Re: giving up

[Guest guest]

-hi Cassie, Good Luck with your appeal to the insurance company.

It's too bad we have to go to such great lengths just to get the

treatments we need. The psoriasis foundation helps people with

insurance issues. They are located at

psoriasis.org

Good Luck,

Marti

-- In , " works4now2000 "

<dbeamon@e...> wrote:

> Hi All, I recently changed jobs due to the arthritis and trying to

> avoid disability. Now I'm finding my Enbrel taken away once more.

> The insurance company made their denial after the Rheumy stated " no

> history of plaque psoriasis " . This is the second rheumy I've

seen.

> Appently rheumy's don't document well if it involves skin lesions,

> they only worry about the joints. I've been trying to get my

records

> from the first rheumy to see what he has documented so that I can

> appeal. I've even contacted the podiatrist who thought I had

> psoriatic arthritis before the diagnosis to see if he has anything

> documented. I'm back to square one, left to see how bad my p and

pa

> can get before the rheumy will do anything. He wants me to make an

> appointment to see how I am in 3 months without Enbrel even though

he

> has told me in the past how much I need it and that most people

have

> a lot of problems once they stop taking it. I've made a derm

> appointment for this week provided the hurricane doesn't stop me

from

> keeping it. I currently have 2 lesions that I've had longer than 6

> months that just will not heal. The family doctor doesn't really

> know how to treat p and the rheumy sees it and thinks I should use

> something for yeast alternating with a hydrocortizone type cream

and

> just says see your derm which I haven't been able to do until this

> week when I will see a derm who has never laid eyes on me. The

> original derm in a different office is NEVER available for an

> appointment within a reasonable time frame. His secretary always

> puts you off a minimum of 1-2 months like he is so booked you can't

> be worked in even in an emergency. They might as well go ahead and

> start getting my paperwork ready to file for disability because

that

> is what will happen eventually. My psoriasis and arthritis

disabled

> me in the past and I'm sure it will not take long again once off

> Enbrel because MTX doesn't work well for me alone and other drugs

> have been tried and failed. Cassie

[Guest guest]

Cassie,

You must be so frustrated at this point. I know I would be very

frustrated and probably frightened too. I wish there was something I

could do.....just know you are being thought of and please let us

know when you hear anything.....

best,

> Hi All, I recently changed jobs due to the arthritis and trying to

> avoid disability. Now I'm finding my Enbrel taken away once more.

> The insurance company made their denial after the Rheumy stated " no

> history of plaque psoriasis " . This is the second rheumy I've

seen.

> Appently rheumy's don't document well if it involves skin lesions,

> they only worry about the joints. I've been trying to get my

records

> from the first rheumy to see what he has documented so that I can

> appeal. I've even contacted the podiatrist who thought I had

> psoriatic arthritis before the diagnosis to see if he has anything

> documented. I'm back to square one, left to see how bad my p and

pa

> can get before the rheumy will do anything. He wants me to make an

> appointment to see how I am in 3 months without Enbrel even though

he

> has told me in the past how much I need it and that most people

have

> a lot of problems once they stop taking it. I've made a derm

> appointment for this week provided the hurricane doesn't stop me

from

> keeping it. I currently have 2 lesions that I've had longer than 6

> months that just will not heal. The family doctor doesn't really

> know how to treat p and the rheumy sees it and thinks I should use

> something for yeast alternating with a hydrocortizone type cream

and

> just says see your derm which I haven't been able to do until this

> week when I will see a derm who has never laid eyes on me. The

> original derm in a different office is NEVER available for an

> appointment within a reasonable time frame. His secretary always

> puts you off a minimum of 1-2 months like he is so booked you can't

> be worked in even in an emergency. They might as well go ahead and

> start getting my paperwork ready to file for disability because

that

> is what will happen eventually. My psoriasis and arthritis

disabled

> me in the past and I'm sure it will not take long again once off

> Enbrel because MTX doesn't work well for me alone and other drugs

> have been tried and failed. Cassie

[Guest guest]

OK Gil, I bite!!! Your saying the president has put someone?? In a office that wants women or the American public to revert back to the days when women were completely under the husbands control???Who is this person??? You have my curiosity up... Please tell!! Kathy B.irishwitch <irishwitch@...> wrote: From: "irishwitch" Date: Sun, 2 Jan 2005 16:01:37 -0500Subject: Re: Re: Giving up

