RE: Hello and a big thank you

[Guest guest]

Welcome Phil

Glad to have you on our site.

My sisters husband lives in White Pines

Is that anywhere near Salisbury?

Sharon T

# 878 of Zavies club

_____

From: [mailto: ] On Behalf Of

phil130566

Sent: Tuesday, October 13, 2009 2:56 AM

Subject: [ ] Hello and a big thank you

I've only just discovered this site having mainly hung out on the LLS forums

since my dx in Feb of this year. As with many of us I have become something

of a Leukaemia geek since then, reading everything in sight and generally

putting myself through Haemetology 101.

I'm 43, married with 2 young sons, live near Salisbury in the UK and have

been on 400mg Glivec since diagnosis with thankfully not too many side

effects other than fatigue and the usual gastric issues.

PCR was 40% at dx, 8% at 3 months, 0.065% at 6 months - classed as MMR by

the lab (yippee!)

In all the reading I've done just about the most uplifting thing I have

found (apart maybe from the good news coming out of the Ariad trial!) has

been Zavvie and his Zero club - so as soon as I got my results I dropped him

a line to apply for my number - which is how I found out about this site.

Postings on the various forums naturally tend to concentrate on people who

are having poor responses or particularly bad side-effects and it is so

important to celebrate the good news too, especially for those starting out

on their CML journeys. Zavvie does such a wonderful job of this and I

consider myself honoured to be part of his club. Thank you.

Phil Beardsmore

#1277 in Zavvie's Zeros

[Guest guest]

Sorry Sharon, I'm not aware of anywhere in the UKcalled 'White Pines' and Google

Maps doesn't come up with anywhere of that name either. Maybe he's hiding from

you? :@)

Thanks for the welcome

Phil

>

> Welcome Phil

>

> Glad to have you on our site.

>

> My sisters husband lives in White Pines

>

> Is that anywhere near Salisbury?

>

>

>

> Sharon T

>

> # 878 of Zavies club

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> phil130566

> Sent: Tuesday, October 13, 2009 2:56 AM

>

> Subject: [ ] Hello and a big thank you

>

>

>

>

>

> I've only just discovered this site having mainly hung out on the LLS forums

> since my dx in Feb of this year. As with many of us I have become something

> of a Leukaemia geek since then, reading everything in sight and generally

> putting myself through Haemetology 101.

> I'm 43, married with 2 young sons, live near Salisbury in the UK and have

> been on 400mg Glivec since diagnosis with thankfully not too many side

> effects other than fatigue and the usual gastric issues.

> PCR was 40% at dx, 8% at 3 months, 0.065% at 6 months - classed as MMR by

> the lab (yippee!)

> In all the reading I've done just about the most uplifting thing I have

> found (apart maybe from the good news coming out of the Ariad trial!) has

> been Zavvie and his Zero club - so as soon as I got my results I dropped him

> a line to apply for my number - which is how I found out about this site.

> Postings on the various forums naturally tend to concentrate on people who

> are having poor responses or particularly bad side-effects and it is so

> important to celebrate the good news too, especially for those starting out

> on their CML journeys. Zavvie does such a wonderful job of this and I

> consider myself honoured to be part of his club. Thank you.

> Phil Beardsmore

> #1277 in Zavvie's Zeros

>

>

>

>

>

>

[Guest guest]

Oops!!! I read your email so fast I thought you said Upper Michigan.

Dah!!!

I am sorry.

But I am still very happy that you are with us.

I have never been to UK

I am from Northern California in a little town called Discovery Bay - on the

Delta

Bet you never heard of that either. L0l!!

Sharon T

_____

From: [mailto: ] On Behalf Of

phil130566

Sent: Tuesday, October 13, 2009 8:43 AM

Subject: Re: [ ] Hello and a big thank you

Sorry Sharon, I'm not aware of anywhere in the UKcalled 'White Pines' and

Google Maps doesn't come up with anywhere of that name either. Maybe he's

hiding from you? :@)

Thanks for the welcome

Phil

>

> Welcome Phil

>

> Glad to have you on our site.

>

> My sisters husband lives in White Pines

>

> Is that anywhere near Salisbury?

>

>

>

> Sharon T

>

> # 878 of Zavies club

>

>

>

> _____

>

> From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

> phil130566

> Sent: Tuesday, October 13, 2009 2:56 AM

> groups (DOT) <mailto:%40> com

> Subject: [ ] Hello and a big thank you

>

>

>

>

>

> I've only just discovered this site having mainly hung out on the LLS

forums

> since my dx in Feb of this year. As with many of us I have become

something

> of a Leukaemia geek since then, reading everything in sight and generally

> putting myself through Haemetology 101.

> I'm 43, married with 2 young sons, live near Salisbury in the UK and have

> been on 400mg Glivec since diagnosis with thankfully not too many side

> effects other than fatigue and the usual gastric issues.

> PCR was 40% at dx, 8% at 3 months, 0.065% at 6 months - classed as MMR by

> the lab (yippee!)

> In all the reading I've done just about the most uplifting thing I have

> found (apart maybe from the good news coming out of the Ariad trial!) has

> been Zavvie and his Zero club - so as soon as I got my results I dropped

him

> a line to apply for my number - which is how I found out about this site.

> Postings on the various forums naturally tend to concentrate on people who

> are having poor responses or particularly bad side-effects and it is so

> important to celebrate the good news too, especially for those starting

out

> on their CML journeys. Zavvie does such a wonderful job of this and I

> consider myself honoured to be part of his club. Thank you.

> Phil Beardsmore

> #1277 in Zavvie's Zeros

>

>

>

>

>

>