Re: Re: Eye Pain Question

[Guest guest]

I had eye pain and broken blood vessels almost monthly when I was on gleevec.

Haven't had those symptoms on sprycel. However, the first few weeks on sprycel

my eyes felt scratchy. That was July and now my eyes feel fine. I am having way

fewer side effects on sprycel. I have no more middle of the night leg cramps, I

think my eyes look less swollen, no quesiness after taking the drug, and I have

been able to rid myself of acid reflux drug(which I could not miss). I have lost

a few pounds. So far so good and more importantly my bloodwork looks much

better. Bmb next month.

Sent from my iPhone

On Nov 2, 2009, at 9:00 PM, " Serenity " <serenitywon@...> wrote:

I forgot to mention that I have also tried several different types of

allergy/sinus meds as well with no relief.

Thanks\

SharonS

>

> Hello,

> I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec as

I didn't have good enough numbers for the DR.s liking.I had alot of side effects

and eye swelling and some eye pain was just one issue.My levels were going the

wrong direction and with all the side effects the DR and I decided to try

Sprycel. I started Sprycel in August 09.I have no visible swelling of the eyes

now but I have terrible eye pain.It gets worse the longer I am on

Sprycel(100mg).I did see a Optho a couple months ago while I still had vision

Insurance.The Optho said I had a stigmatism and some far sightedness but all

else was fine.I got a pair of glasses for reading.I am diabetic and it is

controlled but they did check for glucoma and dilated them and did the pressure

test and everything..All seems ok.My eye pain is getting worse daily.I get

occassional headaches.I had a brain MRI done and nothing was seen.I take Lasix

to help with retention.I have gained 30

pounds since starting Sprycel and each day I see a gain on the scale despite

dieting(I have a lapband over GAstric Bypass )So I have a very small stomach.

>

> Is eye PAIN normal with Sprycel?

> Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it

is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes

closed but I can't get much done with my eyes closed all day.Norco and M.S

Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except

blame Sprycel.Do I have to live with this pain?Any suggestions

appreciated..Thanks in advance for any help..

> SharonS

>

[Guest guest]

You are absolutely describing my experience with eye bleeds on gleevec. I did

get them in both eyes - once at the same time. When gleevec failed me (I found

out in June) I had the worse eye bleed and the pain lasted for a couple of days.

Sent from my iPhone

On Nov 3, 2009, at 6:45 PM, " A " <suzzienovember@...> wrote:

Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had pain

behind my eyes. Sometimes in the left and sometimes in the right. Sometimes its

a sharp pain. I have had eye exams, and they have not found anything unusual. I

have however had 3 eyebleeds this past year, and always in the right eye. One

very bad one, and the other ones were less severe. Once I got the eyebleed, I

got pain relief in the eye. It seems like some type of pressure in the blood

vessels. The last one I had gave me a terrible sharp pain before it happened. I

have gained a lot of weight on the Gleevec. There has to be something to all

these drugs that must have a similarity in a lot of ways.

I just live with it, but it does scare you when it happens. I wonder if anyone

else has any feedback on this problem

SUE

[Guest guest]

Hi Beverly:  Sorry you went through that eye problem like me, but I was glad to

see someone else had it too.  I was thinking all sorts of crazy things, and my

husband said that he thought it was the Gleevec also.  I questioned it because I

have been on Gleevec for over 8 years before I got my first eyebleed.  Some of

my other problems have gotten better.

Sue

Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had pain

behind my eyes. Sometimes in the left and sometimes in the right. Sometimes its

a sharp pain. I have had eye exams, and they have not found anything unusual. I

have however had 3 eyebleeds this past year, and always in the right eye. One

very bad one, and the other ones were less severe. Once I got the eyebleed, I

got pain relief in the eye. It seems like some type of pressure in the blood

vessels. The last one I had gave me a terrible sharp pain before it happened. I

have gained a lot of weight on the Gleevec. There has to be something to all

these drugs that must have a similarity in a lot of ways.

I just live with it, but it does scare you when it happens. I wonder if anyone

else has any feedback on this problem

SUE

[Guest guest]

Sorry I have not been keeping up on this but when I was on Gleevec I used to

get sharp pains in my eyeballs. Like a pin prick. Quick and sore. But I did

not get the eyebleeds right after. My eye dr. said they are blood vessels

bursting. He said nothing to worry about...sure!!!

But now that I am on Tasagnia I do not get them.

Sharon T.

_____

From: [mailto: ] On Behalf Of JoAnn

Sent: Wednesday, November 04, 2009 8:07 AM

Subject: [ ] Re: Eye Pain Question

Sue,

I've been on Gleevec for 3 years and had my first eye bleed in September,

then three more since then. I, too, have felt the very sharp pain in my eye

immediately before (or during?) the bleed. For me it has always been the

same eye, and same portion on the eye (about half). I have an appointment

with a retina specialist on Monday and will report what he says.

JoAnn

>

> Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had

pain behind my eyes. Sometimes in the left and sometimes in the right.

Sometimes its a sharp pain. I have had eye exams, and they have not found

anything unusual. I have however had 3 eyebleeds this past year, and always

in the right eye. One very bad one, and the other ones were less severe.

Once I got the eyebleed, I got pain relief in the eye. It seems like some

type of pressure in the blood vessels. The last one I had gave me a terrible

sharp pain before it happened. I have gained a lot of weight on the Gleevec.

There has to be something to all these drugs that must have a similarity in

a lot of ways.

> I just live with it, but it does scare you when it happens. I wonder if

anyone else has any feedback on this problem

> SUE

>

[Guest guest]

Everything isn't the disease and drug, but some things are. When I was waiting

to get in the sti571 (gleevec) trial in 2000 we weren't talking about side

effects, we were talking about living. But it just goes to show that complaining

about, and comparing side effects is really a good thing.

Sent from my iPhone

On Nov 3, 2009, at 8:06 PM, Armour <suzzienovember@...> wrote:

Hi Beverly: Sorry you went through that eye problem like me, but I was glad to

see someone else had it too. I was thinking all sorts of crazy things, and my

husband said that he thought it was the Gleevec also. I questioned it because I

have been on Gleevec for over 8 years before I got my first eyebleed. Some of

my other problems have gotten better.

Sue

Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had pain

behind my eyes. Sometimes in the left and sometimes in the right. Sometimes its

a sharp pain. I have had eye exams, and they have not found anything unusual. I

have however had 3 eyebleeds this past year, and always in the right eye. One

very bad one, and the other ones were less severe. Once I got the eyebleed, I

got pain relief in the eye. It seems like some type of pressure in the blood

vessels. The last one I had gave me a terrible sharp pain before it happened. I

have gained a lot of weight on the Gleevec. There has to be something to all

these drugs that must have a similarity in a lot of ways.

I just live with it, but it does scare you when it happens. I wonder if anyone

else has any feedback on this problem

SUE