Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 I'm new to the group. I was diagnosed in July, and am now getting stable on Gleevec. ____________________________ Dear Neal, I don't know of many people who did not suffer from fatigue. Some were able to continue working out of necessity and others were able to work with lesser side effects, but had to rest as soon as they got home from work. We are all different, but fatigue is a side effect that most of us have to endure. We soon learn what we can and cannot do. Some get relief by working out and regular exercise. My doctor advised me to swim, but when I found out a man had contracted mengenitis in the YMCA pool, I declined to go. When I was able, we used to walk at a fast pace for 3 miles; however, I was in a different trial. Once I was on Gleevec, I was no longer able to run the distance. We just have to find a happy medium. Going to a gym is a good place to start, but we have to remember that the person who came ahead of us has left his germy imprint on the equipment. I am fast becoming a germaphobe because of the infections I succumbed to. I have managed to stay alive for 14 years by being vigilant and pro-active. I am encouraged by listening to other people's stories. Your asking questions is a good beginning for you, there is still much to learn and there is no time to rest on our laurels, we remain active mentally as well as physically. I hope you will continue to be a vocal part of the group. We are like a taxi, just put your hand up on a busy street and someone will be there to pick you up and take you to your destination. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Thanks everyone for the suggestions and experiences. I guess I need to get better about exercising, and hopefully that will help. Unfortunately I am the sole provider for our family of four, and it looks like disability would only pay us about a third of what I currently earn. It seems to be a matter of necessity in my case. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Yes! Wasn't that a great way to put it? From: chimera46@... Date: Fri, 16 Oct 2009 12:58:31 -0700 Subject: Re: [ ] Fatigue I love this line you wrote Lottie " We are like a taxi, just put your hand up on a busy street and someone will be there to pick you up and take you to your destination. " You and this group have picked me up more than you will ever know. ________________________________ From: Lottie Duthu <lotajam@...> CML < > Sent: Fri, October 16, 2009 12:35:10 PM Subject: [ ] Fatigue I'm new to the group. I was diagnosed in July, and am now getting stable on Gleevec. ____________ _________ _______ Dear Neal, I don't know of many people who did not suffer from fatigue. Some were able to continue working out of necessity and others were able to work with lesser side effects, but had to rest as soon as they got home from work. We are all different, but fatigue is a side effect that most of us have to endure. We soon learn what we can and cannot do. Some get relief by working out and regular exercise. My doctor advised me to swim, but when I found out a man had contracted mengenitis in the YMCA pool, I declined to go. When I was able, we used to walk at a fast pace for 3 miles; however, I was in a different trial. Once I was on Gleevec, I was no longer able to run the distance. We just have to find a happy medium. Going to a gym is a good place to start, but we have to remember that the person who came ahead of us has left his germy imprint on the equipment. I am fast becoming a germaphobe because of the infections I succumbed to. I have managed to stay alive for 14 years by being vigilant and pro-active. I am encouraged by listening to other people's stories. Your asking questions is a good beginning for you, there is still much to learn and there is no time to rest on our laurels, we remain active mentally as well as physically. I hope you will continue to be a vocal part of the group. We are like a taxi, just put your hand up on a busy street and someone will be there to pick you up and take you to your destination. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 A lot of the Gleevec side effects dissipated with time for me. However, I could just never get a handle on that chronic fatigue and after nearly five years on Gleevec switched to Spyrcel. Now I may move to Tasigna for the same reason. On Tue, Feb 23, 2010 at 11:47 AM, rnmichelle80 <rnmichelle80@...>wrote: > > > Hello, I am new to the group and was wondering if anyone has any advice on > fatigue? I am on 400mg of Gleevac daily. I am always exhausted, never feel > like I sleep enough. I am not sure if there is anything I can do to help? I > also work full-time and have 2 small children a 1 year old and 4 year old. I > would like any advice, Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi - I take my Gleevec with dinner.  If I take it with a full meal and water before 8PM or so - I rarely have any indigestion. On the issue of fatigue - I experienced it more in the first 6 months. Every once and a while I elect to take a quick nap after dinner - but my wife claims it is just to get out of doing the dishes. I think taking it a few hours before you go to bed might help.  Also - my " old wives tale " theory is that your body does a lot of cell building while you sleep so if you have the most Gleevec in your system while that is happening - I am thinking it is at its most effective state.  I have been on Gleevec for about 7 years now.  Good luck From: rnmichelle80 <rnmichelle80@...> Subject: [ ] Fatigue Date: Tuesday, February 23, 2010, 2:47 PM  Hello, I am new to the group and was wondering if anyone has any advice on fatigue? I am on 400mg of Gleevac daily. I am always exhausted, never feel like I sleep enough. I am not sure if there is anything I can do to help? I also work full-time and have 2 small children a 1 year old and 4 year old. I would like any advice, Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 Hi : If your new to all of this, then you will feel the fatigue maybe more than others. Working full-time and taking care of 2 little ones will certainly add to your feeling so tired. I have been on Gleevec for a long time, but I still get the fatigue. Some days are better than others. I hope you can get a schedule where you can get some more rest when you need it. Glad you joined the group. You will get advice from a lot who will be going through or have gone through what you are. I think you will find it helpful and make many new friends. There is always someone to answer your questions, so just ask anything at anytime. A. > > Hello, I am new to the group and was wondering if anyone has any advice on fatigue? I am on 400mg of Gleevac daily. I am always exhausted, never feel like I sleep enough. I am not sure if there is anything I can do to help? I also work full-time and have 2 small children a 1 year old and 4 year old. I would like any advice, Thanks > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.