American drug laws, like American sexual laws, reflect our puritan ancestry--and they need to be changed. Bluntly the FDA would rather patients with nausea for whom normal remedies don't work, suffer,t han one soul get high on grass. And it will get worse under Bush. He put someone into either FSA or NIH who has written a book telling women with PMS and industrious that i they submit to their husbands and read the Bible daily, they will no longer suffer. Sorry, but that only works if it's psychosomatic. Endow is PHYSICAL, and so are cramps.... and hits guy is gonna have say in women's reproductive health. Don't' expecting to b put into treatments fo anything that could Even possibly be called Hep C--I suspect this guy and Fearless Leaser regard them as punishments for sin (unless Bush somehow turns out to be positive).

Re: Giving up

Just got home from talking to a counsler and I am glad to report that she was very familar with Hep C and the side effects from TX's.

She was not able to prescribe a Rx. I have to see the shrink for that, and I have an appt. for that next week. I might finally be getting some relief.

Thanks to all of you who wrote to me. It really means alot.

WylandKathy Brunow

[Guest guest]

The antibiotics did that to my son. He could not even get to the bathroom.

[Guest guest]

i remember stopping everything for my son a few times. i totally understand

how you feel. i have been doing bio med stuff for YEARS. i get sooooo

tired of the " trial and error " . all the things i have tried makes my head

spin.

and my son is a tough nut. slow responder so it is much harder than most.

one way i take the guess work out of things is doing testing (bio medical

testing/labs). it really helps to narrow down suppliments he should be taking.

anyway, hang in there. it is a tough road, but, a road we must travel down.

it is better to deal with this stuff while the children are younger rather

than older. just cant wait till puberty!

vicki

[Guest guest]

.

I can totally understand your frustration!

I did the same thing about 5 months ago! I stopped

EVERYTHING (except the B12 shots) and the runny stools

still didn't go away! ;-(

We did finally get it under control to only come back

again 3 wks ago!

Its sooo hard trying to deal with our kids gut issues.

Lori

--- smccarty123 <smccarty123@...> wrote:

> I'm stopping everything for . This morning I

> gave him a dose of

> gentamicin, but he hasn't had anything else. The

> doctor (DAN) didn't

> return my two phone calls yesterday (holiday week,

> can't expect much I

> guess), so I'm giving up for now. I've gotta get

> this diarrhea stopped

> (he's had five already today). I'm even stopping

> the amoxicillin for

> his ear. I just don't know what else to do. I

> appreciate all the

> advice, but I'm so confused... was it the Motrin,

> the oranges, the

> Nystatin, the powerful antibiotics, the combination

> of everything??? I

> just can't think straight anymore. If he's better

> by Monday (his first

> day of school), then maybe I'll start adding things

> back in one at a

> time. Oh, guess that means the MB12 is out for now,

> too. :-(

>

> Take care,

> and

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

You're not giving up, , you're taking a " Supplement Break " . It's all

in how you spin it for yourself :-) . I think that you have a very good

plan. Remember to smile, and enjoy your time with your little guy!

Terri

At 01:19 PM 11/22/2005, you wrote:

>I'm stopping everything for . This morning I gave him a dose of

>gentamicin, but he hasn't had anything else. The doctor (DAN) didn't

>return my two phone calls yesterday (holiday week, can't expect much I

>guess), so I'm giving up for now. I've gotta get this diarrhea stopped

>(he's had five already today). I'm even stopping the amoxicillin for

>his ear. I just don't know what else to do. I appreciate all the

>advice, but I'm so confused... was it the Motrin, the oranges, the

>Nystatin, the powerful antibiotics, the combination of everything??? I

>just can't think straight anymore. If he's better by Monday (his first

>day of school), then maybe I'll start adding things back in one at a

>time. Oh, guess that means the MB12 is out for now, too. :-(

>

>Take care,

> and

>

>

>

>

>

>

>

>

>

[Guest guest]

hi

i think we have all been where you feel you are, sometimes its good to take a

break and just have a 'normal' life for a while not one dictated by supplement

doses, measurements, limitations and timings - it exhausts me.

