Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi , When I first started having pain in my ears my doctor said some studies show that people with fibro get the ear pain but it was inconclusive. I would see a doctor and have it checked out for sure. Hugz Dawn On 7/28/05, lisake40 <lisaestill@...> wrote: > For a couple of weeks now, I have had this pain in one of my ears. > Sometimes I think it is my jaw, and other times I feel it is my > teeth....but mostly deep in my ear. Anybody else experienced something > similar? I know not everything has to be related to RA....but could it > be??? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi , When I first started having pain in my ears my doctor said some studies show that people with fibro get the ear pain but it was inconclusive. I would see a doctor and have it checked out for sure. Hugz Dawn On 7/28/05, lisake40 <lisaestill@...> wrote: > For a couple of weeks now, I have had this pain in one of my ears. > Sometimes I think it is my jaw, and other times I feel it is my > teeth....but mostly deep in my ear. Anybody else experienced something > similar? I know not everything has to be related to RA....but could it > be??? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi When I had all my jaw problems, pain in my ears was one of the symptoms. In fact, whenever I have a flare-up now it starts with pain in one particular tooth and pain in that same ear. Take Care Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi When I had all my jaw problems, pain in my ears was one of the symptoms. In fact, whenever I have a flare-up now it starts with pain in one particular tooth and pain in that same ear. Take Care Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 , You brought back a nightmare that happened about 5 yrs ago. I had horrible pain in my ear. I finally went to a specialist, and the ear wasn't causing the pain, but TMJ. Tawny > For a couple of weeks now, I have had this pain in one of my ears. > Sometimes I think it is my jaw, and other times I feel it is my > teeth....but mostly deep in my ear. Anybody else experienced something > similar? I know not everything has to be related to RA....but could it > be??? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 , You brought back a nightmare that happened about 5 yrs ago. I had horrible pain in my ear. I finally went to a specialist, and the ear wasn't causing the pain, but TMJ. Tawny > For a couple of weeks now, I have had this pain in one of my ears. > Sometimes I think it is my jaw, and other times I feel it is my > teeth....but mostly deep in my ear. Anybody else experienced something > similar? I know not everything has to be related to RA....but could it > be??? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 & Tawny: i do get the same pain every so often but by the time i make an appt to go get it checked out, it is gone. I am sure it is TMJ too........but the RA and fibro only add to it............... Just a note to let you know you are not alone............. Pat in So Ore --- tdianaok <tdianaok@...> wrote: > , > You brought back a nightmare that happened about 5 > yrs ago. I had > horrible pain in my ear. I finally went to a > specialist, and the ear > wasn't causing the pain, but TMJ. Tawny > > > > > > > > For a couple of weeks now, I have had this pain in > one of my ears. > > Sometimes I think it is my jaw, and other times I > feel it is my > > teeth....but mostly deep in my ear. Anybody else > experienced > something > > similar? I know not everything has to be related > to RA....but could > it > > be??? > > > > > > ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 & Tawny: i do get the same pain every so often but by the time i make an appt to go get it checked out, it is gone. I am sure it is TMJ too........but the RA and fibro only add to it............... Just a note to let you know you are not alone............. Pat in So Ore --- tdianaok <tdianaok@...> wrote: > , > You brought back a nightmare that happened about 5 > yrs ago. I had > horrible pain in my ear. I finally went to a > specialist, and the ear > wasn't causing the pain, but TMJ. Tawny > > > > > > > > For a couple of weeks now, I have had this pain in > one of my ears. > > Sometimes I think it is my jaw, and other times I > feel it is my > > teeth....but mostly deep in my ear. Anybody else > experienced > something > > similar? I know not everything has to be related > to RA....but could > it > > be??? > > > > > > ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Were all in this together. I hope your day is going well Pat. God bless, T > > > For a couple of weeks now, I have had this pain in > > one of my ears. > > > Sometimes I think it is my jaw, and other times I > > feel it is my > > > teeth....but mostly deep in my ear. Anybody else > > experienced > > something > > > similar? I know not everything has to be related > > to RA....but could > > it > > > be??? > > > > > > > > > > > > > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Were all in this together. I hope your day is going well Pat. God bless, T > > > For a couple of weeks now, I have had this