Re: Eye Pain Question

[Guest guest]

I forgot to mention that I have also tried several different types of

allergy/sinus meds as well with no relief.

Thanks\

SharonS

>

> Hello,

> I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec

as I didn't have good enough numbers for the DR.s liking.I had alot of side

effects and eye swelling and some eye pain was just one issue.My levels were

going the wrong direction and with all the side effects the DR and I decided to

try Sprycel. I started Sprycel in August 09.I have no visible swelling of the

eyes now but I have terrible eye pain.It gets worse the longer I am on

Sprycel(100mg).I did see a Optho a couple months ago while I still had vision

Insurance.The Optho said I had a stigmatism and some far sightedness but all

else was fine.I got a pair of glasses for reading.I am diabetic and it is

controlled but they did check for glucoma and dilated them and did the pressure

test and everything..All seems ok.My eye pain is getting worse daily.I get

occassional headaches.I had a brain MRI done and nothing was seen.I take Lasix

to help with retention.I have gained 30 pounds since starting Sprycel and each

day I see a gain on the scale despite dieting(I have a lapband over GAstric

Bypass )So I have a very small stomach.

>

> Is eye PAIN normal with Sprycel?

> Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it

is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes

closed but I can't get much done with my eyes closed all day.Norco and M.S

Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except

blame Sprycel.Do I have to live with this pain?Any suggestions

appreciated..Thanks in advance for any help..

> SharonS

>

[Guest guest]

I have been on Sprycel since May 2007

My vision is much worse and I have a astigmatism am far sighted and near sighted

and will blame it all on Sprycel.

I can no longer wear eye make-up due to runny eyes one minute and dry the next.

And lots of itchy eyes moments.

Yes closing the eyes feel real good but like you cannot keep them shut.

As far as actual pain I will say no but as the day goes they would get

extremely tired.

Headaches were horrendous in the first few months of Sprycel but that went away.

Hope this was helpful

Anita

________________________________

From: Serenity <serenitywon@...>

Sent: Mon, November 2, 2009 7:52:58 PM

Subject: [ ] Eye pain question

Hello,

I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec as I

didn't have good enough numbers for the DR.s liking.I had alot of side effects

and eye swelling and some eye pain was just one issue.My levels were going the

wrong direction and with all the side effects the DR and I decided to try

Sprycel. I started Sprycel in August 09.I have no visible swelling of the eyes

now but I have terrible eye pain.It gets worse the longer I am on Sprycel(100mg)

..I did see a Optho a couple months ago while I still had vision Insurance.The

Optho said I had a stigmatism and some far sightedness but all else was fine.I

got a pair of glasses for reading.I am diabetic and it is controlled but they

did check for glucoma and dilated them and did the pressure test and

everything.. All seems ok.My eye pain is getting worse daily.I get occassional

headaches.I had a brain MRI done and nothing was seen.I take Lasix to help with

retention.I have gained 30

pounds since starting Sprycel and each day I see a gain on the scale despite

dieting(I have a lapband over GAstric Bypass )So I have a very small stomach.

Is eye PAIN normal with Sprycel?

Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it

is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes

closed but I can't get much done with my eyes closed all day.Norco and M.S

Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except

blame Sprycel.Do I have to live with this pain?Any suggestions appreciated.

..Thanks in advance for any help..

SharonS

[Guest guest]

Anita,

Thanks for the reply.I guess I am not alone..I have tried cold compresses also

and it causes then to burn and run if that makes sense.The pain is worse when I

become tired.I had 20/20 vision before CML DX.Not sure what these meds are doing

to cause the vision issues but both meds I have been on have caused issues this

one being the worst with eyes and weight gain but ledd with all other side

effects..Not sure what to do.Can't stand the pain..

Thanks again..

SHaronS

>

> I have been on Sprycel since May 2007

> My vision is much worse and I have a astigmatism am far sighted and near

sighted and will blame it all on Sprycel.

> I can no longer wear eye make-up due to runny eyes one minute and dry the

next. And lots of itchy eyes moments.

> Yes closing the eyes feel real good but like you cannot keep them shut.

> As far as actual pain I will say no but as the day goes they would get

extremely tired.

> Headaches were horrendous in the first few months of Sprycel but that went

away.

