Re: Update on Gleevec Vacation

[Guest guest]

Wow! That is wonderful!

_____

From: [mailto: ] On Behalf Of

dickie_64012

Sent: Tuesday, September 22, 2009 9:52 PM

Subject: [ ] Update on Gleevec Vacation

I received the news that there was little change in my latest test. I remain

low positive, about .004 so we will try another 3 months without Gleevec. My

hmg remains at 11.4 and the WBC was 6.2 on my last CBC. I am shooting for 18

months without Gleevec and 1 year without Procrit.

H.

dxd. 2/03

Gleevec 3/03

Vac. started 6/08

last Procrit 11/08

[Guest guest]

Why no Gleevec did I miss sommething.

________________________________

From: dickie_64012 <dickie_64012@...>

Sent: Tuesday, September 22, 2009 11:51:37 PM

Subject: [ ] Update on Gleevec Vacation

 

I received the news that there was little change in my latest test. I remain low

positive, about .004 so we will try another 3 months without Gleevec. My hmg

remains at 11.4 and the WBC was 6.2 on my last CBC. I am shooting for 18 months

without Gleevec and 1 year without Procrit.

H.

dxd. 2/03

Gleevec 3/03

Vac. started 6/08

last Procrit 11/08

[Guest guest]

That is excellent news, !! We are all rooting for you!

JoAnn

>

> I received the news that there was little change in my latest test. I remain

low positive, about .004 so we will try another 3 months without Gleevec. My

hmg remains at 11.4 and the WBC was 6.2 on my last CBC. I am shooting for 18

months without Gleevec and 1 year without Procrit.

>

> H.

> dxd. 2/03

> Gleevec 3/03

> Vac. started 6/08

> last Procrit 11/08

>

[Guest guest]

The Gleevec was causing my Iron Deficient Anemia to become worse. I was on

Transfusions every 3 weeks for six months. Took a vacation for 6 months and had

to go back on the Gleevec and less than 6 months later I needed another

transfusion. My CML counts were such at I took another vacation and Procrit to

rebuild the HMg. At then my CML counts have remained low enough that that I

remain on vacation. This is my contribution to the new research efforts of

seeing how long my body can sustain minimal counts without medication. This

year I have been basicly retired (nobody wants an old person) even part time. I

had a pacemaker put in in March and the better circulation has given me better

CBC counts everytime I have one. I am almost free of all the CML complaints

(cramps, puffy eyes, etc.

H.

>

> Why no Gleevec did I miss sommething.

>

>

>

>

> ________________________________

> From: dickie_64012 <dickie_64012@...>

>

> Sent: Tuesday, September 22, 2009 11:51:37 PM

> Subject: [ ] Update on Gleevec Vacation

>

>  

> I received the news that there was little change in my latest test. I remain

low positive, about .004 so we will try another 3 months without Gleevec. My hmg

remains at 11.4 and the WBC was 6.2 on my last CBC. I am shooting for 18 months

without Gleevec and 1 year without Procrit.

>

> H.

> dxd. 2/03

> Gleevec 3/03

> Vac. started 6/08

> last Procrit 11/08

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for update, interesting and crappy situation.

dx 12 23 05 600 Gleevec PCRU  

________________________________

From: dickie_

[Guest guest]

I agree. However, it is my choice. It hasn't been proven that I can't tolerate

400mg Gleevec. I told the ONC that I was not really interested in taking the

newer meds as their side effects sounded as bad as Gleevec. I would rather be

where I am at than starting to learn a bunch of different side effects unless it

is absolutely necessary. I am thankful that we still have choices we can make

about the quality of life while enduring CML.

Ricahrd H.

>

> Thanks for update, interesting and crappy situation.

> dx 12 23 05 600 Gleevec PCRU  

>

>

>

>

> ________________________________

> From: dickie_

>

>

>

>

>

>

>

[Guest guest]

I could not tolerate Gleevec. Had terrible terrible side effects. Lesser

with Sprycel and none with Tasigna.

are you the one that is off all meds?

There are so many posts and I get confused.

sharon

_____

From: [mailto: ] On Behalf Of

dickie_64012

Sent: Saturday, September 26, 2009 8:53 PM

Subject: Re: [ ] Update on Gleevec Vacation

I agree. However, it is my choice. It hasn't been proven that I can't

tolerate 400mg Gleevec. I told the ONC that I was not really interested in

taking the newer meds as their side effects sounded as bad as Gleevec. I

would rather be where I am at than starting to learn a bunch of different

side effects unless it is absolutely necessary. I am thankful that we still

have choices we can make about the quality of life while enduring CML.

Ricahrd H.

>

> Thanks for update, interesting and crappy situation.

> dx 12 23 05 600 Gleevec PCRU

>

>

>

>

> ________________________________

> From: dickie_

>

>

>

>

>

>

>

[Guest guest]

Yes, I am. I am glad that you handling Tasigna well.

H.

-- In , " Sharon Teichera " <onthewtr@...> wrote:

>

> I could not tolerate Gleevec. Had terrible terrible side effects. Lesser

> with Sprycel and none with Tasigna.

>

> are you the one that is off all meds?

>

> There are so many posts and I get confused.

>

> sharon

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> dickie_64012

> Sent: Saturday, September 26, 2009 8:53 PM

>

> Subject: Re: [ ] Update on Gleevec Vacation

>

>

>

>

>

> I agree. However, it is my choice. It hasn't been proven that I can't

> tolerate 400mg Gleevec. I told the ONC that I was not really interested in

> taking the newer meds as their side effects sounded as bad as Gleevec. I

> would rather be where I am at than starting to learn a bunch of different

> side effects unless it is absolutely necessary. I am thankful that we still

> have choices we can make about the quality of life while enduring CML.

>

> Ricahrd H.

>

>

> >

> > Thanks for update, interesting and crappy situation.

> > dx 12 23 05 600 Gleevec PCRU

> >

> >

> >

> >

> > ________________________________

> > From: dickie_

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Re: [ ] Update on Gleevec Vacation

>

>

>

>

>

> I agree. However, it is my choice. It hasn't been proven that I can't

> tolerate 400mg Gleevec. I told the ONC that I was not really interested in

> taking the newer meds as their side effects sounded as bad as Gleevec. I

> would rather be where I am at than starting to learn a bunch of different

> side effects unless it is absolutely necessary. I am thankful that we still

> have choices we can make about the quality of life while enduring CML.

>

[The entire original message is not included]