Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Sharon, I too gained, probably 15lbs. I lost my appetite at first, taste buds changed. After I got my taste buds back, I seemed to be hungry all the time. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Au contraire. I dropped a couple pounds. It doesn't make much difference, since I put so much on during the time I took Gleevec! From: serenitywon@... Date: Mon, 31 Aug 2009 18:17:30 +0000 Subject: [ ] Sprycel Weight gain? Hello, I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That's all that fits..Any ideas to help? Thanks in advance SharonS _________________________________________________________________ Windows Live: Make it easier for your friends to see what you’re up to on Facebook. http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Well here we go has been on 400mg. of Gleevec since Wed. and already I am noticing swelling in his face and legs. he also has a bruise on the anterior of his left arm just below his elbow.As already has a problem with obesity I am troubled with the amount of weight he could gain. No nausea yet, but tired at the least exertion. We go for the first blood work-up tomorrow since starting on the gleevec. will keep you informed. keep us in your prayers.              Peggy and ________________________________ From: Rosen Lum <rrosenlum@...> Sent: Monday, August 31, 2009 2:39:04 PM Subject: RE: [ ] Sprycel Weight gain? Au contraire. I dropped a couple pounds. It doesn't make much difference, since I put so much on during the time I took Gleevec! From: serenitywon@... Date: Mon, 31 Aug 2009 18:17:30 +0000 Subject: [ ] Sprycel Weight gain?            Hello,  I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That's all that fits..Any ideas to help? Thanks in advance SharonS                             _________________________________________________________________ Windows Live: Make it easier for your friends to see what you’re up to on Facebook. http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Sharon S, I have been on Sprycel for 2 years. I was slow with the weight gain because I had lost to 86 pounds. My normal weight is around 100 to 101. Now I am rather healthy at 119 to 120 with a 5 mth pregnant look. I understand that the normal weight gain on Sprycel is between 20 to 40 pounds. Some have tried a salt free diet. I personally do not over eat nor do I eat a lot of junk foods with this said I am over weight do not know if it is from swelling or do I just blame it all on a) metabolism brought on from Sprycel. Before CML I had a very high metabolism and had to eat to maintain the weight I had. Good luck, Anita ________________________________ From: serenitywon <serenitywon@...> Sent: Monday, August 31, 2009 1:17:30 PM Subject: [ ] Sprycel Weight gain? Hello, I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That' s all that fits..Any ideas to help? Thanks in advance SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 I have been on a diet for over 40 years. Up and down and down and up. This week I had a nice long talk with myself and decided, the hell with it, I will be 80 in Dec. I am not going to spend the rest of my life trying to do something I have not been able to do in 40 years, so I went out and bought a half gallon of Stoli, 4 limes and 6 bottles of tonic, and cooked a huge pot roast dinner, with apple caramel bread pudding and and when I weighed in a the U of Mich. I had gained 4 lbs. (maybe I overdid it with the bread pudding?) B obby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: letitbe@... <letitbe@...> Subject: Re: [ ] Sprycel Weight gain? Date: Monday, August 31, 2009, 3:32 PM Sharon, I too gained, probably 15lbs. I lost my appetite at first, taste buds changed. After I got my taste buds back, I seemed to be hungry all the time. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 ATTA GIRL! Go for it! From: rcd1929@... Date: Mon, 31 Aug 2009 14:58:41 -0700 Subject: Re: [ ] Sprycel Weight gain? I have been on a diet for over 40 years. Up and down and down and up. This week I had a nice long talk with myself and decided, the hell with it, I will be 80 in Dec. I am not going to spend the rest of my life trying to do something I have not been able to do in 40 years, so I went out and bought a half gallon of Stoli, 4 limes and 6 bottles of tonic, and cooked a huge pot roast dinner, with apple caramel bread pudding and and when I weighed in a the U of Mich. I had gained 4 lbs. (maybe I overdid it with the bread pudding?) B obby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: letitbe@... <letitbe@...