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Hi everyone,

My platelets have finally come up, 80,000 last Friday, so I restarted Saturday

morning at 15mg. As of yet, no side effects like with the 30 mg.  Let's pray it

continues.  I had labs done today and platelets were 91,000. Wonderful!!

I will try to post more often and keep you up to date. I hope Bobby, Len, and

Beth are doing ok.

God's Blessings,

Jackie S.

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Yeahh Jackie! If I remember correctly, Bobby had virtually no side effects at

the 15mg dose, so hopefully the same will be true for you...

Beth

[ ] Back on Ariad drug

 

Hi everyone,

My platelets have finally come up, 80,000 last Friday, so I restarted Saturday

morning at 15mg. As of yet, no side effects like with the 30 mg.  Let's pray it

continues.  I had labs done today and platelets were 91,000. Wonderful!!

I will try to post more often and keep you up to date. I hope Bobby, Len, and

Beth are doing ok.

God's Blessings,

Jackie S.

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Hi Jackie, wonderful news!  I thought they would put me on 30, but Dr. Talpaz

said as long as I am doing well on 15, I can stay there. A friend of mine ,

however,, is going on 30 as of yesterday. I had a bma/bmb yesterday, am very

anxious to see if the pcr has dropped from .12 to lower.  I am happy right where

it's at, but I know the goal is for a lower number.  With 15 mg, I have no side

effects at all.If I didn't set my phone alarm to go off I would forget to take

the pills, that's how good I feel, like I don't have cml or anything for that

matter.  I do love this drug, and hope it works for everyone. I had a new gal

doing the procedure yesterday and was very nervous about it.  But even though it

hurt a bit, she was able to get a great amount of fluid, so it was well worth

it. I think the numbing procedure is the most important, and not being in a

hurry. She got the draw, then used more lydocaine and got the piece for the

biopsy, did a good job on

both, but " ouch " .  continued good luck with those platelets, love, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: jackie schneider <jschneider008@...>

Subject: [ ] Back on Ariad drug

Date: Monday, August 31, 2009, 10:21 PM

 

Hi everyone,

My platelets have finally come up, 80,000 last Friday, so I restarted Saturday

morning at 15mg. As of yet, no side effects like with the 30 mg.  Let's pray it

continues.  I had labs done today and platelets were 91,000. Wonderful!!

I will try to post more often and keep you up to date. I hope Bobby, Len, and

Beth are doing ok.

God's Blessings,

Jackie S.

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