New member!

Posted January 17, 2007 · January 17, 2007

Hi & welcome . I have a 14yr old Asperger/Bipolar grandson,.

Take care,Betty

nicksmom25 <nicksmom25@...> wrote:

Hi! I am and I live in GA. I have a 3 year old daughter and a 9

year old son with AS whom I homeschool. I have many questions and am

interested to make new friends here!

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Posted January 17, 2007 · January 17, 2007

Hi Betty! Nice to meet you!

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Posted January 18, 2007 · January 18, 2007

>Hi , welcome. My name is and I also live in GA. I have a 5

yr old with AS. I am also thinking of homeschooling next year as he

will be ready for K-5 but isn't potty trained. This site is an

excellent source of information and encouragement. Glad to have you join

> Hi! I am and I live in GA. I have a 3 year old daughter and a 9

> year old son with AS whom I homeschool. I have many questions and am

> interested to make new friends here!

>

Posted January 18, 2007 · January 18, 2007

Hi ,

Welcome to the group.

We have lots of great posts here, and you can hear lots of points of

view, which can help you many times over!!!

I have 3 boys, 13,11 and almost 10. I homeschool them, too.

I am also back in college so there is lots of learning going on at

our house. Sure makes life interesting!

See you posting later ;-)

B

>

> Hi! I am and I live in GA. I have a 3 year old daughter and

a 9

> year old son with AS whom I homeschool. I have many questions and

am

> interested to make new friends here!

>

Posted January 18, 2007 · January 18, 2007

Hi ! I also have a nine year old Aspie son and a five year old

daughter. We live in Woodstock which is just north of

Marietta/Kennesaw. Where are you located? Welcome!

-Holly

>

> Hi! I am and I live in GA. I have a 3 year old daughter and a 9

> year old son with AS whom I homeschool. I have many questions and am

> interested to make new friends here!

>

Posted January 18, 2007 · January 18, 2007

HI Holly! We live in warner robins,ga below macon.

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Posted January 18, 2007 · January 18, 2007

Hi ! Wow you have your hands full! Thanks for the welcome!

---------------------------------

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Posted January 18, 2007 · January 18, 2007

Thanks for the welcome! If you need any information on homeschooling let me

know and Ill be happy to share with you some sites I have found useful!

---------------------------------

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Posted January 18, 2007 · January 18, 2007

Welcome, ! I'm new to the list, too; I have a 4 1/2 year old

just diagnosed with AS, with a previous diagnosis of TS, and a 2 year

old NT son (so far).

-- Haddayr

Posted January 18, 2007 · January 18, 2007

I had the same issue in the spring as my daughter was not potty

trained and enrolled for kindergarten. She is in special ed and

they cannot demand a child be potty trained. I also have her

enrolled in a private school in the afternoons and the director took

her as long as we were working on potty training her. She is now

potty trained but the director told me even the 1st graders have

accidents from time to time and these are NT kids. If you want to

home school than great but don't think you have to.

Jen

> >Hi , welcome. My name is and I also live in GA. I have

a 5

> yr old with AS. I am also thinking of homeschooling next year as

he

> will be ready for K-5 but isn't potty trained. This site is an

> excellent source of information and encouragement. Glad to have

you join

>

> > Hi! I am and I live in GA. I have a 3 year old daughter

and a 9

> > year old son with AS whom I homeschool. I have many questions

and am

> > interested to make new friends here!

> >

>

Posted January 18, 2007 · January 18, 2007

*grin*

Loving every minute of it (sort of!)

>

> Hi ! Wow you have your hands full! Thanks for the welcome!

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

Posted June 12, 2007 · June 12, 2007

Welcome to the newsgroup, . Which implant does Christian

have, the Cochlear one, or the Advanced Bionics one? There are lots

of moms and dads here with children of the same, or similar ages to

your son.

Ted F.

>

> Greetings group! I hope that I am welcome here! I am not a wearer

of a CI, but my son, Christian, is. He's 3 years old. He was born

16 wks early. They did his newborn hearing screen at about 3 mos old

and found that he had a moderate hearing loss. After he left the

hospital, we did more testing and determined that he had a severe-

profound hearing loss. So, we started looking into a CI. He wore

the hearing aids for 6 mos w/o any results. So, we were scheduled

for the surgery! It happened on April 13th and he was turned on May

25th! He was 13 mos old for the surgery. He recovered very quickly,

coming home after only 4 hours! He was already his normal self by

that night! It's was amazing!

