thanks and newbie questions

October 13, 2009

wow....the e-mails just keep coming. thanks so vey very much. this is

gonna sound a little odd but i just assumed everyone on gleevec had the

same problems to the same degree i was having. i had just resigned

myself to that fact. what a surprise to find out people can have less

nausea and less bone pain. i got so worried when i saw my iron had

dropped so far. it truly was my iron. i then knew why i was so tired.

i will try the tricks people have been giving to me and let you know how

they work. part of my problem with a big meal is that i had bariatric

surgery several years ago. i dropped all the weight but it left me very

prone to all sorts of anemias. ah well if i knew then what i know now.

well like always we pick up and go on. i do have a couple of questions.

when i say i'm tired i mean there is nothing left to give. is that

normal for this dx and treatment? what do you do, what are the tricks?

i take b12 injections at home but it seems minimal as far as helping

with the fatigue. i have been placed on full disability and for this i

am grateful. i don't know what i would do if i had to work a ten or

twelve hour shift. i truly pitty anyone who has to. well....thanks

again mel

October 13, 2009

Hi, can you drink milk? sometimes just a sandwich and a glass of milk will do

the trick, and only half a dose. I think there is a web site, Lottie and Tracey

and Zavie will know, that will give you the ins and outs of taking Gleevec, and

what you can and cannot do. I do remember I was told do not lie down for at

least half an hour. As for tired? yes, you surely do get bone tired, exhausted,

and I just took lots of naps. You will adjust to this, it just takes time and

you will learn to just do what you can and don't push yourself. Taking meds,

and napping, and even feeling crappy is better than the alternative, as

said, " a dirt nap.! " Things will get better, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995

Interferon/9 weeks/hydroxyurea/5 years

02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 -

Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of

Michigan

01/09/ - PCR 5.69

02/13/09 - XL228 trial ended due to side effects

o4/13/09 - Ariad Trial U of Michigan

09/09/09 - PCR 0.017

From: mswerlein <mswerlein@...>

Subject: [ ] thanks and newbie questions

Date: Tuesday, October 13, 2009, 9:53 AM

wow....the e-mails just keep coming. thanks so vey very much.

this is