community based services

* being unable to find appropriate medical care

Thank you in advance for your great advocacy during this historic opportunity

to improve the quality and accessibility of health care and long term services.

If you have any questions, please feel free to contact me at 202-783-2229 or

acostathedpc (DOT) org

If you no longer wish to receive e-mail from us, please click here.

Please click here to be removed from our list. If you still receive emails

from us in the future, please ensure it was not forwarded from another party or

sent to an email address that is different than the one asked to be removed. DO

NOT REPLY TO THIS EMAIL. Or write us at:

The Arc of Illinois

20901 S. LaGrange Rd. #209

fort, IL 60423

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