> Anywho, he has a lot of issues and I'm hoping I can discuss them

here!

>

> Christian's Website: www.miraclechristian.com

> 's Page:

http://www.miraclechristian.com/.html

>

Posted June 13, 2007 · June 13, 2007

Goodness YES! Welcome! Congratulations on your son's birth and

your attention to his hearing issues. Hope all works well with his implant, as

it " sounds " like all is going very well. I believe there are other hearing

parents with children/CI users here also. There may be other groups as well

which you may hear about here that concentrate more on the children and all

the discussions leaning toward them. I am sorry I don't know about them

myself to direct you there - but, wanted you to feel very welcome here! I can

only imagine all your concerns.

Evon

************************************** See what's free at http://www.aol.com.

Posted November 5, 2007 · November 5, 2007

Hi Keri,

Welcome to the group. PT won't really help with the shape of her head,

but it will help her be more comfortable on her non-favored side.

Plagio can potentially be corrected with aggressive repositioning.

That means no time spent on the flat spot, and when sleeping etc

pressure should be put on the prominent area (by having her rest on

that part of her head). This will discourage growth in the prominent

area, and help direct it to the flat area. Some people do have success

with repo, but you need to monitor progress, so that if it isn't

working you don't waste too much time. There are repo tips in the

files section. I suggest taking pics every two weeks to see if it is

getting better. Also if the plagio is already severe, I would

recommend banding as soon as possible.

My daughter was diagnosed with brachy (flat in back) at her 4 mo

check, and was in a band by 5 mo. She had great improvement starting

from her first two weeks in the band. If you do need to go the

band/helmet route it is really not that bad.

I think at the least you should ask for a referral to a specialist

familiar with plagio so you can get an assessment of your daughter's

severity. Here is a link to a self assessment:

http://cranialtech.com/medicalinfo/assessment/plagiocephaly.pdf

You are also welcome to post pics on this site (in the photos section)

to get some opinions here.

-christine

sydney 22 mo starband grad

>

> Hello my name is Keri and my daughter Anabel was diagnosed with

> Torticollis. I have started her with PT today (although we have been

> re-positioning her and working with her to look the non-favored

> direction on our own prior to PT). I am also conserned with the shape

> of her head. I am going to see her ped. on Nov 14th for her 4 month

> check-up and I am considering asking about the band/helmet. He has

> told me to wait and see how PT works out. Will PT for Torticollis

> really help with the shape of her head? How hard should I push for

> the helmet/band? I am confused, but I want to get her the best help

> possible. I trust her Ped but I am her mommy and am concerned. I am

> looking for suggestions and advise. Oh yeah....Hello everyone!

>

> Keri

>

Posted November 5, 2007 · November 5, 2007

Hi and welcome!

I doubt PT will help with the shape of her head but maybe it will.

You can definitely try aggresively repositioning Anabel for a month

or so and then if no improvement then band. We repoed for 4.5

months and our son's headshape didn't get worse or better. I think

the repoing helped it from getting worse but unfortunately it didn't

help it get better. We banded at 7.5 months. There are tips in the

files section on repoing and hopefully they would work for you. If

you repo and it doesn't improve say in a month then I would

definitely go to CT or another facility and get their opinion on

banding Anabel. Definitely set a deadline allowing for

casting/scanning and recieving the band; if you will only band if

insurance pays then you will want to get the insurance stuff figured

out now incase you move forward with the band; however, if you will

pay out of pocket if insurance doesn't pay then I'd band and then

deal with insurance. If your ped. is not willing to write a

prescription then maybe try to get the measurements first and then

take them to your ped. (or have them faxed over) and tell your ped.

that you really want to band Anabel. If they are faxed then I would

call your ped. so he/she can expect the measurements and the fax

doesn't get 'lost.' Do not take 'it will round out' because it

won't.

>

> Hello my name is Keri and my daughter Anabel was diagnosed with

> Torticollis. I have started her with PT today (although we have

been

> re-positioning her and working with her to look the non-favored

> direction on our own prior to PT). I am also conserned with the

shape

> of her head. I am going to see her ped. on Nov 14th for her 4

month

> check-up and I am considering asking about the band/helmet. He

has

> told me to wait and see how PT works out. Will PT for Torticollis

> really help with the shape of her head? How hard should I push

for

> the helmet/band? I am confused, but I want to get her the best

help

> possible. I trust her Ped but I am her mommy and am concerned. I

am

> looking for suggestions and advise. Oh yeah....Hello everyone!