> Subject: Re: [ ] Sprycel Weight gain? Date: Monday, August 31, 2009, 3:32 PM Sharon, I too gained, probably 15lbs. I lost my appetite at first, taste buds changed. After I got my taste buds back, I seemed to be hungry all the time. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Yes, I have had a 30-pound weight gain on Sprycel which is not due to a bad diet. I also really gained on Gleevec and lost that weight when I lost my response to the drug. However, it didn't take long to gain again on Sprycel. L [ ] Sprycel Weight gain? Hello, I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That's all that fits..Any ideas to help? Thanks in advance SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Oh nooooooooo! From: seloew12@... Date: Mon, 31 Aug 2009 18:52:01 -0400 Subject: Re: [ ] Sprycel Weight gain? Yes, I have had a 30-pound weight gain on Sprycel which is not due to a bad diet. I also really gained on Gleevec and lost that weight when I lost my response to the drug. However, it didn't take long to gain again on Sprycel. L [ ] Sprycel Weight gain? Hello, I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That's all that fits..Any ideas to help? Thanks in advance SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Most of us have gained weight, me, 40 lbs! I can't take it off. Went on a 1,000 cal/day diet and gained 2 pounds. My Onc says it the Gleevec and I suppose the price we pay for the drug to do it job. I feel like since we don't look like most cancer patients, people probably think we are robust and healthy--. Unfortunately the only time I've beeb able to lose weight was when I was off if gleevec for 2 months but of course the CML came back. Sorry, there's not much good news about this issue. Margaret , mpraymond@... margaret-raymond@... From: Rosen Lum <rrosenlum@...> Subject: RE: [ ] Sprycel Weight gain? Date: Monday, August 31, 2009, 5:53 PM Oh nooooooooo! groups (DOT) com From: seloew12cox (DOT) net Date: Mon, 31 Aug 2009 18:52:01 -0400 Subject: Re: [ ] Sprycel Weight gain? Yes, I have had a 30-pound weight gain on Sprycel which is not due to a bad diet. I also really gained on Gleevec and lost that weight when I lost my response to the drug. However, it didn't take long to gain again on Sprycel. L [ ] Sprycel Weight gain? Hello, I switched from Gleevec to Sprycel on 7-27-09.I have gained about 12 pounds since..I just can't loss this weight..Anyone else experience weight gain with Sprycel? Did it stop or does it keep going up? Seems I see a jump up on the scale each week.Every time I weigh it goes up regardless as to how/what I do to combat it...I usually weigh between 139-143 and now I am up to 155-157...I have hip/back issues and the extra weight is causing additional pain issues and none of my clothes are fitting..I am wearing my baggy T-shirts(not baggy anymore) and stretchy shorts.That' s all that fits..Any ideas to help? Thanks in advance SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Bobby, At age 80 I can understand not wanting to diet anymore after 40 years of attempts..I am only 41 and the additional weight gain is causing me trouble..I have more pain due to other health issues and I'm diabetic and my clothes don't fit..I live on Social security so money is hard to find so I can't just run out and buy new clothes..I'm running out of my old fat clothes..Feeling like crap about myself due to the weight gain..I have been dieting since I was about 8 years old..I have had two different Weight loss surgeries to help this..I have lost 170 pounds I don't want all my efforts to be a waste due to meds induced weight gain..Seems such a waste..I'm feeling desperate again and I don't like it..No bread pudding for me..lol.. SharonS In , ROBERTA DOYLE <rcd1929@...> wrote: > > I have been on a diet for over 40 years. Up and down and down and up. This week I had a nice long talk with myself and decided, the hell with it, I will be 80 in Dec. I am not going to spend the rest of my life trying to do something I have not been able to do in 40 years, so I went out and bought a half gallon of Stoli, 4 limes and 6 bottles of tonic, and cooked a huge pot roast dinner, with apple caramel bread pudding and and when I weighed in a the U of Mich. I had gained 4 lbs. (maybe I overdid it with the bread pudding?) B obby > > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) > 02/13/09 - XL trial ended due to side effects > 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 > > From: letitbe@... <letitbe@...