Re: New cancer website - INSPIRE

[Guest guest]

Hi:  I did check it out, and I started a discussion on CML, but no responses. 

Every other type of cancer is on there.

From: Lottie Duthu <lotajam@...>

Subject: [ ] New cancer website - INSPIRE

" CML " < >

Date: Monday, September 7, 2009, 1:12 AM

 

Dear ,

I am glad you liked the website and I wonder if anyone else had time to look at

it. Sometimes we hit a lucky streak and find other people who have other side

effects or useful information. Glad you are PCRU and very lucky to be so. I hope

everything works out well for you, we will all be pulling for you.

Hands & hearts,

Lottie Duthu

[Guest guest]

Hi, I registered there also, but do not see how you get into a discussion site,

explain, please, bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] New cancer website - INSPIRE

" CML " <groups (DOT) com>

Date: Monday, September 7, 2009, 1:12 AM

 

Dear ,

I am glad you liked the website and I wonder if anyone else had time to look at

it. Sometimes we hit a lucky streak and find other people who have other side

effects or useful information. Glad you are PCRU and very lucky to be so. I hope

everything works out well for you, we will all be pulling for you.

Hands & hearts,

Lottie Duthu

[Guest guest]

Hi Bobby:  Type in your cancerconsultants.com in your search, then when it comes

up you have to go all the way over to the right side, and click on Community. 

Then a new screen comes up, and click on Discussion.  It does not look like its

had any action for quite sometime, and nothing on CML.  I just started a

discussion to see if anybody responds looking for some support.  That is me Sue

62

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] New cancer website - INSPIRE

" CML " <groups (DOT) com>

Date: Monday, September 7, 2009, 1:12 AM

 

Dear ,

I am glad you liked the website and I wonder if anyone else had time to look at

it. Sometimes we hit a lucky streak and find other people who have other side

effects or useful information. Glad you are PCRU and very lucky to be so. I hope

everything works out well for you, we will all be pulling for you.

Hands & hearts,

Lottie Duthu

[Guest guest]

Well, I have registered twice, and for some reason do not get accepted.  I

quit.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz

 

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] New cancer website - INSPIRE

" CML " <groups (DOT) com>

Date: Monday, September 7, 2009, 1:12 AM

 

Dear ,

I am glad you liked the website and I wonder if anyone else had time to look at

it. Sometimes we hit a lucky streak and find other people who have other side

effects or useful information. Glad you are PCRU and very lucky to be so. I hope

everything works out well for you, we will all be pulling for you.

Hands & hearts,

Lottie Duthu