>

> Keri

>

Posted November 5, 2007 · November 5, 2007

Welcome Keri!!!

This is a wonderful supportive group who will help you in your tort/plagio journey!

If you are concerned then voice it and go from there. Ask for a referral to a craniofacial dr to get an eval from them. Some peds are up to date and get it with plagio - but others are not and some parents need to fight for treatment.

Another thing you can do is visit a band provider (like Cranial Tech or Starband) and get an evaluation to see if a band is needed and then take that info to your ped.

Also, you can look thru old messages to see if there is any info about your area and drs or band providers.

HTH!!

Jen and Luli - 23 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

New Member!

Hello my name is Keri and my daughter Anabel was diagnosed with

Torticollis. I have started her with PT today (although we have been

re-positioning her and working with her to look the non-favored

direction on our own prior to PT). I am also conserned with the shape

of her head. I am going to see her ped. on Nov 14th for her 4 month

check-up and I am considering asking about the band/helmet. He has

told me to wait and see how PT works out. Will PT for Torticollis

really help with the shape of her head? How hard should I push for

the helmet/band? I am confused, but I want to get her the best help

possible. I trust her Ped but I am her mommy and am concerned. I am

looking for suggestions and advise. Oh yeah....Hello everyone!

Keri

Email and AIM finally together. You've gotta check out free AOL Mail!

Posted November 6, 2007 · November 6, 2007

Thank you!

Keri

Plagiocephaly From: JenandLuli@...Date: Mon, 5 Nov 2007 22:39:10 -0500Subject: Re: New Member!

Welcome Keri!!!This is a wonderful supportive group who will help you in your tort/plagio journey!If you are concerned then voice it and go from there. Ask for a referral to a craniofacial dr to get an eval from them. Some peds are up to date and get it with plagio - but others are not and some parents need to fight for treatment. Another thing you can do is visit a band provider (like Cranial Tech or Starband) and get an evaluation to see if a band is needed and then take that info to your ped.Also, you can look thru old messages to see if there is any info about your area and drs or band providers.HTH!!

Jen and Luli - 23 monthsLeft tort - Right Plagio - Hanger Band Grad - CAhttp://www.babiesonline.com/babies/j/jens5th/ New Member!

Hello my name is Keri and my daughter Anabel was diagnosed with Torticollis. I have started her with PT today (although we have been re-positioning her and working with her to look the non-favored direction on our own prior to PT). I am also conserned with the shape of her head. I am going to see her ped. on Nov 14th for her 4 month check-up and I am considering asking about the band/helmet. He has told me to wait and see how PT works out. Will PT for Torticollis really help with the shape of her head? How hard should I push for the helmet/band? I am confused, but I want to get her the best help possible. I trust her Ped but I am her mommy and am concerned. I am looking for suggestions and advise. Oh yeah....Hello everyone!Keri

Email and AIM finally together. You've gotta check out free AOL Mail!

Posted November 6, 2007 · November 6, 2007

Thank you very much all of this is good to know. We would pay out of pocket if need be, but it would be good to get the ball rolling. How long does it take to get banded anyways? I think that my dr. will work with us, as he's pretty understanding. I didn't think about getting an eval at a place before getting the script from the dr. Would that affect the insurance?

Keri

Plagiocephaly From: lka_236@...Date: Tue, 6 Nov 2007 03:06:41 +0000Subject: Re: New Member!

