Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 - Hi Tracey In NY. I do not go to New York anymore, but that is where I did my clinical trial at NY Presbyterian Hospital. Too bad I did not get to meet you back then in 2000 when I was in trial. I live in NJ, and my husband and I would take the train in every couple of weeks for my check-ups etc. We would have gladly met you for coffee. How long do you have CML? -- In , " leukican " <leukican@...> wrote: > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences.. Please let me know > > in Ny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Hi Suzzie: I am a lurker to this site. I have been dealing with cml for about seven years now. Been on gleevec, sprycel, tasignia and now back on sprycel again. probably heading the bone marrow transplant route if the sprycel dosen't get me back into remission. What trial were you apart of? > > > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences.. Please let me know > > > > in Ny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 in NY, have you considered trying the Ariad trial, perhaps Sloan Kettering has one. So far it is doing great for me, that would be Ariad 24534, I go to the U. of Mich with Dr,. Talpaz. I have no side effects at all, on 15 mg. bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: leukican <leukican@...> Subject: [ ] Re: Coffee in NYC Date: Thursday, September 3, 2009, 4:17 PM Hi Suzzie: I am a lurker to this site. I have been dealing with cml for about seven years now. Been on gleevec, sprycel, tasignia and now back on sprycel again. probably heading the bone marrow transplant route if the sprycel dosen't get me back into remission. What trial were you apart of? > > > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences. . Please let me know > > > > in Ny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi, : I'll be at Sloan on Sept. 9, meeting Dr. Joe Jurcic around noon. Do you want to have coffee afterwards? Best wishes, Carl From: leukican <leukican@...> Subject: [ ] Coffee in NYC Date: Thursday, September 3, 2009, 2:11 PM Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences. . Please let me know in Ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi, . I see Dr. Schuster at NY Presbyterian but I have to check to see when my next appt. is. I normally fly in and out of there quickly as I race there after work. What part of NYC do you live in? I would love to talk on the phone and eventually meet, time permitting. NYC > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences.. Please let me know > > in Ny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Yeah Carl, that would be great. I am seeing my Dr there that same day as well, My appointment is noon also. Well will get together for coffee after were done. From: ctdavies2003@... Date: Thu, 3 Sep 2009 16:13:35 -0700 Subject: Re: [ ] Coffee in NYC Hi, : I'll be at Sloan on Sept. 9, meeting Dr. Joe Jurcic around noon. Do you want to have coffee afterwards? Best wishes, Carl From: leukican <leukican@...> Subject: [ ] Coffee in NYC Date: Thursday, September 3, 2009, 2:11 PM Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences. . Please let me know in Ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi, : Last time we talked you were moving to my hometown, Scranton. Also glad to see you on Facebook, but I never what to post there. I see none of the CMLers in my group actually discuss CML, which is ok. Looking forward to seeing you next Wed. Take care, Carl From: leukican <leukican (DOT) com> Subject: [ ] Coffee in NYC groups (DOT) com Date: Thursday, September 3, 2009, 2:11 PM Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences. . Please let me know in Ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi : I live right in Manhatten. Yourself? Yeah I would love to chat and meet for coffee sometime. I will e-mail you privately with my phone number From: icynena@... Date: Thu, 3 Sep 2009 23:20:47 +0000 Subject: [ ] Re: Coffee in NYC Hi, . I see Dr. Schuster at NY Presbyterian but I have to check to see when my next appt. is. I normally fly in and out of there quickly as I race there after work. What part of NYC do you live in? I would love to talk on the phone and eventually meet, time permitting. NYC > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences.. Please let me know > > in Ny > _________________________________________________________________ Windows Live: Make it easier for your friends to see what you’re up to on Facebook. http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 Hi, . I live and teach in the Bronx. Thank you for getting back to me, I will be looking out for that E-mail with your phone number. NYC > > > > Any fellow cml'ers out there that live or come into New York city for treatment, interested in getting together for a cup of coffee? I go to Sloan but I live and now work in Nyc and would be interested in getting together to chat about our experiences.. Please let me know > > > > in Ny > > > > > > > > > > > > _________________________________________________________________ > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.