also

everytime we have amoxycillin - it reduces fians bms to brown puddles - its

horrific and its 6 x a day at least - the only way i have managed to control the

last bout - we have just done a weeks course on amoxycillin and now using a

combo of amoxycillin and augmentin - hes 2 and has viral/candida induced

bronchitis

at 7 am 1 no phenol, 2 peptizyde, 1/2 candex, 150mg of GSE, 10 drops of

anaerobic oxygen, 4tsp of coconut oil

repeat the same at 10.30am and 3.30pm, he then has kiki naturebiotics - 2

capsules at 7pm - and this has knocked it on the head - they are still a little

squidgy but it works and its the only formula i have found that has.

i follow the same formula now for my eldest when he has antibiotics too and it

works for him, hes 7 and i just increase it as follows:

7 am 2 no phenol, 4 pep, 1 candex, 1 drop of ooo/126 mg gse - i rotate these

with him - he cant tolerate gse for long, 4tsp of coconut oil, 10 drops ao and

same schedule but end it with 4 naturebiotics

i hope this helps

fian had horrendous d for months on end since we tried biokult i think which

was about june? - his only stopped when i introduced the kiki nature biotics - i

jumped the gun and started him on 1 full capsule a day and it stopped finally by

day 2 - i couldnt believe it, we had some horrible behaviour for a few days -

must have been die off and ive had no issues with his bowels since - hes now

having the most perfect stools hes ever had and learnt to use his potty for bms

in 2 days, before he'd refused to try because of the constant mess and it just

frightened him so much, they were recommended to me by another mum who said they

were miraculous on her child - they rectified my eldests constipation by the

time we got to 4 capsules, - a problem hes had since birth.

i hope this all helps, no-one will judge you for taking a break - like i say

we have all been there, and we have all needed to take time out, the little

light at the end of the tunnel can seem so far away at times

kindest regards

emma

smccarty123 <smccarty123@...> wrote:

I'm stopping everything for . This morning I gave him a dose of

gentamicin, but he hasn't had anything else. The doctor (DAN) didn't

return my two phone calls yesterday (holiday week, can't expect much I

guess), so I'm giving up for now. I've gotta get this diarrhea stopped

(he's had five already today). I'm even stopping the amoxicillin for

his ear. I just don't know what else to do. I appreciate all the

advice, but I'm so confused... was it the Motrin, the oranges, the

Nystatin, the powerful antibiotics, the combination of everything??? I

just can't think straight anymore. If he's better by Monday (his first

day of school), then maybe I'll start adding things back in one at a

time. Oh, guess that means the MB12 is out for now, too. :-(

Take care,

and

[Guest guest]

sorry - typo kai only has 1 drop of ooo in the 7am dose - no more than that -

its pretty potent!!

Emma <eeejay174@...> wrote: hi

i think we have all been where you feel you are, sometimes its good to take a

break and just have a 'normal' life for a while not one dictated by supplement

doses, measurements, limitations and timings - it exhausts me.

also

everytime we have amoxycillin - it reduces fians bms to brown puddles - its

horrific and its 6 x a day at least - the only way i have managed to control the

last bout - we have just done a weeks course on amoxycillin and now using a

combo of amoxycillin and augmentin - hes 2 and has viral/candida induced

bronchitis

at 7 am 1 no phenol, 2 peptizyde, 1/2 candex, 150mg of GSE, 10 drops of

anaerobic oxygen, 4tsp of coconut oil

repeat the same at 10.30am and 3.30pm, he then has kiki naturebiotics - 2

capsules at 7pm - and this has knocked it on the head - they are still a little

squidgy but it works and its the only formula i have found that has.

i follow the same formula now for my eldest when he has antibiotics too and it

works for him, hes 7 and i just increase it as follows:

7 am 2 no phenol, 4 pep, 1 candex, 1 drop of ooo/126 mg gse - i rotate these

with him - he cant tolerate gse for long, 4tsp of coconut oil, 10 drops ao and

same schedule but end it with 4 naturebiotics

i hope this helps

fian had horrendous d for months on end since we tried biokult i think which

was about june? - his only stopped when i introduced the kiki nature biotics - i

jumped the gun and started him on 1 full capsule a day and it stopped finally by

day 2 - i couldnt believe it, we had some horrible behaviour for a few days -

must have been die off and ive had no issues with his bowels since - hes now

having the most perfect stools hes ever had and learnt to use his potty for bms

in 2 days, before he'd refused to try because of the constant mess and it just

frightened him so much, they were recommended to me by another mum who said they

were miraculous on her child - they rectified my eldests constipation by the

time we got to 4 capsules, - a problem hes had since birth.

