CML

[Guest guest]

Hi Jamy, your father must eat food while taking Veenat.  It must be taken with

a meal, not a light one, like salad, but something hearty. Taking it on an empty

stomach can cause vomiting.   Also, he should not lie down right after taking

the drug, it may make him sick.  He may have aches and pains, and be very

tired, but most of this will stop after a month or so.  I was 70 when I started

Gleevec, and these side effects lasted a little over one month.  If your father

likes milk, that is also good to take with Veenat, along with a sandwich

perhaps  Good luck, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995

Interferon/9 weeks/hydroxyurea/5 years

02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 -

Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 trial/U

of Michigan

01/09/ - PCR 5.69

02/13/09 - XL228 trial ended due to side effects

o4/13/09 - Ariad Trial U of Michigan

09/09/09 - PCR 0.017

From: jamshid98 <jamshid98@...>

Subject: [ ] CML

Date: Sunday, November 8, 2009, 5:07 AM

 

Hi All,

My Father recently diagonalized and found CML. he is 70yrs old. Our cancer

specialist started Veenat-400mg (equivalent to Gleevec)and after that blood

count becomes getting normal every week. After starting the Imatinib(veenat)

treatment the major change is nausea and he is reluctant towards food and

earlier he was vomiting also. Now we have observed that hair growth is also

stopped. Is this side effects of Veenat(even though its doing a great job)? he

is very tired both mentally and physically after this treatment started because

of less food and tension . If any one has experience same kind of issues

...please share..and please let us know is there anything better we need to do on

this disease. doctor said that its in the starting stage and no chemo required.

please put ur suggestions.

thx

jamy

[Guest guest]

>

> Hi All,

>

> My Father recently diagonalized and found CML. he is 70yrs old. Our cancer

specialist started Veenat-400mg (equivalent to Gleevec)and after that blood

count becomes getting normal every week. After starting the Imatinib(veenat)

treatment the major change is nausea and he is reluctant towards food and

earlier he was vomiting also. Now we have observed that hair growth is also

stopped. Is this side effects of Veenat(even though its doing a great job)? he

is very tired both mentally and physically after this treatment started because

of less food and tension .

________________________

Hi Jamy,

Your father is on exactly the right medication. It does have some side effects

but often they do not last more than a month or two. You need to take the drug

with food but you also have to experiment and see what works best for him. Some

people take it right in the middle of a big meal. Some people notice changes in

their hair but that might not last also. The drug can make you tired.....right

now it is working especially hard to kill off the leukemia cells. He should

spread out his activities and also allow for some rest periods, maybe taking a

nap. But don't stop all activites even if he is tired. Try to walk as much as

possible. Some people take a walk after they take their drug and think that that

helps them. With this medicine your father could live a long time...and when he

understands that, he will feel better mentally. Best of wishes to him and your

family. Any questions that you have, just ask on this list.

C.

[Guest guest]

Hey there,

 

how long has your father had CML?, and how often does he go to the doctors? i am

checking because my dad is 84

From: hey00nanc <ncogan@...>

Subject: [ ] Re: CML

Date: Monday, November 9, 2009, 9:07 PM

 

>

> Hi All,

>

> My Father recently diagonalized and found CML. he is 70yrs old. Our cancer

specialist started Veenat-400mg (equivalent to Gleevec)and after that blood

count becomes getting normal every week. After starting the Imatinib(veenat)

treatment the major change is nausea and he is reluctant towards food and

earlier he was vomiting also. Now we have observed that hair growth is also

stopped. Is this side effects of Veenat(even though its doing a great job)? he

is very tired both mentally and physically after this treatment started because

of less food and tension .

____________ _________ ___

Hi Jamy,

Your father is on exactly the right medication. It does have some side effects

but often they do not last more than a month or two. You need to take the drug

with food but you also have to experiment and see what works best for him. Some

people take it right in the middle of a big meal. Some people notice changes in

their hair but that might not last also. The drug can make you tired.....right

now it is working especially hard to kill off the leukemia cells. He should

spread out his activities and also allow for some rest periods, maybe taking a

nap. But don't stop all activites even if he is tired. Try to walk as much as

possible. Some people take a walk after they take their drug and think that that

helps them. With this medicine your father could live a long time...and when he

understands that, he will feel better mentally. Best of wishes to him and your

family. Any questions that you have, just ask on this list.

C.

[Guest guest]

Nausea is a common side effect of Gleevec. Most of us take it with food, a

complete meal, and there is little to no nausea. I have taken Gleevec for

almost seven years and, in my case, the bad side effects went away after a

couple of years. But the food trick works for most of us right away.

Troxel

On Mon, Nov 9, 2009 at 1:07 PM, hey00nanc <ncogan@...> wrote:

>

>

>

>

>

> >

> > Hi All,

> >

> > My Father recently diagonalized and found CML. he is 70yrs old. Our

> cancer specialist started Veenat-400mg (equivalent to Gleevec)and after that

> blood count becomes getting normal every week. After starting the

> Imatinib(veenat) treatment the major change is nausea and he is reluctant

> towards food and earlier he was vomiting also. Now we have observed that

> hair growth is also stopped. Is this side effects of Veenat(even though its

> doing a great job)? he is very tired both mentally and physically after this

> treatment started because of less food and tension .

> ________________________

> Hi Jamy,

> Your father is on exactly the right medication. It does have some side

> effects but often they do not last more than a month or two. You need to

> take the drug with food but you also have to experiment and see what works

> best for him. Some people take it right in the middle of a big meal. Some

> people notice changes in their hair but that might not last also. The drug

> can make you tired.....right now it is working especially hard to kill off

> the leukemia cells. He should spread out his activities and also allow for

> some rest periods, maybe taking a nap. But don't stop all activites even if

> he is tired. Try to walk as much as possible. Some people take a walk after

> they take their drug and think that that helps them. With this medicine your

> father could live a long time...and when he understands that, he will feel

> better mentally. Best of wishes to him and your family. Any questions that

> you have, just ask on this list.

