Re: Check ing in...Barb

[Guest guest]

Hi Barb,

I'm so sorry to hear that things are not going well for you and your Dad. If you

go to MDACC to speak with Dr Cortes, please let me know when you will be there. 

I would love to sit and talk with you. 

Take Care Barb. Please know that I am thinking of you and you are in my prayers.

God's Blessings,

Jackie S

From: barbstanley2003 <barbarastanley@...>

Subject: [ ] Check ing in...

Date: Monday, September 14, 2009, 12:14 AM

 

Hello all,

I was in Iowa caring for my dad who is aged and ill. He flew back today to

Arizona and my husband and I drove a 24 hour over-nighter to get his dog and car

here before he got here.

He has valley fever, congestive heart failure, polymyocitis, and high blood

pressure and a number of health issues that I fear he is not long for the world.

God help us if he gets the flu.

I believe this time of uncertainty has really stressed me out and I am having

incredible side effects on the tasigna, to the point where I am on a break. I

have been off for two weeks this coming Friday. The oncologist wants me to

consult with Mayo Clinic or U of A in Tucson because I am intolerable with the

drugs but I told him, I wanted a consult with Cortez in MD first

because those other two places don't know anything about CML. We will see what

he says.

I would suspect that when the stress cuts down the side effects will too. At

this point, the muscle cramps in feet and hands are debilitating at times, the

insomnia is awful, the joint and back pain is bad, the rash on my legs and in

my head is really bad, and although I am using topical steroids, I am still a

mess.

I am hoping the time now will slow down in stress levels and I can once again

tolerate the tasigna. We will see.

Hugs to all,

Barb