Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Have anyone tried any non-conventional meds for nausea associated with the effects of chemo? Zofram does help but I was told that Marijuana pills would help more than anything. I need to know if it does work and if there are any adverse side effects. > > > > Hi Barbara, > > > > It is time for you or your doctor to consult with one of the CML > > specialists. Your doctor says that he does not believe in breaks from > > Gleevec. I really don't care about his beliefs are, but when it comes to > > treating CML there are situations where breaks are the proper treatment. The > > CML specialists have the experience and expertise to deal with your > > situation. It might even mean changing medication. > > > > Have the side effects diminished since you have stopped the Gleevec? I > > don't recall any studies that say that Gleevec causes more frequent > > infections. > > > > I would try and see Dr. Druker at OHSU. His philosophy is that a patient's > > quality of life is more important than a deeper level of remission with the > > drugs. > > > > Zavie > > > > > > Zavie (age 71) > > 67 Shoreham Avenue > > Ottawa, Canada, K2G 3X3 > > dxd AUG/99 > > INF OCT/99 to FEB/00, CHF > > No meds FEB/00 to JAN/01 > > Gleevec since MAR/27/01 (400 mg) > > CCR SEP/01. #102 in Zero Club > > 2.8 log reduction Sep/05 > > 3.0 log reduction Jan/06 > > 2.9 log reduction Feb/07 > > 3.6 log reduction Apr/08 > > 3.6 log reduction Sep/08 > > 3.7 log reduction Jan/09 > > 3.8 log reduction May/09 > > 3.8 log reduction Aug/09 > > e-mail: zmiller@ > > Tel: 613-726-1117 > > Fax: 613-482-4801 > > Cell: 613-282-0204 > > ID: zaviem > > > > _____ > > > > From: [mailto: ] On Behalf Of > > Barbara Hundley > > Sent: October 29, 2009 5:21 PM > > > > Subject: [ ] Gleevec side effects article > > > > > > Someone shared an article that talked about problems with developing > > diverticulosis and some type of hip joint deteriation. > > > > I have developed both in the last 4 months as well as having problems with > > liver, kidney function and digestive problems which put me in the hospital > > while visiting TX. My primary physician has taken me off my Gleevec in > > September as they say my system has become too toxic and needs a break. My > > cancer doctor always refers me to my primary to treat side effect problems, > > but does not believe in breaks from the meds. My wbc has been normal since > > 3 weeks after starting meds July 2006 and my last 3 PCR test have shown no > > detection of PH?? cells. My primary physician said at the rate I was going, > > the Gleevec was doing me more harm than benefit. > > > > I really think my diverticulosis and hip pain is a result of the Gleevec, > > but wanted to find the medical articles that addressed these 2 side effect > > issues. I have had more frequent infections in the past 12 months than ever > > and she really believes it is being caused by the Gleevec and I tend to > > agree because I know my body. We'll see what the colonyscopy shows and how > > my wbc reacts before I will consider going back on Gleevec. My blood count > > has been normal since stopping the Gleevec. I believe my quality of life is > > more important and I will have to be my own advocate. > > > > Anyone that can share the article to show the Doctors I would appreciate it. > > > > Take care and thanks for your help. > > > > Barbara Hundley > > Certified Senior Advisor > > Daily Money Manager > > Hundley & Associates, LLC > > dba My Personal Assistant > > Fayetteville, GA > > http://my-personal- <http://my-personal-assist.com> assist.com > > > > Quote Link to comment Share on other sites More sharing options...
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