Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 Jackie, You've had a heck of time! Sorry to hear this. I'm doing great--counts are normal, BMB showed only 2/20 still leukemic; feeling great, back to work, etc.... Let's just hope it holds! Beth [ ] Next appt  Hi to all, My next appt in Houston is Friday Oct 2nd. My dad will be going with me for his follow up appt on Thursday. If anyone is there, I would enjoy visiting with you. I am on hold from Ariad right now. My platelets are 39,000. In the protocol if they fall below 50,000 I have to hold. I'm not sure what dosage i will be on when I restart. I think Len and Bobby are taking 8 mg so maybe that will be my dose. Otherwise I feel good and continue to work daily. I hope that Len, Bobby, Beth, and anyone else fighting the fight are doing well. God Bless, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 HI JACKIE, I'M ON 15, STARTED ON IT AND DR. T SAID I CAN STAY ON IT AS THAT IS WHAT IS WORKING. A FRIEND OF MINE IS OFF IT ALSO, DUE TO A DRY SCALY RASH, THIS IS ABOUT THE 3RD TIME SHE IS OFF IT. GOOD LUCK OCT. 2, MY PRAYERS ARE WITH YOU, LOVE, BOBBY a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 From: jackie schneider <jschneider008@...> Subject: [ ] Next appt Date: Wednesday, September 30, 2009, 8:24 AM Hi to all, My next appt in Houston is Friday Oct 2nd. My dad will be going with me for his follow up appt on Thursday. If anyone is there, I would enjoy visiting with you. I am on hold from Ariad right now. My platelets are 39,000. In the protocol if they fall below 50,000 I have to hold. I'm not sure what dosage i will be on when I restart. I think Len and Bobby are taking 8 mg so maybe that will be my dose. Otherwise I feel good and continue to work daily. I hope that Len, Bobby, Beth, and anyone else fighting the fight are doing well. God Bless, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 That is interesting re the dry scaly rash. My skin is super, super dry. I've had one tiny spot of a scaly rash, but it went away. Hmmm. Beth [ ] Next appt Date: Wednesday, September 30, 2009, 8:24 AM  Hi to all, My next appt in Houston is Friday Oct 2nd. My dad will be going with me for his follow up appt on Thursday. If anyone is there, I would enjoy visiting with you. I am on hold from Ariad right now. My platelets are 39,000. In the protocol if they fall below 50,000 I have to hold. I'm not sure what dosage i will be on when I restart. I think Len and Bobby are taking 8 mg so maybe that will be my dose. Otherwise I feel good and continue to work daily. I hope that Len, Bobby, Beth, and anyone else fighting the fight are doing well. God Bless, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Beth - What awesome results!!!!!!! You must be ecstatic. Maybe your celebration was the earthquakes rocking n rolling for you. Did you feel it? I was happy to hear Anjana & Roy were ok. Jackie From: bethgalliart@... <bethgalliart@...> Subject: Re: [ ] Next appt Date: Wednesday, September 30, 2009, 8:23 AM Jackie, You've had a heck of time! Sorry to hear this. I'm doing great--counts are normal, BMB showed only 2/20 still leukemic; feeling great, back to work, etc.... Let's just hope it holds! Beth [ ] Next appt Hi to all, My next appt in Houston is Friday Oct 2nd. My dad will be going with me for his follow up appt on Thursday. If anyone is there, I would enjoy visiting with you. I am on hold from Ariad right now. My platelets are 39,000. In the protocol if they fall below 50,000 I have to hold. I'm not sure what dosage i will be on when I restart. I think Len and Bobby are taking 8 mg so maybe that will be my dose. Otherwise I feel good and continue to work daily. I hope that Len, Bobby, Beth, and anyone else fighting the fight are doing well. God Bless, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 LOL...nope, maybe because I was the epicenter? :-) Beth [ ] Next appt  Hi to all, My next appt in Houston is Friday Oct 2nd. My dad will be going with me for his follow up appt on Thursday. If anyone is there, I would enjoy visiting with you. I am on hold from Ariad right now. My platelets are 39,000. In the protocol if they fall below 50,000 I have to hold. I'm not sure what dosage i will be on when I restart. I think Len and Bobby are taking 8 mg so maybe that will be my dose. Otherwise I feel good and continue to work daily. I hope that Len, Bobby, Beth, and anyone else fighting the fight are doing well. God Bless, Jackie S. Quote Link to comment Share on other sites More sharing options...
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