pain in > > one of my ears. > > > Sometimes I think it is my jaw, and other times I > > feel it is my > > > teeth....but mostly deep in my ear. Anybody else > > experienced > > something > > > similar? I know not everything has to be related > > to RA....but could > > it > > > be??? > > > > > > > > > > > > > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Tawny: somehow it does not seem so bad when you know you are not alone and someone is going thru the same things you are or worse. The day started off with aches and pains but a long hot shower helped alot. It is easier at work today as the boss took the day off and I can work at my own pace without any interruptions........... We have had a week of 100 or more so I am ready for some cooler weather too.........I work in air conditioning all day and I hate that more than the heat..........I am always trying to keep warm...... I have been swimming almost everyday so that has helped me feel better I am sure..........I thank God for some good friends who invite me to go swimming with them Hopefully you will be feeling better and have a good weekend............write if you need to vent about anything................ Gentle Hugs Pat --- tdianaok <tdianaok@...> wrote: > Were all in this together. I hope your day is going > well Pat. > God bless, T > > > > > > > > > For a couple of weeks now, I have had this > pain in > > > one of my ears. > > > > Sometimes I think it is my jaw, and other > times I > > > feel it is my > > > > teeth....but mostly deep in my ear. Anybody > else > > > experienced > > > something > > > > similar? I know not everything has to be > related > > > to RA....but could > > > it > > > > be??? > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > Start your day with - make it your home > page > > http://www./r/hs > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Tawny: somehow it does not seem so bad when you know you are not alone and someone is going thru the same things you are or worse. The day started off with aches and pains but a long hot shower helped alot. It is easier at work today as the boss took the day off and I can work at my own pace without any interruptions........... We have had a week of 100 or more so I am ready for some cooler weather too.........I work in air conditioning all day and I hate that more than the heat..........I am always trying to keep warm...... I have been swimming almost everyday so that has helped me feel better I am sure..........I thank God for some good friends who invite me to go swimming with them Hopefully you will be feeling better and have a good weekend............write if you need to vent about anything................ Gentle Hugs Pat --- tdianaok <tdianaok@...> wrote: > Were all in this together. I hope your day is going > well Pat. > God bless, T > > > > > > > > > For a couple of weeks now, I have had this > pain in > > > one of my ears. > > > > Sometimes I think it is my jaw, and other > times I > > > feel it is my > > > > teeth....but mostly deep in my ear. Anybody > else > > > experienced > > > something > > > > similar? I know not everything has to be > related > > > to RA....but could > > > it > > > > be??? > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > Start your day with - make it your home > page > > http://www./r/hs > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Pat, I hate mornings!! I use to love to get up early in the morning, start my day out with a nice walk. I am so stiff when I get up, and it just last through the day. I try to make sure all my appointments are in the afternoon, I can move better then. I am glad work is easier today, nice the boss took off:) This weather is really bad. I'm ready for a little cooler weather. The fall doesn't last long here, and then here comes the COLD, we just can't win:( That is nice that your getting some water exercise. I would love that, but not possible right now. Still dreamin' of that hot tub with my name on it, just haven't found it yet. You have a great day, and a better weekend, Tawny > > > > > For a couple of weeks now, I have had this > > pain in > > > > one of my ears. > > > > > Sometimes I think it is my jaw, and other > > times I > > > > feel it is my > > > > > teeth....but mostly deep in my ear. Anybody > > else > > > > experienced > > > > something > > > > > similar? I know not everything has to be > > related > > > > to RA....but could > > > > it > > > > > be??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > Start your day with - make it your home > > page > > > http://www./r/hs > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Pat, I hate mornings!! I use to love to get up early in the morning, start my day out with a nice walk. I am so stiff when I get up, and it just last through the day. I try to make sure all my appointments are in the afternoon, I can move better then. I am glad work is easier today, nice the boss took off:) This weather is really bad. I'm ready for a little cooler weather. The fall doesn't last long here, and then here comes the COLD, we just can't win:( That is nice that your getting some water exercise. I would love that, but not possible right now. Still dreamin' of that hot tub with my name on it, just haven't found it yet. You have a great day, and a better weekend, Tawny > > > > > For a couple of weeks now, I have had this > > pain in > > > > one of my ears. > > > > > Sometimes I think it is my jaw, and other > > times I > > > > feel it is my > > > > > teeth....but mostly deep in my ear. Anybody > > else > > > > experienced > > > > something > > > > > similar? I know not everything has to be > > related > > > > to RA....but could > > > > it > > > > > be??