Re: New member - Question on fatigue

[Guest guest]

Most everyone in the group on Gleevec has dealt with fatigue in some degree. I

was diagnosised in Feb 2003 and had some fatigure until I began a vacation 16

months ago. I was able to work full time at a desk job until Last November when

the job market disappeared. Most seem to get better after 3-4 months as the

body gets used to The Gleevec.

H.

dxd. 2/03

400mg Gleevec 3/03

PCRU 11/03

Iron infusion and transfusions 11/06 - 5/05

Gleevec vacation 06/07 - 1/08

400mg Gleevec 1/08 - 6/08

Procrit 7/08 - 11/08

Gleevec Vacation 7/08 - Present (check again in Dec 09)

CML positive .003 -.004 since 1/09

>

> Hi everyone,

>

>

>

> I'm new to the group. I was diagnosed in July, and am now getting stable on

> Gleevec.

>

>

>

> Has anyone else dealt with fatigue as a side effect? I've been having a

> difficult time working towards transitioning back to fulltime in the office,

> and am wondering if anyone has tips on dealing with/overcoming this problem.

>

>

>

>

> Thanks,

>

> Neal

>

>

>

>

[Guest guest]

Whew, I hear you! Many will tell you that the initial fatigue, along with other

side effects, disappears with time, and I think for most folks that is so. So I

would say, hang in there. It didn't happen to be the case for me, but it is only

fair to give it a while. I had other side effects that DID go away, and that

seemed to happen after I'd been on Gleevec for oh -- what. About six or eight

months I guess (After about four years on Gleevec, I switched to Sprycel, and

fatigue was the culprit).

Very best of luck to you on this, Neal.

in San Francisco

From: nwatson@...

Date: Thu, 15 Oct 2009 14:24:23 -0700

Subject: [ ] New member - Question on fatigue

Hi everyone,

I'm new to the group. I was diagnosed in July, and am now getting stable on

Gleevec.

Has anyone else dealt with fatigue as a side effect? I've been having a

difficult time working towards transitioning back to fulltime in the office,

and am wondering if anyone has tips on dealing with/overcoming this problem.

Thanks,

Neal

[Guest guest]

I worked for 5 years and then just couldn't work anymore. I am 55 and

permanently disabled. I read how a lot of people have done better than I have

and it sure makes me sad. I never thought I would be in this shape at 55. My

side effects progressed vs getting easier to deal with. I wish you the best

Neal.

From: Rosen Lum <rrosenlum@...>

Subject: RE: [ ] New member - Question on fatigue

Date: Thursday, October 15, 2009, 9:42 PM

 

Whew, I hear you! Many will tell you that the initial fatigue, along with other

side effects, disappears with time, and I think for most folks that is so. So I

would say, hang in there. It didn't happen to be the case for me, but it is only

fair to give it a while. I had other side effects that DID go away, and that

seemed to happen after I'd been on Gleevec for oh -- what. About six or eight

months I guess (After about four years on Gleevec, I switched to Sprycel, and

fatigue was the culprit).

Very best of luck to you on this, Neal.

in San Francisco

groups (DOT) com

From: nwatson@kriegerands tewart.com

Date: Thu, 15 Oct 2009 14:24:23 -0700

Subject: [ ] New member - Question on fatigue

Hi everyone,

I'm new to the group. I was diagnosed in July, and am now getting stable on

Gleevec.

Has anyone else dealt with fatigue as a side effect? I've been having a

difficult time working towards transitioning back to fulltime in the office,

and am wondering if anyone has tips on dealing with/overcoming this problem.

Thanks,

Neal

[Guest guest]

Hi Neal,

Welcome to the group. It seems that people have varying degrees of fatigue, and

most experience lesss fatigue as the months after diagnosis go by.

Unfortunately, that is not true for all of us. How I wish it were so!

I've been on Gleevec for almost 3 years and feel fatigue is my " constant

friend. " I lost my part-time job due to the recession and am now unemployed.

When I was working I could work for 3 hours then had to go straight home for a

nap. Even though I'm not working now, most days do include a nap. My oncologist

said it's just the way it is for me and views it as a price to pay for being

alive.

I hope that your fatigue will lessen and you find the right combination of work

and rest that works for you. Sorry I can't offer specific suggestions other than

getting in a nap if that's possible in your work environment. Good luck!!

JoAnn

>

> Hi everyone,

>

>

>

> I'm new to the group. I was diagnosed in July, and am now getting stable on

> Gleevec.

>

>

>

> Has anyone else dealt with fatigue as a side effect? I've been having a

> difficult time working towards transitioning back to fulltime in the office,

> and am wondering if anyone has tips on dealing with/overcoming this problem.

>

>

>

>

> Thanks,

>

> Neal

>

>

>

>

[Guest guest]

Hi Neal: As you can see by all the responses that everyone is different with

regard to side effects. Its been 9 years this month since I started on Gleevec,

and I still deal with the fatigue. I just get to the point where I know I need

to stop and take nap. Also I still get other side effects. Like Joanne said

though its the price we pay to be alive. I do not worry about the fatigue, but

I did have to stop working. I was so tired and my concentration was just

lacking so bad along with other health issues.

Just give it time, and let your body adjust. Welcome to our group, and hope

it helps you with whatever questions you have or to help us with suggestions.

>

> Hi everyone,

>

>

>

> I'm new to the group. I was diagnosed in July, and am now getting stable on

> Gleevec.

>

>

>

> Has anyone else dealt with fatigue as a side effect? I've been having a

> difficult time working towards transitioning back to fulltime in the office,

> and am wondering if anyone has tips on dealing with/overcoming this problem.

>

>

>

>

> Thanks,

>

> Neal

>

>

>

>