i hope this all helps, no-one will judge you for taking a break - like i say

we have all been there, and we have all needed to take time out, the little

light at the end of the tunnel can seem so far away at times

kindest regards

emma

smccarty123 <smccarty123@...> wrote:

I'm stopping everything for . This morning I gave him a dose of

gentamicin, but he hasn't had anything else. The doctor (DAN) didn't

return my two phone calls yesterday (holiday week, can't expect much I

guess), so I'm giving up for now. I've gotta get this diarrhea stopped

(he's had five already today). I'm even stopping the amoxicillin for

his ear. I just don't know what else to do. I appreciate all the

advice, but I'm so confused... was it the Motrin, the oranges, the

Nystatin, the powerful antibiotics, the combination of everything??? I

just can't think straight anymore. If he's better by Monday (his first

day of school), then maybe I'll start adding things back in one at a

time. Oh, guess that means the MB12 is out for now, too. :-(

Take care,

and

[Guest guest]

Are kiki nature biotics the same as probiotics, like the Klaire Labs

Ther-biotic Complete that has been taking? Haven't I seen it

mentioned here that it's a good idea to rotate probiotics?

Thanks, Emma. Thanks to everyone for your support. I need the break

probably more than ! I've been looking at biocidin and kefir...

thinking of trying those things in the near future, after this break.

He actually slept all night last night. :-)

Take care,

>

> sorry - typo kai only has 1 drop of ooo in the 7am dose - no more

than that - its pretty potent!!

[Guest guest]

hi

they are soil based organisms - have posted the link here

http://www.kiki-health.com/products/nb/intro/

they have helped us so much

emma

smccarty123 <smccarty123@...> wrote:

Are kiki nature biotics the same as probiotics, like the Klaire Labs

Ther-biotic Complete that has been taking? Haven't I seen it

mentioned here that it's a good idea to rotate probiotics?

Thanks, Emma. Thanks to everyone for your support. I need the break

probably more than ! I've been looking at biocidin and kefir...

thinking of trying those things in the near future, after this break.

He actually slept all night last night. :-)

Take care,

>

> sorry - typo kai only has 1 drop of ooo in the 7am dose - no more

than that - its pretty potent!!

[Guest guest]

I am not sure if this will help but I will offer it up to

you...My adult son is being treated with heavy high doses of abx for

chronic lyme disease...Yes he is autistic also....Anyway his lyme

doctor told me to give alot of probiotics so my son did not get

diahrea...My son has always been constipated after a five yr stint

with diahrea when he was young....So since we started abx for lyme I

started giving him a ton of probiotics and mix them up with different

strains three times a day...Give a basic health food store double

dose in am, threelac in mid afternoon, and culturelle at bedtime...He

has three very healthy bowel movements a day now, no diahrea or

constipation anymore....Being your son is on abx it might be worth a

try increasing his probiotics if you havent done so yet. I have had

to give the enzymes up for the time being also due to other problems

but he is on other supplements and it was a hard time figuring out

what he was and was not reacting too so I feel your

frustration..Eileen

>

> I'm stopping everything for . This morning I gave him a dose

of

> gentamicin, but he hasn't had anything else. The doctor (DAN)

didn't

> return my two phone calls yesterday (holiday week, can't expect

much I

> guess), so I'm giving up for now. I've gotta get this diarrhea

stopped

> (he's had five already today). I'm even stopping the amoxicillin

for

> his ear. I just don't know what else to do. I appreciate all the

> advice, but I'm so confused... was it the Motrin, the oranges, the

> Nystatin, the powerful antibiotics, the combination of

everything??? I

> just can't think straight anymore. If he's better by Monday (his

first

> day of school), then maybe I'll start adding things back in one at

a

> time. Oh, guess that means the MB12 is out for now, too. :-(

>

> Take care,

> and

>

[Guest guest]

I have noticed a big difference with bowels when I give lots of extra enzymes.

If this is something new...could it be food poisoning or some other illness

that just needs to run it's course? I am jumping in after only reading this

post so it may have been mentioned already (sorry).

My son gets this from not having enough enzymes and eating something he

shouldn't.

Probiotics are a great idea as well!! With lots of antibiotics his good

bacteria may just be having a hard time sticking around. It may be the type

too. Sulfur ones are harder on the system.