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > Start your day with - make it your home > > page > > > http://www./r/hs > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 , My Mom does not have RA but she does complain about her ear hurting. The dr. told her it was arthritis. So it very well maybe. Hope you feel better soon. Beth(AR) --- lisake40 <lisaestill@...> wrote: > For a couple of weeks now, I have had this pain in > one of my ears. > Sometimes I think it is my jaw, and other times I > feel it is my > teeth....but mostly deep in my ear. Anybody else > experienced something > similar? I know not everything has to be related to > RA....but could it > be??? > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 , My Mom does not have RA but she does complain about her ear hurting. The dr. told her it was arthritis. So it very well maybe. Hope you feel better soon. Beth(AR) --- lisake40 <lisaestill@...> wrote: > For a couple of weeks now, I have had this pain in > one of my ears. > Sometimes I think it is my jaw, and other times I > feel it is my > teeth....but mostly deep in my ear. Anybody else > experienced something > similar? I know not everything has to be related to > RA....but could it > be??? > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 > > Bee, I had an allergy attack for the last 5 weeks but thanks to the advise in the files, it is under control. I can breathe again. ==>That's great Jan. > However... it has left me with an ear ache, not in the inner ear but outside on the ear lobe, in front and behind the ear, and somewhat down the neck. For a while I had shooting pains in front of the ear and down the neck. Now it is just a very sore ear lope that just does not want to go away. ==>That sounds like your lymph glands are congested with toxins. > I have tried oil of oregano on the outside of the ear, where it is sore; coconut oil, makes it feels better but pain still there. I increased my A, C and E when the allergy attack first happened and have not stopped to try to stop the ear ache. Hot compresses feel good but pain comes back. Any other suggestions would be greatly appreciated. ==>Do anything you can to get the adrenals moving so that your lymph glands will decongest, i.e. massages all around your ears and down your neck; coffee enemas; lemon & sea salt drink in warm water; dry skin brushing (or rebounding on a mini trampoline or jumping rope), Epsom salt baths, etc. Also ensure you are taking coconut oil. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 bee, i'm confused about the cod liver oil... blue ice has 500 of d and 5,000 of vitamin a but the requirement in your file is to take 20-30 of vitamin a...you recomend taking halibut oil but how much and where do we get that? does anyone have a solution to what cod liver oil has it all or is that not possible. > > Thanks... Sue __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 > > > bee, > > i'm confused about the cod liver oil... > blue ice has 500 of d and 5,000 of vitamin a but the > requirement in your file is to take 20-30 of vitamin > a...you recomend taking halibut oil but how much and > where do we get that? > > does anyone have a solution to what cod liver oil has > it all or is that not possible. ==>High Vitamin Blue Ice should contain enough of all nutrients. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009  Hi: I myself have not had any earaches, but if you have had one this long I would see a ENT doctor for an evaluation. From: ivanduran2008 <iduran@...> Subject: [ ] ear ache Date: Monday, October 26, 2009, 4:30 PM  hey everybody; I have had an ear ache for the last several months; actually I was diagnosed with CML, because I went to see a doctor because an ear ache; and later discovered that I had CML. I have been on Gleevec for the last 10 months, everything looking good except the ear ache that did not go away. has anyone experience ear ache related to our illness? Ivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 No. ________________________________ From: ivanduran2008 <iduran@...