> C.

>

>

>

[Guest guest]

Hi,

1 month before only we have came to know that he has CML and now every week he

used to go to the hospital with the blood examination result. Doctor said it

will be there for the beginning and once the count becomes normal need to see

the dr once in a month..

thx

jamy

From: hey00nanc <ncoganuoregon (DOT) edu>

Subject: [ ] Re: CML

groups (DOT) com

Date: Monday, November 9, 2009, 9:07 PM

 

>

> Hi All,

>

> My Father recently diagonalized and found CML. he is 70yrs old. Our cancer

specialist started Veenat-400mg (equivalent to Gleevec)and after that blood

count becomes getting normal every week. After starting the Imatinib(veenat)

treatment the major change is nausea and he is reluctant towards food and

earlier he was vomiting also. Now we have observed that hair growth is also

stopped. Is this side effects of Veenat(even though its doing a great job)? he

is very tired both mentally and physically after this treatment started because

of less food and tension .

____________ _________ ___

Hi Jamy,

Your father is on exactly the right medication. It does have some side effects

but often they do not last more than a month or two. You need to take the drug

with food but you also have to experiment and see what works best for him. Some

people take it right in the middle of a big meal. Some people notice changes in

their hair but that might not last also. The drug can make you tired.....right

now it is working especially hard to kill off the leukemia cells. He should

spread out his activities and also allow for some rest periods, maybe taking a

nap. But don't stop all activites even if he is tired. Try to walk as much as

possible. Some people take a walk after they take their drug and think that that

helps them. With this medicine your father could live a long time...and when he

understands that, he will feel better mentally. Best of wishes to him and your

family. Any questions that you have, just ask on this list.

C.

[Guest guest]

Dear ,,Bobby and all the members

  me my father and our family feels very relaxed after reading all your

inspiring replies.. we(our family) think this as a motivation...motivation to

live our life and spreading happiness in my family. Thanks a lot...

Love Jamy

[Guest guest]

Hi nancy,

we went to see the doctor last week(for the past 1 month we were vsiting the dr

once in a week after the blood examination and  the blood count coming to the

normal stage) my father felt bad becuase he was not in a condition to take his

normal course of diet. So Dr. stopped the Vennat (gleevec) treatment for 1 week

and after 2 days he becomes normal towards his daily diet. But today again we

met dr and now dr started Veenat again. He is bit scared of that and got

desperate. Now after reading all your replies and dr also adviced the same us to

take it with a large meal and large glasss of water he got some courage(looks so

)

 He is a person who always wanted to do something (always enagaged with various

jobs in my farm house). After he got daigonized i used to stop him doing all

those things. But when i read your reply i thought it would be better to be free

him up with his own works.

Thx

Jamy

From: hey00nanc <ncogan@...>

Subject: [ ] Re: CML

Date: Monday, November 9, 2009, 4:07 PM

 

>

> Hi All,

>

> My Father recently diagonalized and found CML. he is 70yrs old. Our cancer

specialist started Veenat-400mg (equivalent to Gleevec)and after that blood

count becomes getting normal every week. After starting the Imatinib(veenat)

treatment the major change is nausea and he is reluctant towards food and

earlier he was vomiting also. Now we have observed that hair growth is also

stopped. Is this side effects of Veenat(even though its doing a great job)? he

is very tired both mentally and physically after this treatment started because

of less food and tension .

____________ _________ ___

Hi Jamy,

Your father is on exactly the right medication. It does have some side effects

but often they do not last more than a month or two. You need to take the drug

with food but you also have to experiment and see what works best for him. Some

people take it right in the middle of a big meal. Some people notice changes in

their hair but that might not last also. The drug can make you tired.....right

now it is working especially hard to kill off the leukemia cells. He should

spread out his activities and also allow for some rest periods, maybe taking a

nap. But don't stop all activites even if he is tired. Try to walk as much as

possible. Some people take a walk after they take their drug and think that that

helps them. With this medicine your father could live a long time...and when he

understands that, he will feel better mentally. Best of wishes to him and your

family. Any questions that you have, just ask on this list.

C.

[Guest guest]

>

> Hi nancy,

my father felt bad becuase he was not in a condition to take his normal course

of diet. So Dr. stopped the Vennat (gleevec) treatment for 1 week and after 2

days he becomes normal towards his daily diet. But today again we met dr and now

dr started Veenat again. He is bit scared of that and got desperate. Now after

reading all your replies and dr also adviced the same us to take it with a large

meal and large glasss of water he got some courage(looks so )

>  He is a person who always wanted to do something (always enagaged with

various jobs in my farm house). After he got daigonized i used to stop him doing

all those things. But when i read your reply i thought it would be better to be

free him up with his own works.

>

> Thx

> Jamy

_________________

Hi Jamy,

Your father will have to experiment a bit to see what food is best with his

'Gleevec'. Yogurt would be good for him because it coats the stomach and is good

for the intestines also. Maybe your father cannot eat real spicy food with his

pill? Also, he can decide what meal to take it with....some take it with

breakfast....others at lunch or dinner, but it should be a big meal. The pill

might be better with bland food....like maybe a big bowl of oatmeal....but he

will need to experiment.

And it will be good for your father to stay active and do the things that he

likes doing....but at a slower pace and rest when he needs to. For me, I would

feel like I had a lot of energy and then, bam, very tired all at once.

I am glad that the list can help you and your family.

Best wishes,

(from Oregon, USA)