Re: RE: Side Effects ???

[Guest guest]

You brought up a good point, how do you know gleevec pain from arthritis pain. 

When I am asked if I have fatigue, I  say yes, but how do I know if it's the

drug I am on, or is it the almost 80 years under my belt!!  I almost feel

guilty, feeling so good on this drug.  I pray every night that it will last

forever, and not end up with pleural effusion, or develop some other side

effect.  I have been on Ariad for 3 1/2 months so far, and have NO side effects

at all.  I have gone from 5. something PCR to .1 something, and think that is

fabulous.  I wish everyone could feel this good and have the drug work this

well, so far, that is, and that's what I'm praying for, blessings to everyone,

Bobby

ps  on a lighter note, I went to bed early last night to get up and drive to Ann

Arbor today.  I just about got to sleep when someone came pounding on our door,

and I could hear him saying " fire! "   man, that got me up and out the door, and

our trash can, down at the end of the drive was on fire!  Those two  teenagers

that saw it, not only came and told us, they lugged buckets of water down the

drive to put it out, then the fire dep. came.  And guess what caused it?  Dog

poop !  We clean it up out of her dog run, put it in a plastic bag and into the

trash.  I guess the heat of the day and the methane in the " doo doo "   combusted!

so, live and learn, but I never thought that could happen......

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: suzzienovember <suzzienovember@...>

Subject: [ ] RE: Side Effects ???

Date: Monday, August 3, 2009, 11:44 AM

 

Hi : This is so hard to figure out. I say this because

if you remember I have been on Gleevec since 2000. I have had good days and bad

days with the all over pain. The weird thing is that it has been tolerable.

Now for 3 weeks, I have had pain from my neck down to my tailbone, and horrible

pain in my left arm in the rotator cuff area. I have had that Bursitis Pain or

whatever it is, but it never lasted this long.

Does anyone know how you tell the difference between the Gleevec pain and

Arthritis?? My oncologist thinks I am having Arthritis Pain.

I also have it bad in my knees, where I have trouble getting up from a sitting

position.

In your case , you have had so many problems. Your also newer to it

all. Hope you get some relief