> Hope this was helpful

> Anita

>

>

>

>

>

>

> ________________________________

> From: Serenity <serenitywon@...>

>

> Sent: Mon, November 2, 2009 7:52:58 PM

> Subject: [ ] Eye pain question

>

>

> Hello,

> I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec as

I didn't have good enough numbers for the DR.s liking.I had alot of side effects

and eye swelling and some eye pain was just one issue.My levels were going the

wrong direction and with all the side effects the DR and I decided to try

Sprycel. I started Sprycel in August 09.I have no visible swelling of the eyes

now but I have terrible eye pain.It gets worse the longer I am on Sprycel(100mg)

..I did see a Optho a couple months ago while I still had vision Insurance.The

Optho said I had a stigmatism and some far sightedness but all else was fine.I

got a pair of glasses for reading.I am diabetic and it is controlled but they

did check for glucoma and dilated them and did the pressure test and

everything.. All seems ok.My eye pain is getting worse daily.I get occassional

headaches.I had a brain MRI done and nothing was seen.I take Lasix to help with

retention.I have gained 30

> pounds since starting Sprycel and each day I see a gain on the scale despite

dieting(I have a lapband over GAstric Bypass )So I have a very small stomach.

>

> Is eye PAIN normal with Sprycel?

> Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it

is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes

closed but I can't get much done with my eyes closed all day.Norco and M.S

Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except

blame Sprycel.Do I have to live with this pain?Any suggestions appreciated.

..Thanks in advance for any help..

> SharonS

>

>

>

>

>

>

>

>

[Guest guest]

Hi Sharon ,

I'm sorry you're having such a difficult time with Sprycel. I also have severe

eye pain but only occasionally. Sometimes I get a stabbing pain behind my left

eye and just automatically grab my head. It doesn't happen very often but when

it does I have to stop what I'm doing and just wait until it passes.

Also, I have the 30 extra Sprycel pounds, too. There just doesn't seem to be

any solution for that. I watch my diet but it doesn't lead to weight loss. I

hate to say it, but I think the best we can do is constantly diet and hope we

don't gain any more weight.

Keep your chin up.

[ ] Eye pain question

Hello,

I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec as

I didn't have good enough numbers for the DR.s liking.I had alot of side effects

and eye swelling and some eye pain was just one issue.My levels were going the

wrong direction and with all the side effects the DR and I decided to try

Sprycel. I started Sprycel in August 09.I have no visible swelling of the eyes

now but I have terrible eye pain.It gets worse the longer I am on

Sprycel(100mg).I did see a Optho a couple months ago while I still had vision

Insurance.The Optho said I had a stigmatism and some far sightedness but all

else was fine.I got a pair of glasses for reading.I am diabetic and it is

controlled but they did check for glucoma and dilated them and did the pressure

test and everything..All seems ok.My eye pain is getting worse daily.I get

occassional headaches.I had a brain MRI done and nothing was seen.I take Lasix

to help with retention.I have gained 30 pounds since starting Sprycel and each

day I see a gain on the scale despite dieting(I have a lapband over GAstric

Bypass )So I have a very small stomach.

Is eye PAIN normal with Sprycel?

Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it

is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes

closed but I can't get much done with my eyes closed all day.Norco and M.S

Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except

blame Sprycel.Do I have to live with this pain?Any suggestions

appreciated..Thanks in advance for any help..

SharonS

[Guest guest]

Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had pain

behind my eyes. Sometimes in the left and sometimes in the right. Sometimes

its a sharp pain. I have had eye exams, and they have not found anything

unusual. I have however had 3 eyebleeds this past year, and always in the right

eye. One very bad one, and the other ones were less severe. Once I got the

eyebleed, I got pain relief in the eye. It seems like some type of pressure in

the blood vessels. The last one I had gave me a terrible sharp pain before it

happened. I have gained a lot of weight on the Gleevec. There has to be

something to all these drugs that must have a similarity in a lot of ways.

I just live with it, but it does scare you when it happens. I wonder if

anyone else has any feedback on this problem

SUE

[Guest guest]

Sue,

I've been on Gleevec for 3 years and had my first eye bleed in September, then

three more since then. I, too, have felt the very sharp pain in my eye

immediately before (or during?) the bleed. For me it has always been the same

eye, and same portion on the eye (about half). I have an appointment with a

retina specialist on Monday and will report what he says.

JoAnn

>

> Hi: I read the posts on the eye pain, and I have to say that I am not on

Sprycel. I have always been on Gleevec, and just the past year I have had pain

behind my eyes. Sometimes in the left and sometimes in the right. Sometimes

its a sharp pain. I have had eye exams, and they have not found anything

unusual. I have however had 3 eyebleeds this past year, and always in the right

eye. One very bad one, and the other ones were less severe. Once I got the

eyebleed, I got pain relief in the eye. It seems like some type of pressure in

the blood vessels. The last one I had gave me a terrible sharp pain before it

happened. I have gained a lot of weight on the Gleevec. There has to be

something to all these drugs that must have a similarity in a lot of ways.

> I just live with it, but it does scare you when it happens. I wonder if

anyone else has any feedback on this problem

> SUE

>