> > Subject: Re: [ ] Sprycel Weight gain? > > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > Sharon, > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > chris > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 CARAMEL APPLE BREAD PUDDING: 1 C UNSWEETENED APPLESAUCE 1 C FAT FREE MILK 1/2 C PACKED BROWN SUGAR 1/2 C EGG SUBSTITUTE a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: suzzienovember <suzzienovember@...> Subject: Re: [ ] Sprycel Weight gain? Date: Tuesday, September 1, 2009, 7:26 PM > > From: letitbe@... <letitbe@... > > Subject: Re: [ ] Sprycel Weight gain? > groups (DOT) com > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > Sharon, > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > chris > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 TEE HEE! BEFORE I COULD PROOF READ THAT RECIPE, I HIT SOME WEIRD KEY AND IT GOT SENT. I WILL TRY AGAIN...I KNOW I SHOULD HAVE SENT THIS, AND THE OTHER TO YOUR EMAIL, SORRY GROUP, BUT IT IS BETTER THAN POLITICS!! CARAMEL APPLE BREAD PUDDING 1 CUP UNSWEETENED APPLESAUCE 1 CUP FAT FREE MILK 1/2 CUP PACKED BROWN SUGAR 1/2 CUP EGG SUBSTITUTE 1 TEASPOON VANILLA 1/2 TEASPOON CINNAMON 5 CUPS CUBED DAY OLD BREAD 1/2 CUP CHOPPED APPLES,PEELED 1/2 CUP FAT FREE WHIPPED CREAM 1/2 CUP FAT FREE CARAMEL ICE CREAM TOPPING IN LARGE BOWL, COMBINE APPLESAUCE, MILK, BROWN SUGAR, EGG SUB. VANILLA AND CINNAMON. FOLD IN BREAD AND APPLES POUR INTO 8 X 8 BAKING DISH COATED WITH COOKING SPRAY. @ 325 35 - 40 MIN OR UNTIL KNIFE COMES OUT CLEAN. SERVE WARM WITH CARAMEL TOPPING AND WHIPPED CREAM. ENJOY AND IF YOU WANT A REALLY SCRUMPTOUS MUSHROOM CHEESY BREAD PUDDING, GIVE A YELL...... a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: suzzienovember <suzzienovember@...> Subject: Re: [ ] Sprycel Weight gain? Date: Tuesday, September 1, 2009, 7:26 PM > > From: letitbe@... <letitbe@... > > Subject: Re: [ ] Sprycel Weight gain? > groups (DOT) com > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > Sharon, > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > chris > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 > > > > > > From: letitbe@ <letitbe@ > > > > Subject: Re: [ ] Sprycel Weight gain? > > > groups (DOT) com > > > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sharon, > > > > > > > > > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > > > > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > > > > > > > > > chris > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Do you have the whole recipie... I have never made bread pudding and would love to give it a try in Ny > > > > > > From: letitbe@ <letitbe@ > > > > Subject: Re: [ ] Sprycel Weight gain? > > > groups (DOT) com > > > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sharon, > > > > > > > > > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > > > > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > > > > > > > > > chris > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 --- Tracey: Go back up to message 17793 Where it starts out Tee Hee, and then a typed out the whole recipe. It does sound so good. I plan on making it very soon. Sounds good for a New York Winter Day doesn't it? In , " leukican " <leukican@...> wrote: > > Do you have the whole recipie... I have never made bread pudding and would love to give it a try > > in Ny > > > > > > > > > > > > > From: letitbe@ <letitbe@ > > > > > > Subject: Re: [ ] Sprycel Weight gain? > > > > > groups (DOT) com > > > > > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sharon, > > > > > > > > > > > > > > > > > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > > > > > > > > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > > > > > > > > > > > > > > > > > chris > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 tee hee, the whole recipe followed, this one got sort of cut off. if you can't find it give me a yell, I'll send it again. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: leukican <leukican@...> Subject: Re: [ ] Sprycel Weight gain? Date: Thursday, September 3, 2009, 2:15 PM Do you have the whole recipie... I have never made bread pudding and would love to give it a try in Ny > > > > > > From: letitbe@ <letitbe@ > > > > Subject: Re: [ ] Sprycel Weight gain? > > > groups (DOT) com > > > Date: Monday, August 31, 2009, 3:32 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sharon, > > > > > > > > > > > > I too gained, probably 15lbs. I lost my appetite at first, taste buds > > > > > > changed. After I got my taste buds back, I seemed to be hungry all the time. > > > > > > > > > > > > chris > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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