> Sent: Mon, October 26, 2009 3:30:41 PM Subject: [ ] ear ache  hey everybody; I have had an ear ache for the last several months; actually I was diagnosed with CML, because I went to see a doctor because an ear ache; and later discovered that I had CML. I have been on Gleevec for the last 10 months, everything looking good except the ear ache that did not go away. has anyone experience ear ache related to our illness? Ivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Hi Cmler's, I suffered 7 years while on Gleevec, with severe earaches, swelling in the cheeks, vertigo, water dripping out of my ears, and deafness. In those 7 years most of the side-effects were getting worst. I had severe neck pain which would shoot up through my neck, from the ears, and have severe migrating headaches which were so terrible, I had to hire drivers to take me grocery shopping, and had several bouts of vertigo, which I was unable to take care of my kids. I took several letters from a local Cml support group to 5 different Ears, Nose, & Throat Physicians. Of these E.N.T's, they had ordered C.T. Brain Scan, which showed nothing, C.T. Ear scans which should bacterial infections, or a cessation pool of water stuck in my ear, and could not drain. All thought the water was from showers? (Even though I would explain it came from the Leukemia medication). All gave antibiotics which fall in the families of quinolones. According to Internet, and several areas of how they treat bacterial infections were with these classifications of antibiotics. Cipro causes tendon problems such as ones foot arches, to fail. Cipro in drops or tablets may also cause re-occurring bacterial infections which prolong, and causes the severe pain in the ears. Depending which side of your body you sleep on, you experience the worst. In one research paper, Cipro does not only continue to compromise and leave one with no hope, but it also causes the vertigo, upon usage. Levinquin causes cancer-anorexia, which leaves the body totally depleted of minerals and vitamins. Moxifloxcian causes ligament damages to ones thighs, and hands, so where does that leave a CMLER? Finally, I got fed up with all E.N.T's and took a chance on making a visit to a well known Acupuncturist, who was in my area, and within driving distances. She also had an M.D. License. In less than 6 months, and on Asian herbs, which were called: tea pills my ears no longer hurt, and they have no more fluids from Gleevec, they are very clear and dry. No more pain, edema, and or inflammation. However, I learned several things about myself, such as to not consume any dairy or the ears felt worst, and had more inflammation in them. I also learned that any gluten upon consumption would clog the ears so I would have only a minimum to hear, with. I could not hear most people speak, and suffered a social life as a result. I started to take food enzymes, as well as change of diet, within 4 months, I started to feel more energy to do things at my families request, less pain, and today I feel GREAT!!! I was amazed how well Acupuncture, can heal most discomforts associate with Gleevec. Currently, I am pain-free of all the strange symptoms Gleevec can cause. I will say that if anything works without drug interventions it would be Acupuncture, and Asian herbs for most cancer patients. Thanks for asking, it can be a blessing and a gratifying experiences making a visit to an Acupuncturist! Dory Doggie P.S. Probiotics works well too if buying the right brand. ________________________________ From: Shipley <paulorkay@...> Sent: Mon, October 26, 2009 4:48:14 PM Subject: Re: [ ] ear ache No. ____________ _________ _________ __ From: ivanduran2008 <iduranbancred (DOT) com.bo> groups (DOT) com Sent: Mon, October 26, 2009 3:30:41 PM Subject: [ ] ear ache hey everybody; I have had an ear ache for the last several months; actually I was diagnosed with CML, because I went to see a doctor because an ear ache; and later discovered that I had CML. I have been on Gleevec for the last 10 months, everything looking good except the ear ache that did not go away. has anyone experience ear ache related to our illness? Ivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Dor, I can't consume any gluten either. After years of the big D, which was blamed totally on gleevec, it was found that i have Celiac. Now, I almost never have the big D, anemia has improved without medication, and I have more energy Just to let you know, 1 out of 133 people have Celiac or an allergy to gluten, most don't even know it. for years y body was not absorbing many nutrients, that was what caused the anemia and vit D deficiency. glad that the acupuncturist has been able to help and found that gluten was a factor. On Oct 28, 2009, at 2:21 AM, Dory Doggie wrote: > Hi Cmler's, > > I suffered 7 years while on Gleevec, with severe earaches, swelling > in the cheeks, vertigo, water > dripping out of my ears, and deafness. In those 7 years most of the > side-effects were getting worst. I > Finally, I got fed up with all E.N.T's and took a chance on making a > visit to a well known Acupuncturist, who was in my area, and within > driving distances. She also had an M.D. License. In less than 6 > months, and on Asian herbs, which were called: tea pills my ears no > longer hurt, and they have no more fluids from Gleevec, they are > very clear and dry. No more pain, edema, and or inflammation. > However, I learned several things about myself, such as to not > consume any dairy or the ears felt worst, and had more inflammation > in them. I also learned that any gluten upon consumption would clog > the ears so I would have only a minimum to hear, with. I