My 2 cents anyway

ebrischoux <ebrischoux@...> wrote:

I am not sure if this will help but I will offer it up to

you...My adult son is being treated with heavy high doses of abx for

chronic lyme disease...Yes he is autistic also....Anyway his lyme

doctor told me to give alot of probiotics so my son did not get

diahrea...My son has always been constipated after a five yr stint

with diahrea when he was young....So since we started abx for lyme I

started giving him a ton of probiotics and mix them up with different

strains three times a day...Give a basic health food store double

dose in am, threelac in mid afternoon, and culturelle at bedtime...He

has three very healthy bowel movements a day now, no diahrea or

constipation anymore....Being your son is on abx it might be worth a

try increasing his probiotics if you havent done so yet. I have had

to give the enzymes up for the time being also due to other problems

but he is on other supplements and it was a hard time figuring out

what he was and was not reacting too so I feel your

frustration..Eileen

>

> I'm stopping everything for . This morning I gave him a dose

of

> gentamicin, but he hasn't had anything else. The doctor (DAN)

didn't

> return my two phone calls yesterday (holiday week, can't expect

much I

> guess), so I'm giving up for now. I've gotta get this diarrhea

stopped

> (he's had five already today). I'm even stopping the amoxicillin

for

> his ear. I just don't know what else to do. I appreciate all the

> advice, but I'm so confused... was it the Motrin, the oranges, the

> Nystatin, the powerful antibiotics, the combination of

everything??? I

> just can't think straight anymore. If he's better by Monday (his

first

> day of school), then maybe I'll start adding things back in one at

a

> time. Oh, guess that means the MB12 is out for now, too. :-(

>

> Take care,

> and

>

[Guest guest]

Have you all checked to see if they have lyme, parasites or any other things

going on, even simple fluoride will send the gut reeling.

Kathy

Re: giving up

i remember stopping everything for my son a few times. i totally understand

how you feel. i have been doing bio med stuff for YEARS. i get sooooo

tired of the " trial and error " . all the things i have tried makes my head

spin.

and my son is a tough nut. slow responder so it is much harder than most.

one way i take the guess work out of things is doing testing (bio medical

testing/labs). it really helps to narrow down suppliments he should be

taking.

anyway, hang in there. it is a tough road, but, a road we must travel down.

it is better to deal with this stuff while the children are younger rather

than older. just cant wait till puberty!

vicki

[Guest guest]

vicki,

what kind of testing have you done to help understand which supplements to give

him?

thanks,

julie

Re: giving up

i remember stopping everything for my son a few times. i totally understand

how you feel. i have been doing bio med stuff for YEARS. i get sooooo

tired of the " trial and error " . all the things i have tried makes my head

spin.

and my son is a tough nut. slow responder so it is much harder than most.

one way i take the guess work out of things is doing testing (bio medical

testing/labs). it really helps to narrow down suppliments he should be

taking.

anyway, hang in there. it is a tough road, but, a road we must travel down.

it is better to deal with this stuff while the children are younger rather

than older. just cant wait till puberty!

vicki

[Guest guest]

I don't know what all you have tried, but you just can't give up!!

What about a safety pin through the velcro?, Or even two or three if

he is persistant!! How about a large pin right by the closure so

the velcro doesn't loosen even if he gets it undone. Isn't duct

tape supposed to fix everything? So what if it looks stupid! You

paid a lot of money for this thing, and they work so well!! Sophie

is 15 and a half months and we are still seeing improvement. Its

not too late as far as his age.

I don't know what kind of helmet he has, but SOphie's is a

STARbivalve. I couldn't imagine she could get it off even if the

velcro (all the way across the back) was undone. I have to open it

up quite a bit before it comes off. Could you request to get a

different style helmet since he won't keep it on? I would push them

as you paid for a service that is not being provided. How about

they put velcro all the way across the back for you? Maybe sew a

strong button that he could never undo...j

I don't know, but I wouldn't give up yet!!

Good luck to you.

>

> Is it horrible that I am going to give up on doing the helmet? We

went

> through everything getting it but he will not keep it on. It is a

battle

> every day to keep this on. I don't know what to do. No one has any

> suggestions past the normal and those do not work. He is just so

> deteremined. I just don't know what to do with him being 14 months

already.

>

[Guest guest]

I think I just read in an earlier post that he can take it off with

out undoing the velcro. Is that right? I can't imagine a helmet

that fits correctly where you could do this. There is no way in my

mind that it should be that roomy. Maybe it is a really poor fit

and he needs a new helmet. Have you discussed that?

