Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Dear Zavie, I can understand Matt's frustration. It was pounded into our brains for so long that we had to achieve PCRU by a few months or whatever if we wanted a long lasting remission. All that was debunked later by Dr. Druker and others, but that thought is still a lingering fear in our minds for many of us. When you are young and have a family to support, you are on edge about losing your PCRU and it leaves you feeling very insecue. He's had plenty on his plate, having to change jobs and still had the same responsibilities. I'm glad things are working out well with his new job, so that is some weight off his shoulders to deal with. There is always that lingering fear that if you lose your PCRU, then what is next? I know it bothered me for a long time that I would never get there and everyone was passing me by, it is not a good place to be mentally, because I experienced it. Well I never got there and I am not bothered any more because people like Bobby and me have proved you don't even have to be CCR. By the way, when is your next garage sale???? LOL Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Dear Mr. , " almost 80 " may be old to some folks, but I'm not too old to " go down " to Indiana and " kick butt! "  BEWARE!, from  " The Little Old Lady From Brecksville " a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: bob1234stewart <bob-stewart@...> Subject: Re: [ ] PCRU Date: Thursday, February 4, 2010, 1:13 PM  Dear Carol, Bobby's about 80 years old, I don't think she's been 'going down' the whole time--but maybe I'm wrong. :-) Bob , Granger, Indiana > > Bobby, > > Just curious, were you constantly going down the whole time or did your numbers go up and down? > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 You go girl!!!!! _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Friday, February 05, 2010 5:35 AM Subject: Re: [ ] PCRU Dear Mr. , " almost 80 " may be old to some folks, but I'm not too old to " go down " to Indiana and " kick butt! " BEWARE!, from " The Little Old Lady From Brecksville " a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: bob1234stewart <bob-stewart@ <mailto:bob-stewart%40sbcglobal.net> sbcglobal.net> Subject: Re: [ ] PCRU groups (DOT) <mailto:%40> com Date: Thursday, February 4, 2010, 1:13 PM Dear Carol, Bobby's about 80 years old, I don't think she's been 'going down' the whole time--but maybe I'm wrong. :-) Bob , Granger, Indiana > > Bobby, > > Just curious, were you constantly going down the whole time or did your numbers go up and down? > >> Quote Link to comment Share on other sites More sharing options...
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