could not > hear most people speak, and suffered a social life as a result. I > started to take food enzymes, as well as change of diet, within 4 > months, I started to feel > more energy to do things at my families request, less pain, and > today I feel GREAT!!! > > I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 I'm thunderstruck. Dorry, that is a completely amazing story. Sheesh, you've got plenty of guts. So, how do you find a good acupuncturist? Word of mouth? From: hellodoggie0009@... Date: Tue, 27 Oct 2009 23:21:48 -0700 Subject: Re: [ ] ear ache Hi Cmler's, I suffered 7 years while on Gleevec, with severe earaches, swelling in the cheeks, vertigo, water dripping out of my ears, and deafness. In those 7 years most of the side-effects were getting worst. I had severe neck pain which would shoot up through my neck, from the ears, and have severe migrating headaches which were so terrible, I had to hire drivers to take me grocery shopping, and had several bouts of vertigo, which I was unable to take care of my kids. I took several letters from a local Cml support group to 5 different Ears, Nose, & Throat Physicians. Of these E.N.T's, they had ordered C.T. Brain Scan, which showed nothing, C.T. Ear scans which should bacterial infections, or a cessation pool of water stuck in my ear, and could not drain. All thought the water was from showers? (Even though I would explain it came from the Leukemia medication). All gave antibiotics which fall in the families of quinolones. According to Internet, and several areas of how they treat bacterial infections were with these classifications of antibiotics. Cipro causes tendon problems such as ones foot arches, to fail. Cipro in drops or tablets may also cause re-occurring bacterial infections which prolong, and causes the severe pain in the ears. Depending which side of your body you sleep on, you experience the worst. In one research paper, Cipro does not only continue to compromise and leave one with no hope, but it also causes the vertigo, upon usage. Levinquin causes cancer-anorexia, which leaves the body totally depleted of minerals and vitamins. Moxifloxcian causes ligament damages to ones thighs, and hands, so where does that leave a CMLER? Finally, I got fed up with all E.N.T's and took a chance on making a visit to a well known Acupuncturist, who was in my area, and within driving distances. She also had an M.D. License. In less than 6 months, and on Asian herbs, which were called: tea pills my ears no longer hurt, and they have no more fluids from Gleevec, they are very clear and dry. No more pain, edema, and or inflammation. However, I learned several things about myself, such as to not consume any dairy or the ears felt worst, and had more inflammation in them. I also learned that any gluten upon consumption would clog the ears so I would have only a minimum to hear, with. I could not hear most people speak, and suffered a social life as a result. I started to take food enzymes, as well as change of diet, within 4 months, I started to feel more energy to do things at my families request, less pain, and today I feel GREAT!!! I was amazed how well Acupuncture, can heal most discomforts associate with Gleevec. Currently, I am pain-free of all the strange symptoms Gleevec can cause. I will say that if anything works without drug interventions it would be Acupuncture, and Asian herbs for most cancer patients. Thanks for asking, it can be a blessing and a gratifying experiences making a visit to an Acupuncturist! Dory Doggie P.S. Probiotics works well too if buying the right brand. ________________________________ From: Shipley <paulorkay@...> Sent: Mon, October 26, 2009 4:48:14 PM Subject: Re: [ ] ear ache No. ____________ _________ _________ __ From: ivanduran2008 <iduranbancred (DOT) com.bo> groups (DOT) com Sent: Mon, October 26, 2009 3:30:41 PM Subject: [ ] ear ache hey everybody; I have had an ear ache for the last several months; actually I was diagnosed with CML, because I went to see a doctor because an ear ache; and later discovered that I had CML. I have been on Gleevec for the last 10 months, everything looking good except the ear ache that did not go away. has anyone experience ear ache related to our illness? Ivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 > hey everybody; > I have had an ear ache for the last several months; actually I was diagnosed with CML, because I went to see a doctor because an ear ache; and later discovered that I had CML. > I have been on Gleevec for the last 10 months, everything looking good except the ear ache that did not go away. > has anyone experience ear ache related to our illness? > > Ivan __________________________ Hi Ivan, When you were dx, the ear ache might have been from a high cell count (whites, platelets) because they have a hard time getting through the tiny vessels in the ear. Now, it might be from some edema in that area, as others have said. I used to have it on Gleevec (have less swelling on Sprycel) and I would use a mild diuretic (diazide) for a couple days when it occurred. C. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.