Interesting problem. I really wouldn't give up yet. Make your

ortho fix it, even if it requires a new helmet!!!

>

> Is it horrible that I am going to give up on doing the helmet? We

went

> through everything getting it but he will not keep it on. It is a

battle

> every day to keep this on. I don't know what to do. No one has any

> suggestions past the normal and those do not work. He is just so

> deteremined. I just don't know what to do with him being 14 months

already.

>

[Guest guest]

He has a hanger band and he doesnt unvelcroe it but he rips it off without doing so. He knows how to get that thing off without undoing it.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of therices2000Sent: Wednesday, September 06, 2006 11:32 PMPlagiocephaly Subject: Re: Giving up

I don't know what all you have tried, but you just can't give up!! What about a safety pin through the velcro?, Or even two or three if he is persistant!! How about a large pin right by the closure so the velcro doesn't loosen even if he gets it undone. Isn't duct tape supposed to fix everything? So what if it looks stupid! You paid a lot of money for this thing, and they work so well!! Sophie is 15 and a half months and we are still seeing improvement. Its not too late as far as his age.I don't know what kind of helmet he has, but SOphie's is a STARbivalve. I couldn't imagine she could get it off even if the velcro (all the way across the back) was undone. I have to open it up quite a bit before it comes off. Could you request to get a different style helmet since he won't keep it on? I would push them as you paid for a service that is not being provided. How about they put velcro all the way across the back for you? Maybe sew a strong button that he could never undo...jI don't know, but I wouldn't give up yet!!Good luck to you.>> Is it horrible that I am going to give up on doing the helmet? We went> through everything getting it but he will not keep it on. It is a battle> every day to keep this on. I don't know what to do. No one has any> suggestions past the normal and those do not work. He is just so> deteremined. I just don't know what to do with him being 14 months already.>

[Guest guest]

I will call the ortho and talk to them about it. See what i can do. She says that for him to wear it for a couple of weeks and then he will grow where he needs to and he would not be able to but I can't get him to wear it for those weeks.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of therices2000Sent: Wednesday, September 06, 2006 11:39 PMPlagiocephaly Subject: Re: Giving up

I think I just read in an earlier post that he can take it off with out undoing the velcro. Is that right? I can't imagine a helmet that fits correctly where you could do this. There is no way in my mind that it should be that roomy. Maybe it is a really poor fit and he needs a new helmet. Have you discussed that?Interesting problem. I really wouldn't give up yet. Make your ortho fix it, even if it requires a new helmet!!!>> Is it horrible that I am going to give up on doing the helmet? We went> through everything getting it but he will not keep it on. It is a battle> every day to keep this on. I don't know what to do. No one has any> suggestions past the normal and those do not work. He is just so> deteremined. I just don't know what to do with him being 14 months already.>

[Guest guest]

My 12 month old who got her DOCband a week ago, can take hers off

with the velcro still attached. I'm wondering too what to do. She

has severe plagio. She can get her right thumb under the right side

that goes in front of her ear and she just pushes it up off her

head. I might ask about a chin strap. She has a check up tomorrow.

Surely they won't be shaving any off!

Beth

Winston Salem, NC

> >

> > Is it horrible that I am going to give up on doing the helmet? We

> went

> > through everything getting it but he will not keep it on. It is a

> battle

> > every day to keep this on. I don't know what to do. No one has any

> > suggestions past the normal and those do not work. He is just so

> > deteremined. I just don't know what to do with him being 14

months

> already.

> >

>

[Guest guest]

Yeah I am sure no shaving will happen with her having it like that already. Let me know what they say.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of efnp42Sent: Thursday, September 07, 2006 1:37 PMPlagiocephaly Subject: Re: Giving up

My 12 month old who got her DOCband a week ago, can take hers off with the velcro still attached. I'm wondering too what to do. She has severe plagio. She can get her right thumb under the right side that goes in front of her ear and she just pushes it up off her head. I might ask about a chin strap. She has a check up tomorrow. Surely they won't be shaving any off!BethWinston Salem, NC> >> > Is it horrible that I am going to give up on doing the helmet? We > went> > through everything getting it but he will not keep it on. It is a > battle> > every day to keep this on. I don't know what to do. No one has any> > suggestions past the normal and those do not work. He is just so> > deteremined. I just don't know what to do with him being 14 months > already.> >>

[Guest guest]

