Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Hello, I was Dx with CML in May,08.I started on 400 Gleevec.Went to 600 Mg Gleevec as I didn't have good enough numbers for the DR.s liking.I had alot of side effects and eye swelling and some eye pain was just one issue.My levels were going the wrong direction and with all the side effects the DR and I decided to try Sprycel. I started Sprycel in August 09.I have no visible swelling of the eyes now but I have terrible eye pain.It gets worse the longer I am on Sprycel(100mg).I did see a Optho a couple months ago while I still had vision Insurance.The Optho said I had a stigmatism and some far sightedness but all else was fine.I got a pair of glasses for reading.I am diabetic and it is controlled but they did check for glucoma and dilated them and did the pressure test and everything..All seems ok.My eye pain is getting worse daily.I get occassional headaches.I had a brain MRI done and nothing was seen.I take Lasix to help with retention.I have gained 30 pounds since starting Sprycel and each day I see a gain on the scale despite dieting(I have a lapband over GAstric Bypass )So I have a very small stomach. Is eye PAIN normal with Sprycel? Why would it be getting worse daily? Any ideas what I can do?My CML DR.says it is from the Sprycel.Drops don't help at all.I get some relief if I keep my eyes closed but I can't get much done with my eyes closed all day.Norco and M.S Contin does nothing for the pain..I have seen 4 Drs and no one has a clue except blame Sprycel.Do I have to live with this pain?Any suggestions appreciated..Thanks in advance for any help.. SharonS Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.