My Light the Night website!!!

[Guest guest]

To family and friends:

Our numbers have grown and so have the walkers!!! I am sending out another

reminder about this fabulous event!

http://pages.lightthenight.org/sfl/Merrick09/educatorsusan (my personal page)

http://pages.lightthenight.org/sfl/Merrick09/TheNewNormals (team page)

Please take the time to sign up if you are able to walk with us!

This is just a two mile walk through downtown Coral Gables on Saturday evening

October 24th, 2009. Dinner is at 6:00 p.m. in front of City Hall followed by

the lowering of the sun at around 8:15 p.m. or so--this way the lighted balloons

show up against the sky when we walk and then to come back and have a little

dessert!

Spread the word to all of your families and friends by asking them to support

you and our team!

Thank you so much for taking the time to read this!

Hugs,

Rosenthal

The Wellness Community Support Group Liaison

and

First Connection for the LLS

Rosenthal

Miami, Florida

dx. January 8th, 2003

Began Gleevec: 4/10/2003

Ceased Gleevec: 4/21/2003

" Rebegan " Gleevec: 4/25/2003

Tranfusion dependent: May 2004-November 2005

Gleevec reduced to 400mg: 8/2004

Gleevec reduced to 300mg: 8/2005

Gleevec reduced to 200/300 alternating days: November 7, 2006 to

present day except now I am taking 250 every day now...

Still undetectable 9/24/2008

BMB/BMA PCRU!!! FISH 0% YEAH!!!!!

Next appointment with Dr. Druker: Thursday,April 09, 2009

Gleevec PK Level taken every 3 months monitored by Novartis and Dr.

Druker. PCR taken every 3 months!

PCR-in June was a weak positive but Dr. Druker felt that it was the

same as undetectable...repeated PCR in August 2008-undetectable!!!

(BMB/BMA PCRU!!! FISH 0% YEAH!!!!!)

I was told that I would not need another BMB as long as my numbers stay where

they are!!! YIPEEEE!

3/2009 PCRU!!!! Yippee!!! Nested test not being done any longer at OHSU.

6/2009 PCRU!!!! Yippee!!! Counts on Gleevec PK went up a little bit...not too

happy about that!

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