Let me know what they come back with. Sammy rips it off for anyone. Thats funny she uses her thumb. He grabs each side with a hand and pulls it right off.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of efnp42Sent: Friday, September 08, 2006 9:37 PMPlagiocephaly Subject: Re: Giving up

When the clinician took Delaney's band off and then placed it back on, Delaney immediately took her thumb and pushed it up (but not off) and she had the photographer come and a take a picture of the placement of the band on her head. She has such a large prominence on back left of head and large bossing of right forhead, so there is one particular angle she has figured out that the helmet can come off. She knows that that is a no-no. They tried to get her to do it again but she wouldn't do it for the audience. She likes to tease me by putting her thumb up to her band like she's going to take it off then she smiles and starts shaking her head no. They are going to send the pictures to headquarters and talk to them to see if there is anything they can add or change or do whatever. Luckily, she keeps it on more often than not now. She did add some moleskin under the right forhead area and the right front ear piece to take up a little bit of room to discourage her thumb but still left the space for her head growth. You were right, they didn't shave anything this time.Beth> > >> > > Is it horrible that I am going to give up on doing the helmet? We > > went> > > through everything getting it but he will not keep it on. It is a > > battle> > > every day to keep this on. I don't know what to do. No one has any> > > suggestions past the normal and those do not work. He is just so> > > deteremined. I just don't know what to do with him being 14 > months > > already.> > >> >>

[Guest guest]

Jana,

I home school, run a business, run the house, and run my husband's business.

We have always eaten 100% organic and when we switched over to this protocol

our grocery bill went WAY down actually.

My whole family eats the same thing. I don't spend hours preparing stuff

and nutrients. It is like minutes actually.

It takes me about 2 mins to make the egg drink and all of us drink that.

Normally I have to make 2 batches because the like it so much.

Then for lunch it is what ever I put in the crock pot the day before on

low. The day before it would have taken me about 15mins to put the meat in

and any seasoning and veg.

For dinner it is normally eggs cooked in butter with very runny yolks and

salad.

They really like burgers and this is my longest meal to make... that are

just ground beef with herbs slowly cooked on stove. I make my own mayo, and

a version of ketchup. Wash big romaine lettuce leaves, slice onion, slice

tomatoes and put out the yeast flakes.

They take the burgers and put them on the lettuce leaf and put all the other

stuff on that and then fold it over.. they love it.

Now that meal takes about 30 - 45minto prepare.

When we first started doing this it was longer because I had to think more

about what I needed to do and about each supplement dose for each person.

But now it is second nature and I just do it.

Others have put their entire family on the protocol because everyone will be

much healthier for it.

in the UK

On 8/12/07, jmaecarlson <jmaecarlson@...> wrote:

>

> It's day 4. I feel like giving up. First off, I REREAD the info YET

> AGAIN, and I think, even though I already ate a very strict diet

> BEFORe, I must have made too many changes all at once. Maybe I jumped

> too quickly too the proper fat/carb/protein ratio? Maybe it was too

> much for my body to have the egg drink and the electrolyte drink and

> the Pau D'Arco Tea right away? All I know is that 1) I'm constipated

> (which I think is because of too drastic a change in my regular

> ratios), and 2) I do not have time to do this. I have three children.

> I homeschool. In the last four days, by the time I've prepared the

> family's breakfast, my own breakfast, made my drinks for the day,

> taken my supplements, and cleaned up the kitchen, it's already almost

> time to start thinking about what I'm making everyone else for lunch!

> And that's without spending any time with my kids or doing any

> homeschooling! I realize that it may get better after awhile, but I

> just don't know if I can do this. I'm thinking of quitting. KINDA

> quitting. I'm thinking of sticking with the supplements, still having

> the drinks, but maybe not so strict about having ALL of them in a day.

> And sticking to the diet FOR THE MOST PART. I'll stay off sugars of

> all kinds. Stay off dairy. Stay off processed grains. But I just can't

> be making 3 meals a day for me and 3 for the family. Plus, the cost.

> If I made everyone the same food I'm eating, our grocery bill would

> skyrocket (and it's already high because we eat all organic - even

> meats). Am I the only one who feels this way? Are there people who can

> do this who have a schedule as busy as mine? I know I feel good. I'm

> just thinking that I might have to settle for dragging this whole

> healing process out a GREAT DEAL LONGER than I expected to. Isn't it

> possible to still get rid of candida with a semi-compromised method

> like I mentioned above? Only it'll take a lot longer? I just don't

> know what to do.