Hi and welcome!I doubt PT will help with the shape of her head but maybe it will. You can definitely try aggresively repositioning Anabel for a month or so and then if no improvement then band. We repoed for 4.5 months and our son's headshape didn't get worse or better. I think the repoing helped it from getting worse but unfortunately it didn't help it get better. We banded at 7.5 months. There are tips in the files section on repoing and hopefully they would work for you. If you repo and it doesn't improve say in a month then I would definitely go to CT or another facility and get their opinion on banding Anabel. Definitely set a deadline allowing for casting/scanning and recieving the band; if you will only band if insurance pays then you will want to get the insurance stuff figured out now incase you move forward with the band; however, if you will pay out of pocket if insurance doesn't pay then I'd band and then deal with insurance. If your ped. is not willing to write a prescription then maybe try to get the measurements first and then take them to your ped. (or have them faxed over) and tell your ped. that you really want to band Anabel. If they are faxed then I would call your ped. so he/she can expect the measurements and the fax doesn't get 'lost.' Do not take 'it will round out' because it won't. >> Hello my name is Keri and my daughter Anabel was diagnosed with > Torticollis. I have started her with PT today (although we have been > re-positioning her and working with her to look the non-favored > direction on our own prior to PT). I am also conserned with the shape > of her head. I am going to see her ped. on Nov 14th for her 4 month > check-up and I am considering asking about the band/helmet. He has > told me to wait and see how PT works out. Will PT for Torticollis > really help with the shape of her head? How hard should I push for > the helmet/band? I am confused, but I want to get her the best help > possible. I trust her Ped but I am her mommy and am concerned. I am > looking for suggestions and advise. Oh yeah....Hello everyone!> > Keri>

Posted May 4, 2008 · May 4, 2008

Welcome Tracey,

Glad to have you aboard. I just sent over a copy of the "welcome e-mail"

Although it was very kind of you to let us know about the "free stuff" we shy away from any type of advertising on this site if possible. We try not to bring any commercial gain so that we can remain as objective and straight forward as possible. Our main purpose here is to educate, share and help those with ailments learn about LDN.

All my best

Aletha

[low dose naltrexone] New member!

Dear MemberI just wanted to say a quick hello to the group as I am a newbie!I am off for a long weekend break (Yipee!), but I hope that I can be an asset and contribute some good info to the group when I return next week. It will be nice to make some new friends here!Love free-stuff?, I am forever finding new links (like the one i recently found below) where you can grab some free goodies, instantly! If I find any others I will let the members know. Why pay for stuff ?Take care and have a great weekendRegardsTracey"I never knew finding freebies was so easy"This weeks great find: www.sponsorsgift.com

Posted March 26, 2009 · March 26, 2009

no spell check.... lol, however it doesn't matter! We will understand what you

mean and if not we'll ask....

It is a good place for you to come when you are sick and don't know what's going

to happen. Most everyone has different stories but at the same time we have also

gone through similar battles against the medical field. My story consists of the

fact that I had lYme a year.... told i was crazy by over 8 specialists, my mom

diagnosed me knowing what it was 9 months into it so we got to a local Lyme

support group. That is where we found my Lyme Literate Medical Doctor's name

(LLMD) and he started treating me with tough antibiotics (abx) which i have been

working with for 1/2 year now. The medicines, which you may or may not know this

much, fight the Lyme disease and cause herx reactions, which basically the Lyme

bug release a chemical to defend itself and makes you worse. These happen

different for eveyone, some get it bad, some not at all, however it is useful to

be aware. If you just want some info and to relate to some of my story or

anything you should

sift through my blog:

www.elainaslymediseasestory.blogspot.com

it may or may not help you out. There are a lot of people that can stick through

you on this, so i will pray for you and i wish yu the best of luck as you absorb

the horrifying info and try to come to grips with this Disease! If you's like to

contact me privately so i may get some more of your sotry and talk a little

more:

horsegirl@...

Thanks!

Elaina

From: vagerstner <vagerstner@...>

Subject: [ ] new member!

Date: Wednesday, March 25, 2009, 6:42 PM

Hello,

I am new at this. I have recently been diagnosed with lyme disease. I am

grateful to know what it is however not so grateful because what it is. A friend

of mine gave me this site and here I am. Not sure what this disease consist of

or what it will be like for me. Dr. I spoke with today said he could not give me

a specific time limit on how long I will have it...or the symptoms. I must admit

I am a little dazed and confused by all the information I have recieved thus

far.

Well that is all for now I suppose.

V.

p.s. does this program have spell check

Posted March 29, 2009 · March 29, 2009

Elaina,

Thank you for repling. Yes I can tell already this is going to be a journey..

There are so many new things I have question about, just the language can be

confusing. This is really new for me and I struggle with acceptance. If you

really don't mind I will contact you on your personal account. I am planning on

going to your blogspot to read more of your story. I have located a support

group and plan to attend tomorrow night.

Thank you

V.

From: Elaina <nhgirlloveshorses@...>

Subject: Re: [ ] new member!

Date: Thursday, March 26, 2009, 3:20 PM