>

> Sorry for such a discouraging post.

> ~Jana

>

>

>

[Guest guest]

I should also mention that I just got the Nourishing Traditions book,

and the recipes and ideas in it are just what my husband and I have

been striving for in the last while. Even if I were to lighten up on

the candida program, I would stick to what I'm learning in the NT

book. I noticed in the files that Bee is an advocate of this book, so

in that sense, I feel like I won't be HARMING my body. But maybe I'm

being naive and just having a really, really bad day.

~Jana

>

> It's day 4. I feel like giving up. First off, I REREAD the info YET

> AGAIN, and I think, even though I already ate a very strict diet

> BEFORe, I must have made too many changes all at once. Maybe I jumped

> too quickly too the proper fat/carb/protein ratio? Maybe it was too

> much for my body to have the egg drink and the electrolyte drink and

> the Pau D'Arco Tea right away? All I know is that 1) I'm constipated

> (which I think is because of too drastic a change in my regular

> ratios), and 2) I do not have time to do this. I have three children.

> I homeschool. In the last four days, by the time I've prepared the

> family's breakfast, my own breakfast, made my drinks for the day,

> taken my supplements, and cleaned up the kitchen, it's already almost

> time to start thinking about what I'm making everyone else for lunch!

> And that's without spending any time with my kids or doing any

> homeschooling! I realize that it may get better after awhile, but I

> just don't know if I can do this. I'm thinking of quitting. KINDA

> quitting. I'm thinking of sticking with the supplements, still having

> the drinks, but maybe not so strict about having ALL of them in a day.

> And sticking to the diet FOR THE MOST PART. I'll stay off sugars of

> all kinds. Stay off dairy. Stay off processed grains. But I just can't

> be making 3 meals a day for me and 3 for the family. Plus, the cost.

> If I made everyone the same food I'm eating, our grocery bill would

> skyrocket (and it's already high because we eat all organic - even

> meats). Am I the only one who feels this way? Are there people who can

> do this who have a schedule as busy as mine? I know I feel good. I'm

> just thinking that I might have to settle for dragging this whole

> healing process out a GREAT DEAL LONGER than I expected to. Isn't it

> possible to still get rid of candida with a semi-compromised method

> like I mentioned above? Only it'll take a lot longer? I just don't

> know what to do.

>

> Sorry for such a discouraging post.

> ~Jana

>

[Guest guest]

>

> It's day 4. I feel like giving up. First off, I REREAD the info YET

> AGAIN, and I think, even though I already ate a very strict diet

> BEFORe, I must have made too many changes all at once. Maybe I

jumped too quickly too the proper fat/carb/protein ratio? Maybe it

was too much for my body to have the egg drink and the electrolyte

drink and the Pau D'Arco Tea right away? All I know is that 1) I'm

constipated (which I think is because of too drastic a change in my

regular ratios),

==>It is possible that you are trying too hard Jana. Making changes

too fast will create symptoms that are hard to tolerate. Also, as my

article explain " if you decrease carbs too quickly, yet you aren't

yet able to tolerate high fats (because they are antifungal), you

will get constipated. I recommend you do the 9-day Program at this

point in time - it is in our Group's Files (left menu) in the C)

Digestion Folder.

<snip>

>Isn't it possible to still get rid of candida with a semi-

compromised method like I mentioned above? Only it'll take a lot

longer? I just don't know what to do.

==>It is not possible to get rid of Candida overgrowth by killing it

off. The immune system has to become strong enough so it will make

candida change back into the nice friendly organism it is supposed to

in the body. That's why this program works where others fail,

because it provides all of the nutrients (diet plus supplements) the

body requires in order to build up the immune system. The supplements

listed are the bare minimum required, and none should be left out. I

do not want to scare you but you should know candida overgrowth

should be taken very seriously because the next thing that happens if

it is not handled is cancer. There are a number of articles about

this connection - see our Group's Files (left menu) for the

Folder " Candida's Connection to Asthma, Diabetes & Cancer " .

We all understand how frustrating it is for you right now, but as

wrote it does become easier as you continue, like " second

nature " in fact. You can't go wrong giving yourself and your family

the nutrients required so their health is able to improve, even if

some of you do not have candida. We've all been in your position so

we trully understand how difficult it is. So hang in there Jana. You

and your family's health are worth the effort!

Healing hugs, Bee